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Nerdvegas

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Posts: 2
Reply with quote  #1 
Just wanted to share my story, maybe others are going through similar.

About 1.5 years ago I woke one morning to my left ear distorting loudly at any noise. It would disappear through the day and reappear the next morning. It went away after a few months.

Fast forward over a year, I had gotten complacent and went to a concert. I forgot to wear my earplugs for perhaps 15 minutes and was standing near one of the speakers. Over the following few months the symptoms returned. Often just clicking, but when it gets worse, it's a crackling bought on by almost any noise.

Just last night the symptoms have come back with a vengeance - instead of a crackling I have a full blown, loud buzzing bought on by almost any noise, even turning my head on the pillow. I don't know why it's happened now, there's nothing specific I can point to that might have contributed. In the past I have been able to connect going to loud places, or drinking a lot, to a further relapse... But this time nothing. Which makes it all that much scarier.

I'm hoping like hell this is indeed some myoclonus problem such as tensor tympani, at least then there's a chance of fixing it. I would not be at all adverse to getting the tendon cutting surgery I've heard about, although it sounds hard to find an ENT who will do it. I'm seeing an ENT next week, my fear is that they'll see no hearing loss (have had test already, there is none), nor any problems with the eardrum, and will send me on my way perhaps with some anti anxiety and muscle relaxant drugs.

Thanks
Allan
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Paulbe

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Posts: 176
Reply with quote  #2 
"I'm seeing an ENT next week, my fear is that they'll see no hearing loss (have had test already, there is none), nor any problems with the eardrum, and will send me on my way perhaps with some anti anxiety and muscle relaxant drugs."

Congratulations on your ability to accurately predict the future.  Your money would be better spent on a good audiologist, because at least there you will likely be listened to.
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Nerdvegas

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Posts: 2
Reply with quote  #3 
I hope you're wrong but suspect you're right. It's on my work insurance so no cost at least... will reply with how it goes.
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Paulbe

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Posts: 176
Reply with quote  #4 
Thanks.  Will be interested.
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hiya

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Posts: 19
Reply with quote  #5 
 I have experienced something a lot less severe but similar. It doesn't happen all the time, but my right ear sometimes has a weird buzz/distortion sensation at times, particularly in response to loud speech. It's a bit uncomfortable and disconcerting. I also get pain, occasional fluttering, fullness and loud tinnitus spikes in multiple frequencies in both, but primarily the right ear. I''ve experienced this as well as some other symptoms of mild auditory hypersensitivity for several years, on and off.

I was suspecting that I had an ear infection or just some trapped fluid, as I have a history of ETD, so I went to an ENT recently. I felt a little crazy when I was told that there was no fluid. Everything apparently came out fine- no apparent abnormalities in the tympanometry test, no hearing loss. In fact, I was told my audiometric results were "Excellent. Nobody will be able to talk behind your back." Ha ha. Even though I have problems with loud sound, I still have to frustratingly ask people to repeat themselves at times!

It was pretty much chalked up to TMJD. I was told that it can cause hypersensitivity and distortion. That would make some sense. I also get classic migraines on occasion and have some weird neurological symptoms that I haven't been able to investigate (sporadic facial and other nerve pain as well as what as best I can tell may be mild orthostatic hypotension.) Idk. . . This whole business is so frustrating.
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