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Molson

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Reply with quote  #1 

Hey guys. I am not even really sure if I am in the appropriate forum, but I was googling some problems I have been having with my right ear and stumbled upon this site; namely a thread involving tensor tympani syndrome.

 

My situation is that I am 18 (if that is important) and for over 2 weeks my right ear has been increasingly making more noise. There is no buzzing, whistling, or hissing. So I don't know if I have tinnitus. What I do have is what I would best describe as literally a timpani playing in my ear. It's like a really quick drum beat and I think I can basically feel my eardrum beating. It could also be described as when you are driving on the highway and the window is open and the air makes a lot of noise. It's extremely random when it happens. Literally nothing triggers except sometimes yawning or swallowing. But loud noises, etc, do not have any effect. This symptom used to just last 2-3 seconds. But now I am pushing 20 seconds and I'm starting to lose it!

 

I did go to the doctor today about it but he wasn't really able to diagnose me. What he did find was a build up of wax, significantly greater than in the other ear. So he cleaned it all out, but it hasn't had an effect yet. I am not sure if it should have already. Anyways, is anyone here able to diagnose me? Tinnitus? tensor tympani syndrome?

 

Thanks.

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Maree

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Reply with quote  #2 
If only facial movements result in the sound, it is possible the problem is in your jaw not in your ear.  Temporo-Mandibular Joint (TMJ).

I suggest talking to your dentist about it.  He may be able to refer you to a TMJ specialist.  Someone who specialises in TMJ should be able to tell you pretty quickly it the joint is to blame.  They can use xrays and a whole stack of measurements of face mobility to determine if the joint is behaving normally.


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LynnMcLaren

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Reply with quote  #3 

Hi Molson, (((( Smiles ))))

 

What Maree wrote is something you can check into..

It's a possibility..

I've had TMJ problems since the mid 80's..

Had an MRI done for it..   

far longer them my tinnitus or hyperacusis or middle ears spasming

or the booming thing I have now..

 

For me I'm not exactly sure what caused it...

The booming thing...

Medication , left over nerve/muscle type condition...

 

But a quick drum beat could allso be a description of what I expirence..

Boom Boom Boom Boom Boom in sequence.. It's like a roaring thunderous

booming.. Or sometimes just booming..

 

Literally nothing triggers it but yawning, burping and straining of some

sort for me.. Sometime my voice can but thats rare and only happens

on singing super loud with emphasis I can make it boom boom to that..

 

But not on swallowing.. With swallowing I only get crackling..

It's more internal noise. Related to internal sounds..

Of burping, yawning, straining of muscles I guess.

I don't know how to describe the straining thing well..

But it's the other thing that can cause booming as well.. 

 

I don't remember the booming thing happening before H.

The booming thing has a sound of it's own...

It's different then the other muscle like symptoms I had before..

Expecially the ones that reacted to outer sounds.. 

 

My booming heard is in both ears though my left ear is allways mostly my

worst ear...  When it's not equally heard.. But when equally heard...

It can be just as loud in both..   

 

 


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Mk

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Reply with quote  #4 

 Hi Molson,

I had the same symptoms that you described...only mine lasted over 7 years.  I tried TMJ treatment, I tried every treatment that any doctor could think of.  And finally in January I had surgery to severe the tensor tympain tendon and the stapedial tendon.  I wish I would have done it YEARS ago. 

 

The spasms for me were random, except for when I tried to sleep, then they were predictiable, everytime!  Needless to say, you can't sleep when that's going on in you rhead, so this was a real problem for me, and yes it was driving me crazy.

 

I don't have time for much detail this morning, but will try to get back to this later.  Hopefully Lib will see your post also, as she has had the same surgery and had much relief.

 

I have slept well everynight since my surgery..drug free.  That is WONDERFUL.  If you get time, look up post my myself and Lib.  I think that will answer alot of your questions. 

 

And yes, you are in the right place.

 

Mk

 

 

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Molson

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Reply with quote  #5 

Fist of all, thanks for all the replies. Second of all, wow... surgery. Cutting tendants... Doesn't sound fun. How can I go about properly diagnosing this? Who do I see? A specialist? ENT person? And what exactly is this thing I may  or may not have called? And how on earth does one get it out of nowhere!

Thanks again.

