The Hyperacusis Network Message Board
Sign up Latest Topics
 
 
 


Reply
  Author   Comment  
yoyomama

Registered:
Posts: 5
Reply with quote  #1 
Has anyone with H ever gotten a cochlear implant? Or know if such a mechanism would work to derail hyperacusis given its a different pathway to the auditory nerve?
0
sheep

Registered:
Posts: 9
Reply with quote  #2 
Hi yoyomama.  I am currently on a four month waiting list for a cochlear implant, one side only.  But I have very bad hyperacusis and when I had the decision making meeting with the probable surgeon and team, I asked whether or not the implant would reduce the hyperacusis.  The answer was yes, it was likely to have at least some impact on the problem, but of course, only on one side as clearly the other ear will still be in its natural state. This will create something of an imbalance and I can only hope my brain will adjust to this over time.   So all I have been able to gather is that it is a bit of a gamble to a certain extent.   I am in England by the way and I don't know how the system works in the States, but I suspect American citizens have to pay for such surgery.  Very, very expensive I have no doubt.  I am fortunate in that my operation will be paid for by the National Health Service.  I understand that privately, a single sided op costs between £38K and £45K!   I hope this information helps a little bit!
__________________
Lorraine shearing
0
Aplomado

Registered:
Posts: 695
Reply with quote  #3 
Please let us know how the surgury goes.
0
sheep

Registered:
Posts: 9
Reply with quote  #4 
Hi there.  I promised I would let you know how my cochlear implant surgery went.  It was done only four weeks ago but my 'switch on' was this week on Thursday so I have been using the processor/implant for the past three days.  It is too soon to say whether my hyperacusis is in any way changed but it is very early days.  It can take some months for the brain to re-learn to accept the electronically generated sounds rather than natural sound via the natural cochlear.  However, the technician I saw who carried out the mapping and then the switch on of the unit was very surprised when I hear words immediately.  This is not always the case with quite a lot of people evidently.
I did notice this morning when putting the washing machine on - the noise of which makes me leave the room immediately when it goes into spin mode! - the impact wasn't quite as bad as usual and I did have the unit switched on.  But early days.  The kettle which I cannot cope with at all even with my fingers stuffed in my ears was just as bad this morning with the unit on!  We'll see but I will let you know how things are progressing.  Best wishes to you and also can I say how very sorry I am that America has been hit so desperately hard by the Virus.  It has been terrible here too but not anything like the scale of suffering that there has been with you. 

__________________
Lorraine shearing
0
yoyomama

Registered:
Posts: 5
Reply with quote  #5 
Sheep - this is seriously one of the kindest things anyone has ever done. Keeping your promise and keeping myself and anyone watching updated means more to any of us than you even know, Thank you! It’s so interesting to see how the implant could help, even if it’s just specific frequencies. I do know that everyone’s Hyperacusis is a little bit different from everyone else’s, so i’m more than intrigued to hear how the plants develop for yourself! We all here hope and believe you’ll get better and we’re all rooting for you! As for my country the people running it are completely different from the majority of people. It’s really unfortunate as i was planning to come to the UK later in march [frown] - but if there’s anything H has taught me is what’s really important vs what’s not- and the illness has brought me
really close with my family which never would have happened till my parents died if i never contracted H. Please keep us all posted, we hope to hear from you soon!!
0
sheep

Registered:
Posts: 9
Reply with quote  #6 
Thank you Yoyomana for your lovely message!  Much appreciated.  Will keep in touch as promised!  Best wishes
__________________
Lorraine shearing
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.



This message board is for informational purposes only. It is not intended to substitute for any medical advice. MANDATORY BOARD ETIQUETTE: 1. No personal attacks. 2. No profanity or use of inappropriate usernames. 3. No self solicitation of goods or services. 4 No discriminatory remarks based on race, gender, or religion. 5. Prohibitive postings include the following: discussing or suggesting the intent to end one's life, moderating or actions made by the moderators, and/or revealing personal information (full names, address, phone number). Rule infraction may result in either a warning or ban, depending on the severity. Kindness matters.