Hi Dan, ((((( Smiles ))))

Interesting what you wrote....

When my hyperacusis was at it's worse...

I didn't eat much at all and lost lots of weight fast...

But then I started eating again and it was super loud in my head..

And that was at first with softly eating..

Then I eventually decided from reading others posts back then..

And the information on hyperacusis..

That eating noise wasen't loud enough no matter how bad it sounded..

To cause hearing loss...

I don't think it does because of how it sounds in ones head..

I mean has anyone suffered true hearing loss from eating ???

Or listening to others eat or others speaking with H ???

It feels like it can.. but I just don't think it really does...

But as you wrote that even with severe H though your eating bothered you..

The sound of others eating was not an issue..

Did I get that right ????

My family is not a sit down normal like dinner eating family..

My kids are picky eater's and don't eat like big dinners..

And my husband eats big lunchs at work and thats his main meal

during the day...

So I never really had to do the sit down thing and listen to others

eat except like Thanksgiving ect...

And at my worst of H I wasn't around people much if at all..

But I remember that voices.. what came out of peoples mouths

was far terrible worse... then what people ate......

I don't remember other people eating being a big issue for me back

then.. But words were.. So you think maybe why is because we are

too preoccupied with handling our own sounds we make...

Yet what came out of their mouth's with speaking and the sounds others made seemed worse in the way..

I could not prepare for the suddeness of the dynamic range of the assault..

I had no volume control of others..

Plus I did things slowly and delibrately quietly with forthought of makeing any sounds... and they didn't..

But when it came to others eating.. It wasen't like SSSS with me..

Yet the soft's sounds of like turning a doorknob at one time assualted my ears...

I'm just pondering what you wrote..

What it all means Dan...

Can you expain further ????

I know your a busy person and last night was one of thoses nights..

But that sounds very interesting to me... (((( Smiles ))))         

Dan wrote...

I hardly want to respond here....BUT....I have now over 300 patients who have been using sound therapy for SSS during the past ten years.

The vast majority of them have tried many different forms of medications and counseling therapies.  Including treatment for OCD. I would guestimate that only about 10 percent have been diagnosed with the label: OCD by a psychiatrist or other medical professional.  In their case histories, though, I can see the vast majority have been prescribed many different drugs.  Drugs have side effects, in most cases.

Sound as therapy has far fewer side effects.  Often eating or breathing noises, of only a FEW people, are the main irritant....but that irritant is persistent over many decades for some people.  They cannot get over it, apparently. Some of those 300 have suffered from SSS for over 40 years.

Reading their stories and case histories, you might be surprised to see that for most of them, the ONLY aspect of abnormality is the SSS.  They do not have the 'other' habits of typical OCD subjects.  For many of them, there appear to be family inheritence patterns.

Using sound as therapy is not very complex. And it is always, for me, the chance to provide very liberal trial period to see if sound therapy can be of help.  And for me, I do not keep one dime to subjects with SSS who want to try sound therapy.

I could offer you, Dan, the fact that only a handful of those 300 people, of all ages, have returned the units and received a full refund of their deposit. Maybe less than five.

Sound as therapy is very useful, I think, for SSS, but again, this is one clinician's reflection of ten years of experience.......not a 'real' study or double-blind research, etc.  I would add that onset appears to be pre-puberty or puberty.

I wonder, too, from what area of the nervous system this condition arises, too, but it surely does seem to have some involvement with the auditory system.

MJ

Jen, I think for those who can benefit, they tend to realize it very quickly.

Other people really do struggle to achieve benefit.  For some, it seems that a real 'team' approach is needed: counseling, drugs, and the use of sound or ambient noise increase, i.e., background music, iPod, CD personal player, etc.

Others have even more challenges to overcome to find any improvement.

Some find their conditions fluctuate, sometimes ok, other times very bad.

I wish we knew more about it or could interest some research scientists to focus on SSS.

mj

Lynn said:

But as you (Dan) wrote that even with severe H though your eating bothered you..  The sound of others eating was not an issue..

Did I get that right ????

Yes, Lynn (sunshine), you have it right.  I was never bothered by the sounds of other people eating. 

