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LynnMcLaren

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Please take note of this important action alert from A-CHAMP.  The compounded medications that many of us rely on for our children are at risk and we MUST ACT NOW to prevent this legislation from being introduced and passed in the Senate.  Representatives from NAA and A-CHAMP have had discussions with the International Academy of Compounding Pharmacists regarding the effects this legislation will have on our children if passed, and they are very serious.  This bill would make treatments like MB-12 injections, IV Glutathione, clelating agents, transdermal supplements and medications, compounded anti-fungals, sugar-free, dye free and gluten-free compounds unavailable! 

Many thanks to A-CHAMP for putting together this action alert so quickly!  Please contact your legislators today!

Take Action

 

Stop Congress From Taking Away Necessary Compounded Supplements From My Child With Autism!

Tell Congress: Don't Take Away My Compounded Supplements & Medications!

 

Take Action!

If Your Child Has Autism this Should Concern You!

 

Tell Congress: My Child Needs Compounded Supplements  and Medications !

 

 Do NOT Take Them Away! 

If your child relies on compounded medicines - e.g., methyl B12, pediatric medicines without additives, or special supplements - please read on.
 
A small but powerful group of United States Senators is ready to force legislation on American consumers that would severely restrict and possibly deny your access to critical medications. 

Act today or your access to compounded medicines will be DENIED!
 
Under this legislation, federal regulators, not your doctor, will decide what medicines you or your child can take.  Do you really want to leave your customized medicine needs in the hands of bureaucrats in the government?
 
The so-called Safe Drug Compounding Act of 2007 would, among other things:
 
    •     Broadly eliminate the availability of many critical, commonly compounded medications that many patients rely on, such as bioidentical hormones for women, hospice care treatments for the terminally ill and customized medicines for children.

    •     Allow the federal government to determine when compounded medicines are needed - a decision that has always been and should always be made by doctors.

    •     Restrict the compounded medications your doctor can prescribe even if he or she determines you need them.
 
If you or someone you know depends on compounded medications, act now to stop this dangerous legislation!
 
    1     Write your elected representatives in Congress.  Use A-CHAMP's easy to use tool to write your members of Congress.   Also, please keep this in mind:  It’s critical that you personalize your letter.  Tell your own story.  Tell them how you rely on compounded medicines and what your life would be like without them.

    2     Tell a friend.  Even if your friends and relatives don’t rely on compounded medicines themselves, they still have a loved one - you - who does.  That’s their story to tell.  Please encourage them to tell their representatives in Congress.

    3     Tell more friends.  The best weapon we have in this fight is you.  You are the patient.  Yours is the story that your representative in Congress cannot ignore.  The more people we can get to unite in support of compounded medicines, the better our chances of winning will be.

For All of Our Kids – Thanks! 

Key Documents From A-CHAMP (click on title):

Draft Senate Bill –          http://a-champ.org/documents/DiscussionDraftCompoundingBill.pdf

International Journal of Compounding Article on Compounding – http://a-champ.org/documents/IsCompoundingtheKey.pdf

Pharmacists' Associations' Letter to Senators Kennedy, Burr, Roberts – http://a-champ.org/documents/FINALJointPharmacyLetterSDCA3-7-07.pdf


Message Brought To You By A-CHAMP

Advocates for Children's Health Affected by Mercury Poisoning
 

See Our Action Alerts. Click the TAKE ACTION! button
http://capwiz.com/a-champ/home/ 

http://www.a-champ.org

BE A-CHAMP FOR CHILDREN!


Thanks for taking action to defend your access to compounded medicines!
 

 

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Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #2 
Banning Vitamins Will Cause All Out War Between Patient and Doctors..

In the Past they have tried to ban vitamins and people signed petitions back then.. We want to be able to get B-12 if we want to..

We know the benefits and of other vitamins we want the freedom to be able to purchase at a health food store or through the mail...

Like we have the freedom to do now...

