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LynnMcLaren

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Reply with quote  #1 

Hi Everybody,  

 

It seems that are lot of disease's and illness's that has the added effects of sound sensitivitys and hearing loss. I've been reading many different stories from many people on this and came across this one..

 

New link.. The web site has moved recently..

 

http://www.pinkdisease.org/

 

Not active below as big pond... Sorry..

But all the info listed is still on that site...

 

http://www.users.bigpond.com/difarnsworth/merc-poison.htm

 

http://www.users.bigpond.com/difarnsworth/whatisPD.htm

 

Not pink noise which is healing and help's with hyperacusis and sound sensitivitys whatever may have have caused them..

 

And with pink noise there is white noise, brown noise, blue noise I even heard of an orange noise on a web long ago..

 

http://www.ee.columbia.edu/~dpwe/noise/  played some of theses colorfull noises..

 

But on this site 81.41 says they are sensitive to noise.. And ear problems 54.24 say yes. 17.20 say sometimes and 7.01 say allways..

 

I just never have heard of pink disease before and I'm glad its pretty rare now but they believe that almagrams may be the next pink disease of the future as they are getting alot of almagram people contacting them.. 

 

It was just an interesting site and how so much information dental almagrams,  mercury in the enviroment, things that may contain mercury, getting mercury out of the body, vitamins and minerals, the diet, vitamin D about homoeopathy, acupuncture, flu injection time, about the adrenal gland's...

 

And it had links to many sites on health and care for highly sensitive people.   

I just didn't know such a condition ever existed.

 

It's just something... just something to think about when one has highly sensitive ears in the first place what may be toxic to the ears and hearing besides medication ect.... What to avoid exposure too.

 

What may help..  

 

Plus to know where we have come from and never forget the past leds to better choices for our healths and lives in our future..

 

And inflammation and pain of the peripheral nerves.. What ever can cause something like that we want to avoid .

 

Pink disease is just something I never hear of before has anybody else ever heard of it ?

 

I'm glad it's rare now though the causes of it are not.. It was just fascanating reading and it truely did exist..

 

I know mercury is highly toxic to the ears.. It cause abnormality sound sensitivitys and all sorts of problems with the hearing..

 

It's best to keep any exposure to a low one.. And the flu shot contains mercury its just not good for the ears..

 

Tommorrow they will be marching " Moms and Dad and people that care " for getting it out so it will not cause health problems for the future.

   

Education is the key to better health and longer lasting sensory health..  

 

Lots of us love the color pink on this network . But not this pink . Hopefully this will never happen again..

 

  


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LynnMcLaren

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Reply with quote  #2 

Hi Everybody,

 

I've been getting lost in this site its so intense. Inside the site itself it has whats called the better health channel.

 

It has a library search of topic and also has a click on like topics to headaches different types explained, Headache and Jaw problems, Headache and Medication, Headache ear nose and throat problems, Headache and  nerve problems.. it just goes on...

 

Nerve damage can be caused by vitamin deficiecies..

 

There was a medicine  guide information about common prescription medicines and all sort of research on medications.

 

In the Library search topic I found:

 

A Question and Answer from a 53 year old who have had hyperacusis and tinnitus about 7 years following an exposure to loud noise it was a question and answer thing that lead me to a click on link that directs you to the Tinnitus and Hyperacusis Center in Maryland. What is hyperacusis ...

 

I haven't even went thru the whole site yet its all contained inside one site the link I posted above..

 

Also in this site is various ailments depression.. Are you really depressed ?

 

About Chronic Fatigue and they are sensitive to light, sound, heat and cold and treatment.

 

About the Endocrine System.. About Lupus.. Raynauds Syndrome, Restless Leg Syndrome, Solar Urticaria but the Better Health Channel is interesting..

 

I'm going to search more thru there library..  on the site I listed above...

 

I'm going back to the hyperacusis story I haven't finnished reading it yet..

 

To get to that you have to go to the main homepage.

 

http://www.users.bigpond.com/difarnsworth/

 

It is a big pond in there

 

 

 


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LynnMcLaren

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Reply with quote  #3 

Ok, 

 

I found the search the medical dictionary  on the better hearing medical terms and tools. It takes you to Medlexicon and you can search by Acronym and abbreviation and it came up with Hyperacusis the data demonstrates that dysacusis that took me to Peb Med with 1 - 152 things to look at which I went back to seach dictionary.

 

Search the medical term hyperacusia auditory hyperesthesin index sensory neural mechanism abnormal acuteness of hearing due to increased irritability of the sensory neural mechanism..  

 

O.k...

 

I think I'll rest from that site for awhile and go back to it later.. Theres just to much information on there for one visit... 

 

Untill Then.........

 

The Right To Search For Truth also implies...

 

A duty one must not conceal any part of what one has reconized to be the truth...

 

-Albert Einstien.....

 

NCI- No Conflicts Of Interest....

 

Medical Truth No Compromise...

 

The Journal Of Medical Veritas International, INC....

 

 

http://medicalveritas.com/home.html

 

 


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LynnMcLaren

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Reply with quote  #4 

Hi Everybody,

 

Look what I found in the Pink Disease Support Group site that lead me to this...

 

New Bionic ears uses smart plastic 12/04/05

 

Scientists are building a new bionic ear coated in a smart plastic that boosts the growth of nerve cells when its zapped with electricity..

 

Hum... this is me talking.. Electricity... Thats interesting.. Heres the direct link..

 

http://www.abc.net.au/science/news/health/HealthRepublish_1342345.htm

 

 

And there was a article that said :

 

Autistic Kids have inflammed brains. : Children with autism have inflammation in their brains , although it is not yet clear whether the infllamation actually causes the condition, an international team of researchers say..

 

Hum... What I want to know is what triggered the inflammation..

 

Oh and this is a good one :

An MRI might cheer you up:

 

An Magnetic Resonance Imageing ( MRI) scan can have the same effect as antidrepressants, says researchers, whose findings in rats confirm previous observations made in humans..

 

Study brought to you by the MRI people.. Just kidding ... But not brought to you by the Hyperacusis of America and International.. The H.A.I . Ow, sounds important...

 

There study showed the opposite results.. How could one tell. Just do a study on this board and then we shall put our own study out... Theres no H.A.I..

 

Just kidding but it sounded good.

 

I bet your cheered up allready...   Ow, MRI.. Sounds Yummy...

 

 


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LynnMcLaren

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Reply with quote  #5 

Hi Everybody,

 

Remember I said above I think there was orange noise too. Haven't looked it up in a long time but now I remember there are lots of colorfull noise's in the spectrum of white..

 

http://en.wikipedia.org/wiki/Colors_of_noise

 

Lots of us old timers have been there.. This is for the new.

 

Color your world with a mulitude of noises..

 

Some you'll like. Some you won't...  

------------------------------------------------------------------------

 

 

This just came in.. I have been researching on heavy metals and ear disease and abnormality sound sensitivites hearing loss deafness ect...

 

Because it is proven that heavy metals can cause theses problems..

Cause problems in the brain.. The Auditory System..

 

And I hit on this research because of my problems with my ears and what I am faceing at home with my autistic children which opened up a whole new world of research for me.. Just by being here.... And learning from others...

 

My hyperacusis.. Their autism and hypo and hyper hearing problems they have had.. And then I stumbled on this... And I now what tests have found in their blood as well... The results are in... Now I'm a believer....

 

 

 

Heavy metals may be implicated in autism

URINE samples from hundreds of French children have yielded evidence for a link between autism and exposure to heavy metals. If validated, the findings might mean some cases of autism could be treated with drugs that purge the body of heavy metals.

Samples from children with autism contained abnormally high levels of a family of proteins called porphyrins, which are precursors in the production of haem, the oxygen-carrying component in haemoglobin. Heavy metals block haem production, causing porphyrins to accumulate in urine. Concentrations of one molecule, coproporphyrin, were 2.6 times as high in urine from children with autism as in controls.

Autism is thought to have a number of unknown genetic and environmental causes. Richard Lathe of Pieta Research in Edinburgh, UK, says he has found one of these factors. "It's highly likely that heavy metals are responsible for childhood autistic disorder in a majority of cases," he claims. The study will appear in Toxicology and Applied Pharmacology.

Lathe says these porphyrin metabolites bind to receptors in the brain and have been linked with epilepsy and autism.

The researchers restored porphyrin concentrations to normal in 12 children by treating them with "chelation" drugs that mop up heavy metals and are then excreted. It is not yet known whether the children's symptoms have eased, but Lathe cites anecdotal reports suggesting the drugs might do some good.

--------------------------------------------

The study is available online at:  http://filariane.org/anglais/DOC/MSFINAL.pdf

 

------------------------------------------------------------------------

 

 


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Lynn
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Leah

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Posts: 789
Reply with quote  #6 
y'know, if I even quoted to people that nerve damage can be a result of vitamin deficiency (which I believe) most people would look at you like your bats!

It's like whatever the doctor says has to be true, and whatever advertisments say on TV has to be true to, but people are always waiting for the future generation to change things, I was reading about some orchard in Ireland I think where because of the heat wave all the apples were burnt of the trees, that's bad! 

I can't wait to get another white noise machine, they are the best, but I think my Bose headset might be broken, so I can't listen to my favorite show every now and then, coasttocoast.  WAH!!!!, but it really depends on the sound system, some I really can't handle, and another one we have makes the headset sound horrilbe.

