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lorio

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Posts: 1
Reply with quote  #1 
Hi everyone.

I was in great despair not too long ago when the Emergency Room and ENT's I went to couldn't tell me what was wrong with me.

I couldn't sleep at night with pain and anxiety over this bizarre sensitivity to sound that had begun a year before, increased slowly and then exploded into nearly intolerable pain after oral surgery. (I know I was experiencing additional referred pain but that still didn't explain the ear pain, acute sensitivity to sound, etc. which I had before surgery and of course which remained afterwards.)

I spent hours searching the Internet trying to figure out what was wrong with me. And then I found this site.

Sigh of relief. I wasn't crazy.

I don't have the Dr. Mengele lightening stabs of pain like a metal letter opener rammed through my ear drum into my skull anymore, but I do have the unpredictable  sensitivity to sound that varies from day to day, sometimes hour to hour. Difficult to function, to plan a day. Some days isolation. Others okay.

Does anyone else find that when they speak sometimes, their ear drum VIBRATES so painfully that they can only continue speaking without pain by pressing a finger down on the ear drum to stop the vibration? If so, what the hell is that?

I have an appointment with one of the doctors listed as specializing in the treatment of hyperacusis listed in one of the Newcomer Messages so I'll check that out with her in a couple weeks.

In the meantime, I will continue reading the boards.

Thank you so much.

Lorio


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markbergemann

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Posts: 48
Reply with quote  #2 
Hi Lorio,  I look forward to hearing how your doctor visit goes.  I am so glad you are able to see a qualified TRT doctor.

My H has improved dramatically over the last 2 years, but it still affects my daily life.  I never had the vibration and pain you mention.  When my ears had too much, sound would become distorted and my ears felt mushy.  Those were the clues that I had pushed my hearing above its tolerance level, and that was not good.  My therapy has been to regularly expose myself to all sorts of sounds, up to my current tolerance level, but not to exceed it.  Also to not be angry at the sounds or the situation (happy thoughts).  This has helped me.

I have learned a lot from the posts of others, and I'm sure you will too.  While we all have some T/H similarities, we each have some unique experiences also.

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Mark Bergemann
The Hyperacusis Network saved my life (that's the way I see it)
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