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Scott

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Posts: 313
Reply with quote  #1 
Two summers ago, I couldn't stand the sound of my own voice. I needed to speak in a whisper. Sometimes I could feel the vibration from my own footsteps in my inner ear. Things were pretty tough.

Today, I go to dances and movies (I still carry ear plugs for when things get very loud).

There are some things that made a big difference. Minor's story in this past newsletter made a tremendous differance. I realized many of my symptoms might be from fear. So I took a big chance and went to a waltz over the holidays. I was OK. It was the first time I had danced in almost two years. I went to a louder dance the week after. Still OK. I felt like a bat out of hell, and really greatful.

Other things have helped. Last year, Dan posted a link to Pandora music service. http://www.pandora.com/
Pandora plays music I like to hear. Before that, my home was mostly silent. I have no TV, and I don't like the radio because it plays little music I like (I also live alone, so no one to talk to). I think silence
increases my ear's sensitivity. SO it is nice to have a music scource I like. I also keep air filters running a lot for background sound.

Here's some things that kind of worked, though not as good as expected.

TRT - I noticed an immediate improvement when I got my generators. After 6 months, I was doing quite well. However, I kept loosing my generators. I'm a carpenter, so keeping them in my ear at work was hard. I lost one one day, and ended up stepping on it (insurance replaced it). A month or two later, I was walking through the woods when the flies were very bad. In the midst of swatting flies, I noticed a generator was missing. End of generators. Insurance didn't cover it, and I had no more money to get new ones.

In hindsight, I don't know how much of the improvement from the generators was physical, and how much psychological. Probably some of both.

I still get feelings of fullness at times, and my inner ear sometimes hurts.

I've found one of the best things for my ears is moderate sound in a fun social environment. I was at a dinner party Friday, after which we watched a great video. The hostess knew about my ears, so kept the sound from being "too" loud. My ears felt refreshed afterward.

I'm doing much better, as you can tell. Thanks, everyone for all the positive support.


  
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aQuieterBreeze

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Reply with quote  #2 
Scott,

You able to return to your work as a carpenter, or continue with it?

That says a whole lot in itself.
Glad you are doing better!

You mention-

I think silence increases my ear's sensitivity. SO it is nice to have a music scource I like.

Being able to listen to music is wonderful. (I spent a LONG time not doing that) And I am VERY happy and grateful for what I can listen to.
Though I listen to cds, and still can not tolerate everything yet.
But I find that what I do listen to, is not only  pleasing to me,
but also seems to be helping Greatly to improve my tolerances to other sound as well. And that, Is truly wonderful!
Though I don't always just "listen to the music" for background sound.
Though I do that as well, for the most part I listen in certain ways, that I have found to be helpful for me,
And it is a true joy- to enjoy music again.

Wishing you continued improvement,
and thanks for sharing your story.
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Scott

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Posts: 313
Reply with quote  #3 
Big setback.

Went to a dance Sunday. Woke up Monday with vertigo, nausea. Couldn't keep anything in my stomach.

I've generally had mild vertigo with my H, but nothing this bad.

The vertigo I have is like being sea sick, where sound and motion make my stomach upset.

And it is hard to tolerate the sound of my own voice.  It's gotten a bit better the past few days. Missing time from work.

Ug. No fun.
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Rich

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Reply with quote  #4 
So are you saying that 2 years of improvements just went down the tubes in a heartbeat?
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saab1216

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Posts: 337
Reply with quote  #5 

We are standing by you...Hope things improve!


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Paul
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Scott

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Posts: 313
Reply with quote  #6 

 Rich..., Yea. It's pretty upsetting.

Let my caution down a bit too much.

Interestingly, my symptoms seem to be evolving. I don't get the ear pain I used to get, where things clamp down real tight and hurt a lot. Even though it would hurt, it was a clear signal that I should stop what I am doing.  

I'm not getting such clear warnings now. I wasn't aware I was in trouble 'till the morning after.  

Hope it doesn't take 2 years to get back. I can't afford it financially. Plus it's  a tough way to live. So much isolation.

Thanks, Saab, for the good wishes.

You know, there has always been this doubt in my mind that my H is something I manufacture as some emotional defence, or something like that. That maybe I'm just obsessive, etc.

