The Hyperacusis Network Message Board
Sign up Latest Topics
 
 
 


Reply
  Author   Comment   Page 2 of 2      Prev   1   2
bartony

Registered:
Posts: 836
Reply with quote  #51 
Hi, John & Marilyn-

Sounds like, John, we have to hit a low before we can start back up the hill again.  That sounds right. 

That all makes sense, John & Marilyn.  I'm all for doing what I can.  I wish we had a TRT clinic here.  The nearest to me is in Dallas, 150 miles away at Callier's.  Anne Howell is the lady running that, top notch audiologist.  Again, no insurance or money, and distance.  I give these cd's a listen plus using the marsona at night, so maybe I'm staying ground level and not worsening.

Thanks, Marilyn, I want me better too.  If I can get these stapedious "jumps" to not bug me sometimes, which they don't very often, I'd feel good there.  The ENT said that Vit. D should really help that.  I tested slightly low on D at the g.p. office. 

Well, this post is kind of derailing.  I'm in a sad mood and crying some now about Barb.  I'll just leave it at this.

__________________
Tony


John 3:16-17
0
aQuieterBreeze

Registered:
Posts: 2,083
Reply with quote  #52 
Tony,

you said -
I guess one thing I keep forgetting that I went through at the onset of hyperacusis told me I wasn't a good candidate for going without protection.

What do you mean by that?

and you wondered-
why, despite fighting wearing ear protection, and going without plugs during hyperacusis onset, did I still get worse and worse?  I'm curious to know.

What you mentioned in another thread, made me wonder and ask a question that was left unanswered -
And that is how much time you really spend each day without using hearing protection? Or if it is just at night while sleeping?
(I asked in part .because the answer is important, to you, and for those who are trying to help)

To answer your question-
Using hearing protection too much in the past several years - has caused your hearing and ears to be more sensitive.....
people who use hearing protection all the time have said they can hear right through the earplugs.
That situation does not get better, that i am aware of - but I do think it can get worse.
That is why it is so important for people to not use hearing protection unless it is really necessary -
To gradually allow sound in that one IS able to tolerate, and keep working on that -
In my opinion - that does not mean to put up with sound that is TOO difficult....but to gradually improve what one IS able to tolerate....
By working on that in ways that are right and appropriate for one to do so ......
that is my view....
and though i never used hearing protection all the time, or considered the way i used it as over protection - thinking about it differently and working on improving my tolerances at the same time has been VERY helpful -
and as i work on what i am able to tolerate in the way of sound, i can tolerate more all the time.....

I also think if someone tries to block out all sound, (because their hearing and ears are so sensitive ) the main  sound they may notice is sound they wish was not there  -- and it is better to allow in sound, in the form of sound enrichment, that one is able to tolerate (like your marpac sound machine)
and work on improving what one is able to tolerate....

I agree with Dr. Nagler, Rob has kindly and patiently answered your questions for years.
It's kind of Rob and Dr. Nagler, and others,  to try to help........
But they can not take action for you.....you need to be the one who works in a positive direction -
to improve your tolerances to sound....
They have mentioned ways to go about it......


And about what you are going through at this time  - 
I like to think those we care about and have lost, that are no longer here, but that are forever part of us and close at heart - smile at things that make us happy -
and maybe what would make Barb smile the most would be for you to take good care of yourself.......
and that includes working on improving your tolerances to sound, in ways that are helpful and beneficial for you to do so .....

I know you miss her,
but there are some things we can not change, no matter how much we would like to - and other things we can.
And sometimes changing what we are able to - can make alot of difference in our lives......
0
Rob

Registered:
Posts: 4,049
Reply with quote  #53 

Tony writes – 

 

I guess one thing I keep forgetting that I went through at the onset of hyperacusis told me I wasn't a good candidate for going without protection.

 

Every hyperacusic is a “good candidate” for going without hearing protection.  It is an essential part of any desensitization program.  You are a better candidate than most for going without hearing protection.  That is because the symptoms you are having, that have such an impact on you, are by-products of your overuse of hearing protection. 

 

But when I was in the hospital with Barb, they would come in there at night, me in the other bed plugless, clatter rattle around, didn't do that to me.  I think I may have been getting a bit less sensitive just from that! ... I think it was helping the ears.

 

That’s right.

 

Rob

0
bartony

Registered:
Posts: 836
Reply with quote  #54 

I will discuss this with you on TSMB.  I am ceasing posting here.


__________________
Tony


John 3:16-17
0
aQuieterBreeze

Registered:
Posts: 2,083
Reply with quote  #55 
Tony,

In the photo you posted of your wife, her inner beauty and love shines - and i can only think she would want the best for you...
if something I said  upset you - or was taken the wrong way, I apologize for that.



Even If you do not want to answer the question I asked about how much (of the day) you wear hearing protection, it may be helpful for you to understand that the more you use it, (in environments in which it is not really necessary)
the harder it will likely be to go without it.
Others around here have found that out.....
That does not necessarily mean to just quit wearing it all at once,
but to gradually use it less, and reacclimate to sound, may be very helpful......

I think Marilyn has some excellent things to say in her post #49 in this thread,
and she expresses them very well.....
part of what she mentions is.....

