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ArtIrish

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Reply with quote  #1 
I get emails from a tinnitus group that meets in New Jersey.  It is a bit far for me, but I am going to try to get someone in this area who may be going to see Dr. Stephen Nagler at this church.

It is the First Presbyterian Church of Ewing  l00 Scotch Road   Ewing NJ 08628.  He will be here on Saturday April 26th, most likely in the morning (they have not given out the times as of yet).  It might be a challenge to be in a group of people to begin with, as the sounds of a crowd can be tough to deal with, but it would be fascinating to 'hear' him speak.  Would love to hear from anyone else in this area who might be going, maybe car pool?

I met another sufferer of hyper/tinnitus (I have both) in person at my audiologists office recently.  It was great to meet someone else in person whose life has been turned inside out by this, and she has a child, which makes it even harder for her to deal with, and a dog.  We spoke mostly in whispers, of course, but it would be great to meet others also effected by this. 

I have improved, come up from the depths of the worst of this thing.  The hardest thing for me right now is the attitude of doctors and people who know nothing about this, who cannot even imagine what this does to you, and I hope to finish my blog about this illness so that others may be more informed.  The whine of my laptop after some time on it is one of the worst sounds. 

I see a new ENT doc next week and hope she can provide some answers.  Hope you are all well and coping.  Miss this group!

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IrishArtist
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saab1216

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Reply with quote  #2 
Just 2 hours from me. I might attend. How long will he be speaking? Thanks for sharing. I am also visiting another ENT dr. next week. My audiologist said she could no longer do anything for me.(and she "specializes" in TRT). Erin Walborn  audiological solutions.
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ArtIrish

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Reply with quote  #3 
I gather Dr. Nagler is a controversial figure in the community.  It would still be interesting to hear him.
Paul, good to hear from you.  You gave me much support and hope at the very beginning of this thing, which has been so devastating.  I have other issues, such as frequent ocular migraines, dizziness, strange things.  I actually was falling easily and in spring apparently put a tear in my rotater cuff.  Lots of effects from 2 years of what I call 'exploded' ears.  Happy I now have health insurance to pursue more options etc.

Maybe Rob, John etc. could tell me where Dr N stands in the community these days.

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saab1216

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Reply with quote  #4 
Hopefully , with enough arriving support from we," the sufferers," Dr, Nagler will be a highly respected figure.It would be a little challenging for me to drive 2 hours away as well as many but,by then,I may be in good form again after my latest setback.
Yes, Irish, its easy to count the days, months and years with hyperacusis. I counted almost 2 good years with minimal issues.Now its back to the constant migraines and scalp pain too.I listen to a, great deal of music with moments of loud challenges to my ears.Im trying to defeat the fear factor in this thing as I believe, it spurns it more.Today, I can actually listen to the television without ear pain, just some irritation.
Be patient, it takes a long time of commitment and once you arrive, you must remember not to do all "normal events" like I believe I overdid. Staying mentally strong and physically fit helps too.All the best to you Irish. PAUL
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DanMalcore

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Dan
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Reply with quote  #5 
Dr. Nagler would be well worth your time.  If I lived in the area I most certainly would attend.  He is a prominent voice in the tinnitus community and has helped many individuals suffering with hyperacusis.  Stephen has tinnitus so he not only walks the walk but is very qualified to talk the talk.  His approach is very straightforward and he can de-myth many of the misconceptions that abound in the world of tinnitus and hyperacusis. He recently established Atlanta Tinnitus Consultants.  This is his website:

http://www.atlantatinnitus.com/dr-stephen-nagler.php

If you attend, please give us your report.  Yes.....be our reporter!

[wave]Dan


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saab1216

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Reply with quote  #6 
Thanks Dan, its always a pleasure to see you.I would love to hear about the myths of hyperacusis. It would definitely be of healing to me.I feel somewhat trapped by what I can and cannot do at this point. My audiologist dropped me flat too. Its time to listen to a real expert although ,I hope its not all about tinnitus. Tinnitus is the least problem for me right now.Its really diminished.
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