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John7

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Reply with quote  #1 
On another thread I started recently, in which I ask others about the possible effects of alcohol and sleep disorders on hyperacusis, I mention in a post written out today that I now have another setback which started last friday after I used the computer too much. What I mean is that , if I sit too long in front of a computer, my neck, trap, and upper back muscles tense up and the strain makes my h. worse. But it is always temporary. I try to stop before it really starts to hurt but sometimes I keep typing .But this time, much to my surprise, the h. did not get better after I left the computer and the muscle strain diminished. It seems then that that muscle strain was the precipitating cause. But I am not sure, of course. I am wondering then if any of you have had major setbacks from this kind of regular computer muscular strain. Not just for one hour, but for a long time. I always wonder if I am using the computer too much and if the accumulated little shocks are getting to me in the long-term. I don`t use the computer much, maybe one hour a day. And considering that I am disabled with h. , having to cut back would be a blow because I need to communicate and there are not many things I can do to fill my days.
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Debbie

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Reply with quote  #2 
Hi John, I, personally, suspect that muscle tightness and how it cascades in effect with inner-ear muscles & nerves is a key in these weird ear things.
Sometimes I think the tightening muscles start in the ear protectively, and then create a domino 'trauma protection' cascade peripherally, other times, vice-versa.
And I think there's possibly local tightening of the dural sheath which goes on to wrap around the brain...and which is physically attached to upper back/neck muscles.
So that the head actually goes into turtle-lockdown mode that can be further affected or helped, especially during the dynamic phase following the original injury or illness.
I think it's possible that if the dura is affected in the cascade of tightening, or even just the inner-ear muscles, the space for normal movement of pulsating vessels, adjusting musculature with pressure & pitch, and nourishment of nerves can be displaced and compressed.
When muscles later do seem to relax, the entire chain of interconnected tissues might not relax in turn.
This is why I think craniosacral therapy might be of help (one can read about CS therapy), especially during the dynamic phase.
These are suppositions on my part, I am not a doctor.
On that note I think only a doctor who has personally studied and explored/experienced the concepts of craniosacral therapy could medically comment on the reasonableness of these ideas.
John, many, including me, have been where you are with the computer fan.
I no longer have that problem.
I think you will also get better from that, and many other things.
For now, maybe lighten up on the computer...and do much less irritating sound therapies.
Also...
if you have an interest...
you could explore "trigger points" which might help unwind some of the tightness...and relaxation & postural techniques.
With so much to explore through books...your...and any of our days...could probably be filled to overflowing with new things to learn about.
And there are also stands or makeshift stands so that reading material need not be physically looked down on.
I'm just adding that last part...as it may be helpful for all of us to creatively figure out how 'limitations' can actually open our worlds up and lead us to more, not less, life in the end.

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charlenef

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Reply with quote  #3 

I can tell you from personal experience that my h became worse from my computer I had a relapse that lasted 6 months and I still feel that I have not totally recovered from it over a yr later.

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Debbie

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Reply with quote  #4 
Hi Charlene, sorry to hear of this. I do think, consistent with my ideas above, that it is working with the body to pay attention to things which seem to overwhelm, stop the exposure ASAP and take remedial steps prior to re-exposure. Are you taking treatment actions?

BTW...to any on the board:
We talk a lot about broadband sound therapies here on this site.
This may be one helpful step, at least for hyperacusis.
At the same time I think hyperacusis - unnatural loudness of sounds - is a byproduct of other changes which the direct treatment of hyperacusis through desensitization does not completely address.
Many seem to show great results with broadband therapies, and/or other sound therapies, for desensitization. And desensitization can get someone back to work and activities...a very important thing.
Yet for virtually no-one does the entire constellation of strange auditory symptoms (beyond hyperacusis) seem to get treated with broadband.
These symptoms do seem to improve over time for many or most, yet these extra-hyperacusis aspects often linger well beyond hyperacusis.
Have independently repeated, double blind, placebo and other controlled clinical studies been done with broadband, especially that follow individuals over years of time to determine statistical relevance?
Studying both hyperacusis and extra-hyperacusis symptoms that is.
I have not seen such studies...if anyone knows of them, please post links.
Those who read this board and it's archives can see with our own eyes that one thing we do know for sure is that broadband or not, few if any eliminate (versus acclimate to) tinnitus and some other extra-hyperacusis symptoms.
Therefore I believe we should enthusiastically welcome and pay keen attention to anecdotal reports about adjuncts to broadband and any other sound therapy.
There are likely stones unturned that the small handful of researchers in the field have not considered.
We can quote this handful of researchers and argue the fine points of their views, and they may have taken us to places of enlightenment in the field, but their research and perspectives may not be comprehensive.
Somatic relationships and gentle physical therapies which may address them seem to show
evidence of also being on a trail that could lead to help, maybe where sound therapies alone may not, and bring further clarity to the field.
I hope that all who wish to add to broadband or other approaches, because of the desire for holistic and comprehensive help beyond sound desensitization,
will research potential somatic relationships to these symptoms and consider doing a well-thought through trial of craniosacral therapy, neuromuscular therapy, acupuncture or combination with conscientious professional who also is willing to think in terms of how auditory conditions might be affected by such applications.
Along the same lines, nutrition, musculature/connective tissue strength and posture may also be influential as adjunct
influences about which to be mindful.