Are they at it again..
It seems so..
Take away what has been helping people improve their health..
And what are you only able to get legally.. Pharmaceutical drugs...
And mandatory flu shots....
No matter what it may do to your health or whatever it may contain..
How many people in this world have vitamins and supplements in their
kitchens and closets at home..

How many people feel like giveing that right up..
Lots of autistic children have been improveing because of theses
supplements but we can't have that now can we...

Lots of people in general have been improveing their health as well..
This bill is not for us...
Who does it benefit...
The merchants..
That's who...
But whats new in the world.....

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LynnMcLaren

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Reply with quote  #3 

This Link Does Not work but to copy it after reading their site..
I have to post the link first it says..

http://www.newmediaexplorer.org/chris/2004/09/30/banning_vitamins_will_cause_allout_war_between_patients_doctors.htm

For some reason this link does not work right..
You need to type in banning vitamins on a google search..
And when you see this link click on to it from the web..
Then you can read the link.. 
Thats what it says I have to do first..


Chris Gupta
-----------------------

Banning Vitamins will cause All-Out War Between Patients & Doctors

A massive international conspiracy has been hatched by the pharmaceutical multinational companies (MNCs) to stop the manufacture and sale of more and more formulations of vitamins, minerals and other food supplements. Many corrupt politicians have also got involved in this big conspiracy as they get huge bribes regularly. Are these conspirators aware of the frightening consequences that are likely to follow their evil designs?

The manufacture and sale of many vitamin, mineral and other food supplements are being deliberately phased out by the pharmaceutical MNCs because they want to concentrate on the sale of patented drugs which bring massive profits to them. These drug manufacturing companies are not interested in the prevention and treatment of various diseases through the prescriptions of vitamin, mineral and other food supplements, as most of these preparations cannot be patented to bring large profits.

Most of the pharmaceutical MNCs are constantly working to get the prescriptions of vitamins and other dietary supplements banned, so that all the diseases would be treated only with the administration of their high-priced patented drugs. Many allopathic doctors, medical shops and hospitals have been openly colluding with the pharmaceutical MNCs in drastically restricting the sales of preparations containing vitamins, minerals and other food supplements. They only want to boost the sales of the costly patented drugs, which bring massive incomes to all of them, even though such drugs are extremely toxic when used regularly.

A ban on vitamin and other food supplements can be strictly enforced only in the developed western countries. But there will soon be a massive revolt especially by the educated and enlightened patients in the West. The underdeveloped countries too can be affected by this war between patients and doctors, but the common people there know how to bypass the ban on the essential medicines and drugs of any type through the means of massive smuggling!

Do the people in western countries know that a number of doctors in India have been attacked and even murdered by the enraged relatives of patients who had died allegedly due to the negligence in treatment by those doctors and due to the use of toxic drugs on patients? One large hospital near Mumbai was completely destroyed by a furious mob soon after the death of a political leader was allegedly caused by the wrong and negligent treatment by the medical staff, which was also severely beaten.

The educated western patients may use the same means to deal with the doctors, as the doctors use on patients to mistreat and torture them. The revolting patients may not use weapons like the guns, but they might use syringes to attack the doctors. In a massive revolt, the patients and their relatives can start forcibly injecting in the bodies of doctors the same toxic drugs that are presently being injected into patients. Not all the might of the corrupt and ruthless western governments will then be able to prevent and control the massive war of retaliation of the enraged patients and their relatives against the doctors.

The massive conspiracy of the greedy drug companies and the corrupt politicians to bring a ban on vitamin, mineral and other dietary supplements cannot succeed for long. Let the governments of all countries and the WHO be warned about the distinct possibility of an all-out war breaking out between patients and doctors. The ban on vitamins can also lead to the declaration of a total war by the people against those pharmaceutical MNCs which support their allopathic stooges in committing acts of mass murders through the administration of toxic drugs and unnecessary surgeries.

