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jirimenzel

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Reply with quote  #1 

A member of a forum in the link below claims his hyperacusis was cured by botox. And that lidocaine is a good trial to see if botox will work. Tried to get him to into more details to no avail for the moment. Apparently they went in through the nose up to the wall across the tensor tympani on the eustachian side and put the botox there. He also says it was permanent that it didn't end after 3 months unlike botox is supposed to do, but I couldn't get him to specify the timeframes. I wouldn't be surprised if this is what happened because as far as I'm concerned TTTS initiates a chain that is felt by the brain, not to other way around. houseclinic dot com in california he says did it

http://www.benzobuddies.org/forum/index.php?topic=96554.1580


This just is another nail in the coffin of hyperacusis as just one etiology. The biggest study, made by the way in South Korea, on middle ear myoclonus said ''subjective hyperacusis'' was one of its symptoms. It labelled benzos, ''reassurance'' and tenotomy as standard approaches for the condition, without a mention of sound therapy. Sound therapy is barely mentioned in the few papers available on myoclonus. There have been reports of grommets and botox success with hyperacusis and also with ETD.

The tests available to prove the existence of myoclonus aren't conclusive. How underdiagnosed is it, if in addition there's the widespread belief these muscles protect us from sound? It's very possible that the kind of hyperacusis cured by reinforcement of the oval and round window is not the same as that cured by tenotomy and botox. It's very possible Jastreboff didn't realise that most people with misophonia don't have corresponding feelings in the ear when he labelled TTTS sufferers as having acquired misophonia. And who developed the rubbishy hyperacusis questionnaire, with its bias toward psychological questions, with no question as to exactly what feeling is going on in the ear, whether rumbles and echoes or electrical pain without vibrations. Why would sound therapy be a cure for all these different etiologies if some occur before the brain? Tenotomy and botox didn't worsen the hyperacusis when applied to the middle ear for some ''suffering hyperacusis'' and yet if sound therapy were valid for their etiology it would have gotten worse postop as it would be a sensorineural thing. But surely if it can also be a conductive thing, and treatments so different are reporting success and failure, it doesn't make sense why botox, lidocaine, tenotomy, grommets and reinforcement would all be working as well as sound therapy.
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Jemma12

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Reply with quote  #2 
I agree I am looking for treatments that do not involve sound therapy my family thinks that my pain is just Imaginary and psychological but if these treatments are working then hyperacusis can't be just psychological I am investigating low-level laser therapy in Combination with pulsed electromagnetic Field therapy medication and surgery
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Aplomado

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Reply with quote  #3 
Well, why don't you have the procedure done and then tell us if it works?  Sound therapy works on me, maybe this will work on you.
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Jemma12

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Reply with quote  #4 
I'm looking into having it done I am going to have to talk to Dr.Herbert Silversteen if you like I can give you his contact info
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Jemma12

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Reply with quote  #5 
My mom is going to call him and look into it but if anyone knows of any children with Hyperacusis please let me know
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