But I'am still trying to get the smell of my hands from putting the dollar store fragrance stuff in the garbage stupidly with my hands, it smelled worse than lysol roaches, and Mom got it because she feels we need better air because the windows haven't been opened in weeks but could have been when it's been cool out!  And people fail to realize indoor air is worse than outdoor air, and we continue bringing in added toxins, that helps with asthma, and lung disorders, just because the marketing and advertistements say it's great, $!@$$$%^$#%
JL


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LynnMcLaren

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Reply with quote  #7 

Hi Leah,

 

It use to be as you know that the food we ate contained all we needed as we grew it on the farms in our backyards. But now they pick it early in some cases,  store it, ship it, process it, and its not the same food..

 

Its not the same by the time we get it and the body needs it and we all are the mineral's and substences it contains.. we are the soil and the soil is us.. 

 

It stands to reason if we are not getting it, our body lacks it and it could cause things not to function properly and even cause damage by not haveing it in the long run...

 

And in hyperacusis even tinnitus. We need all the nerves functioning as best as possible.

 

Lots of people don't think about that.

That health is separate then sickness.

 

That certain substances can make us sick..

As well as a lack of.

  

But they go together as our bodies work together in healing as one..

 

Lots of people don't think about that. What they need to sustain life. But they should..

 

You are what you eat among other things.. If your body doesn't get what it needs and its depleated. It stands to reason that one would suffer..

 

But you read up on all theses things so you know about all that allready..

 

But lots of people are suprised about that... 

 

Its like an engine running on empty..

 

You know how far that will take a person..  

 

But you allready know about that HUH Leah  

 

Not everybody does....

 

If you can grow it in your yard fresh like my society garlic plants.. Its a good thing to do.. And I love tomatoes.. Fresh ones not green one's barely red almost waxy and pink from the store.

 

I hear they wax some fruits and vege's to make them look good. But is that really good for us..   

 

http://en.wikipedia.org/wiki/Asperger's_syndrome

 

 

 


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Lynn
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LynnMcLaren

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Reply with quote  #8 

Hi Everybody,  

 

I found something else. Not on the pink disease board though that has many links and I hope to get back to that area soon to read up on all sorts of stuff...

 

But I was reading http://www.careingmedical.com board and they have a list of symptoms to look up such as Lyme Disease, Swallowing Difficulties, Neck Pain, TMJ, Phantom Pain ect all indexed so I typed in tinnitus and it came up with Barre-Lieou Syndrome

 

Typical Symptoms are Vertigo, Tinnitus , ect... due to neck trauma..

 

Neck Injury of the whiplash type and I have read of people on the archive board who have came down with hyperacusis after a neck injury or car accident or whiplash injury..

 

It say's neck injurys can cause tinnitus and ear pain. Can it also cause hyperacisis if it can effect the ears ?????? 

 

BARRE-LIEOU SYNDROME
Barre-Lieou Syndrome is characterized by a grab bag of diverse symptoms, all of which are rooted in the sympathetic nervous system, specifically the cluster of nerves located in the posterior cervical area at the back of the neck. It is caused when the sympathetic nerves are pinched by loose, weakly supported vertebrae. These nerves are part of the autonomic nervous system that regulates the body's functions, a myriad of activities ranging from such critical functions as your heartbeat and breathing to countless minor ones.

A list of problems that may be due to Barre-Lieu Syndrome:

Headache, Sinusitis, Chronic Allergies, Dizziness, Neck Pain, Chest Pain, Face Pain, Eye Pain, Blurred Vision, Ear Pain, Tinnitus (ringing in ears), Hoarseness, Laryngitis, Fatigue, Vertigo.

BARRE-LIEOU SYNDROME

Interesting.. Can a chiropracter help with this or a physical therapist..

 

Accupuncture... 

 

Maybe others have heard of this syndrome but I haven't..

 

Need to read up on this ..     

 

http://www.jointrehab.com/barre-lieou_syndrome.htm

 

http://www.getprolo.com/barre_lieou_syndrome_prolotherapy.htm

 

And  prolotherapy.. Thats A new One.. Have to look that up too...

 

 

 


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LynnMcLaren

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Reply with quote  #9 

Hi llh,

 

I'm eventually going to get back to this thread but untill then.. I brought up on the Flu thread about pink disease and I don't know if you have read about this happening from the past...

 

And the percentage of them that have problems with their hearing... 

 

I read your concerns and I have them as well.

 

 

I just wonder what the future behold's. 

 

But untill then..  Mercury is a potent neurotoxin that can cause noise sensitivitys and hearing problems and thats a documented fact...

 

We don't need any problems on top of the ones we have now..

 

Here is the truth behind......

 

http://www.mercola.com/2004/sep/25/blaylock_vaccine_coverup.htm

 

This should never of happened....  

 

 http://www.russellblaylockmd.com/toc.html

 

Vaccine Reality... Safe or Effective.....

 

http://www.taxtyranny.ca/images/HTML/Pharmacartel/Pharmacartel.html

 

http://www.ewg.org/reports/autism/part4.php

 

Ask Dr Marc American Council Of Science and Health..

 

http://www.thenation.com/doc/20050620/drmarc

 

http://www.doctorsiegel.com

 

Safe...

 

http://msnbc.msn.com/id/8243264/

 


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LynnMcLaren

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Reply with quote  #10 

The battle against the use of mercury in medicine has mainly taken place in the last 50 years. It was banned from teething powders in the late 1950’s, from most contact lens products by the late 1980’s, and mercury in the form of thimerosal has been removed from many injections only recently

 

And its still in the Flu shots and other vaccinations at this time....

 

The last Flu shot I recieve was not long before I noticed my hyperacusis.. It may have been a part of the factor of all the things that lead  me to this condition...

 

I no longer will recieve a flu shot untill I know there is no longer any mercury contained within.. I think you can take a pill or spray flu product now....

 

I forget the name but people are stocking up on it... I'm not sure if their is any mercury in that product..

 

But dental problems.. I still don't like haveing theses fillings in my teeth and I envy thoses that were lucky enough to be able to get them out..

 

Maybe someday.. I will too.

 

http://www.andrews-clinic-natural-therapies.co.uk/dental_problems.htm

 

Plus Childrens Health....

 

http://www.healthy.net/scr/Article.asp?Id=553

 

http://www.autismone.org/radio/

 

http://www.nationalautismconference.org/

 

Moms Against Mercury... Mercury is in the flu shots...

 

http://www.momsagainstmercury.org/

 

 

In recent weeks, two federal judges have ruled in favor of the FDA's "Preemption Preamble," a preamble that protects makers of FDA-approved products against liability.  To view the preamble, see pages 13 and 14 of this document:  http://www.fda.gov/OHRMS/DOCKETS/98fr/06-545.pdf.

Although this is not a set law, judges are being swayed by the language and offering deference to the FDA. 

What this means is that manufacturers of FDA-approved products, including vaccines, will not be held accountable for any negligence or wrongdoing.
-----------------------------------------------------------------------------------------------------

Is this fair ? I don't think so....  I Seriously want the mercury out first...

 

 

------------------------------------------------------------------------------------------------------

 


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LynnMcLaren

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Reply with quote  #11 

http://www.nationalautismassociation.org/press101805.php

 

Never Again....   People need to know their rights when it comes to their flu shots or any shots that may do them harm.. To know what the shots contain .....

and to have the right to have any potential harmfull additive's taken out..

 

To go in the other direction with this is not good for the consumer. Or for thoses with health conditions.. Now that I know what thoses health conditions can contain by looking up the info myself..

 

And what harm can be done..

 

I am more pro-active then ever.. They just need to do the right thing.. Not go backwards in the wrong dirrection .. Untill then.. I've lost all trust..

 

Not with my health.... Or my familys.. Not untill they care....    

 

PARENTS SWARMING CAPITOL HILL WITH PHONES CALLS; CHILDREN’S RIGHTS ARE ON THE LINE

PHARMA-FRIENDLY POLITICIANS THREATEN TO STEAL AWAY CHILDREN’S RIGHTS WITH MULTIPLE BILLS

WASHINGTON DC – Advocacy organizations kicked off a new campaign today that promises to over-load Capitol Hill’s phone lines.

The Power of Parents Call-in Campaign hopes to stop pharma-friendly legislation in its tracks. For years, politicians like Senator Bill Frist and Judd Gregg have routinely inserted language that removes liability from vaccine-makers, which ultimately eases safety guidelines and dismisses injuries some children suffer from vaccines.

In 2002, an anonymous party inserted the now-famous secret rider to the Homeland Security bill, a provision that gave Eli Lilly and vaccine manufacturers liability protection from a toxin used in vaccines. The rider was later repealed.

But sources in Washington say that the liability language is back and fiercer than ever. Over ten pieces of legislation now contain liability-protection language that will slam the door on children injured by vaccines. Some language is expected to enter the appropriations committee. If it passes, the language cannot be removed.

 

 ------------------------------------------------------------------------

Advocacy Groups Urge CDC Advisory Committee To Remove Mercury from Vaccines

Children’s health advocates again ask government officials to make good on repeated promises of mercury-free vaccines

Atlanta, GA -- A prominent ad in today’s Atlanta Journal-Constitution sponsored by parents and friends of children injured by mercury in vaccines demands that a Centers for Disease Control and Prevention (CDC) advisory committee require complete removal of mercury from vaccines.  The ad’s sponsors note that according to Environmental Protection Agency guidelines, a person must weigh over 500 pounds to safely absorb the amount of mercury contained in a single flu vaccine and that special hazardous waste sites are required for flu shot disposal.