Marsha said:

The vast majority of them (SSS individuals) have tried many different forms of medications and counseling therapies.  Including treatment for OCD. I would guestimate that only about 10 percent have been diagnosed with the label: OCD by a psychiatrist or other medical professional. 

Marsha,

Even though these individuals have, for the most part, not been diagnosed with OCD does not convince me for one moment that this is not a significant part of their problem.  Again, this is just my view, but I have heard from many of these individuals over the years and I see this as an obsessive fixation to a particular sound - in this case - eating sounds.  That does not discount the fact that some form of sound therapy may help them, it may very well help.  But professional help that patients with OCD receive may help just as much, if not more. 

XemmaX said:

I'm glad you have brought this up.  I have had a problem fixating on other peoples mannerisms, habits etc all my life.  I cannot stand certain sounds, particulary repetitive sounds, for example breathing, lip licking, voices (anything related to people really)...

I also have mild-severe OCD (depending on the time) and I feel that personally your views are correct...

We are all searching for answers.  I don't know who is correct.  However, it may very well be that SSS (Soft Sound Sensitivity) belongs more in the realm of a unique form of OCD which manifests itself as an obsessive fixation to eating sounds. 

Dan

XemmaX said:

For example, my partners voice can sometimes grate on me to an unbearable level, but if we are out in Company, because I am thinking more about the conversation with others, his voice does not irritate me.

When you have an 'irritating' sound (not loud, but irritating) you have developed a method to mask the sound (cover it up with a not-irritating sound).  For example, you said:  "if someone is eating crisps, I either have to leave the room or eat crisps".  That is a coping mechanism which can work very well.

I think individuals who fixate on certain soft sounds need to develop skills to mask those sounds.  I also know that individuals with this problem can develop a fear of these sounds.  Not because they are loud, but because they are very upsetting to them.  Again, the culprit usually seems to be eating sounds. 

One clinician suggests sound therapy.  This might help but I think the individual needs to mentally develop coping skills so they do not obsess over the 'irritating' sounds.  It is very possible that this patient may find great help seeking the kind of treatment that OCD patients require.

Dan

Hi Em X, (((( Smiles ))))

Even though what I had / have is hyperacusis disorder not SSSS...

What you wrote about with masking the sound...

Fighting sound with sound....

Though usually with SSSS it seems to be more masked or battled

at a higher volume.. Like turn up the volume over the softer sounds..

But hyperacusis disorder.. I have read about this happening with others

but at a very low level of sound..

Usually like pink noise broadband based noise..

And when I was able to myself... And I've read about people doing TRT with

this feeling themselves.. Like it might smooth it out some..

By a competeing sound .. yet for hyperacusis a very very low volume..

broadband based competeing steady sound....

Thought the sounds are still real terrible to hear.. Either way in H..

It makes it somewhat easier to bear in a way then the same sound made in complete quiet.. Where it stands out more...

It could be the shifts in sound from quiet to heard...

That makes it even so much more noticable in hyperacusis or harder to deal with in the hyperacustic ear... Like a re-assualt..

Kind of like what you wrote about as well...

It's interesting in theses two conditions...

SSSS and hyperacusis.. Like an overlap of same in a certain way.. 

but different tolerances of loud.. and of course some sounds..

And you could kind of call that masking the shifting of sounds because a sudden sound is a shock to the ear... 

What they call the dynamic range..

As one that has read others stories..

But of course all I know about SSSS is what I have read on the board..

Thats all I know.. But I just see this parallel in a way..

Not sure what it means in the way of brain/ hearing...

It's just something I've noticed....

Wonder what it means ???

Hi Sp, (((( Smiles ))))

If my memory serves me well..

I believe Dan suggested it ...with that in the way he thought it should be changed from SSS to SSSS in the definition...

which I think reads selective soft sound sensitivity....

Because I think it was because the sounds seemed selective..

There is a thread somewhere on this board about this...

Not sure where to find it..

Maybe typeing in SSSS or SSS but I'm not sure how long ago that was...

It may be in archive somewhere...

It had something to do with Sound Fixation but that's not the thread..

But it would explain it lots better then I can , in that thread....