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janepm

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Reply with quote  #6 
Hi: have you taken any pharmaceuticals recently, herbs? That can bring on some of the things you describe, for me, taking a very strong antibiotic last Fall brought that on big-time and I am now just starting to calm down from it.

Hearbeats in ears, yep, sounds familiar.

You may have Hyperacusis but you also may have Pulsitile Tinnitus which may be temporary or permanent or in-between. A good first-stop, too would be to talk with the American Tinnitus Association who can send you some information to help.

As you go through this, however, to keep your mind off the noises inside, try some light lyrical sound enrichment such as some light music without words, a fan or sleep machine, white noise machine at the bedside, etc.

I didn't do that when I first came down with Hyperacusis over ten years ago and wish I had. Hope it helps!


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Jane
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Yasmin

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Reply with quote  #7 

Hi All...

 

Pulsitile Tinnitus...

 

I know we (members) should not solely rely on this network community for diagnosis of particular symtoms, but having been experiencing a new symptom recently I was looking for any posts which may relay the same symptom and see what is said about.  Couldn't actually find anything, until Molson a new member wrote about a symptom a few days ago.  The description was exactly the same as what I have been experiencing lately. Further reading into the thread and I have seen Jane's response which mentions Pulsitile Tinnitus (heartbeat in the ear).  This couldn't sound more accurate!

 

I have had tinnitus in my left ear for a few years now, but have never ever had any problems with my right ear - except when I initially went for hearing tests they created a pain in my right ear but after consulting the network and discovering that certain tests can make one deteriorate, I requested the doctors to stop the tests for fear of my right ear developing tinnitus like my left (and one ear is bad enough as it is).  Apart from very rare occasions of the odd sharp shooting pain in my right ear, everything had been fine with it, until very recently.

 

Like Molson, my right ear has suddenly been making a pulsating sound, there is no pain whatsoever attached to it (unlike how my left ear began).  Unlike the tinnitus in my left ear which I hear continuously, I can't hear this pulsating beat in my right ear in the day, I am only aware of it when I settle down to sleep. It's not like a drumbeat (hard and solid) but just as Jane describes 'a heartbeat' (soft and windy).  But it is a fast beat, I would say 3 times as fast as a normal heartbeat. I would be upset to think that my right ear (which has done so well until now) is experiencing a slow deterioration, but in all honestly, given what already dealing with, having to cope with yet another extra sound isnt going to make much difference anyway.

 

I'm here contemplating now on whether or not to go to the doctors to let them know of this recent change with my right ear. Will it make any difference given already have tinnitus in left.

 

With love

Yasmin


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Yasmin

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Reply with quote  #8 

Also, just wondering, has it been known that tinnitus can develop in both ears at different periods and with a different set of symptoms? Meaning, my left ear began with pain and then terrible buzzing and now just has a continuous high ringing sound, but what is happening to the right ear now is not the same way the left ear went. It just seems a bit strange that one could have two different types of tinnitus at the same time - different in each ear.

 

Thanks!


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Molson

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Reply with quote  #9 
Quote:
Originally Posted by Yasmin

It's not like a drumbeat (hard and solid) but just as Jane describes 'a heartbeat' (soft and windy).  But it is a fast beat, I would say 3 times as fast as a normal heartbeat.

 

 

that is more accurate than my description.

 

Also to an above poster: I have not been taking any herbs/supplements etc.

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LynnMcLaren

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Reply with quote  #10 

Hi Yasmin, ((( Smiles )))

 

I've about went through it all.. just about...

Through my worst of tinnitus expirence..

I know the heartbeat.. It sounded like a heartbeat to me..

I know the buzzing..

But I had that symptom early on.. for about 6 months..

and it went away for me. This.. what I have know is different..

 

It's more like a drumbeat.. Of booming..

Imagine the sound of thunderous rumbling..

No pain.. Just audible sound..

I can hear that at times too.. before the booming...

My tinnitus was in one ear only at one time.. Went to both ears..

And as I have wrote about it in the past.. I can hear it in both ears..

One ear or the other.. My tinnitus has changed over time too..

 

For me.. I can tell the difference in sounds..

It's not 24/7...

It only happens with burping, yawning, straining ect... 

Mine isn't pulsating.. But pulsating can happen.. 