To develop national vaccine guidelines, the CDC follows the advice of the 15-member Advisory Committee on Immunization Practices (ACIP) (www.cdc.gov/nip/ACIP/members.htm).  To date, ACIP has refused to fulfill promises made by the government, physician organizations, and President Bush to remove thimerosal from all vaccines.  “Mercury should never have been in vaccines in the first place.  The fact that it remains in vaccines seven years after explicit promises were made to take it out amounts to government footdragging that puts children at serious risk of injury,“ according to Vicky Debold, PhD, public health nurse and mother of a vaccine-injured child.

A growing number of scientists are finding that the type of low-dose mercury in vaccines kills and injures brain and immune cells.   “Considering that so many children now suffer from learning disabilities and a host of immune-mediated illnesses such as asthma and diabetes, the practice of injecting mercury into our nation’s most vulnerable is barbaric,” said Dr. Debold.

The ad also points out that most flu shots and some other vaccines contain 50,000 parts per billion mercury, despite requirements that landfill waste contain less than 200 parts per billion. “Directly injecting humans with a powerful neurotoxin flies in the face of common sense. With growing research from leading universities further confirming the neurotoxic effects of mercury exposure from vaccines, the ACIP must consider the best interests of our children and put an end to this dangerous and unnecessary exposure,” commented Dr.. Debold.

The public is urged to contact Julie Gerberding, MD, Director of the CDC (404-639-3311) and Mike Leavitt, Secretary of Health and Human Services (202-619-0257) to request that they direct the ACIP to recommend removal of all remaining mercury in vaccines.

To view the ad, go to http://www.nationalautismassociation.org/images/acipad.jpg 

------------------------------------------------------------------------- 



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Lynn
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Reply with quote  #12 

Hi Lynn:

In your 4th post on this thread – your quote:

“Autistic Kids have inflammed brains. : Children with autism have inflammation in their brains , although it is not yet clear whether the infllamation actually causes the condition, an international team of researchers say.. Hum... What I want to know is what triggered the inflammation..”

 

As I have often repeated on this board, a relative’s listening to an interview about Autism, is what got me onto the right track as to my severe H & T troubles. One of my specialists ended up being an Autism expert.

 

My brain would become so inflamed that the pressure from my skull was a very scary and troublesome experience for me. And also at this time I would lose my balance. Sitting down and resting would not take away the symptoms either. I had to rest an entire 24 hours to see a difference that allowed me to cope. And rest, meant little to no sensory exposure. Of course, in the first 6 hour or so, all I wanted to do was dive into a dark closet together with an exceptionally cozy quilt, for my body was now refusing to manage in this world.

 

The swelling of my brain was caused by:

- driving up – and over - the mountain pass at a good speed.

- my never giving myself a break and continually listening to sounds around me, even so were soft.

- my riding in a vehicle for a length of time and not resting my eyes, as the constant movement my eyes were viewing, even so just scenery, was the same as the sound, and my senses needed rest.

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LynnMcLaren

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Reply with quote  #13 

Hi Liam,

 

Thats interesting.. I've been doing alot of research on autism of what they have found in their brain's expecially with their neuron's that didn't develope right and make the connections and of what's missing with this developmental disorder.

 

I did read a site that I mentioned that mentioned inflammed brains..

It's just so interesting to read up on theses subjects...

 

So it was thru a relative listening to an interview on autism that got you onto the right track with your severe H and T..

 

I can't remember exactly how you came down with hyperacusis.. I'm sorry.. I have to read some of you're old post's again as I know they go way back..

 

But how did they know you had brain swelling.. Did you have a cat scan or what test's did they do on you..

 

Do you have another condition on top of hyperacusis like autism or simular that may have contributed to your hyperacusis disorder..

 

I remember you mentioning a sensory disorder. Forgive me if I have this wrong but it's been awhile since I read up on it... 

 

I haven't heard that brain swelling is common with hyperacusis from anyone else so I just don't know if it is or not.. I'm just not sure...

 

But I believe their probably is nerve swelling the seventh nerve branch " efferent nerve " from the trauma or even from a medication or an illness that may have caused hyperacusis..

 

And maybe also muscle malfunction as with the tensor and maybe stapedial because of the nerves malfunctioning as nerves are connected to muscles and send signals..  From and to the brain...

 

And as muscle attach to bone maybe pulling on the staples 3 bones in their as well and causeing havock. Just things all going wacky from nerve trauma or nerve signals " malfunction".

 

Causeing all the spasming, poping, booming, rumbling and other features of hyperacusis..

 

And nerves can be inflammed as well. And I think Marsha said something about her believeing in or about an inflammation reaction or  hyperacusis being an inflamation response..

 

I can't remember exactly how she put it.. I would have to go back and read her exact words on the inflammation aspect..

 

But I did read before about how others believe that brain inflammation with autism was caused by the trigger and the trigger they believe was toxins or mercury that they believed caused the interupted development in the brain while causeing the inflammation in the brain and gut " stomach "..

 

Thats why they want to change their " my Kids " diets.. It's like the brain gut response.. Interesting... But my kids are such picky eater's and one is worse then the other...

 

But I remember when I had bad hyperacusis my head felt like it was vibrating with sound and ready to explode.. Like my bones were conducting and vibrating with sounds and picking up on sounds.. Like one big antenna....

 

Hyperacusis really sucks to have..

 

I'm so glad I'm not expirenceing that today.. Though I would not call myself cured.. Just over the worst... It was a terrible expirence to go thru...

 

I'm glad I could get better.. Just the thought of liveing like that.. Made me cry..

 

Take Care Liam...

  

 

      


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Reply with quote  #14 

Hi Lynn:

“So it was thru a relative listening to an interview on autism that got you onto the right track with your severe H and T..”
Yes – Nobody Nowhere, by Donna Williams. There is also a book. This interview stunned the medical world – a medical world that had adamantly refused to accept certain findings. Matters with autism changed greatly after that.   I had a few of Ms. Williams 'peculiarities', in much smaller quantity mind you – and it was a great shock and relief, to comprehend that there were others ‘out there’ as me. As autism is a disorder of the brain, and it is the brain that controls our sensory abilities …… Hyperacusis can be part of autism. I can’t remember all the tests they took - but in truth, it is possible to feel your skull if you brain is swollen. It is as if you are wearing an iron helmet that is far too small. I was never ‘aware’ of my brain, until that started to happen. And when the swelling subsided, the inside of my head was itchy as he!!.  Couldn't even shove in a knitting needle to itch it !! 

As with yourself, no one knows for sure which or what, contributes to a Hyperacusis disorder, but my specialists think that with me it might have been a lengthy med overdose. However, I was born with all my senses acute – and they got pushed to another extreme that I could not handle. At the time of my diagnosis, there were I think 5 others registered with my condition. Synaesthesia is part of it. I often see, feel and think things in a totally different way than the mainstay. Truly, I do not wish to post on here what I experience – it was hard enough to cough up with my specialists, but I was past fortunate, and stunned to find out that they knew others with the same abilities.
Being labelled weird/difficult/different/stubborn/immature …. you name it - has been common throughout my life and I can do without this. It took me many years to understand that my differences are gifts. It is just that the mainstay of the population is afraid, or turn a deaf ear ? when they hear of something they do not comprehend. This is the same for one having Hyperacusis is it not ? Mind you, whenever someone needed my gifts…. Then I was the cat’s meow.
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Reply with quote  #15 

Hi Liam,

 

Yes.. I remember now.. You brought that up before.. I just read this site or this list on it.. http://synaesthesia.fws1.com/main.html I got to go back and read more because I only glanced thru it... 

 

But my severe daughter is left handed... And sometimes.. Ambidextrous...

 

Synaesthetes are far more likely then the general population to have ADD/ADHD/ " perfectionistic "...

 

which I've had pointed out to me by my other family members to be sometimes... like with..

 

Spots in glass's and cup's and plates after it's been washed... and just being so picky and all..

 

We all have our personality traits to contend with.... And theirs alot of evidence pointing to a greatly increased incidence of Autism, Edictic Memory, Prosopagnosia..

 

I got to look that word up..  My severe daughter has severe sensory needs and needs to be placed on a sensory diet and their are times she doesn't like to be touched.. She use to alot when she was real little. But then that changed..

 

My other daughter didn't want to be held or touched when she was real little now she's my huggy one..

 

It talks about being generally as social as the next person but usually solitary people " Expecially if we have other associated neurological disorder " so we can't help but feel isolated..

 

O.K..  I see.. It must be real hard for you haveing this condition on top of hyperacusis..  Thats like sensory on top of sensory.. WOW.. That's like an autistic child haveing hyperacusis..

 

Not just sound sensitivity or other sensitivitys that can come with being autistic on the spectrum.... some autistic's more then others..

 

And as autism is on a spectrum.. I can just imagine how terrible it would be for a severe sensory autistic child or person to have hyperacusis disorder on top of that..

 

Double whammy.. What a challenge.. Wow... The condition seems to be rare though I can't remember what the site said in numbers..

 

I got to go back and read.. I know as a child I did not have any loudness disorder but I was a sensitive child as I could hear and sense things better then other's who could tune more out..

 

But it wasen't hyperacusis.. It was just being more not centered or just more of a live wire or emotional sensitive.. It could be more of a personality trait..

 

But hyperacusis seem to toughen me up more.. I had to learn to tune things out more for survival.. Hyperacusis can make one a live wire in itself..   

Interesting.. I got to go back and read more.....  


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Reply with quote  #16 

Nothing wrong with being left handed nor ambidextrous Lynn.