If it can be found... But otherwise...

I think this definition was discussed and agreed on .. I believe back then..

Was like this...This is soft sound sensitivity to selective stimuli. 

What you would find on the homepage supplement..

In description.. Thats the best I can do..

Ya... That is true (((( Smiles ))))

What Darcy wrote....

Because I think you may have wrote about it or seen that thread back

then as well as we talked about it alot back then..

SSS was changed to SSSS and it was agreed on by the author of that

that SSSS could work better.. I'm pretty sure that's what happened..

back then... 

Hi Sp, (((( Smiles )))

Maybe not.. Just like how hard it was getting any notice and

information from our doctors and providers with our hyperacusis..

Except there are providers out there though " few " main stream

doctors for H.. That comes with medication.. Talk therapy..

And earplugs with most main stream doctors..

I bet it's even less and harder to find.. Help for or info on SSSS..

Then it is for H... As well as research and interest...

Sp wrote....

Stringplayer posted:

Now will somebody please give me a history of this term.  Where did it start?  Who first coined the term?  Frederick Martin?  Jay Hall?  Rich Tyler?  Pawel Jastreboff, perhaps?  Possibly somebody from the Oregon group - Robert Johnson, Billy Martin, or maybe Jack Vernon?  I confess that I never heard of "SSS" prior to seeing Marsha post about it here on this board

There have been a group of individuals who have never fit the classic symptoms of hyperacusis.  These individuals have normal LDL's but there are specific soft sounds which are intolerable.  Not intolerable because they are too loud, but intolerable because they are unacceptable sounds to their ears.  For lack of a better term it has been described as a soft sound sensitivity to a specific sound or SSS.  By far the most common offensive sound for these patients are the sounds of other people eating.  These patients fixate on this sound - it consumes them.  Usually these individuals have no problem with the sounds of their own eating but cannot accept the sounds of other people eating.  This is not a sensitivity to loud sounds, it was a sensitivity to soft sounds.  Every month I hear from at least a couple people who complain of this problem.  For some, it has deeply effected their lives (can't even eat with their family or spouse).  Marsha suggested TRT could help these individuals.  I, quite frankly have been at a loss.  Clearly these people do not have hyperacusis. 

I have turned this every which way I can trying to figure it out over the years.  I am more and more convinced that this as an obsessive fixation to a particular sound - in this case - eating sounds.  Stringplayer I have never seen a thing written about this from anyone in the medical community but it is a significant problem for some patients.  To me, this seems to be more appropriately attributed to a form of OCD.  I am puzzled why some of these patients start shaking or convulsing when they hear the sound of others eating (perhaps a form of a panic attack).  Some become so enrage at the person producing the sounds of eating or chewing that they get up and leave in the middle of the meal.  Some develop a lifestyle that excludes anyone from eating with them.  My heart goes out to these individuals.  My suggestion, and it is only a suggestion, is that the obsession they develop over the sounds of other people eating seems more like an Obsessive Compulsive Disorder.

I am not convinced that sound therapy will help these individuals.  Like everyone else, I am searching for answers for these individuals.  I am curious what your thoughts might be on this sp.

Dan

One point worth adding here.  The term soft sound sensitivity is not a correct term in my view.  The individuals I have just talked about have a sensitivity to eating sounds not other soft sounds.  Furthermore, for individuals to think that a sensitivity to whispering (which is currently mentioned in another post) is a soft sound sensitivity is wrong.  People who are sensitive to whispering are individuals who have severe hyperacusis.  Unless a patients LDL's are in the 30-40 decibel range one cannot say, in a believable way, that they are sensitive to whispering.  It is understandable for the hyperacusis patient to say, from time to time, or at the end of the day that there ears are wore out.  However, for a hyperacusis patient to suggest they are sensitive to whispering or that they have something called soft sound sensitivity (which means nothing to a clinician) when their LDL's are in the 50+ range makes no sense.  We have to be careful about all of this. 

Thanks Sp, really appreciate your feedback.

I am not currently in therapy, but am awaiting CBT which I begin shortly.  For info I am in the UK and healthcare (particularly mental health) is not dealt with very well.

