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hjolli

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Posts: 20
Reply with quote  #1 

Hello

I just came across the website for hyperacusis and this forum

I am a male, 56 yrs old.

 Would like to know if anyone has had any similar experience

 Anyway, I had a noise related accident some 15 years ago, holding my right ear too close to a power drill. I got some bad pain and feeling of pressure in my ear, and as I´m also a musician, I was at the time also practising regularly in a band, I was in a pretty noisy environment most of the time.

 This bad pain would not go away and I suddenly could not listen to any music without wearing earplugs. The eardoctors I was seeing at that time in Copenhagen didn´t seem to have a clue about what was going on. I was in terrible pain for over a year, but I kept on playing music wearing custom made earplugs, (-15/-25dB) that sometimes made the pain even worse, increasing pressure in the ear.

 Finally I came across a senior professor in my home country, Iceland, who had some understanding of the problem. He prescribed me Betaserc, 8 mg 3 x daily and that finally gave me a noticable relief.

 I had a minor relapse app. 4 years later and again Betaserc seemed to help.

 Now 7 years later, this problem seemed to almost totally gone, until last week, when my ear came too close to the drumset in a rehearsal, and now a terrible pain and oversenstivity is back in my ear.

I have now been taking betaserc for almost a week, but stilll can´t feel any changes.

Just thought I wanted to share this and would be happy for any comments. This had been a very bad week for me!


Best regards H.

 


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Johnloudb

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Posts: 1,951
Reply with quote  #2 

Sound enrichment is very helpful when your ears are hurt. It is a pleasant sound that you hear all the time, like nature sounds played on a stereo or a nature sound radio. And, often people seek out complete silence when their ears get hurt, which is not helpful. Hurt ears need sound enrichment, and it has to be a sound that is pleasant and you can listen to all the time. And you can turn it down low.

You can read how to properly use sound enrichment here: http://www.tinnitus.org

Also, anxiety over your symptoms can also make things worse. 

The Hyperacusis Network also sells a pink noise CD that is often helpful. It needs to be used according to a protocol, which is provided with the CD.

If things persist you could also see a TRT trained doctor. But, you should probably try some things first, and see if things improve. Complete avoidance of sounds is not recommended, and neither is ear protection (except for loud environments).  

Good news is there are things you can do, and I'm sure others will chime in with suggestions also.

Best of Luck,

John 

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markbergemann

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Posts: 48
Reply with quote  #3 
Welcome H,

I second what John said.

Read from this site.  Do not practice total sound avoidance like I did, which makes things much worse.  Practice carful exposure to lots of sounds, but not above your current limit.  Do not fear sound, as that can make things worse.  That's how I improved dramatically and continue to do so. 

Mark 

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Mark Bergemann
The Hyperacusis Network saved my life (that's the way I see it)
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Ed

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Posts: 112
Reply with quote  #4 
My personal feeling is that you should not keep up unprotected exposure to loud noise, if at all.

I had H, and it went away completely after a month, miraculous yes, but not long enough to learn my lesson. I fell back into noisy environments, such as bands etc. and H came back. It's been a year now and it's still here, more than ever.

What I'm saying is the drugs may not have made a difference, it may have been a natural recovery, but please, please if you're lucky enough to recover again don't risk it anymore.

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LizH

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Reply with quote  #5 
You've described how betaserc 'finally' gave you relief twice before which suggests to me that the relief was not immediate.  I am wondering exactly how long it took and whether maybe 1 week is not long enough.  Perhaps it is too early to give up. Can you stay on it a bit longer?

Good luck, I hope relief is just around the corner.
Liz.
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hjolli

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Posts: 20
Reply with quote  #6 
Hello Liz

By ´finally´  I meant that after months of suffering something seemed to help. Before that the pain had been a little on and off, but mostly on. After I started on the betaserc I think it took some 2 weeks, and I have no memories of any pain after that. Not until 4 years later i had some relatively mild relaps again. Then I rushed to the nearest doctor and asked her for that medicine, I was prescribed tablets for 1 month, from the old package I can see that I finished a little over half of that. 

I have been taking them for a week now, and I feel a little better, I still can´t tell whether it´s the pills or it´s because I have been resting the ear from sound exposure.

Thanks for your concern
Hjolli

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Nemi

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Posts: 129
Reply with quote  #7 
Bizarre, my doc prescribed me 25mg, 3 times a day of betaserc, and I am a petite woman.... 
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hjolli

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Posts: 20
Reply with quote  #8 
Memi, how is your condition?. It is T or Hyperacusis and has the medicine helped you?

Thanks Hjolli

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Nemi

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Posts: 129
Reply with quote  #9 
I am still breastfeeding, my ENT prescribed it for after I am done.  I have hyperacusis and ear pain.  Oh and sorry, me and the pharmacist couldn't read his handwriting, it is actually 24mg twice a day for 6 weeks.  I am so happy to read that this has helped you, at last in the past, it gives me hope.  Maybe, maybe you could  ask your ENT to up the dose a bit?

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