 

People with Synasthesia see, feel and hear things differently Lynn … nothing to do with being picky at all.

 

i.e. when some see the number 7 in print, those wtih Synasthesia can instead be seeing the colour orange.  Some actually see the grass growing … hear a specific sound when presented with a specific colour.  Receive thoughts from others minds or future happenings.  Every time I had my picture taken and the person said to smile at the count of “1, 2 and 3” …. I could never be prepared, for “3” to me, was a sound which told my body to collapse as a rag doll.  Now if they had reversed it and said, "3, 2 and 1" – I would have held my position most beautifully.  For the sound of the number 1, to me, is as firm and tough as steel.

 

This website will help you.

 

http://en.wikipedia.org/wiki/Synaesthesia

 

A quote from the above website: 

Depressant drugs tend to increase the depth of the perception.”  When the specialists gave me various drugs to relax me (this was their only way of coping even so I felt fine), I just produced more worrying data for them.   If they had just stopped fearing me for once, and stop insisting that I think as everyone else in the box, I would have been perfectly all right.  I always find it amazing how with the millions of people on this planet, so many specialists think we absolutely MUST fit into the same box, or we just aren't normal.  But truly, just what IS 'normal'

 

Good luck Lynn

 

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Reply with quote  #17 

Hi Liam,

 

So your specialist's thought it might have been a lengthy medication overdose that may have caused your hyperacusis.. Though they are not positive..

 

I am extremely sensitive to medications myself..

 

I took that Paxil 6 full dose days to long and got some real bad symptoms from it.

 

And it's so odd but true.. 3 days on that antibiotic caused the thudding in my ears to happen.. Now that I know what a symptom like that could be.. Myoclonus..

 

It seems like it caused my booming, thumping, rumbling problem in my ears to come about.. Mostly left.. Starting with the first symptoms. The thudding..

 

My daughter has been diagnoised with this problem " medication sensitivity reaction " as well.

 

I forgot what it's called but I wrote about what the doctor at the regional center called it long time ago.. And the doctor said she probably got that low doser thing from me..

 

She's a medication reactor so she's not on any at this time.. And I found a new site..

 

http://www.stoppicking.com/PsycTech/Program/StopPicking/Public/HomePage.aspx

 

My high functioning daughter likes to pick her skin.. She was picking her belly button raw and picking at her forehead.. Where ever she feels something I guess to pick at.. We have to put bandaids over it so she won't pick it raw and get scars..

 

I didn't know there was a site for people who do this.. I mean she doesn't pull at her hair.. My other daughter use to but doesn't anymore.. And she is not as bad I guess as some others with this problem can be..

 

But she has chapped lips because she has a compulsive lip sucking problem.. It's like she feels a skin condition comeing and it bothers her and she can't stop messing with it..

 

So I use chap stick and have to figure out a way to get her to do something else when she has the urge to pick or mess with her lip.. Maybe pick at a guitar or do something with her hands..

 

I need to read that site as I didn't know anybody else did this.. I wonder if it's a part of autism or just something else.. Maybe stress. I just don't know.. But she's a picky perfectionist like me..

 

Except I don't do that.. The picking habit....

 

I know there is nothing wrong with being left handed nor amidextrous.. It just my daughter is... 

 

It's just after I glanced thru that site.. It just seemed like my other " severe " daughter could fit in a way that I think she feels things intensely and hears things too because she does not like the vacuum when I turn it on..

 

She gets highly fussy and run's from it.. Some sounds and stimula do make her fussy like she's complaining about it.. And she can focus in for along time at a picture or piece of paper or object like ..she's thinking about it... she's highly interested in it..  

 

And she has high sensory needs as her OT at school told me.. But I really don't know how my severe daughter expirences things..

 

She can't tell me.. She only has simple speak..

 

But there are so many disorders out there.. It's hard to find normal anymore..

 

I guess they define normal as not haveing any problems at all. But most people do have disorders and problems..

 

And the more I search the web.. The more disorders I find that are out there..

 

But the sensitive I was talking about was...

 

I do with my sensitive nature pick on on what others may be feeling or thinking.. I have felt intermingled that way with people all my life..

 

But I don't have or go beyond that to feeling numbers or colors or thing such as that.. Just highly attuned where sometimes I feel or pick up on the emotions and thoughts of others..

 

I think it's more a developed skill.. Maybe from thinking to deeply about things.. To where I focus in on things like that.. But what is normal..

 

I believe most people aren't totally normal like the definition of normal..

 

We all seem to have something and our own individual personalitys...

We all have different finger prints..

 

And thats normal.          

 

 

 


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Reply with quote  #18 

Oh.. The ADHD message board..

 

Maybe it is a part of autism.. Though my daughter does not have ADHD.. They think my other one does but she doesn't do this..

 

http://www.adhdnews.com/testforum/test6022.htm

 

Or it could be OCD... I'm not sure...

 

http://www.ocdla.com/OCspectrumdisorders.html

 

She picked a huge hole in my blanket on my bed .. It was a yellow smiley face picture one and I didn't know it had to sides to it but she picked one side off till it's a big bare spot.

 

And that was on this site too. I just didn't know that others did this.. Wow.. What does it mean.. I got to read up on this... Is it part of a sensory disorder..

 

I just read a Willliam Sydrome site and I know they have a higher rate of hyperacusis then Autism supposidly does but skin picking is one of their things too..

 

http://info.med.yale.edu/chldstdy/wspws/generaldesc.html

 

It's like its a sensory thing.. I just don't know.. I have to read up more on this..  

 

Also I read that children who are deaf... may be mistakenly identified as autistic in the early stage of diagnoisis... Wow.. I guess it could happen..

 

http://info.med.yale.edu/chldstdy/autism/pddinfo.html

 

http://kidshealth.org/parent/medical/ears/central_auditory.html

 

Central Auditory Processing Disorders.. Is your child easily distracted or unusually bothered by loud or sudden noises ?

 

Hearing evaluation for children......

 

http://kidshealth.org/parent/general/eyes/hear.html

 

Very loud sounds, even of short duration can lead to temporary or permanent hearing loss and tinnitus, ringing in the ears.

 

 

http://www.mercuryfreenow.com/mama/mamaart100pf.html 

 

You can focus your anger toward telling the truth about this crime and cover-up to everyone you know and care about. Word-of-mouth is the most powerful form of communication, and spreading the word about the health hazards of mercury amalgam fillings will be more effective than you know. Think about this for a moment. How important would it have been to you to have had this information before you became an unwilling participant in the poisoning of your child? There is no doubt in our minds that you would have chosen a different path. 

------------------------------------------------------------------------

 

The rate of autism a decade ago was 1 in 10,000. CDC research indicates that 1 in 150 children are autistic today. The dramatic rise in autism rates correlates with the increase in mercury doses

 

Thimerosal is a mercury-based preservative and has been used in as many as 50 vaccines. In 1999, the FDA stated that mercury exposure from vaccines exceeded Federal Safety Guidelines. Thimerosal was first marketed in the mid 1930's and autism was first described as a new never before seen disorder in 1943, in children born in the 1930's. Neurodevelopmental disorders such as autism have similar symptoms to those of mercury poisoning. Thousands of families have reported their normally-developing children changed after receiving mercury containing vaccines and began displaying symptoms that lead to a diagnosis of autism. The symptoms of autism not only mimic those of mercury poisoning, but children with autism have been found to have 500% the amount of mercury in their bodies compared to typically-developing children.


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Reply with quote  #19 

Why am I so adament about whats contained within the flu shots.......

  

For this reason....

 

The battle against the use of mercury in medicine has mainly taken place in the last 50 years. It was banned from teething powders in the late 1950’s, from most contact lens products by the late 1980’s, and mercury in the form of thimerosal has been removed from many injections only recently

 

And its still in the Flu shots and other vaccinations at this time....

 

It wasen't the teething powder that was the problem..Or the contact lens products.. Or the other medications that mercury has been removed from use over the years...

 

It was what was contained within theses products that caused problems..

 

So all they need to do is take out any harmfull to humans byproducts contained within..

 

And the only reason they took it out in the first place because  others spoke out for the removal and educated the public...

 

Look at all the harm done.. It's apparent... Though all children did not come down with pink disease or what I believe triggered autism..

 

I read that ....I think it was her brother ....of the person that got pink disease that runs that support board..... 

 

Thou he did not come down with pink disease as a child... he came down eventually with an auto immune disease..

 

As I believe in the spectrum of harm. From learning disabled to ADD ADHD to severe Autism .. And other proven harmfull effects from mercury and lead that are not only on the spectrum of autism..

 

But thats not the only reason.... 

 

But on the pink disease site....

 

81.41 says they are sensitive to noise.. And ear problems 54.24 say yes. 17.20 say sometimes and 7.01 say allways..

 

 

But heres good news thou......

 

 

The Comprehensive Comparative Study of Vaccinated and Unvaccinated Populations Act of 2006 is about to be introduced in the House by Representative Carolyn Maloney.

This bill calls for the NIH to conduct a comprehensive study to compare total health outcomes, including risk of autism, in vaccinated and unvaccinated populations in the United States.

Researchers may not be employed by any Federal, State or local public health agency.  They may not be a member of an entity responsible for formulating immunization policy on behalf of any Federal, State of local public health agency or component thereof.  They must have no history of a strong position on the thimerosal controversy, nor may they be employed by or receiving funds from a pharmaceutical company.

To read the complete bill, please visit:
http://www.nationalautismassociation.org/pdf/maloneybill.pdf

 

 

 

 


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Reply with quote  #20 

But on the pink disease site....

