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earswillheal

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Posts: 1
Reply with quote  #1 

Hello everyone!
This site has so much wonderful information, I am so glad it exists.

My daughter was just diagnosed with hyperacusis yesterday.  Her story is kind of odd.  We were sitting in a parked car 2 days previously and it was struck by lightning.  The sound was incredible. 

Right after, our ears were plugged, but no big deal, and everything else was fine.  When the plugged up feeling dissipated though, the sensitivity started for my daughter.  (Mine was slight and I am doing quite good.)

We were lucky and able to see an ENT two days after the event happened.  Her hearing is great, better than normal.  But her sensitivity is a mess.  I think they were going to test it, but she was so hypersensitive and the event was so fresh that they stopped.  (So if she has an LDL number, I have no idea what it is.)

The ENT thinks this will resolve with time and he gave her some steroids in hopes that it will bring down any residual inflammation in her inner ear (she was also just getting over strep too and was congested when all this happened. That might also be why she was affected so much more than I was, who knows.)  He said if it does not, we will start retraining therapy.

However, my daughter leaves for college in less than two weeks, and isn't showing much improvement (it has only been three days).  I want her to be able to leave for school with confidence, but right now, she is just hating all noise.

She is using earplugs at times just to get through and I have ordered a pink noise machine for her.  (Trying to keep the noise kinda low while she 'heals' the first couple of weeks.  But as I said, ear plugs are just used to get by.  At home, we all talk and such and she functions without the ear plugs.  Loud restaurants is where she really needs them.)

Does anyone have any suggestions?  I know this process cannot necessarily be rushed, but I am trying to think of anything that might help, and definitely I don't want to do anything inadvertently that will make her worse. 

Also, she is heading to college in Baltimore, is there a specialist there she could possibly work with that anyone knows of?

Thank you so much for reading!!

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briann

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Posts: 141
Reply with quote  #2 
I was so sorry to read this about your daughter. Such bad timing. Although quick healing did not happen for me it is still early and it is possible there is some different mechanism at play for your daughter and I hope for that. Her sensitivity seems similar to if not a bit better than how I was when I first got hyperacusis. I remember waking up every day hoping it had healed and being so disappointed when I realized that it hadn't. Although I don't know how common my experience is, I was able to make a nearly full recovery. But it does take a long time to recover in most cases. She'll need to be careful not expose herself to too much noise just because her friends may be doing something (e.g. Movie, concert, party with band). When it first occurred for me, I was 25 and was still wanting to go out to parties to hang out with friends. I would need to wear earplugs through them and feel uncomfortable about it and the questions that came with it. Gradually, I would need them less and less but I would always be weary of any speaker or loud music playing and would have to hustle to safety. By the time I was 28, i really didn't notice loud noise anymore. I would be consciously putting in earplugs at concerts rather than defensively doing so.

You may be looking for tips to just speed this along and that is normal, especially at such an early stage.  I unfortunately don't have many but many people on this forum have more experience than me with challenging hyperacusis cases and improving the condition. I would just keep in mind that if this does end up taking a long time, she'll need to adjust her lifestyle and be patient. That is a difficult learning process for anyone. Having to sacrifice enjoyable things and answer questions from friends and strangers about why you can't attend an event or why you are wearing earplugs is not easy. But from my experience, friends and family quickly adjust and can be more understanding than you'd expect. Just make sure whatever she does, she does not push it if she feels her ears are vulnerable or sore. Refraining from using earplugs when your ears are sore at a party because you don't want that cute guy to think you're weird or not telling a person that you need to step away if your ears are acting up is a bad idea that could result in losing progress. 

I believe most of the people on this forum are here because the are dealing with Hyperacusis today and those that are cured will not post (except for those truly kind individuals who go out of their way). I am back here only because I exposed myself to the same issue that got me here in the first place. Had I stayed away from that and been more careful, I don't see any reason why my H would have come back. So be patient, and at a point where she does recover, make sure she never forgets that she is vulnerable to "setbacks" and that she should always keep ear plugs with her just in case.

Take care,
-Brian
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Aplomado

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Posts: 711
Reply with quote  #3 

Please take your daughter to an audiologist that does tinnitus retraining therapy.  There is no point waiting hoping things will get better on their own.  It is helpful for most people.  My audiologist said her average patient took about 6 months to finish therapy. (I did the first time- and then I had a relapse.  That is what I am working on now).

She will need to go easy on her ears at first, but will probably need treatment.

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AnthonyO

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Posts: 107
Reply with quote  #4 
God bless you "earswillheal', all I can say is that you have her visit an audiologist fully trained with a the TRT Programs AND has a compassionate, understanding and 'long-suffering' heart.  That will make ALL the difference. I've had Hyperacusis since Nov last year and am still dealing with it. A recent stay at a very loud a hospital, just flarred things up for me. I am continuing with TRT. It as probably good that she went though a round of steriods, many say that helps if done so in the first few days.  I'll pray for your daughter.  Yes, TRT, loving support from you, her mother will help greatly, but God is the great healer, and ultimately His intervention will be the lasting miracle for you & her. Call me a Christian-faith nut...but this is what I believe. We must put ourselves into action...and have faith.

AnthonyO
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