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nida628

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Posts: 7
Reply with quote  #1 
Hi everyone.

First of all, I just want to thank everyone for being active in this forum. I can't emphasize enough how important this has been for keeping my hopes of recovering up.

I'm 29, and I have H and T since last April. I'm from Spain, and since I came to Japan in 2015, I've been attending rock concerts 3 or 4 times a year until I realized that was the main reason of my ears pain. I must say, anyway, that even if I'm emotionally affected for not being able to live my everyday as naturally as before, I'm far from suffering as much as most experiences I read in this forum. In addition, (I think/feel) I've improved some 5~10% since then, but really not too sure about that.

So my symptomps are as follows:
- Light tinnitus. No big problem since I only notice it when going to bed. Listening to some background natural sound with my smartphone is enough not to get bothered.
- (Light, I guess) Hyperacusis, especially at small, closed spaces. It's kind of difficult to describe what noises bother my ears, but I guess mostly hard things clashing and speakers sound, but, not when it's loud, but when it's sharp. I think it's all about sharpness. HOWEVER, what bothers me most (particularily socially speaking) are people's voices, especially my own voice. Curiously, what hurts my ears is the starting and finishing of speaking. If I pronounce, say, "ahhhhhh" for 5 second, only the beginning and only the end hurts my ears. Also, in relation to this, my ears also feel awful when swallowing. Not really when eating or drinking, but especially when swallowing saliva, which we all do hundreds of times a day. By the way, I'm 95% OK when being outside.

Accordingly, my questions are:
1) Does anyone have any clinitian recommendation in Japan? I saw the "TRT Worldwide List of Clinicians" provided in this forum, but sadly no one working in Japan.
2) As I said, my symptoms are not so much tragic as many accounts I read here, but still, is there any case of fully recovery from a not-so-much severe H?
3) Is there any case of recovery from H with TRT? I guess that, even if bothered, I can live with my H, and I'm not really afraid of sounds. Thus said, does TRT effect the psychological side only, or also the physical one? Maybe I ask this because I don't really know the meaning of hearing pink noise every day once you feel you (more or less) won the psychological battle. In other words, I'm not sure if TRT will ever soothe my ear pains when, for instance, swallowing.

Thank you so much for reading my account.
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Kribu

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Posts: 43
Reply with quote  #2 
Yes I understand what you mean about "sharp" sounds. When my H first occurred, a lot of sounds felt "sharp". I would be curious to know a linguistic opinion of the sounds you now consider "sharp", (speech)...I don't know the terminology but I bet they could pin point it down to a specific (or few) identifications or patterns that would at least give you some insight but also help you talk with other professionals and measure smaller increments of improvement.
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Aplomado

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Posts: 711
Reply with quote  #3 
"2) As I said, my symptoms are not so much tragic as many accounts I read here, but still, is there any case of fully recovery from a not-so-much severe H?"

Yes.  Some people recover fully, some partially, and some not at all.  If your is mild that is a good sign, but no one knows until you try.  Right now I am in the "partial" category.

"3) Is there any case of recovery from H with TRT?"

Yes, TRT is the recommended treatment, pink noise is good also.  You can order a pink noise cd from this website.  The degree of recovery varies a lot from person to person.

I guess that, even if bothered, I can live with my H, and I'm not really afraid of sounds. Thus said, does TRT effect the psychological side only, or also the physical one? Maybe I ask this because I don't really know the meaning of hearing pink noise every day once you feel you (more or less) won the psychological battle. In other words, I'm not sure if TRT will ever soothe my ear pains when, for instance, swallowing.


Good question.  Hyperacusis can cause all kinds of bizarre physcial symptoms- ones I have gotten are headaches, severe facial pain and tingling, jaw pain, and, of course, burning and sore ears.  Loud noise exposure when you have hyperacusis can cause the muscles in your ears to tense up (trying to "protect" themselves) and this can cause a lot of pain, swelling etc in your ears.  This could be causing your pain when you swallow, as your ears are right at your jaw joint.

If sound therapy, trt is successful for your, these pains and weird symptoms will decrease and possibly disappear.  That is my experience when I do sound therapy anyway.

And stop going to loud concerts etc that will make it a lot worse.
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anniekin

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Posts: 105
Reply with quote  #4 
This is just a wild guess on my part, but since you mentioned the discomfort on the attack part of speaking, and also swallowing, I think of your throat muscles and eustachian tubes being involved. I assume you have seen an ENT to rule out a eustachian tune dysfunction. I wonder if a speech therapist could work with you on how you use your voice to help explore and address the painful parts of speech. It is hard to know whether this might be just another odd symptom of H, or might be a different kind of problem that could be addressed in a different way separate from TRT or other H treatments. There is nothing to say that you couldn't have more than one thing going on. Just my impression...
Annie
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Aplomado

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Posts: 711
Reply with quote  #5 
Yeah, I didn't think of that, anniekin.  It may be a good idea to make sure there isn't something else gong on besides hyperacusis, though I think hyperacusis can potential cause those symptoms as well.
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Margy

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Posts: 194
Reply with quote  #6 
Hyperacusis definitely causes those symptoms with me. My ear muscles and other nearby muscles as well "startle" with sudden changes in sound, such as sharp voices that are bright and not smoothly modulated. My own voice is quiet, but also it is not bright and chirpy, even though it used to be sometimes. Sudden, bright, sharp sounds cause painful twinges in my ears and sometimes in my jaw muscles, temple muscles, and neck muscles. Engines are terrible because they are repeating these sharp attacks very rapidly.
I also get a kind of nerve tingling when certain engines are going, depending on the sharpness of the sounds.

It's a startle reflex that can go along with hyperacusis. It has been explained in the context of "tonic tensor tympani", but I think other muscles get into the act as well.
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