 

81.41 says they are sensitive to noise.. And ear problems 54.24 say yes. 17.20 say sometimes and 7.01 say allways..

 

Mercury causes abnormality sound sensitivitys.. It mess's up your ears and hearing and brain.... look at the figures posted on the pink disease support board..

 

If that's not reason enough then do the research on mercury that I've posted links on above and on my sensory thread as well as heavy metal thread...

 

I am just stating a fact.. Like the pink disease survivors are just stating a fact.. Mercury and lead can not only mess up your body.. It can screw up your ears too... 

 

And you think that would have been reason enough that they would have removed the mercury from thoses products right away.

 

Thats not the way it works.. This is how it works.. Education is the key to change...    

 

The implications of liability protection for drug companies to families of vaccine-injured children and first responders who suffer future injuries are gaining increasing public attention. After Congress established the National Vaccine Injury Compensation Program in 1986, manufacturers had less incentive to ensure the safety of vaccines. In 1991, when warned that the mercury used as a preservative in many childhood vaccines exceeded safety guidelines, industry ignored the information, allowing an entire generation of children to be overexposed to one of the most dangerous toxins known to man.

And it's still in the flu shots as well.. it's just a fact... 

 

The Rise And Fall Of Pink Disease

 

http://shm.oxfordjournals.org/cgi/content/abstract/10/2/291

 

Pink Ladies....

 

http://www.cmaj.ca/cgi/content/full/168/2/201


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Reply with quote  #21 

So....

 

Mercury in Air Pollution: A Link to Autism?

More Autism Seen in Texas Counties With Most Mercury Pollution

 

http://www.webmd.com/content/Article/102/106662.htm?z=3734_00000_1000_qd_01

 

 

------------------------------------------------------------------------

As mercury is linked to abnormal sound sensitivitys and hearing loss and deafness and auditory processing disorders as in hypo and hyper hearing I've learned from all the research I have been doing...

 

What does that tell us ?????

 

Something needs to be done.. This a good site and I have seen the studies before on states like Texas counties with the most mercury pollution and that also can go for the Eastern states as well about  the mercury exposure..

 

But in California.. Since they lowered the mercury content in lots of vaccinations we have seen a decrease in autism as well.

 

Even thou California doesn't have as much or all the coal burning power plants out here thou I'm sure we have mercury content in our air as well.

 

Which would make for a decrease but with the mercury in the air and the more coal burning and other stuff we add.

 

Will stop this decline.. Audio processing disorders.. Hum.....

 

I was watching a lady Dr on T.V. from the listening center.. 

 

The listeningcenter.net  who said that.. There are people and children that are diagnoised with ADD or ADHD that may actually have audio processing disorder instead of that diagnoise..

 

Mercury is not really something we need to have in our bodies besides all the other chemical we absorb in like flame retardent ect...

 

So whats next.. I think of the pink dieases babies.. It wasen't mercury remember..

 

And that was stated from the highest sources and they were totally wrong...

 

And yet.. All this time.. It was...

 

So I do not believe .. mercury helps us with anything good...

 

And the symptoms it can cause with exposure is worth takeing note of..


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Reply with quote  #22 

I just read this.............................................................

 

And not only are some scentists battling  peoples ideas over what they see as a big problem..

 

They are battling the idea of global warning and things melting and getting hotter and colder as well......... Praise the volcanos like it helps alot...

 

After my expirence with hyperacusis and all I have read and seen..

 

I think.. People can see what can cause problems that others are unwilling to see for whatever reasons....

 

And the effect it can have on the auditory system really upsets me as well.

 

Hyperacusis people are for real's and not understood by lots of the medical proffesion about our conditions and what can cause it.. The many causes...

 

Thou a mostly acoustic trauma event. Thou not all people who suffer noises events come down with hyperacusis...Thier auditory system must be stronger..

 

But we know one thing.. It's been hard to convince people it is not in our heads but a real disorder and concern...

 

It seems like it takes alot to change minds and the world to what can not be a good thing for our ears and health...

 

And mercury exposure from what I've read is not a good thing either..

 

For our auditory systems.. Our brain.. It documented as fact.................

 

No matter if they want to not take this concern for what it's worth as well.................................

 

Frustration is the key..

 

And here's for all the pink disease babys with ear problems and my hypo and hyper hearing children...

 

And my precious ears and auditory system............. 

 

------------------------------------------------------------------------

 

REUTERS CORRESPONDENT FOX HITS “EASY BUTTON” ON AUTISM REPORTS, SAYS NATIONAL AUTISM ASSOCIATION

REPORTER’S 2/19 STORY ON MISUNDERSTANDINGS LEAVES LITTLE CLARIFIED, FAILS TO ASK TOUGH QUESTIONS

Nixa, MO – Today a group of parents in the mercury poisoning/autism community say there’s no real difference between the James Freys of the world and reporters who “nod and write.” Many believe the author of a Reuters article published on 2/19 entitled “Autism Surrounded by Misunderstandings,” was quick to accept the answers given and took the easy route on such a complicated topic.

In Sunday’s article, Maggie Fox, who typically favors proponents of ethylmercury Thimerosal, rested her faith in psychiatrist Dr. Irving Gottesman about the concerns of vaccines and their mercury ingredients’ contribution to the rise in autism. In Fox’s article, Gottesman said, “..scientists are battling a plethora of Internet Web sites devoted to the idea that mercury causes autism.”

Yet many scientists believe mercury has indeed caused the rise in autism. Web sites, along with written materials and peer-reviewed studies support accredited scientists and researchers that Fox failed to use as a balance to her autism article. Parents are growing frustrated with these nod-and-write tactics.

--------------------------------------------------------------------------

 

Vaccination Liberation Laws....

 

http://www.vaclib.org/exemption.htm


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Reply with quote  #23 

Latest News.... On mercury.........

 

http://www.nationalautismassociation.org/press030206.php

 

Thank You Kat for comeing on the board...

This a good link.....

 

http://health.groups.yahoo.com/group/touchandheal/links/Vaccinations_001106787499/

 

 

 


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Reply with quote  #24 

Well... It seems like the word is out... Or getting out... Where I live.. There is new rules on what can be put in the garbage now... Mercury laded products are out... No batteries, no light bulbs that contain mercury and other products are no banned from the trash bin...

 

Hospitals lauded For Reducing Use Of Mercury.... Making Medicine Mercury Free.. Hospitals have been hugh contibuters to Mercury in the waste stream... It reads in my local paper..

 

I say they have and not only in waste stream if you can call our children and adults a waste stream... It also says in my local paper that Mercury exposure can cause neurological imparement in children and adults...

 

And thats not all it causes too. Look at the Pink Disease baby's as adults and the ratio on sound sensitives posted above... Mercury causes problems with the hearing... Mercury causes problems in the brain..  Mercury causes abnormality sound sensitivites.... 

 

We have an epidemic as well.... Will the autistic children or others considered by many on the spectrum have sound sensitivity problems in the future as the pink disease adults about... For all the children that cover there ears right now and have problems with sound how will that be for them in the future....

 

The latest report out on the news was the CDC reported autism in 300,000 children between the ages of 4 and 17. How many stadiums would that fill up...

 

But experts say they fear its more then that....... as not all children are diagnoised till later in school and what about the people over 17 and under 4...  

 

This reminds of something I read that is true to history.. What people forget.

 

A major cause of the Roman Empires Decline , After six centuries of world dominance was it's replacement of stone aqueducts by lead pipes for the transport and supply of drinking water. Roman engineers , the best in the world , turned their fellow citizens into neurological cripples , childhood vaccination programs yielding the modern scourges of hyperactivity , learning disabilities, autism, appetite disorders , and impulsive violence....

 

_________ Harris L. Coulter , Ph, D  

 

 

-------------------------------------------------------------------------

 

Includeing Sound Sensitivity , Mild to Profound Hearing Loss...

( Farnsworth 1997 )

 

That relates to the statistic on the pink disease site above...

 

On this site...

 

http://www.speechville.com/alternative-therapy/mercury-autism.html 

 

Sound Sensitivity ... And on Eating Fish....

 

http://www.shop-in-service.com/new_page_8.htm


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Reply with quote  #25 

Auditory Problems...

 

My hearing is like haveing a hearing with the volume control stuck

on "super loud". It's like an open ear mike that picks up everything.

 

Sudden loud noises hurt my ears like a dentist drill hitting a nerve...

 

High-pitched continuous noises such as bathroom vent fans or hair dryers are annoying....

 

............

 

Cerebellar abnormalites may play a role in increased sound sensitivity.

Research on rats indicates that the Vermus of the cerebellum modulates Sensory Imput..... 

 

Stimulation of the cerebellum with an electrode will make a cat hypersensitive to sound and touch...

 

http://www.autism.org/temple/inside.html

 

 

An Imbalance in Serotonin...

 

Can lead to Sleep Disturbances , Speech Delays, and Sensory Intergration Problems , as Serotonin regulates......

 

 

http://www.incrediblehorizons.com/Autism%20info.htm


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Reply with quote  #26 

Brainchild Nutritionals...........

 

http://www.brainchildnutritionals.com/Brainchild_Nux.html

 

Enzyme Stuff... Serotoin... Sensory Issues and Gut..

 

http://www.enzymestuff.com/supplement.htm

 

New Beginnings Nutritionals...

 

Amino Acids.. Enzymes.. Immune Support..

X lear Nasel Wash.......

