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T_mY

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Hi everybody,  

I will introduce myself. I am Tim 28 years old and I come from the Netherlands. I have had tinnitus & hyperacusis since 2017 but I also think it is called dysacusis.  

I can find little information about dysacusius on the internet or in general and I hope that here is someone who can tell more about it or talk about it from experience. This is what she said about it, see below.  


'A variant of hyperacusis. Dysacusis is a hearing disturbance characterized by sound distortion. Frequencies and / or intensity can be perceived differently than normal, making noise irritating or unbearable. Pain and pressure from sound can also occur, as well as sensations from echoes. Hyperacusis and dysacusis can sometimes exist simultaneously '  


How I experience it ...

  • -You always hear 2 sounds in 1 present sound source.
  • The sound is a buzzing sound with echo frequency that dominates the original sound source no matter what it is or how loud it is. 
  • Masking sounds are therefore not useful or even irritating because they are dominated by an additional buzzing sound that resembles an echo.
  • Does it look like this example, it actually sounds like a mosquito flies back and forth past your head so that it sounds from loud to soft. If you put a sound source on, for example, White noise, the mosquito also buzzes harder and it dominates it.
  • Every sound is distorted regardless of what it is, such as the kettle, the gas stove that I switch on, water from the tap, fridges, even when I heard my girlfriend breathe next to me I heard an echo tone / distortion.
  • -Sound from outside to inside, for example in a house or sitting in a car, it seems as if the outside sounds are dropped and distorted and in buzzing / echoing sound.
  • earplugs makes no sense then the original sound source disappears and the annoying buzzing / echo sound remains and you hear it even louder.
  • Seated in a silence cabin half a year ago, I only heard my tinnitus! much louder but discovered that I do not experience any distortion in a quiet room.
  • Each room I hear an echo / buzzing distortion of sounds that come from outside in to the one room just a little more or les



Is Dysacuis a kind of filtering problem of sounds?
Would this cause damage to the inner ear that distorts everything? Or is it something from the brain, do you sound with your brain listening and the ears just pass it on ..?

I hope someone can tell me more about Dysacusis. Specialists always talk about my tinnitus, but that's not my problem! (Although that is not nice either). It is more the distortions that ruined my life!

Hoping to hear from you people.

Greetingss

P.S. 
sorry for my spelling i will do my best[wink]

 

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cozo

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Reply with quote  #2 
Hi there I have both T and H but never heard of Dysacusis . White noise generators work great for me
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Queenmacha

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Reply with quote  #3 
Hi,  Strange that you should post this article now.  The reason I say that is, I've had Meniere's Syndrome since 1985 along with Tinnitus and an ever decreasing  hearing loss, then in 1999, Hyperacusis started and since that my hearing loss has got worse to the point where I am practically Deaf, I have 10% in my right ear and zero in left ear.  And within this past 3 to 4 months, I noticed a faint echo,  from other peoples speech even though I cannot make out or hear them.  It's so weird. My isolation from people around me is almost complete, and I have to face facts, and get on with it in whatever way I can
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joe mc gahan
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T_mY

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Reply with quote  #4 

@coz
Most people have never heard of the term 'dysacusis'. This is precisely the problem masking sounds with white noise machines is more annoying due to the distortions and echoes than it is relaxing. I myself had the Marpac white noisemachine but this didn't work for me, luckily it did for you!


@Queenmacha how annoying to hear that it went that way!
How do you think the echoes only started recently? Do you only have that echo with a certain type of sound such as with people's voices or with other sound sources? As you say becoming increasingly isolated towards your fellow people, this is also the case with me, this is very annoying. I can see for myself that I find the echo experiences the worst, let's hope it ever goes away.

For me it did occur at the same time as my hyperacusis and tinnitus, but the echoes and distortions have become worse. I have no hearing loss or hearing damage according to the audiologist, and I also passed the LDL test with complete surprise. And despite this, I experience heavy complaints from my hyperacusis / dysacusis. My audiologist says it's a brain problem, but I still think it's caused by noise trauma due to too many loud noises in the past.

Still I feel like I can only get rest when it is quiet or only hears a monotonous sound and since both of these are no longer possible, I am exhausted, which means I have been burned out for a long time. 