I'm not even sure if this CAN be dealt with.  I simply cannot resist being highly aggravated by certain sounds.  I think it is impossible to stop yourself from being irritated, as the irritation is an almost natural thing.

I find it even more confusing that it seems to be only certain people (i.e. those I am around most and love most) that seem to irritate me the most.  Almost like I tune into their individual mannerisms as I am with them more.

I think personally that the only way forward for me, is to stop trying not to be irritated and instead try and find a way that  I can deal with the irritation better.

Its like with OCD, we are told not to try and stop the thoughts, but accept them.  Maybe I need to adopt the same approach with this?

I think I need to -

1) Accept that things irritate me immensely and habuation will never work

2) Learning coping mechanisms, calming breathing etc

3) Learn to not show my anger - (this will be hard as it is almost automatic to the person who is irritating me)

4) Avoid the irritation where possible

Just my thoughts.

XEmmaX posted [in part]:

Thanks Sp, really appreciate your feedback.

.........

You are quite welcome!

............

I am not currently in therapy, but am awaiting CBT which I begin shortly.  For info I am in the UK and healthcare (particularly mental health) is not dealt with very well.

............

There is a very knowledgeable and experienced psychologist from Ireland named Dr. Laurence McKenna, who practices in London at the Royal National Throat Nose and Ear Hospital.  Dr. McKenna has considerable expertise in cognitive behavioral therapy and in addition has long focused much of his work on patients with disorders of the auditory system.  He is one of the two Directors of the European Course on the Management of Tinnitus and Hyperacusis to be held this coming April in Cambridge.  I have attended four or five of Dr. McKenna's excellent lectures addressing various psychological aspects of tinnitus and hyperacusis - and (equally importantly) several years ago I took an intensive "one-on-one" comparison course from Dr. McKenna on the merits of an assortment of Irish brews at the corner table of a Nottingham pub.  (He won - I couldn't walk straight when we left the building!)

XEmmaX, if you can get an appointment with Dr. McKenna, I assure you that it will be worth your while.

All the  best!

sp

Thank you Rob.

Please be clear that I have never suggested TRT for this situation.

What I call 4S does not qualify as hyperacusis.  TRT was intended for tinnitus and hyperacusis.

4S is NOT hyperacusis.

And that why, in most instances, people with 4S are not going to find much that is helpful here on a Hyperacusis Board.

If a person has misphonia or fear of sounds, TRT has been used as prescribed by Dr. Jastreboff's method, in some cases. 

There is a link between Tinn and OCD.  That part is present in the clinical observations of many different T & H specialists.  Based on your info and literature from the research, again, there is evidence to show that perhaps OCD focal areas in the brain are in the same areas that relate to the auditory system pathways. 

The connection with OCD and 4 S in my clinic has been present for ten years. I have collected data and detailed case histories on hundreds of people, from ages 5 and up.  The vast majority of pediatric cases have had psychological intervention or are having it.  Most have tried or are using medications.  Most have received evaluation from at least 3 medical specialists. 

Fact is, for many, as you say, they learn quickly even as children to 'hide' their inner perceptions because professionals and family members often ridicule or dismiss, even kindly, those sensations.  They are 'frowned' upon.

But again, this really does not live in this space, as this space is for hyperacusis.  I am quite devoted to this topic, but it probably does not interest the average person wtih hyperacusis......nor should it, any more than African Tic Fever.

Marsha Johnson, MS

Yes.. I do remember you mentioning working on that long time ago...

Even yesterday I though of it...

We talked about it on the board alot back then..

And lots of people back then was looking forward to it being

put out there..

Their stories and maybe for someone to bring attention...

in this world or the medical world.. To this disorder..

And you step'd up to the plate.....

I remember mentioning to you back then....

That thats a mighty big project your takeing on and time consuming

as well...

But somebody has to do it and I don't see any other volunteers out

there at this time.... And anyone else who started a message board

for thoses suffering with SSSS..

I mean that has to count for something..

Marsha Wrote...

It's interesting the theories in research going on out there...

Maybe with a strong auditory componet as it's sounds that seem to

bother them though not in a hyperacustic way but it does seem to focus

alot on hearing certain sounds... They can't seem to tune out..