 

http://www.nbnus.com/store/index.php?cPath=35

 

 

Invision Power Board Brainchild Nutritionals and NAC

 

http://www.latitudes.org/forums/index.php?showtopic=226

 

Extra Neurological and Metabolic Support

 

Ultra Sensitive Mineral and Vitamin Formula....

 

http://www.spectrumsupplements.com/page21.html

 

 

Immune Support... Sleep Support.. Antioxidants...

 

http://www.ourkidsasd.com/products/multi_minerals/

 

 

Great Plains Labatory

Scientific Analysis Available..... in English

 

http://www.greatplainslaboratory.com/home.htm

 

Please Select Your Language... Helping Children and Adults

Reach Their Potential

 

http://www.greatplainslaboratory.com/ 

 


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Reply with quote  #27 

Never Give Up.. Theses Parents Never Did....

 

And they saved a generation of children to be able

to run and play... Because they refused to accept

and often clashed with doctors , scientists and support groups...

 

Who said it couldn't be done....

 

Their courage and dedication.. Helped familys around the world..

 

http://www.myelin.org/aboutoil.htm

 

http://www.myelin.org/

 

Lorenzo's Oil...

 

One familys search.. To help their child...

 

Kind of reminds me of hyperacusis and tinnitus...

 

It was hard to get help as well by the regular establishment.

Minds need to be changed..  More answers need to be found..

 

Its not easy to have an uncommon or rare disorders..

That takes courage and dedication as well....

 

It can be done.... It's a search for answers..

Never give up that someday......

 

More answers will be found...

For SSSS and other uncommon disorders...

 

They said it would never happen..

For Lorenzo...

 

Or other children. Like Lorenzo... 

 

 

 

 

 

 


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Reply with quote  #28 

Auditory Problems...

 

Hyperacusis or stressed by particular sound people eating,

ect.... Quieter Sounds...

 

Overall hypersensitivity to sound which is often associated

with a lack of certain minerals and can incresse in stressfull

situations...

 

Inability to habituate ( Cut Out ) .... Also Loudness Discomfort. 

 

http://www.autismtoday.com/articles/Sensory_Disorder.htm

 

 

Dana's View.. Non-Autism Metal Toxicity....

 

http://www.danasview.net/nonasrec.htm

 

 

Reducing Sound Sensitivity.......

 

http://www.incrediblehorizons.com/programs-for-asd-autism-spectrum.htm


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Reply with quote  #29 

Auditory Builders..

 

http://www.incrediblehorizons.com/auditory-processing.html

 

 

Lead Based Gasoline and Paint..

 

http://www.nationalautismassociation.org/press061506.php

 

 

--------------------------------------------------------------------------

 

Hyperacusis In Children.. How are the symptoms of hyperacusis managed

in Children ????

 

http://www.deafnessresearch.org.uk/

 

how+are+the+symptoms+of+hyperacusis+managed+

in+children+page1936.html

 

Sorry but the site link is to long.. but a good articule to read...

 

How important is it for parents and teachers to understand the condition?

 

-------------------------------------------------------------------------

 

The Good News Doctor Foundation.....

 

http://www.gnd.org/autism/overview.htm


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A dysfunction of various areas of the brain stem , which results in a

central hyperacusis....

 

http://www.lbctnz.co.nz/sld/autism-asperger.html

 

Allergies.. Gluten Free Home.....

 

http://www.glutenfreehome.com/glutenallergies/

 

More prone too.. autoimmune diseases, chemical sensitivity, allergies

Sensitivity to Noise.....

 

http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Pink_disease?OpenDocument

 

Ten Years After.... 1965

 

http://www.algonet.se/~leif/yfDAT65a.html

 

 


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As is characteristic of patients with cerebellar degeneration, there was

neurophysiological evidence of subclinical involvement involvement of auditory and sematosensory pathways at the level of the brainstem....

 

------------------------------------------------------------------

 

Often referred to as Hyperacusis , this condition causes pain or discomfert

when an individual is confronted with certain noises at particular frequencies...

 

http://individual.utoronto.ca/elissa/Autism/AuditoryAutismBiblio.html

 

 

 

--------------------------------------------------------------------- 

 

And what do you think the next big breakthrough might be?  This is a question we have asked a number of people and we have had very interesting answers.

OK, right when you say breakthrough I think there are areas where we have not covered that must be covered in the new millennium.  First of all the repetitive behavior is of special interest. We recognized it from day one but we have no idea why and how. 

 

Secondly the sensory perception, the hyperacusis, the tactile defence system which really does impact on the lives of such individuals and yet we do not know physiologically what is going on; we are very much in the dark to what to do. I also suspect the next big breakthrough will be in movement disorders in the autistic spectrum, from Tourette’s disorder to catatonia and we will recognize that some of these kids do have recognizable movement disorder. Finally, I think the new neuroimaging techniques which show which areas of the brain are switched off may well lead to medication which eventually switches them on.  I think that is extremely promising.

 

 

http://www.autismconnect.org/core_files/interviews/transcripts/tony_attwood.htm

 

 

--------------------------------------------------------------------------


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I was looking around the web as I do from time to time and I found this post

from a women who has autism  " AS " and talked about haveing tinnitus and hyperacusis and a spectrum  child..

 

Wow.. Thats hard.. I have two autistic children and went thru the worst tinnitus and hyperacusis expirence myself..  Interesting...

 

I found a doctors paper that said my other children who is hypo in hearing was covering her ears during an exam long long ago. It's amazing the things we can find when cleaning up and going thru things.. I was surprised that was said about her as she's more hypo... 

 

My other one went thru the hands over the ears in the class thing.. She's more hyper...  Interesting...

 

The person wrote... 

 

 

I do have "Real AS". I don't have "some shadow syndrome". I do pass for normal in the rare situation with predictable processes going on. I also perseverate and have a hard time breaking free from what I am perseverating upon to do something else. When I was young I used to bang my head against my bedroom wall, because it felt good. I stim, I bang my hands together. I do variations of all the autistic stuff, swaying, rocking, tapping, staring, echolalia. I have tinnitus, hyperacusis, sleep difficulties and a spectrum adult child. You will not rediagnose me as having "some shadow syndrome".  

 

http://www.mediate.com/comment/viewcomments.cfm?articleid=1443&inclhdr=yes


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Hearing Voices ???

 

Crazy or suffering from hyperacusis... ??????

 

With Autism....

 

Note that autism, schizophrenia, epilepsy, etc. have all been associated with hyperacusis and that indeed, certain drugs such as antidepressants, antipsychotics, anesthetics, or recreational drugs can all trigger hypersensitivity to sounds (http://www.audiologyonline.com/articles/arc_disp.asp?id=529&catid=6).  

 

http://www.autismhelpforyou.com/Hearing%20Voices.htm

 

 

Also... Just in thought..........................  ((( Smiles ))))

 

 

I was reading in Dr Jastreboff's book TRT Implementing the Neurophysiological Model....

 

In the glossary.. Neuron... The morphological and functional unit of the nervous system. A neuron comprises a nerve cell body , short radiating process called dendrites and one long process called the axon. The axon plus it's covering or sheath in the nerve fiber. Syn: Nerve cell....

 

 

And then I read in the Glossary of his book...

 

Lyme Disease .. A chronic  infection transmitted by the animal tick Borrelia burgdorferi, which effects the nervous system among other effects. Hyperacusis is frequently one of the symptoms. Lyme disease is treatable with large doses of antibiotics....

 

Also I read on page 227 .. The issue of how tinnitus- related neuronal activity is processed within the nervous system is basically still open....

 

------------------------------------------------------------------------

 

Neurons are an interesting thing.. The dendrites..

 

I have this newspaper articule if I can find it from months ago. I know It stashed it somewhere but it was based on research on what mercury does to the neurons in explanation in research and that word ... dendrites was in that articule.. 

 

It's just a facanating subject..

 

Hypercusis.. besides just being noise related can be caused or trigged by other things as well ... we allready know that....

 

It's just to early into research to rule everything out as a possible backdoor cause in some people....

 

That may effect the nervous system nerve cells in action...

 

And that has been shown to effect the hearing in many ways allready.. 

 

Thats why some of Marsha posts on certain subjects over the years I've read with high interest..  Inflammation.. Interesting...

 

I think keeping an open mind into research and future finds is how many problems are solved for many different people over time...

 

As there are many other pathways to hyperacusis disorder besides the norm... Research opens up doors.. No matter where it may lead...

 

But people dared to think....

 

Thats why doctors started washing their hands during invasive percedures.. Others poop pooed that kind of thinking away as bizarre but they dared to think..

 

Out of the box.. Out of the norm.. It saved lives.... 

 

     

 


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ADHD and Hypersensitivity......

 

My ears are also hypersensitive and loud, or high-pitched sounds leave my ears ringing. I keep the volume on the radio and TV turned way down (which bothers everyone else in the house because they cannot hear it). If I hear an unusual sound (usually no one else hears it) I cannot focus anything else until I find the source of the sound. Once that is established I can return to what I was doing.

 

------------------------------------------------------------------------

 

As for sound, I hear things others don't. People think I am hearing things, but then eventually they hear what I hear too. (e.g. I'll hear a train coming before others will. I'll hear a cat meowing because it's trapped in a closet when no-one else will). Also, I have close to perfect pitch (in music). I play music by ear. (I've taught myself). I can hear little things in music like a 7th or a suspension. (like hearing the difference between: D, Dsus, Dsus7, D add E, etc). Maybe that's partly experience, but I think it is sound sensitivity as well.