Ashok T. Jaisinghani.
Editor & Publisher


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LynnMcLaren

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Reply with quote  #4 

Autism Speaks: Will Anyone Listen?
by David Kirby

http://www.huffingtonpost.com/david-kirby/autism-speaks-will-anyon_b_44414.html

Two years ago, Bob Wright, then president of NBC Universal, and his wife Suzanne founded the blockbuster charity Autism Speaks, (http://www.autismspeaks.com) after their perfectly normal grandson, Christian, developed the disorder and stopped speaking.

The Wrights could easily have kept quiet about it, like so many prominent families do, and hid behind well-funded walls of secrecy and privacy.

But instead, they bravely chose to speak out about a devastating illness that now claims one in 150 American kids -- 80 percent of them boys.

Since then, the Wrights have raised tens of millions of dollars for research, much of it earmarked to find the gene or genes that "cause" autism spectrum disorders.

While no one disputes that autism has a genetic underpinning, there is still a fierce debate over the potential role of environmental influences, particularly mercury, and very particularly, mercury in vaccines.

Many in the upper echelons of Autism Speaks have rejected any environmental hypothesis and insisted that autism is purely a genetic disorder -- though Bob and Suzanne Wright (and the organization itself) remain officially neutral on this crucial question.

But now, Christian is getting better, and that wonderful news could change everything.

Why? Because "genetic" disorders don't typically improve on their own. And little Christian, the child who inspired Autism Speaks, has started to speak again. Will Autism Speaks listen?

On Tuesday Christian's mom, Katie, posted an entry on Yahoo's EOH List (named after my book, "Evidence of Harm" at http://www.groups.yahoo.com/group/EOHarm) that minced not a word:

"I believe that Christian's regression and subsequent autism was the result of receiving 6 vaccines during 1 office visit at 2 months of age," she wrote. "He screamed for 12 hours and had a 104 degree fever nearly the entire time. His vaccines contained thimerosal," the mercury-based preservative.

"It is devastating," she added, "because so much of this is preventable."

Please click here to view this blog entry in its entirety:
http://www.huffingtonpost.com/david-kirby/autism-speaks-will-anyon_b_44414.html

Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #5 

At last, the paradigm of autism is shifting from what was once believed to be a heritable, incurable mental illness, to an environmentally-triggered, and most importantly, treatable medical disorder.  This article is a must-read for parents, grandparents, friends, teachers, therapists, physicians and anyone who is affected by the autism epidemic.  Please click on the link below to the Discover Magazine site to read the full article and forward this message to everyone in your address book.

Discover Magazine
http://discovermagazine.com/2007/apr/autism-it2019s-not-just-in-the-head

Autism: It’s Not Just in the Head
The devastating derangements of autism also show up in the gut and in the immune system. That unexpected discovery is sparking new treatments that target the body in addition to the brain.

by Jill Neimark

“There were days I considered shutting the garage door and letting the car run until I was dead,” says Colorado mom Erin Griffin, of the time nine years ago when she learned that both her boys—not just her firstborn—suffered from autism. Brendan, her angular, dark-haired older child, was diagnosed in 1996 at age 4. Kyle, her round-faced, hazel-eyed younger son, was diagnosed in 1998 at age 2½.

But Kyle and Brendan’s story does not have a tragic ending. After interventions that included occupational and speech therapy, as well as dietary change and nutritional supplements, both boys improved significantly. Their tale of slow, steady recovery reflects the changing landscape of autism today. The condition, traditionally seen as genetic and originating in the brain, is starting to be viewed in a broader and very different light, as a possible immune and neuroinflammatory disorder. As a result, autism is beginning to look like a condition that can, in some and perhaps many cases, be successfully treated.

 

Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #6 

Katie Wright-Hildebrand and Becky Grant-Widen
Join NAA's Board of Directors
 

The National Autism Association is pleased to announce the appointment of two new members to its Board of Directors, Katie Wright-Hildebrand and Becky Grant-Widen.

Katie is the mother of two boys, Mathias, age 3 and 5 year-old Christian.  Christian  regressed into autism at 2 ½ years old.  Katie completed her under-graduate studies at Boston University and received a Masters in Education from Columbia University.  Studying counseling psychology, she received her professional license in 2000 and was the Clinical Director of the Sexual Assault Crisis Center in Stamford, CT providing free and confidential counseling services to male and female survivors of rape and sexual assaults.   Katie resigned her position when Christian became ill and now, with her husband Andreas, is dedicated to working to improve the lives of children and families affected by Autism.