It's interconnected in some way....

It's interesting reading though...

But I know the dangers that can come from certain medications for certain

people..

And medications do not work for everybody and they did not on my daughter for her condition...

in behavior and makeing things better for her either...

It made it worse more then anything..

She's been medication free since trying all they suggested back then...

From what you write.. It seems and we shall know more when your papers

come out.. That there may be more then one way to treat someone with

SSSS maybe not in a cure as I don't believe there is a cure right now like

in the way there is no cure or real cure for hyperacusis..

So it may be more for SSSS finding relief from their symptoms..

A way to cope.. Desensitize their sensitivitys in some way...

To people , situations, sounds that bother them..

On the way to finding a cure or what works the most or best for SSSS..

There is still more research to be done on this disorder...

And someone has to be the cheerleader for SSSS though thats a figure

of speech as I know your education and years of hand on expirence..

goes way beyond that.. I don't want to be demeaning to you at all....

In any way...This board is not about that..

We all want one thing for sure...

To find a cure , the pandora box of relief and fix...

For SSSS...

I'll wait till your papers come out and see what has been learned about

this disorder ... so far....

What Marsha wrote.... 

Sounds agreeable enough to me......

Just real fast.. I wanted to say.. (((( Smiles )))

I just read about the works of Salvi and Lockwood about the limbic

area of the brain/ emotional centers / highly linked to auditory pathways.

It just reminded me about Dr Jastreboffs book on Tinnitus which also

write's about hyperacusis in there but...

He writes about the limbic system activation as well.. aversion reactions..

habituation of reaction..perception in the neurophysiological model..

And I know with hyperacusis as well a person can feel that anger and I've heard the word rage over another person makeing sounds because of the effect it has on our hearing..

But like even Rob mentioned the word feeling pain with hyperacusis and then it could even be at a later stage of H felt discomfort with certain sounds when one has improved alot over time...

With H...

But I still am not sure what a person with SSSS feels or hears or how it causes them discomfort..

I know how a hyperacustic person hears sounds/

what it sounds like/ because of my hyperacusis expirence but with SSSS..

I'm not sure what they feel happeing in there brain/ears with sound or how it sounds to them in a maybe a certain frequency way..

percieved pain how they hear it to be abnormal..

Unless I could be SSSS for a day..

I could hear what they here.. feel what they feel.

Try to describe it in that way...

If it was a frequency factor or like the P and S thing for Jen or...  

I just don't know how the offending sound sounds for them when they hear it.....

Sharp, cutting spitting of words, frequencies just a description..

Or how their brain process's it / in hearing it.. 

And maybe not all are effected in the same way with symptoms....

Like not all people with hyperacusis may be effected in the same way with

what bothers them most..

Like they can handle that sound but they can't handle that sound..

Some variation.. like in any disorder with a common link...

Weither tinnitus, hyperacusis, autism, even SSSS...

So reading those papers will be highly interesting.. 

Thats why it would be interesting reading other people stories of how

they precieve the sounds heard..

But it's surely not a normal thing weither neurological / auditoral / behavioral /emotional what ALL the areas of involvement may be.....

That need's to be treated in some way maybe differently in different

cases of SSSS people..

But the limbic possible involvement  

Yet it's interesting the link to auditory pathways ... 

In disorders of sound...

Marsha wrote...

Oh Hi.. (((( Smiles ))))

I read your post Rob.. And then I saw you mention Deb..

And I couldn't find her till I looked up there...

But I just read your post and I do agree on some points of the emotional

effecting the physical as in any disorder and yes there may be an OCD

involvement factor it does seem..

But I have to read it in depth later as I will have company soon and need to clear the pool table off for my husband and his co/worker..

Untill then.. See ya later...

Rob:

You and I might like to sit down and talk over the chicken and the egg theory: does the 'feeling' world regulate the 'physical' world, or does the physicological functioning of the system produce psychological affects?

Let's give some examples:  mother-in-law staying for 2 weeks = headache?

Or hormone fluctuations = weepiness?  Or near-miss car wreck = heart pounding, furious rage   Or chemical poisoning = loss of memory with frustration?