------------------------------------------------------------------------

 

I always thought I was just spoiled or weird (or something). People in my family would tell me that I was exaggerating these things. (Those rolled eyeballs, as if to say "what you're telling me can't possibly be true.") It was so comforting to read that these phenomenas were indeed common with many neurological disorders. Some of these are also seen in Bipolar Disorder, Epilepsy and Autism-- especially the sound. My daughter, who is autistic, covers her ears quite often. My guess is that she is hypersensitive to sounds-- and then gets over-stimulated. One of my medications, Tegretol, can also have the side effect of causing extreme sensitivity to sound/s (AKA "Hyperacusis").

 

 

-------------------------------------------------------------------------

 

 

http://www.addforums.com/forums/archive/index.php/t-2365.html 

 

 

-------------------------------------------------------------------------


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Tinnitus and Mercury... Cranial Nerves...

 

Metal Toxicity hypothesis...

 

Why do patients deposit the Mercury in a specfic area of their body ??

 

Or in the cranial nerves ( Tinnitus.....

 

 

http://www.drkaslow.com/html/metal_toxicity_hypothesis.html

 

Ya........... Done alot of reading up on this subject overtime...

 

Mercury exposure has been listed to cause abnormality sound sensitivity, hearing loss , deafness , tinnitus.... it can really mess with the ears...

 

And Five common toxic metals to avoid......

 

 

http://www.mercola.com/2003/dec/27/toxic_metals.htm

 

But I wonder if that mainly happen's with the involvment of the cranial nerves... Problems that may lead to tinnitus ect....

 

Need to read up more in that area....

 

Oh good.. The site is still there.. It's been awhile since I been there

Just checking............

 

PINK DISEASE is babyhood mercury poisoning. Some babies are hyper-sensitive to mercury, and if those babies are exposed to mercury, they get Pink Disease. The most commonly used product containing mercury WAS teething powder, but other products frequently used on babies also contained mercury.

 

 

Pink Disease is also known as acrodynia, Erythoedema, Feer's Disease, Swift's Disease, and infantile Mercury (Hg) poisoning.

 

BRONCHIECTASIS is a chronic lung disorder.

It is generally caused by an infection such as whooping cough, Pink Disease, pneumonia, measles, tuberculosis or cancer. The infection causes obstruction of the bronchi resulting in lung secretions accumulating and weakening the walls of the bronchi which dilate.

 

Mercury is a metal that is commonly found in the environment in several forms, all of which are toxic. Depending on its exact chemical form and the dose received, people and wildlife exposed to mercury can suffer serious and deadly health problems

 

Plus Mercury In The Environment--- Detoxification of Mercury...

 

Is allso all in this site....

 

 

http://www.users.bigpond.com/difarnsworth/

 

Chelating Agents ?

 

Alphalipoic Acid ( LA)

 

LA naturally increases your bodies cysteine and glutathione levels..

 

Sweating it out  ....

 

Chelating with silver fillings...

 

 

http://www.adhdezine.com/Mar01.html  

 

 

Mercury is Not Vitamin M......................................

 

 

The research at the University of Calgary is conclusive. Mercury is not Vitamin M. It prevents the nerve growth cone from advancing leaving nerve ending stripped and degenerating, and causes nerve cell death or apoptosis..

 

http://www.infowars.com/articles/science/mercury_not_vitamin_m.htm

 

 

 


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Reply with quote  #36 

Incredibly tired and dizzy..................

 

http://askwaltstollmd.com/archives/mercury/83340.html

 

Loud noise can injure fish hearing......

 

COLLEGE PARK, Md. - New research shows that loud noise significantly damages the ears of fish in the wild..................

 

http://www.sciencedaily.com/releases/2003/02/030210075908.htm

 

 

UB, Mlitary collabarate on design and testing of first drug to prevent noise induced hearing loss...

 

The villain is oxidative stress damage caused by too many free oxygen molecules , or free radicals....

 

http://www.buffalo.edu/news/fast-execute.cgi/article-page.html?article=65120009 

 

 

Oh... The history on mercury goes way back in time... And what a history it is.. Did wonders for China's first emperor Qin Shi Huang Di.... I think we could all learn from the emperors expirence.. He learned the hard way..

 

It's not good to take in any medications at all.

 

http://en.wikipedia.org/wiki/Mercury_(element)#History 

 

 

 

Alot of people don't know about this so.... (((( Smiles ))))

 

Because of all the information I have provided about this subject I thought I could put some people who want to find out if this may be effecting their lives their auditory system their health but the fear of the old way.....

 

Chelation by interavenous IV to be holding them back from looking into this..

 

I mean true chelation is doing it right.. Right ????

 

Patients want to know what's new out there and the newest latest easiest way to go with it is.....

 

Rectal chelation therapy.. Of course you will need the testing and a physican to start this treatment............ but rectal chelation takes IV visits out of the procedure...

 

You can do it at home if you want..

 

It's easier on your gut.. Yeast.. It's easy to do and effective.. I know..

 

And it really works.. It takes the mercury out to be excreted in your urine..

 

I've seen lead and other metals come out as well..

 

Verified by an independant lab..

 

I'd like to do it as well. Get the testing done on myself..

 

Clear out all I can..

 

But I have to find out if it leeches out from metal mercury based fillings as well.. If it pulls it out..

 

But it comes out anyway regardless into the body.... better to get it out..

 

But I base this on a web site I read .. I'd have to find out about this as there  is no way..... based on my hyperacusis tinnitus expirence I can have them all taken out at this time..

 

Thou I wish I could...  

 

But based on haveing autistic children.. I may be sensitive or allergic or effected by metal exposure more then others..

 

But look how many of them there are theses day.. 1 of 166 children..

 

But even without kids who are on the spectrum.. Who knows if one may be highly sensitive or allergic to theses toxic metals as well.

 

I don't think there is a known test for that.. How does one know for sure ???

 

But knowing what it can do to neurons and the brain and auditory system .....

 

It can be a cause of tinnitus and sound sensitivitys as well as other ear problems I just feel like.. Without it.. More toxic free... 

 

I might be better off for it.. And now.. It can be done rectally..

 

Like thoses melting suppositorys they use in children or adults for softening stools..

 

It's pretty much like that.. Thats not real hard at all to do..

 

Compare it to the old way.. The new way is lots better...

 

And I know it works as well... Heres information on it as well... 

 

 

http://www.chelationdetoxamin.com/townsend.htm     


 

 


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Oh thats it... that must be it...

 

I don't know were I posted that.. but I said some genes are missing and I don't know how that happened.. The ones that process mercury I can't remember the name know it starts with a G ..  Glutatholine... Thats it...

 

We've been talking about it I think it was on Matias thread. Good for the ears to take. GAD I think it was.. We were talking about...

 

The doctor said thats commonly seen in alot of child with autism and I was thinking how could something like that possibly happen to her..

 

With Mercury Exposure... As thats what I believe happened to her with the vaccines and flu shots and maybe the mercury fillings I have in my teeth while pregnant.. Ect....

 

For me this fits.... 

 

Then I read this...

 

U.S. GEOLOGICAL SURVEY

 

Methylmercury [CH3Hg] is the most toxic form. It affects the immune system, alters genetic and enzyme systems, and damages the nervous system, including coordination and the senses of touch, taste, and sight.

 

 

http://www.usgs.gov/themes/factsheet/146-00/ 

 

 

Mercury .... DNA alteration.. It's here too.............................

 

 

http://en.wikipedia.org/wiki/Mercury_poisoning 


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Yes.. This is what I was talking about above.. (((( Smiles ))) 

 

As IV can be a traumatic event so recal dose or transdermally may be better.

 

Thats what they do now..

 

This is a good site and also contains Dr Joseph Mercola MD..

 

Why protein can be used as a supplement as it is high in " Glutathione " and branced chain amino acids..  

 

Also make sure your thyroid status is checked...

 

Garlic for enhanced sulfur .......

 

Chlorella but Porphrazyme from biotics research is another alternative to Chlorella...

 

Start Cilantro...

 

It talks about Antioxadants....

 

 

http://heartspring.net/mercury_poison_symptoms.html

 

I just wanted to say I was drinking liquid Chlorella with my H and T and my tinnitus seemed to be helped by it after awhile..

 

It made my tinnitus better I wrote about that on the old message board way back then....

 

 

-------------------------------------------------------------------------

 

 

This is good too....

 

Dr Robert Jacksons online clinic..

 

Behavioral Structural Abnormalities Associated with Various Heavy Metal Toxins.....

 

Also it talks about Kinesology Techniques...

 

 

http://www.doctorjackson.org/health/poisoning.htm 

 

 

Here is a real big articule written by Dr Rutchik

 

on eMedicine web..

 

Toxic Neuropathy...

 

Also it talks about sensory changes....

 

 

http://www.emedicine.com/NEURO/topic378.htm


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Reply with quote  #39 

This one is also a good one by Dr Klinghardt , MD, PhD....

 

What are neurotoxins...

 

Neurotoxins symptoms..

 

Insomnia, burning pain, strange intercranial sensations and sounds and immunological disorders..

 

Tinnitus... Kidneys and it talks about Glutathione...

 

The patients electromagnetic environment  ( Moble phone use, home close to power lines ect...

 

Omura showed that heavy metals in the brain act as micro antennae concentrating damageing ellectric smog in the brain...

 

Natural Oral agents..

 

Detox methody and sauna therapy...

 

This site has alot of stuff on it..

 

Interesting ....

 

http://defeatautismyesterday.com/heavymetaldetox.htm   

 

Also..

