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jsunday

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Posts: 7
Reply with quote  #1 
For the past five weeks, I've been in an intensive outpatient program for anxiety. There's been a 20% reduction in the hyperacusis/misophonia symptoms, but I'm desperate for more relief. I have a long history of OCD, depression, PTSD and anxiety. That's why I went this route before trying TRT, etc. My hearing is normal, and an audiologist found that my LDL's are fine. She suggested that I listen to pink or brown noise on my iPod and do relaxation exercises. Pretty unhelpful.

What do you think? More psychiatric care or TRT? 
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Aplomado

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Reply with quote  #2 

What are your LDLs?

I will say, I have usually thought my LDLs were worse than they really are when I got them tested (I have do hyperacusis).

Do you think you may have phonophobia instead of hyperacusis?  If your LDLs are normal (90 and above), maybe that is your issue.

The phonophobia treatment protocol I was told involves listening to music you like at a comfortable volume for a certain lenght of time daily, and gradually upping the volume.  An audiologist should be able to help you with that, esp a TRT one.

Did you go to an audiologist that does TRT or just a random audiologist?

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jsunday

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Posts: 7
Reply with quote  #3 
I don't know what my LDL's are. I'll have to contact the audiologist to find out.
She said they were normal. She supposedly does TRT, but didn't suggest much of a program for me -
probably thinks I'm crazy. 


I've always thought that I have phonophobia, but everything sounds loud: my own voice,
my heartbeat when I lay my head on a pillow, the sound of the pillow scraping across my ear,
footsteps, cars, trucks, airplanes, music, etc. I'm depressed and desperate.


I have heard of the music therapy before, and I would happily try it. Do you know if it works?
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Aplomado

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Reply with quote  #4 

Yes, find out what your LDLs are... 90+ is normal.  When I first was diagnosed with hyperacusis, mine was about 60 decibles.  I've got phonophobia too probably, but it was induced by hyperacusis.  Mine should lessen as my hyperacusis reduces.  I have heard about folks with phonophobia/anxiety who think they have hyperacusis but don't.  I have no idea if that applies to you though. 

By the way depression and PTSD can cause hyperacusis in some people- if that is the case, antidpressants, and working on the depression my help.  There are several cases in the literature where lithium and antidepressants helped hypearcusis caused by depression.  Serotonin malfunctions cause hyperacusis sometimes.  My hyperacusis was caused by noise though, that is the most common cause.

I've not done this exact phonophobia protocol, but I do something similar with water noises for my hypearcusis, in addition to doing TRT.

If your audiologist is not good I'd get another one.  The pink noise therapy may be a good idea though, I wouldn't knock it without trying it.

Here's the phonophobia protocol my doc gave me:

 

Phonophobia Protocol

 

Phonophobia is defined as a fear of sound. 

 

We want to create a positive association of sound for you.  We can achieve this by having you engage in activities that you enjoy that also involve sound.  This may include going to a mall, listening to music, going to a party or restaurant.  The key is to have control over the situation.  You should be able to discontinue the activity at any time.

 

We want you to start in a very controlled environment.

 

1.       Pick a piece of music that is relatively stable in volume, i.e. not going from very soft to very loud.

 

2.      For the first week, sit down and listen to it once or twice a day for 20-40 minutes with the volume set at a very comfortable level.  Do not do anything else while listening to the music, i.e. do not read the paper, do housework, etc.

 

3.      For the second week, increase the volume just one noticeable step above what it was for week 1.  Listen for 20-40 minutes.

 

4.      For the third week, increase the volume just one noticeable step above what it was for week 2, which means it is 2 steps louder than it was for week 1.  Listen for 20-40 minutes.

 

5.      For the fourth week, increase the volume just one noticeable step above what it was for week 3, which means it is 3 steps louder than it was for week 1.  Listen for 20-40 minutes.

 

Call the office at the end of this cycle to see if you need to repeat the cycle.

 

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jsunday

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Posts: 7
Reply with quote  #5 
Thanks Aplomado. My LDL's are all between 90-100, with the exception of one frequency range where they are 88. So, probably misophonia/phonophobia...

Maybe the increased SSRI's and PTSD/depression treatment will help. I've been doing the phonophobia protocol, and pink noise for the past few days. Any kind of relief would be good. I need to read more success stories [smile] 
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Aplomado

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Reply with quote  #6 

Yes, sounds like phonophobia is more your problem.

I've got it pretty bad too from my hypearcusis.

My hyperacusis is actually mostly recovered (my LDLs for human voice range from about 75-85), but the phonophobia is aggrevating it quite a lot...

I've got to work on it a lot more also...

I've been stepping up my sound therapy (listening to mp3s) more and feel it is helpful.

It is funny, this caused me to drastically overestimate the extent of my hyperacusis!  I am glad I got my LDLs checked recently (monday), now I am feeling a lot more optimistic.

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