This is different.. What I have.. (((( Smiles )))

 

 

 


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Lynn
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lib

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Reply with quote  #11 

hello,

i know your symptoms and description all too well.

it does not have to be noise induced to be a spasm of a middle ear tendon, and i did the tmj treatment as well with no luck. i had the tendons severed like mk said and can not be happier. there is no way we can diagnose you of course, we are not drs, but sufferers like yourself. a neurOTOligist, or otoligist can diagnose this, i would not waste my time with any ents, been there done that.

read up there is plenty of info here.

lib

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janepm

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Reply with quote  #12 
Antibiotics have also been known to bring on hearing disorders such as Tinnitus or Hyperacusis. I'm afraid I don't know that much about Tinnitus but for me, the heartbeat in the ears comes and goes, a direct reflection, I have learned, with the Leviquin that I was given accidentally last September, a very normal side effect apparently as per the manufacturer of this rx.

I agree not to waste time with the Audiologist, and GOOD THING to stop the test when it began to hurt, some posters have found their problems began when, for example, they had the wax in their ears removed by a machine...

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Jane
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Yasmin

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Reply with quote  #13 

Hi all...

 

Just done some research into 'pulsatile tinnitus' and yes seems like that is what this new symptom is. Have to say began to worry seeing what can be some of the causes behind this type of tinnitus, but thinking about it now, it's probably just my hyperacusis becoming even more sensitive to internal bodily sounds. And, did a double check on the rate of this pulsating beat as it did sound really fast to me, so measured my pulse rate which did exactly match the beats within my ear and it came up as 75 beats a minute... which is a very normal pulse rate... so at least can stop worrying there.

 

Maybe Molson can do the same test, to see if the pulsating beat in ear matches the beats of the pulse rate.

 

Lynn, after reading your post, and that you have experienced almost every kind of tinnitus sound, it got me thinking that it's probably best to not view this new symptom as a form of 'deterioration' but rather just one of the many aspects associated with tinnitus and/or hyperacusis.

 

Yasmin


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Molson

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Reply with quote  #14 
Quote:
Originally Posted by Yasmin

Hi all...

 

Just done some research into 'pulsatile tinnitus' and yes seems like that is what this new symptom is. Have to say began to worry seeing what can be some of the causes behind this type of tinnitus, but thinking about it now, it's probably just my hyperacusis becoming even more sensitive to internal bodily sounds. And, did a double check on the rate of this pulsating beat as it did sound really fast to me, so measured my pulse rate which did exactly match the beats within my ear and it came up as 75 beats a minute... which is a very normal pulse rate... so at least can stop worrying there.

 

Maybe Molson can do the same test, to see if the pulsating beat in ear matches the beats of the pulse rate.

 

How would I go about conducting this test?

Also, my beats or whatever I hear in my ear are much much faster than my heart beat/pulse.

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LynnMcLaren

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Reply with quote  #15 

Hi Yasmin, (((( Smiles ))))

 

My first symptom was tinnitus.. An alarm type tone ringing in my left ear

24/7.. It went to chimes both ears , machine type noises ect....

I've had the hissing high pitched shrills steaming pot ect...

I had the heartbeat and the buzzing like a bee or fly was in my ear..

I had thudding before...

 

But my tinnitus is better.. And my hyperacusis is like cured..

I can go practically anywhere now.. It's not that bad really..

But what I have now.. I don't think it's related to tinnitus..

Maybe more to the advent of hyperacusis..

I've had it for awhile now and it doesn't go away..

It has to be some kind of nerve/muscle or loose staples..

Maybe related to the severe middle ear muscle spasming I had at one time..

Though better... It has to do with my event of ear problems over the years..

 

It hasen't got worse it just is.. Like the crackling..

It doesn't bother me at night.. When I sleep..

As long as I don't yawn, burp or strain or sing really loud..

Actually this is nothing.... just an annoyance...

Compare to H and the spasming thing..

It's just one of thoses things in life

I've learned to live with...   ((((( Smiles ))))   

 

 


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Lynn
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Molson

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Reply with quote  #16 
What does it mean when yawning/burping/swallowing induces some kind of abnormal effect in the ear?
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Mk

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Reply with quote  #17 

Molson,

If the noise in your ear does not match your pulse, if it is much faster, then it is probably one of those tiny tendons in your ear spasming.  It's basically like a muscle twitch that you would get anywhere else on your body, only it's in your ear. 

Like Lib said, we can't diagnose you, but we may be able to lead you in the right direction, so you know what to talk to your dr about, or what kind of dr to see. 