Becky comes to NAA with 13 years experience in public health non-profits, with a history in tobacco control and community health program development. She currently works as a public health consultant, focused on grantwriting for local and national autism organizations. As the parent of two boys, one of whom is on the autism spectrum, Becky is committed to using her experience to benefit children with autism. In her home state of Maine, Becky has organized local autism events, testified before the state legislature to eliminate the use of mercury in vaccines, and helps guide parents just starting out on the autism journey.

Everyone with NAA looks forward to working with these talented and dedicated parents as we carry out our mission of providing support and hope to all families affected by autism.

Together, anything’s possible.

 

Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #7 

Autism One 2007 Conference, May 23-27, 2007, Chicago, Illinois

Sampler of Tracks and Events
http://www.autismone.org

Another Great Workshop!  “Beginning Grant Writing for Non-Profits”

With the passage of the Combating Autism Act, the introduction of legislation by Senators Clinton and Allard for the Autism Services Bill and the DoD research initiative (see NAA press release at http://www.nationalautismassociation.org/press032107.php ) funds are becoming available. The autism community deserves to participate. First step - learning how to apply.

“Beginning Grant Writing for Non-Profits” will cover the basics of grant writing, particularly the areas that seem overwhelming to beginners.  Specifically, participants will learn the basics of: 

  • How to develop logical goals and objectives
  • Determining and describing a needs statement
  • Program development
  • Budgets and evaluation
  • Finding funding sources and meeting their requirements

Workshop presenter Becky Grant-Widen is a public health consultant, focused on grant writing for local and national autism organizations. Becky has 13 years experience in public health non-profits, with a history in tobacco control and community health program development. As the parent of two boys, one of whom is on the autism spectrum, Becky is committed to using her experience to benefit children with autism. She is a Board Member of the National Autism Association (NAA), a Maine District Leader for A-CHAMP, and consultant with Elizabeth Kilpatrick for the Coalition for SafeMinds.


Track 2: Behavior/Education/Communication Therapies --

Megan Carrick MOTR/L and Jennifer McKenna, OTR/L, pediatric occupational therapists, present:

“Sensory Integration: What is it and how can it help your child.”  

Each child is unique in how they process sensation.  This session will help you understand how the different sensory systems interact, and what the implications are for your child in daily life.  Understanding your child’s sensory profile will help support development of motor planning, social emotional and fine and gross motor development.

And

“Parent Child Interactions: The Emotional Experience of Daily Life.”  

This session will focus on how to use specific interactions to support your child’s regulation, engagement and social emotional functioning.  Learning to understand your child’s sensory profile will help guide your understanding of your child’s emotional experience.
 

Track 4: Adolescence and Adulthood --

Chantal Sicile-Kira, award-winning author, presents:

“Adolescent Issues: Puberty, Hygiene and Sexuality.”

Adolescence is a difficult time for everyone - neurotypical or not - as a person transitions from being a child to a young adult. To become as independent in adulthood as possible, teenagers of all different ability levels must learn self-care, appropriate behaviors, modesty and sexuality. Areas to be covered include: explaining about puberty and changing bodies, hygiene and self-care and how to problem-solve difficulties in teaching self-care routines, the importance of modesty, and what to do about masturbation. For safety reasons and in preparation for adulthood, all teenagers need to learn about relationship boundaries and sexuality. Ideas for preventing bullying and abuse will be discussed.
 

Track 5: Government/Legal/Personal Issues --

F. Edward Yazbak, MD, FAAP presents:  “Sand Castles.”

Certain epidemiological studies have been instigated, published and cleverly used to rule out an MMR- or Thimerosal-autism connection. The CDC has funded, helped produce and supported some of them, and editors of medical publications have given them preferential treatment.  The most atrocious result of all of this was the 2004 IOM “verdict” that MMR vaccination and Thimerosal in pediatric vaccines were not, in any way, responsible for the present epidemic of regressive autism, and that any further related research was not warranted.  Biased epidemiological studies ruling out the connection, including a recent one from Canada, are still being published and protected from justified criticism.  Dr. Yazbak will show how, like sand castles, all these studies will eventually be washed away by the tide ...and truth.

