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Stormy

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Posts: 109
Reply with quote  #1 
Ok, I just put 2 and 2 together, I was at the grocery store and as usual the coffee grinder section and that aroma just makes me nausious.  As does Starbucks.  And then it hit me that for about the last 20 years I have been more senistive to odors than my wife, very much so.  20 years ago is when I got my H, but then my H was so intense and took over my life or rather destroyed my life along with vestibular problems I just did not realize that my sense of smell had heightened as well.

Has anyone elses sense of smell heightened since they got H ?
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deafleg2

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Posts: 55
Reply with quote  #2 
I suspect it is a long term side effect of using topomax,

Had a patient taking topomax with following side effects:
  • Extreme nausea
  • Weight loss
  • Dry eyes
  • Burning muscles
  • Foggy brain
  • Memory problems
  • Dry sweating
  • Sensitive sense of smell
  • fatigue

All these side effect are on par with "adrenal exhaustion"

Check off the list above get back to me




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Stormy

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Posts: 109
Reply with quote  #3 
I've only been on Topamax for about 8 years maybe.  The smell thing has be going on for probably 20yrs.

As far as the side effects of Topamax, the Only one on the list I have is memory loss/foggy brain.  Which is kind of funny.  I really had to fight my doctor to put me on it because this was his concern.  Since I was a drug rep, he knew that I would be talking to a Physician and forget words and he was right. 
I mean, I can be talking and forget an easy everyday simple word like "glovebox" or "understand".  It might come to me in 10 seconds, 10 minutes, or 10 days .  
It can be frustrating, especially with all of the time I spent on this board and forget words.  But the benefits far outweigh the ....uh, uh,  bad.


Other people I know lost weight, I did not, I wonder if the Doxepin "head it off at the pass".
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sucuqu

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Posts: 197
Reply with quote  #4 
nope,,,do not think a side effect

can not answer why for you,  but having multiple chemical sensitivity for over 20 years--  my, and others with MCS,  sense of smell is very acute.  we are the "canaries" as they say,   I can smell dangerous or nondangerous chemicals way before others or they can not smell anything.  and exposure of course to to new materials (yes, includes furniture, appliances, new houses, renovations, etc.) and cleaning chemi. and perfume, etc. can aversely affect my health.  longterm and shortterm.

I can only guess that your hyperacusis which is a hypersensitivity to sound,  may in some way relate to your heightened sense of smell???
only a guess of course,  but i do not believe it is a side effect

and ha ha, on the forget words.  i am going through that much more frequently,  "what is that word i want to say???"   i ask hubby, friends. etc.
why?   stress, getting older, fibromyalgia, ?
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Stormy

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Posts: 109
Reply with quote  #5 
Su - interesting about your nose.  Wonder if there is a connection?

Forgeting the words is different from the ol' getting old thing.  Because it's just not complex or semi-complex words.  It can be very simple ones like: elephant or shoulder blade.  It can drive ya nuts.
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sucuqu

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Posts: 197
Reply with quote  #6 
OH BOY,  well   it must be frustrating to draw a blank on those types of wordsl     i also reverse letters,  like twist letters in two or more words. sometimes i feel like i  am playing charades  with DH so he knows what word i want to say!      off note:  when my mom had a stroke two yrs ago, she had aphasia and worked with great speech therapists.  i told the therapist one time that i think i need therapy too and she said STRESS and it made sense at the time and now it sort of does too.
 but yours unfortunately ,    is different.  
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