We have talked before about how you cannot separate mind-soul-body.

Very difficult to do with hyperacusis, anyway.

NEXT:  sound or the use of sound as desensitization does not seem to work in this population.  That is a hyperacusis protocol.  Sound in hyperacusis can make people MORE tolerant to sound.  In 4S, not so.  Sound can make them more comfortable, but does not act as a desensitizer.  At least in my experience.

You say: 

"Even if a patient found that using broadband noise to treat this challenge was helpful, my view is that the use of an inexpensive pink noise CD with a far wider frequency band than that of the generators would be much more efficacious."

Now we can talk this over, really, here.  I like pink noise.  Nothing wrong with a CD.  But if you want to use sound as ambient noise 'softener', the sound works BEST when it is delivered right into the ear. Ear level sound, bilateral, with a volume control for each ear if possible.  If cost were not a factor, there is no question that ear level, in the canal type units are by far the most effacacious.  Turn the head, the sound is there.  Bend over, the sound is there.  Go potty, the sound is there.  Patients very quickly habituate to the devices and the sound.  Often do not realize they are on, and jump in the shower!

So, how do we create a broadband signal generator that can be worn at the ear level, is comfortable, reliable, produces a comforting noise, for people who do not have hyperacusis?  Because we have them for people with hyperacusis, as Jane and Bonnie have been saying over on the other thread.  They LIKE their devices and are happy to have them. 

You have good ideas...........tiny units that go into the ears or hide behind the ears are extremely useful.  Much better than a cd player or something that plays a cd that hangs around the neck and has cords.  So what can we come up with?

My generous friend from Microsoft offered me many units of an MP3 player thingy that is the size of a pack of gum more or less, with nice earphones and a couple hours of broadband noise, and he says these can be obtained for less than $40 at tech stores.  What about those?  Would they work?

MJ

Being new, I may not fully understand the argument you two are having, but I'd like to suggest a few things: 

One, this condition is very multi-faceted and not black and white.  I believe I lean much more in the SSSS direction, but I can firmly state that sound also hurts my ears sometimes...that I have episodes that have nothing to do personal ideas about being irritated.  "P's" often hurt my ears; sometimes "D's"; sometimes "S's".  Certain birds chirping madly in the Spring REALLY hurt my ears, buzzing table saws hurt my ears whether I'm standing next to them or am a block away.  I always thought it was a "certain decible" issue??? 

Based on personal experience, I suggest that people most certainly possess parts of either in different degrees.  Whether it's aural, limbic, neurological, psychological, physiological or whatever, it seems all potential therapeutic modalities should be considered for all.  While an accurate diagnosis is no doubt critical, in the final analysis it seems that application of whatever provides relief would be just as critical.

Two, as I said in my first (and only) post ... I'm finding that white noise, ear plugs, hearing "aids" with white noise, and a whole variety of soothing music, etc. is acting to desensitize my irritation with sounds.  I'm working on this alone.  The doc who administers my anti-depresssant meds is aware of my irritation with sound as a by-product of anxiety and stress.  (I'm going to be talking with him soon about all that I've learned on this site.) 

I don't know if you're referring to the same sort of thing that I'm doing with noise making devices, but what I've been doing is working for me.  The success of it, I believe, is due in great part to the willingness to do something constructive and to concentrate on letting go of anger, frustration and fear.  Sometimes that's easier said than done, and I certainly do not intend to be preaching that anyone 'should' be able to do that.  My experience was that I got so sick of feeling awful about this ... and I got old enough to realize that I wasn't going to go crazy or die from it ... that I just made a commitment to try to outsmart it. 

My little plan seems to be working.  Today was a very successful day.  When I walked into my studio to paint, the neighbors were making tons of noise.  In the past, this would have set off a panic button in my stomach, causing anxiety, sometimes trembling and often nausea.  Today I was able to say, "okay ... they are doing that again.  Let me see how long I can tolerate it without support."  Knowing I could put in the white noise at any moment, I was able to get focussed on my work.  I worked very successfully for 4 hours.  Then the neighbors got really loud (banging doors and cupboards which made me jumpy), I was getting fatigued with my work, but needed to stay and complete about another hours' worth.  So I plugged in before the anxiety "juices" started messing with me.  The white noise masked, I relaxed, benefiting from knowing I could be comfortable.  It worked. 