We have only begun research into all that goes into the creation of the many conditions which often accompany hyperacusis and what hyperacusis amidst constellations of other symptoms may actually represent.
This in terms of what happens in the first place when a loud noise, virus or drug leads to these auditory changhes...and all that the body may be able to use to bolster, help, and restore itself to the highest possible degree of comfort and function afterwords.

In time, all can and should be studied clinically.
But there are no drugs nor expensive technologies involved here. This  detracts dramatically from monetary resourcing for clinical study, as well as political support from a medical field.

It is especially important in such a climate for responsible and sincere anecdotal reports be welcome, collected, tracked...and ultimately, if it appears warrented, used to encourage the resourcing of repeated and varied clinical studies.

While hyperacusis and concurrent auditory symptoms appear to be relatively rare, looking at their causes and treatments on multiple and yet-unexamined levels will potentially uncover yet-unconsidered, enlightening realities about the auditory system.
These general discoveries could well inform treatment for auditory symptoms that present more commonly.

For this ultimate purpose,
let's track, not discourage or discount, well-thought-through anecdotal reports on somatic experiences with auditory conditions and the reported outcomes of physical help sought for it.

In fact, there should be a section on a site like this, with a disclaimer about anecdotal evidence, welcoming and encouraging such reports, positive and negative.
The ratings should include all elements of a person's symptoms and quality of life perceptions.

On that note, another section should feature the same kind of collection on reported experiences with various sound therapies, alone and in combination with other treatments.



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John7

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Reply with quote  #5 
Thanks Debbie and Charlenef for your replies. To Debbie especially I appreciate you taking the time to outline your thoughts. I will print them out and study what you have to say carefully and I wil get back to you. Of what I do understand of what you have written , I too wonder about the overall relation of tight musculature and our ear problems. Sometimes when I have felt particularly relaxed in my thorso and head area I feel a relaxation around and in my ear. Conversely , when I am tense there, my h. gets worse, of course (which is why I am writing this). Another thing I wonder about is the possible effects of UNCONSCIOUS muscular tension on our ears. You see, some psychiatrists working from the discoveries of a man called Wilhelm Reich , treat various pychological problems by means of relaxation of the overall body musculature which has trapped repressed emotions from childhood psychological trauma. These contracted muscles put unusual pressure on various organ systems causing pathology. Ears are perhaps one of these systems, tinnitus maybe being caused by this, and perhaps some types of h. (but I still think h. is a trauma due to excessive noise exposure and is organic, but stress can't help! ).Anyways I wil get back to you.

Charlenef: what exactly from computer use do you think caused your increased h. : the muscular stress, the noise typing, anything else?

Well I gotta go. My ears after typing all this are already shot. Usually I can go longer, but I am in a bad setback. And my trap muscles are already tense.
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John7

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Reply with quote  #6 
Hi Charlenef, I am still waiting for an answer to my last question to you, if you can. It is important to me.

Debbie- I read your comments carefully and I totally agree that we must look at all possible causes of this disorder we have. I have , for instance, wanted to explore the psychophysical therapies based on the work of Wilhelm Reich, whom I have mentionned in my last post, but could not follow up due to lack of money, and a pinched nerve in my neck which is made worse by every type of exercise I do for my neck area.

I beleive I did exchange once with another h. person who did Craniosacral, but that was a long time ago. Seems she got some good results but I am not sure.There was a guy at that time also who got good results with auriculotherapy (and other modalities) which is a form of acupuncture. Wrote a whole complex mongraph describing his partial healing of h..

Anyways ,no question that anything that puts stress on or near the delicate structures of the ear are going to affect it. Which is why I must now sign off early because my neck muscles are tensing up again fast, and I want to take a break from too much computer work.
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