A person who has been wearing ear plugs should SLOWLY wean themselves off, gradually desensitizing their ears.

Hope things get better for you, and wishing you peace,
aQB
0
bartony

Registered:
Posts: 836
Reply with quote  #56 

Thanks for a very sweet compliment about Barb, QB.  It wasn't you, QB.  You're very very nice. 

Glad to answer the question, just a lot on my plate now.

By mornings, I wear the muffs.  They are pretty worn and let in a lot of sound, while trimming the mid to high frequencies.  When I have to go out and run errands, I use the Mack's.  By night, I go back to the muffs til bedtime, have a TV blasting PLUS a police/fire scanner!  So, it's not like I'm in dead silence all the time.  At night at ear thumping time, I have the Marsona on plus hearing outside traffic and the climate system. 

Marilyn sure does say some great things.  I have re-read that one a lot. 

Thanks so much, QB.  Seems my grief has slipped back a notch.  Crying more lately again.


__________________
Tony


John 3:16-17
0
aQuieterBreeze

Registered:
Posts: 2,083
Reply with quote  #57 
Tony,

Everyone in this thread wants to help you.
If you have something negative to say about anyone here, I don't want to hear it.... some of these Kind people have spent countless hours trying to help you. And others as well.. Please keep that in mind when you get upset.
As far as a pm goes, I would prefer to keep any communication between us, on the board. Thank You.


Thank you for answering my question about how much you use hearing protection.
I think your answer says a lot.
I wonder if part of the difficulty you notice at night, is to have your ears open to sound- after having them plugged and muffed ALL day. makes even the sound at night more difficult?
Though others would know more about that than i would......
(That is not a suggestion to use hearing protection while you sleep though, but to use it less during the day.)

I wonder why you have the TV up so loud?
Maybe if you turned down the TV and the scanner you would not need the muffs?
Some will listen to a scanner like you mention out of habit -
I'd rather listen to something, or have something in the background - that is pleasing, and relaxing, soothing......

I had written something to someone else in response to stress-
which i know you must be going through -
this is part of what i wrote....
Quote:
I beleive that everything we see, hear, read, watch, and think about can have an effect on us-
so sometimes it can help to see what we are surrounding ourselves with - in the way of those things, and see if we can change something, to bring a more positive outlook or influence into our lives.


And i really think it's true- what we surround ourselves with has quite an influence on us-
whether we realize it or not.
It ALL gets in there, and influences our thoughts.....and how we feel,
and it can affect us in Many ways .......

I wonder what would happen if you set up something else to play in the background for a few days- instead of that scanner? Something like some pleasing music- that IS tolerable to you,
or one of the nature CDs, DrNagler kindly ordered for you, a couple years ago ..it seems you had said at least one of them sounded nice.....

To me, a scanner like you mention  would be a continual source of bad news...
likely with poor sound quality at that,
having it on in the  background would leave me depressed....and very likely upset as well.
But we are all different.
If I wanted voices in the background, I may opt for books on CD and listen to or leave something on that would be inspiring, .......Or maybe music .... with beautiful vocals and good lyrics.....
there are many choices we can make as far as what to have on for sound -
these challenges can be difficult enough, and  to find something tolerable, and pleasing and relaxing -----
can be wonderful.......and very helpful.

I started out with a nature CD......but most of the time these days, I leave music playing ...and it does sound - like Music to my ears

You said-
I go back to the muffs til bedtime, have a TV blasting PLUS a police/fire scanner!  So, it's not like I'm in dead silence all the time. 

Is there a reason you turn the TV up so loud?
0
bartony

Registered:
Posts: 836
Reply with quote  #58 



__________________
Tony


John 3:16-17
0
aQuieterBreeze

Registered:
Posts: 2,083
Reply with quote  #59 
Tony,
Your post seems to have changed quite a bit.
this is in reply to what you had written, before it was changed.
I spent quite a bit of time on my post to you.
But others have done that before too....
The private message you sent is being tossed- unread. I asked you to keep things on the board.
Sorry you feel the way you do.
We all have our stresses, and I think if you were to look around you may find that others have been through some very difficult times as well.

If you ever decide to read my post- you may or may not find it helpful.

And whether you do or not, maybe  someone else who happens across this thread will.

I do think your wife would probably be very happy if you were able to improve your tolerances to sound.

Wishing you peace,
aQB
0
bartony

Registered:
Posts: 836
Reply with quote  #60 
We all have our stresses, and I think if you were to look around you may find that others have been through some very difficult times as well.

I know.  I've been in a grief group for six weeks. 

Peace to you as well.

__________________
Tony


John 3:16-17
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.



This message board is for informational purposes only. It is not intended to substitute for any medical advice. MANDATORY BOARD ETIQUETTE: 1. No personal attacks. 2. No profanity or use of inappropriate usernames. 3. No self solicitation of goods or services. 4 No discriminatory remarks based on race, gender, or religion. 5. Prohibitive postings include the following: discussing or suggesting the intent to end one's life, moderating or actions made by the moderators, and/or revealing personal information (full names, address, phone number). Rule infraction may result in either a warning or ban, depending on the severity. Kindness matters.