 

Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #8 

Important Live Presentation on the
Voice America Health and Wellness Network

http://www.Health.VoiceAmerica.com

Tuesday, April 10, 2007
12:00 noon Eastern; 9:00 am Pacific

Betsy Hicks: Autism One: A Conversation of Hope, presents:
The Safe Drug Compounding Act of 2007

A small but powerful group of U.S. senators is poised to force legislation on Americans that would severely restrict and possibly deny your access to critical medications.  Under this legislation, federal regulators, not your doctor, will decide what medicines you or your child can take, when compounded medicines are needed, and which ones your doctor can prescribe.

Does your child or someone you know rely on and benefit from compounded medications or supplements such as methyl B-12, oral liposomal and IV glutathione, TTFD, or chelators or gastrointestinal and other medications in a special form or without additives?  If so, tune in to hear how you can help protect you child’s and family’s access to crucially helpful and healthier forms of many of these types of items.

Guests: 

Marcy Kelly, VP of Sales and Marketing, Wedgewood Pharmacy, and mom to Dylan, diagnosed with autism at age two and who has improved marvelously; Joshua Wenderoff, consultant to the International Academy of Compounding Pharmacists; Wendy Fournier, president, National Autism Association; and a pharmacist -specially trained in the Defeat Autism Now protocol - from Wellness Pharmacy.

Think Autism. Think Cure. TM


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LynnMcLaren

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Reply with quote  #9 

Autism Groups Call on Congress to Protect Treatment Options for Children with Autism

Groups Oppose Draft Legislation Giving FDA Broad Authority
to Restrict Access to Compounded Medicines

WASHINGTON – A coalition of autism organizations today expressed concerns regarding draft legislation that would restrict or eliminate access to compounded medicines doctors prescribe to treat children with autism. The organizations – A-CHAMP, Autism One, the Autism Research Institute, Defeat Autism Now!, Generation Rescue, Moms Against Mercury, the National Autism Association, NoMercury, REAACH, SafeMinds, SOAR Autism Network, TACA – Talk About Curing Autism, US Autism and Asperger Association and Unlocking Autism – issued a position paper outlining their concerns with the so-called Safe Drug Compounding Act of 2007. The organizations’ position statement can be found at http://www.nationalautismassociation.org.
 
“As a mother and advocate for children with Autism, I am committed to ensuring our children have access to safe and effective treatments,” said Wendy Fournier, president of the National Autism Association. “This legislation would have unintended consequences that would severely limit or completely deny access to the custom compounded medications that so many children rely on.”

The organizations’ concerns with the legislation center on the expanded authority it would give the Food and Drug Administration, which would restrict the availability of many commonly compounded medicines, some of which are prescribed to treat children with autism.

“Giving the FDA this kind of broad, unchecked authority is bad for patients,” said Robert J. Krakow, president of A-CHAMP. “The FDA’s current track record on food and safety overall is deplorable. Its track record on protecting children with autism is even worse. The FDA needs to do a better job protecting patients and consumers under existing authority before it can be trusted to take on more.”

"We have an absolute epidemic of autism in this country,” said Representative Dan Burton (R-Indiana). “Parents and doctors are struggling to find appropriate treatments options; and I personally believe that Congress has a responsibility to make sure that children with autism and their families receive the help that they need. Any legislation that unnecessarily limits medical treatment options is, in my opinion, deeply troubling, and potentially dangerous and should be opposed."

The groups will hold a conference call for reporters on Tuesday, May 1 at 11:00 AM EST. To participate, dial 800-351-4895, passcode: Autism.

For more information, visit http://www.nationalautismassociation.org.

 

Think Autism. Think Cure.


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