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amelia6

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Posts: 42
Reply with quote  #1 
I go back to school on Monday and I feel so anxious and scared about it. The thought of corridors, lessons and general noise of 1000 other pupils makes me feel so sick, I feel very alone right now
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clairsey40

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Posts: 24
Reply with quote  #2 
Hi Amelia

I think until you get something sorted with school you are going to be more anxious about it. You need some sort of plan to make things easier for you in that environment, a quieter place to study etc, teachers who are informed of your problem.  This will reassure you that you are not alone with your problem at school.  It may be that you need to protect your ears at certain times like when you change classes as that's obviously going to be worse than class time as well as dinner breaks etc.  Normal noise will not damage your ears but obviously makes them sore.  Have you spoken to anyone in authority about your problem yet?  The more people you get on side the better.  When's your ENT appointment?

Claire

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Clairsey
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olms

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Posts: 321
Reply with quote  #3 
Amelia6:

I'm glad you wrote back to let us know how you are doing.

I would consider staying at home, and having them send your homework assignments to your house.

My wife was a school teacher, and she would prepare homework to be sent to the homes of students who had prolonged illnesses. You said in England that dosen't fly, staying at home for more than a few days.

Well, I would challenge that. I would say until they get you a quiet classroom, where you don't have to walk the halls or go into the noisy lunch room, you're going to stay at home and they can send you your homework.

In some ways of speaking, they can't actually, physically make you go to school. They can't actually come into your house and get you. Tell them you are working on your note from your ear doctor about your hyperacusis problem, are they working on your classroom for you?

Why do you have to do all the work and they don't have to do anything? Because...well, they don't actually have a reason.

Your mother needs to get involved. She needs to, like, stand at the door and not let them come in? Or, you could just not answer the door, they can't break in. It will take them months to get it all worked out in court, and meanwhile, they could be sending you your homework and getting your classroom ready, and you will have had time to visit you ear doctor and have written proof that you have h.

Tell your ear doctor that you need the written statement from this doctor verifying your hyperacusis right now, based on your earlier visits. Your mother can pick up the note from his office, or it can be e-mailed or mailed.

Just stay at home until the note arrives, then have your mother take the note to school and find what they're going to do about all of this. This is a battle of wills. I hope you and your mother have one.

Your mother needs to visit the school and inform them of what's going on and get their response.

Maybe they would let you take your school work in the school library, until this can be worked out.

You've got a lot of people pulling for you. I hope one of them is your mother.

                Tom
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amelia6

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Posts: 42
Reply with quote  #4 
thank you Claire
I'm so happy I found this website, I feel supported in a weird sort of way- and also learn from it
I think I will try and wear some ear protection tomorrow at certain times just to feel more relaxed!
my ear appointment is in 15 days!!
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amelia6

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Posts: 42
Reply with quote  #5 
thank you olms
I don't want to risk doing something like that- the school will fine us money and I'm not completely happy with it but I completely agree with the idea and point of what you're saying!
the thing about not being at school is how much added stress I get from this, as I would miss out on learning.
plus,course work is not allowed to be completed at home (it's basically an exam but over a few weeks worth of lessons for certain subjects, which counts towards our final grade)
I really hope my mum will fight with me too!
I've always thought it would be amazing to keep in contact with someone who had hypercausis-and now there's tonnes I can contact and I feel so lucky
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Avidreader55

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Posts: 4
Reply with quote  #6 
Hi 
I just want to let you know, I know how you feel, I have had some kind of sound sensitivity since I was 16.

When you go to the ENT, don't settle for them telling you to live with it. In my experience the NHS (depending on the area) can be a bit reluctant to treat people with hyperacusis but if you go in and tell them that there is treatment available then they are more likely to help you. Try looking at what the NHS choices website says about hyperacusis as that might give you an idea what treatment the ENT should do. 

As for what to do at school, the previous posters have covered everything I can think of. Make sure that your teachers know of your issue and understand that it is a real problem for you. Ask if they can find a way for you to work somewhere quiet. If they won't help accommodate you, tell them that it could damage your grades because you are unable to concentrate.
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clairsey40

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Posts: 24
Reply with quote  #7 
Hi Amelia

You could also take a copy of the book "Living with Tinnitus and Hyperacusis" into school with you and ask the teachers to take a look at it highlighting anything you would like them to know.  It's so important that they understand how hard this is for you.

I am going to see a doctor on the NHS at the The Royal Ear Nose and Throat hospital and so I'm sure you could get your doctor to refer you to them to.  The waiting list wasnt that long and I made my appointment last week for January 2nd.  

How have you been at school this week?

Hugs
Claire



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Clairsey
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amelia6

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Posts: 42
Reply with quote  #8 
I know what you mean about the NHS, my doctor tried to turn around my hyperacusis to be 'problems at home'?!?! he was more like a random counsellor- I had no hope with him so I won't leave until he has helped, thank you for making me feel more confident in that
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amelia6

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Posts: 42
Reply with quote  #9 
that's a good idea, we have brought some NHS information to teacher but some of them hardly glanced at it- I'm having a meeting with a teacher in my school soon with my mum, after my ENT appointment! We will be talking about exams and where I can be for lessons and take exams (I also get horrendous havfeaver for about 7 months of the year and got 3 nosebleeds in my last exam...)
school has been okay so far thank you, very very loud though and I always look forward to getting home to silence (plus buzzing in my ears) but near enough silence!
I hope your appointment goes well in January! x
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pmn100

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Posts: 79
Reply with quote  #10 
I've recently got combination devices on the nhs (wngs with hearing aid as I have hearing loss) from my local hospital ENT department.  I was originally just given hearing aids about 18 months ago to try to combat my tinnitus and sensitivity but without success.  These combination devices have worked well so far, already progressed to the loudest pink noise setting and its only been a month of use.

I was also given the choice to go to London ear nose and throat center as I mentioned them at a recent appointment.  From what was explained to me, they have very good counsellors there, but the physical tests are the same as your local hospital.

If going this route, which obviously saves a lot of money, make sure you explain what impact it has on your life.  If you make light of your situation, they may prefer to save money and not give you the wngs.  I only wish I knew earlier that these devices were available on the nhs, I would have pushed for them a lot sooner.
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