As far as the surgery, it was a breeze.  I was drinking coffee in the recovery room when they brought my husband in to see me, and had a very uneventful recovery.

 

Hope this helps,

Mk

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janepm

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Reply with quote  #18 
I do want to clarify something about Pulsitile Tinnitus that I unfortunately did not mention. And first of all, glad you have researched it, I am not sure that is what you have going on but it was just a guess.

The other thing after I posted that I realized I should have posted is that heartbeat sounds in the ear can ALSO be many other things. The last thing I would want to do is cause any worry but a kind soul last Fall also told me to check out bruitt's and aneurisms, when I researched this, I found there were MANY reasons why there is a heartbeat in the ear.

Since mine came and went and I had a series of appointments with a Cardiologist and had a couple of ultrasounds to check out things, in my case, I feel confident it was not anything related to my heart. However, I would hate to not mention these other things. Again, not to concern you, but just to help.

The ATA can help, as well, in bringing you up to speed on what exactly tinnitus is. They won't diagnose but they will help imminsely with education.

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Jane
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Molson

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Reply with quote  #19 
Quote:
Originally Posted by Mk

Molson,

If the noise in your ear does not match your pulse, if it is much faster, then it is probably one of those tiny tendons in your ear spasming.  It's basically like a muscle twitch that you would get anywhere else on your body, only it's in your ear. 

Like Lib said, we can't diagnose you, but we may be able to lead you in the right direction, so you know what to talk to your dr about, or what kind of dr to see. 

As far as the surgery, it was a breeze.  I was drinking coffee in the recovery room when they brought my husband in to see me, and had a very uneventful recovery.

 

Hope this helps,

Mk

 

If that is my case, then what exactly do I have? Because it is definately something very fast, not extremely loud (I can drown it out with headphones on normal volume) and 95% of the time when I burp it triggers it. Usually it is random though.

 

Is it TTS?

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LynnMcLaren

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Reply with quote  #20 

Hi Molson, (((( Smiles ))))

 

Do you have a rumbling sound in your ears or...

I had an out loud audible thudding sound 24/7 for weeks that went away

from being heard out loud and thats when I noticed a 24/7 rumbling motor

running in my ears left side the loudest yet I don't hear it audible outside my

ears anymore just inside my ears it's heard..

 

Right now I have the booming thing thats rapid fireing booming that I do

hear audibly but it's like when I burp ect.... It triggers it....

 

It could possibly happen " if your's is like mine " it could calm down as well

too only to be heard when I burp ect... Otherwise.. It's not that bad for me.. 

 

I'm still thinking of Marsha's post on the bum bum bum bum sound in the

ears about the staples being loosen or off and that could be a possiblity..

as well... But either way..

 

I've been through worse and I don't want it to get worse...

Again.. For me..... But it also could maybe be the middle ear staples out

of wack as well.. I won't really know that if it was for you....

 

Only haveing someone look into your ear could tell that for sure..

But thoses are like the choices you have....

 

Wait and see what happens over time..

Have a doctor explore inside your middle ear to see if they see anything not right...

 

And if they can't find anything..

And you can't live with this symptom or make peace with it..

Then you can go Lib's and Mk's way....

Do you hear crackling in your ears ever as well ??? 

 

The choice is yours.. 

 

Molson wrote...    

 

Quote:

If that is my case, then what exactly do I have? Because it is definately something very fast, not extremely loud (I can drown it out with headphones on normal volume) and 95% of the time when I burp it triggers it. Usually it is random though.


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Lynn
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Molson

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Reply with quote  #21 
Quote:
Originally Posted by LynnMcLaren

 

Right now I have the booming thing thats rapid fireing booming that I do

hear audibly but it's like when I burp ect.... It triggers it....

 

 

it could be the same, I'm not exactly sure. What I am going to do is create what it sounds like using an audio program I have.

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Yasmin

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Reply with quote  #22 

Hi All...

 

Molson, the check I done wasn't to see if I had pulsatile tinnitus, but rather a test to see if this pulsating beat with ear is actually going at the same rate as my pulse rate as I was worried as it sounded much faster than a heartbeat.  When I read into this form of tinnitus (actually one of them was a paper written by Marsha), they mentioned that it sounds like a heartbeat, one can actually hear one's own heartbeat rhythm and pulse, or the flowing of blood.