I think reading Minor's story played into that. There is much good to learn from it. Some of my problem is fear. But I need to remember there is something seriously wrong with my hearing, and be cautious.

Healing for me has been a back and  forth thing for me, some steps forward, some back . Trying to have the kinds of sound I need to heal, but not overdoing it.

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Scott

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Posts: 313
Reply with quote  #7 
AQuieterBreeze-

Yes, I was able to return to my work as a carpenter.


I don't know if you've noticed this with your ears, but my ears seem much better with things they really want to hear. THere is something about good music that make my ears want to calm down and focus.

Of course, it's not a cure all. Right now, my ears are sensitive, so I don't think I'd enjoy listening to anything.
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aQuieterBreeze

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Reply with quote  #8 
Scott,

You said-
Yes, I was able to return to my work as a carpenter.

To be able to return to your work as a carpenter, was a big step.
And says alot.

as far as setbacks-
It seems we experience setbacks differently,
I know they can be difficult though..

You said-
Went to a dance Sunday. Woke up Monday with vertigo, nausea. Couldn't keep anything in my stomach.

I've generally had mild vertigo with my H, but nothing this bad.


I am curious about the dance you went to-
Did they have sub woofers there? And also was it Loud?

I think it is important to remember, even after we recover from these hearing challenges, that there are times it's recommended, and a good idea, even for people with "normal hearing",  to use hearing protection.

You mentioned-
I don't know if you've noticed this with your ears, but my ears seem much better with things they really want to hear. THere is something about good music that make my ears want to calm down and focus.

It's nice to find something that helps our ears/hearing calm down.
I have found when my hearing gets more sensitive, sometimes some things I listen to can help do that. But it is limited, as to what helps for me in that situation.

But as far as listening to music, that I like, that  I want to hear,
I can listen to some things, other things I have wanted to listen to-
have taken me over a year to be able  to tolerate.

Like some Simon and Garfunkel I tried to listen to- when I first started listening to music again, 
I could not listen to it. I wanted to hear it and tried to listen, but
it took me probably until the fall of last year to be able to listen to
even just one of the particular songs I had really wanted to hear.
I had tried others (I wanted to hear from the same album) and could not listen to them.either.
And it took me until VERY recently to be able to listen to The Sound of Silence.
And fairly recently to be able to listen to Bridge Over Troubled Water. (though they were among the selections I had wanted to hear before)

Some folk music was really difficult for me too. I could not listen, to a particular album,
I would try, and it did not sound good, or was intolerable-
finally I can listen to some songs on the album though, and they sound really nice to my ears now.

Same with the phone, there have been people I wanted to talk with,
but could only talk for a little while, or not at all at times
too difficult for my hearing.
Other times when I did talk for too long my hearing got more sensitive afterwards.

So for me it is not a matter of being able to listen to what I like-
Though that does help.
(because if I had to listen to what I didn't like, in the way of music- I don't think I would be so happy about being able to listen to it again.)
Even though I can not listen to everything I want to yet,
I do listen to things I Enjoy. And it does help. Alot.

I had actually quit listening to music for a very long time, until not long after I saw something Rob graciously posted. And it made a world of difference to me.
Some things are still too much for me though -
But the other things I can listen to totally amaze me.
And that list of what I CAN listen to gets longer all the time.

Even when my hearing gets more sensitive, I find it is nice to be able to have something playing in the background, or something i can listen to. And I have found that most of the time there are things I can listen to, (even if it's just for background sounds) weather it is the most soothing track on the nature cd I have-or even some gentle selections, of music, I have found to be calming/soothing to my hearing/ears. And  if I am able to to comfortably tolerate them at them at the time, I listen over  my stereo at low volume. using settings that are Very comfortable for me at the time..)
But we are all different, and that is just something I have found to be helpful for me. I'm not in the medical field, and I don't know what would be right or appropriate for anyone else.

You also mentioned-
Interestingly, my symptoms seem to be evolving. I don't get the ear pain I used to get, where things clamp down real tight and hurt a lot. Even though it would hurt, it was a clear signal that I should stop what I am doing.  

I'm not getting such clear warnings now. I wasn't aware I was in trouble 'till the morning after. 

Do you notice that at other times as well, or was it just with the dance you went to recently that you noticed that?

You mentioned-
It's gotten a bit better the past few days.

Hope your setback fades away, and disappears soon.
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