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ANOther

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Posts: 1
Reply with quote  #1 
Hi, I am a 47-year-old man living near London, England, and am new to this website and forum.
 
I went to my doctor in January this year complaining of a general feeling of lightheadedness. I frequently felt off-balance while walking around, and giddy to the point where I seriously felt at times that I could just suddenly collapse.

After a couple of appointments I was referred to an Ear, Nose and Throat specialist who sent me for an MRI scan and a series of tests on my hearing and vestibular balance. These came back normal, and the specialist said whatever my problem was, it wasn't anything to do with ENT. There was no mention of the possibility of hyperacusis. At that time I was not familiar with the term, but my symptoms had developed to the point where I was finding even some routine sounds unpleasant -- a drawer closing, a person sneezing, a plastic bag rustling, or the recorded voice in the elevator at work that tells you what floor you're on. I was experiencing a lot of sensitivity in my upper front teeth, which have never caused me problems before. I even became unpleasantly sensitive at times to the sound of my own voice and the vibration I felt in my mouth and teeth while speaking. 

I was then referred to a neurologist who, although very sympathetic, has not been able to get to the root of the problem. He said my nervous system might have been over-sensitised due to some kind of virus, and put me on steadily increasing doses of Amitriptyline over several months in an attempt to 'reset' it. This did not produce any benefit, even at 60 mg/day. Before going on my summer holiday, I agreed with the doctor to drop the medicine and just see if the break would do me good.

The symptoms did not go away but they did ease somewhat with several weeks away from work. Since returning in September, however, they have steadily worsened again. Both the sound sensitivity and the lightheaded risk-of-fainting feeling are back, as bad as before. Reading some of the accounts on this website, I don't think my symptoms are anywhere near as severe as some of those described, but they are enough to affect my quality of life and add to my levels of stress, already high because of other family issues that have made for a very difficult year.

It may or may not be relevant that I tend to suffer from excessive wax in my ears, have had them rinsed out a couple of times, and also have suffered from sinus problems: on a couple of occasions I have felt excruciating pain in my head during a plane's descent from high altitude.

In light of what I have read here, I am wondering whether I do have some degree of hyperacusis. I am due to see the neurologist again shortly but am not sure whether he is the right person to help me or whether I should revert to his very unsympathetic ENT colleague. I would be very grateful for any thoughts or advice from other users who may have had similar experiences. Thanks for the opportunity to share this. 
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Flapjack

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Posts: 22
Reply with quote  #2 
Hello, are you alsp sensitive to dishes and cuttlery noises? If yes, I'd definitely think it's hyperacusis.

As for the dizziness, that can also be related to hyperacusis.

Or maybe Menière's disease or something alike... I'm saying this as it seems to be quite associated wich such pathology. BUT it's just a wild guess, take it with a big pinch of salt.
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Stormy

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Reply with quote  #3 

Just go to a restaurant, the movies, the store, basically out in public.  If you have to escape due to ear pain/sensitivity; if you just can't function around your own house, then you have H.  You Will Know.  No formal diagnoses needed.

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