Do people perhaps know when the hyperacusis disappears due to pink noise therapy(TRT) that the distortions / echoes also go away?
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Cathu

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Reply with quote  #5 
Hi Coz
I haven;t heard of Dyacusis  but it sounds very much like what I have. Everything is really distorted and echo y. It s very strange.  I feel the vibration of a constant rumble 
I am up to my 4 th ENT, with a 3 hour bus trip. 
I hope you are on the improve.  Do you find anything helps.  With diet or medications? I will research Dyacusis.    Thanks for the info,
Cheers
CATH  DownUnder




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Cathu

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Reply with quote  #6 
Quote:
Originally Posted by Cathu
Hi T_my  and  everybody!!
I haven;t heard of Dyacusis  but it sounds very much like what I have. Everything is really distorted and echo y. It s very strange.  I feel the vibration of a constant rumble 
I am up to my 4 th ENT, with a 3 hour bus trip. 
I hope you are on the improve.  Do you find anything helps.  With diet or medications? I will research Dyacusis.    Thanks for the info,
Cheers
CATH  DownUnder




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Queenmacha

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Reply with quote  #7 
Yes, Cathu, I can identify very much what you describe, rumbling roll of deep seated thunder, and echo's of sound, especially low "growl". People have told me how to get rid of Hyperacusis is to climatise yourself and that would be that. I find, that it is not so simple as that, as I experience a whole plethora of different sounds which trigger Hyperacusis, and not a day goes by, but I find yet another sound which triggers Hyperacusis. At times I feel overwhelmed and all sorts of things come into my head, but in life you have to play the "hand you're dealt
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joe mc gahan
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Cathu

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Reply with quote  #8 
Quote:
Originally Posted by Queenmacha
Yes, Cathu, I can identify very much what you describe, rumbling roll of deep seated thunder, and echo's of sound, especially low "growl". People have told me how to get rid of Hyperacusis is to climatise yourself and that would be that. I find, that it is not so simple as that, as I experience a whole plethora of different sounds which trigger Hyperacusis, and not a day goes by, but I find yet another sound which triggers Hyperacusis. At times I feel overwhelmed and all sorts of things come into my head, but in life you have to play the "hand you're dealt



Hi Joe
There  sure are some  wild sounds  about.  I have supersonic hearing, which is great when in the bush, listening to the birds,  my favourite one is the Bower bird, they made a song like a bomb falling through the air. 
Easy for  other s   to say how to get rid of the Hyperacusis.  Yesterday was walking and on the other side of the road a car alarm went off.Thank goodness I had my ear plug s in..  What are the chances of  a car alarm. quiet street, no cars for 10- minutes at times.
Have you found anything  that has helped?  How did your s start?
Mine started with micro suction 18 .12  Last year. 
How  do you go with  the TV?  I rely on sub titles. an if the show doesn't have them  I turn over and look for something else at night.
I hope you get some relief soon  and let me know  what help s you.
Cheers
CATH


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Queenmacha

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Reply with quote  #9 
Hi Cath,  my hearing problems started in 1985 when I had my first bout of Meniere's Syndrome which included Hearing Loss, and Tinnitus.  In 1985 my hearing was minus 10%, since that Tinnitus and Hearing Loss has just got on a progressive downturn to where it is minus 90%, and the Tinnitus is now in both ears and sometimes it really screeches.  As for T V, well I'm at my wit's end trying to cope.  I have thje sub titles  on all the time, but I'm driven silly when just as the presenter is telling of an important piece of news, the S/T stop dead and don't resume until they are on a new subject.  Also  the S/T's interfere when a sports programme is on and you cannot see part of the playing pitch.  Wer got a new Smart T V recently, but there are no S/T's on it, despite all the info saying that the S/T's are on.  Thanks for your reply as it is really good to hear from fellow sufferers.  I see where you mentioned Australia, what part of Au are in,  we have a Son in Melbourne since 2003 and he is now married to a Girl from Adelaide, whom he met in 2001 in Bristol england, (she and her Sister were Backpacking in Europe, England and Ireland)
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joe mc gahan
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Cathu