 

One paper mentioned that a simple test of counting your pulse rate along with the beats in ear is just one way of detecting whether it is possibly this form of tinnitus (another name for pulsatile tinnitus is Objective Tinnitus). Being worried that the rate of the heartbeats in ear was very fast I did that simple test, and although I believed it to be much faster than a normal heart beat, it was exactly the same and the normal rate too. Also, this form of tinnitus is much easier to detect than subjective tinnitus, and an audiologist should be able to hear whether it is this form from using a stethoscope. 

 

Jane, yes I understand that there can be many reasons as to why there is a heartbeat in the ear, and it did worry me that it could be related to neuro damage or heart problems.  But I've just found out today that I have no choice but to see another specialist anyway later this month and so that can be an opportunity to get this new symptom checked. 

 

With love

Yasmin


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Molson

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Reply with quote  #23 

I have made what sounds quite a bit like what I hear in my ear. It is not perfect, but it is a decent representation. If you have it playing in loop, it obviously won't sound as natural, especially since it was made using a drum beat.

 

http://www.sendspace.com/file/fjg2m3

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lib

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Reply with quote  #24 

cant tell you why it happens but i can tell you its related, as i have/had it. burping and yawning trigger it....very irritating, but better since the surgery thats for sure. i think its a stimulos sensitive thing.

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janepm

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Reply with quote  #25 
Yasmin: it sounds like you are getting closer to finding out what is going on, keep on keeping!
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Jane
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Molson

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Reply with quote  #26 
Well... interestingly enough, my symptoms have seemed to stop (I'm sure I just jinxed myself). I have not have any noise in a whole day. I am still going to go see some kind of ear doctor to make sure, because it feels like it is something that is going to come back.
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Dekay

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Reply with quote  #27 

I've had some similar symptoms(self-induced), but nothing really to the extremity. I know I can make a very similar sound to that, by straining my eyes when I blink; (Yes I realise how stupid that sounds). I've talked to people about it, because I thought it had been something everybody can do, apparently not.

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Mk

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Reply with quote  #28 

Dekay,

I went back in Lib's posts and found this...

 

Quote:
also i am one of the super strange few that can trigger the spasms by squeezing my eyes tight, real forceful blinking....fun!

 

so..you are in good company!!

 

Mk

 

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lib

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Reply with quote  #29 

yes sir!!!! i can relate to that, i blink hard or squeez my eyes shut and trigger it.....no fun.....NIH filmed it they were so interested!

tell me more of your symptoms, and anything you think may have caused it.

lib

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Molson

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Reply with quote  #30 
So update... The beating sound is gone, but now I have crackling in my ear when I eat. I can't tell if it is my jaw bone or actual noise. Anyone get this before?
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lib

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Reply with quote  #31 

yes, crackling, absolutely.

the interesting thing with my myoclonus is this, i never knew day to day what to expect as those tendons are capable of more that drs even know.......its kinda a flavor of the week type thing....eventually i learned it all, and then the surgery eliminated some of the worst symptoms.

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Molson

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Reply with quote  #32 
Quote:
Originally Posted by lib

yes, crackling, absolutely.

the interesting thing with my myoclonus is this, i never knew day to day what to expect as those tendons are capable of more that drs even know.......its kinda a flavor of the week type thing....eventually i learned it all, and then the surgery eliminated some of the worst symptoms.

so what are you saying, is it my ear or my jaw bone?

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Dekay

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Reply with quote  #33 
Quote:
Originally Posted by lib

yes sir!!!! i can relate to that, i blink hard or squeez my eyes shut and trigger it.....no fun.....NIH filmed it they were so interested!

tell me more of your symptoms, and anything you think may have caused it.

lib

There isn't much to it, other than I think that sound is actually kind of soothing, when I try to block out other unpleasant sounds. My symptoms are that I have horrible hyperacusis, I can't stand talking to people or hearing conversations. As far as I've had this, I'm not sure, I believe since birth though. I just hope mine does not progress to some stage of it always being involuntary.

 

(p.s. How did they film you and your syptoms; Did they film you ..blinking lol?)

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lib

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Reply with quote  #34 

i believe its the muscles, and the muscular tissue, not the jaw bone.

they put a little camera in my ear and video taped it, they could see the spasms on the tv screen, when i woulf forcefully blink or sqeeze my eyes tight.

very bizarre, but not unheard of.

 

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