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nycdoctor

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Posts: 23
Reply with quote  #1 
I am going crazy. It is just getting bad. This last 3 weeks my R ear has had 90% fullness constantly. I goes down, but as soon as I go to sleep and wake up...it goes up to 90%. I have seen 3 ENT doctors, tried steroids, Ginkgo biloba, Lemon Bioflavonoid. I have placed myself on a low salt diet. I am taking diuretic.

MRI is neg.
Blood test normal

I AM DYING HERE. I can't take this. Will this be forever?


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Rob

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Posts: 4,049
Reply with quote  #2 
nycdoctor -

I'm sorry you are having a tough time.  You are describing aural fullness.  This is a very common symptom for people with tinnitus and hyperacusis.  The symptom may have to do with the increased stress you feel.  Here is what you need to know.  Aural fullness will go away over time.  It is benign.  It isn't a sign of damage and you aren't going to feel it for the rest of your life.  I know it is bothersome and worrisome.  I had it too.  It will completely go away over time.

Rob 
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nycdoctor

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Reply with quote  #3 
Rob,
How long did you have it?
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Rob

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Reply with quote  #4 
I had it for several months when I first got hyperacusis - and then it completely went away and never came back. 

Rob
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nycdoctor

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Reply with quote  #5 
So you had the same thing i have right now. The fullness and tinnitus and the hyperacusis without veritgo....and if finally went away?
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Rob

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Reply with quote  #6 
I have tinnitus, but it no longer affects me.  It affected me a lot at first. 

I had hyperacusis and severe ear pain.  My loudness discomfort levels are now in the normal range and my ear pain is completely gone.  That didn't happen by itself.  I worked hard at therapy.  I don't have vertigo.

I had aural fullness for a few months.  It is completely gone.   

Rob
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nycdoctor

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Posts: 23
Reply with quote  #7 
Thank you for sharing....I feel less stress. I was thinking eventually i would have to get a endolymphatic shunt for my ear
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saab1216

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Posts: 400
Reply with quote  #8 
Nycdr...May I suggest that you use some form of relaxing sound therapy? Rob is correct .Aural fullness is very common with hyperacusis. I myself had it until I was completely rid of it in 2015. I found that using headphones with nature sounds...(I preferred rain and ocean),would clear up the plugged feeling and also treat the association of pain and tension.I also went to an audiologist and had a proper diagnosis with loudness discomfort testing.I was then put on a T.R.T treatment with wearable sound generators.This is probably the only way I see fit to cure hyperacusis and reduce tinnitus. Drugs were never an option for me as they usually worsen things when trying to wean off. I've seen plenty of cases here. Best to you. Paul
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nycdoctor

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Reply with quote  #9 
What is  T.R.T treatment 
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saab1216

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Posts: 400
Reply with quote  #10 
Nycdr....TRT is Tinnitus retraining therapy. It is used to treat tinnitus and more importantly, hyperacusis. Through use of broadband sound,the mind is retrained to eliminate the symptoms of hyperacusis. I still am not clear on your symptoms. Please explain to me if you have difficulty with loud sounds.
Please do not waste time with E.N.T. Dr's. They are limited in knowledge of hyperacusis,in my experience. You need a TRT trained audiologist. First and foremost, to rule out all possible causes of your condition.There are many causes of hyperacusis. Mine was sound induced. There is hope but,it comes with expense and time! It is all worth it to get your life back.best to you.

Paul
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anniekin

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Posts: 105
Reply with quote  #11 
nycDr

You might have better luck with oto-neurologists/neurotologists than with regular ENT's. MIGHT. In my experience they are much more likely to know about hyperacusis. Even so, audiologists are the one who help you manage and treat it, and not all of them either. You have to ask for someone who specifically has training about hyperacusis. 
Best of luck to you
Annie
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Aplomado

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Posts: 711
Reply with quote  #12 
nycdoctor, you are getting some good advice.  You didn't say if you have hyperacusis or not.  Hyperacusis does cause ear fullness.  Hyperacusis can be treated with sound therapy (at least for most people).  Some audiologist are trained in TRT (tinnitus retraining therapy) which can be used for hyperacusis.  The main website gives a lot of information about it.
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