The more successes I have, the more relaxed I become in a variety of situations.  It sounds like behavior modification or desensitization to me.

Third.  May I respectfully say that some of the posted squabbling is somewhat disconcerting.  By that I mean, I rather feel as though you are bickering over us as insensitive parents might argue about their child's affliction in front of the child.  I would be more pleased if you bickered off-line, then reported the outcome in the professional manner that I know you must certainly possess.

Regardless, thank you for all that you do.  Clearly, you care about this.

Hi Peamer, (((( Smiles ))))

See thats why I can't say that based on possible limbic involvement

or just the unknowns of this disorder and I'm not an expert on this in anyway.

I'm just a person that has been around along time and read others thoughts

on this and what other SSSS people have said on the board....

That in some cases that de-sensitization of the sensitivity to whatever is bothering a person in sounds may be a possiblity not just for comfort reasons..

May truely help in some Neurophysiological brain central processing limbic whatever else may be going on up there way.. I don't know but.. 

You wrote..

Which I don't think is as defind as in hyperacusis or tinnitus in the way of longtime research...

And theres alot of unknowns regarding hyperacusis as well besides what they do know...

Whatever may help one.....Whatever may work for someone..

Thats why I'm not ruling anything out for anyone even if say pink noise

white noise , TRT won't help everyone.... doesn't mean it can't help

someone at all.

Maybe in conjuction with other therapies such as for OCB...  

As there could be different componets to this disorder involved...

And thats why it would be interesting reading the result papers

of data and case histories collected..

..on this condition because only the people who have this condition can answer the question of what has helped them , who they have seen or taken in medication before and how that worked for the... And how many have been treated for OCB and how that has worked for them as well...

I would like to read what the SSSS suffers have to say about this..

In collective data and case histories.. Overtime...

What they have found helpfull.. to them...   

If they were getting their needs met anywhere else..

they would not seek out Marsha for help at all....

And Marsha has spent more time with this disorder...

Then anyone else I know about...

And just your story is like one part of the collective data..

I mean sound therapy doesn't work for everyone with hyperacusis disorder.

And it has worked better for some then others over the years of continued use as well..

And how we know that is because hyperacustic people will tell others what they have tried and what has worked well for them overtime...

See that's what I want to hear from all of you...  (((( Smiles ))))

Peamer Wrote..

Rob, I just wanted to say thanks for your earlier post, it was very interesting.

Over the past year I have been trying to understand my behavior and learn about the problems I have to deal with on a day to day basis.  Knowledge alone is a huge help.  Although I have suffered with OCD for 11 years, (not to mention other sorts of related mental health issues) I was only diagnosed in April 2006.

I have Pure O, which means I have no compulsions (although I suppose my mimicking could be a compulsion as it gives a degree of relief).  This meant that OCD went undiagnosed for years.  I hope that Pure O will become more recognized by medical professionals in the UK.

I think that my problem is better looked at as a psychological one, but must say that when I read the information on SSSS (on the page 4 types of Sensitivity) I thought that this had been written for me!!!  I couldn't believe it as it was me, me, me all over.

I notice this page has been removed?  Is this due to this debate?

Although we are all baffled by the link with OCD and SSSS, there certainly is one, I am living proof.  Psychological or not, it exists.

I would therefore like to leave my email address and if anyone wants to discuss this issue in the future, for research or just an insight please feel free to contact me.

amy.callow78@hotmail.co.uk

Thanks for all your comments )

Wow Mx, (((( Smiles ))))

Your right about that..

I wonder what that means....

Is there changes to be made in the works...

On the 4th type ..

I didn't notice that of recent..

You wrote..

But you have been diagnoised with mild OBC...

That's interesting.. How is the therapy for OBC helping your SSSS..

Maybe there are different variations of SSSS...

Different ways of what treatment would be of the most help..

I'm just baseing this on everything I have read above..