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Reply with quote  #10 
Hi Cath,  my hearing problems started in 1985 when I had my first bout of Meniere's Syndrome which included Hearing Loss, and Tinnitus.  In 1985 my hearing was minus 10%, since that Tinnitus and Hearing Loss has just got on a progressive downturn to where it is minus 90%, and the Tinnitus is now in both ears and sometimes it really screeches.  As for T V, well I'm at my wit's end trying to cope.  I have thje sub titles  on all the time, but I'm driven silly when just as the presenter is telling of an important piece of news, the S/T stop dead and don't resume until they are on a new subject.  Also  the S/T's interfere when a sports programme is on and you cannot see part of the playing pitch.  Wer got a new Smart T V recently, but there are no S/T's on it, despite all the info saying that the S/T's are on.  Thanks for your reply as it is really good to hear from fellow sufferers.  I see where you mentioned Australia, what part of Au are in,  we have a Son in Melbourne since 2003 and he is now married to a Girl from Adelaide, whom he met in 2001 in Bristol england, (she and her Sister were Backpacking in Europe, England and Ireland)[/QUO
Hi Joe
You have been through a huge lot with your tinnitus and hyperacusis. This is third time to try to reply. Hope this works and a longer one tomorrow. Fingers crossed!
Hi  Joe
Sorry about the short reply last night.  I was just that  little bit further away from the modem and it had trouble connecting.
You should have been through the mill.  And one good thing you are still here.  Sometimes I think life won;t be too long with this awful noise...but you have been through so much more than me and  that s alot of pain and suffering.  You are made of strong stuff!
I just got a call from my 4th ENT receptionist . The first appoint.they had was 6 Dec,same say as my niece s wedding in Adelaide.....That s a co incidence! Let s see what he says. Will still go back to  my 3 rd ENT who  tells me to enjoy life and take drugs.....
Last night on the ABC tv here Gruen has started. Popular show about advertisers. Live Audience. There was a tech. glitch and the Audi didn;t match up with the visual.  I didn;t watch it but it must have been very confusing for people with good hearing, let alone people like us who have a hard time anyways.

How does your Son and his Wife enjoy Melbourne? Do they follow the AFL?.. The  Grand final game this Saturday.

Maybe there s something in setting s that might start the Sub titles..have you tried You tube?

Have been  prescribed  45 mg Mirtazpine... Just reading the side effects scares me x100.
I would give anything never to have gone to that doctor last December..   Have you ever had your ears micro suctioned?





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DanMalcore

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Dan
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Reply with quote  #11 
The terms hyperacusis and dysacusis should not be used simultaneously suggesting they are the same. 

Hyperacusis / Dysacusis definitions

Margaret Jastreboff, PhD.  Terms such as 'oversensitive hearing,' 'hyperacusis,' 'phonophobia,' 'recruitment,' 'dysacusis,' and 'auditory hyperesthesia,' were used interchangeably (and incorrectly) to describe decreased sound tolerance, and discomfort or pain in the ears, associated with sound exposure.  Hyperacusis can be defined as an abnormally strong reaction to sound occurring within the auditory pathways. At the behavioral level, it is manifested by a patient experiencing physical discomfort as a result of exposure to sound (quiet, medium or loud). The same sound would not evoke a similar reaction in an average listener. The strength of the reaction is controlled by the physical characteristics of the sound, e.g., its spectrum and intensity.

Neil Bauman, Ph.D. “Dys” is from the Greek meaning “bad” or “difficult”. Thus dys-acusis is technically difficulty hearing. In medical usage it is defined as any impairment of hearing involving difficulty in processing details of sound as opposed to any loss of sensitivity to sound. Pain or discomfort in the ear from exposure to sound.  Thus dysacusis is sometimes used when you can hear, but not understand what you are hearing. Other times it can refer to the pain or blocked feeling you have after exposing your ears to loud sounds.

[wave]Dan





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T_mY

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Reply with quote  #12 
Here a late response, I try to follow your stories a little but I still find it quite difficult to understand but I do my best.

Fortunately I am not the only one with this annoying problem. Is it really a problem? The specialists here say that it is a symptom and not a disease, yet it does not feel that way in difficult times.

It is as you say it @Queenmacha, that some people can say that you have to adapt to the hyperacusis and that it will get better. I notice that this is very difficult with all the sounds coming at you.

@Cathu how annoying that you are also bothered by this, I have been interested in reading your story. What has happened with the prescribed '45 mg Mirtazpine '? I am very curious about this, have you found any improvement in terms of complaints?

I have not yet taken any medication so I know little about this. There are stories here that while using antidepressants for neurological purposes, the hyperacusis is almost no longer present or is greatly reduced. I notice myself when I have a period when things are going a bit better and the stress level is low that the hyperacusis is less annoying and the sounds are a little less irritating or hurting. It is therefore also linked to each other when it comes to mental overload. But unfortunately I continue to hear those echo / distortions in all sounds.

Hi @DanMalcore
Thank you for your explanation, interesting. I also thought that hyperacusis does NOT have to be the same as dysacusis. So if I understand correctly, can you also have disturbances or echoes of sounds without having hyperacusis? Unfortunately this is not the case with me.

I do notice that my hyperacusis does vary per period, but that is perhaps because it is observed from the brain, due to stress levels and / or a too low serotine level of the neurotransmitter.

And so dysacusis is a hearing damage in the ear itself? So what will actually never change again?



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