 

Vitamins and Nutritcian Related Syndromes.. 

 

This is a neuromuscular site but this is about vitamins..

 

http://www.neuro.wustl.edu/neuromuscular/nother/vitamin.htm#B12  


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I wrote about about Barre- Lieou syndrome which can cause ear pain, tinnitus ect...  A condition I wrote about above toward the top on this thread

 

Neurological illness can result in painfull hyperacusis..

 

Bells palsy can lead to hyperacusis.. Lyme disease..

 

And other disorders as well.. The unknown... 

 

Guillain - Barre Syndrome..

 

People who have developed Gullian- Barre syndrome 6 weeks after getting a flu shot... 

 

They were talking about other causes for hyperacusis on page 2 on my classic favorite hyper ( A ) Friends..

 

Causes for their hyperacusis disorder.. And One wrote this on that thread..

 

And I feel the same way  too but for different reasons as where my research has lead me ....but two heads are better then one.. O.K. 3 heads 4-10-22-700 heads ect....

 

Then I read this post on GBS and the posts on neurological illness causeing painfull hyperacusis and the causes they listed for there hyperacusis disorder..  

 

There is so much still to be learned about hyperacusis disorder and all the people no matter what their causes are... needs to be included in reasearch on H..

 

Neurological causes as well..

 

And I believe it's thru this kind of research we may find a totally complete cure or an answer for all. Or new finds by looking at this disorder in different illness's and conditions..

 

Which may lead to new answers on Hyperacusis disorder...

 

Susan I'm pretty sure it was Susan... wrote this...   

 

 

The bottom line is *I* don't think anyone should get a flu shot unless they are in a high-risk category for life-threatening consequences from getting the flu. Most internists will no doubt not agree with me, but I know a lot of neurologists do (because they're the ones who see the GBS patients, whereas the internists are the ones who see the flu patients with severe complications).

GBS.. Got to reasearch the symptoms on that one... It was interesting reading as well....................


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Science and wierd news....

 

What causes hyperacusis? Nobody knows. It can be brought on by, among other things, head injuries, exposure to extremely loud sounds, Lyme disease and autism. It has also been linked with tinnitus, a disorder that causes people to hear phantom sounds, such as ringing or buzzing. The main question puzzling researchers is whether it's the result of structural damage to the ear or flaws in the way the brain interprets sound signals. The disorder has not been well studied, partly because it is often misdiagnosed as a psychological problem. Sufferers tend to isolate themselves to avoid noise, be unable to hold down a job, avoid social interaction and suffer anxiety attacks - symptoms easily mistaken for a mental disorder.

 

http://www.scrup.com.au/malebag/2006/08/hyperacusis.html


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For anyone interested... (((( Smiles ))))

 

On the off topic site on the hyperacusis network...

 

A thread on autism updates and information...

 

http://www.websitetoolbox.com/tool/post/danmalcore/vpost?id=1460390

 

But I just read this.. Here we go again with the unknown maybe

with environmental influence's....

 

Does anybody understand why I feel the way I do.....

 

-------------------------------------------------------------------------

 

In many cases it probably involves some genetic predisposition towards the disorder combined with environmental conditions.

 

http://en.wikipedia.org/wiki/Dystonia

 

 

------------------------------------------------------------------------

 

 

Plus....

 

Yes... On the board before we have talked about Glutathione..

 

And I read this..  Free Radicals...

 

Abnormal Methylation... Methylation is a chemical process

in which genes are " turned on " of  " turned off ", and

alterrations in methylation affect all bodily processes

including neurologic and immune function.

 

Abnormal Glutathioline Metabolism... Glutathoine is a crucial antioxadant

-- a substance needed to protect the body against the effects of heavy

metals and other toxins......

 

A deficit of glutathione leads to oxidative stress....

in which rogue molecules called " free radicals " damage cells...

 

Excessive free radical damage can lead to abnormal development

and function of brain cells, gut muscosal cells and immune cells,

which are often impared in autistic children.....  

 

 

------------------------------------------------------------------------


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Oh... They have moved to a new web site address...

 

The Pink Disease support board... The link above on that pink disease site no longer is active... I didn't know that for I have not been there for awhile...

 

Sorry..

 

An information gathering exercise by the Pink Disease Support Group has revealed a higher than average incidence auto-immune disorders, Bronchiectasis, Solar Urticaria, chemical sensitivities, allergies, eye and mouth problems, infertility, co-ordination difficulties, poor health, and a proneness to emotional and psychiatric disorders.

 

 

http://www.pinkdisease.org/

 

Also on that site how to get mercury out...

 

There are a number of different methods for removing mercury from the body. These include medical chelation via the use of prescribed drugs; the use of vitamins, minerals and nutrients; dietary means; homoeopathy; and amalgam removal..

 

Plus....

 

Baffled doctors put forward all sorts of theories as to its cause, from light sensitivities, allergies, viruses, nutritional deficiencies and infectious agents. The story behind the discovery of the cause of Pink Disease and the banning of the teething powders is one of the great medical detective stories of all time.

 

Plus....

 

Not all cases of Pink Disease are caused by teething powders; some babies were too young to have been teething and received the mercury in other forms, from the mother's diet to environmental factors.

 

Plus....

 

I've been to doctors for many complaints over the years and they've never told me that Pink Disease in fact is mercury poisoning...

 

Plus....

 

One of the reasons why there were so many theories about what caused Pink Disease was that the symptoms of the disease were so diverse and were similar to the symptoms that could be caused by various infections, vitamin deficiencies, poisoning and so forth.

 

Plus....

 

 

Mercury was in very common use for medicinal purposes up until the 1850's and it's been suggested that if any doctor had seen a baby with Pink Disease up until that time, they would have recognised the symptoms of mercury poisoning immediately because the symptoms of mercury poisoning were well known then.

 

Plus....

 

Dr. H. Swift, of Adelaide, first recognised Pink Disease when he was a physician at Great Ormond Street Children's Hospital in London in 1885 and he described the disease at the Australasian Medical Congress in 1914, calling it "erythroedema".

 

Plus....

 

The symptoms of Pink Disease were well described by the early 1920's so the search for the cause began in earnest.

 

Plus.....

 

The most common KNOWN cause of Pink Disease was mercury containing teething powders. In the English speaking Western World, the use of mercury in teething powders was banned in the 1950's. There were, and still are, numerous other household, industrial, natural, agricultural and medical sources of mercury in the environment.

 

Plus....

 

 

The breakthrough was published in The Lancet in 1949. By 1951 there were many confirmations of exposure to mercury of the sick children, but there were also many sceptics and strong opposition from the manufacturers of the powders.

 

 

Also on Pink Disease information from the Pink Disease site.....

 

It's generally accepted that exposure to mercury was the cause of Pink Disease ALONG with some other predisposing factor, such as hypersensitivity to mercury, a molecular malfunction, immaturity or malfunction of adrenal medulla, or prior illness.

The most common cause of mercury exposure for babies in the English speaking Western World, up until the late 1950's, was from certain brands of teething powders. Teething powders were also known as soothing powders. It is estimated that only 1 in 500 babies given teething powders got Pink Disease.

 

 

Pink Disease occurred in older children in Europe because the most common cause was worming preparations containing mercury.

 

In continental Europe, calomel was used in worming medicine given to children but teething powders were not used; hence the older age of the children afflicted.

 

 

The mothers and other care-givers of babies with Pink Disease suffered severe exhaustion from lack of sleep, severe stress and loss of weight. Family life was generally disrupted by the baby's constant crying.

 

 

In Britain, doctors were reporting that 61% of children who died were under 1 year of age. The peak danger period seemed to be between six months and two years. Yet in continental Europe, the victims were often older, aged up to 10 years. Southern states in America were more affected than northern states.

 

 

Since mercury poisoning can cause blood disorders such as anaemia, another theory was that Pink Disease was caused by a vitamin deficiency - particularly of the B-Group vitamins. This theory was discarded because most the children who had Pink Disease were well fed and well cared for children. Children in countries with a low standard of living, where deficiency diseases were more common, did not get Pink Disease.

 

 

Two theories are discussed in "The Causes of Pink Disease". They are Warkany's and Hubbard's mercury theory that relates to what "caused" Pink Disease, and Cheek's and Hicks' theory which relates to the physiology of Pink Disease. Both the theories and methods of studying them had problems but fortunately, fate stepped in and proved that mercury was the catalyst for PD. Unfortunately, this meant that all research into the physiology of the Disease and the long-term side effects virtually ceased.

 

 

A major flaw in Dr. Warkany's experimental method was not noticed immediately. In different areas, mercury exposure is different. Some areas used mercury teething powders. Other areas had a lot of mercury because of industrial or agricultural use. Warkany's control group came from Cincinatti where mercury was not freely used and therefore significant levels of mercury in the urine would be unlikely. His Pink Disease samples came from areas where mercury use was common.

 

 

 

-------------------------------------------------------------------------


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Reply with quote  #44 

 

Like this site on sounds and visual sensitivity..

 

Hypo and hyper... How sounds sound..

 

My high functioning child was the one that had typical ritualist autism

behavior and they thought she may have hearing problems because she tuned out everything and everyone and acted deaf..

 

My other daughter could tune out nothing.. She was a live wire...

 

The other one has more of the hand covering over the ears and sensitivity to the vacuum cleaner, class room noise, ect.. and screaming and hiding from people type of behavior and a more extreme sensory disorder problem...

 

But I do believe that pink noise therapy and music therapy has helped them both over time.... because I was forced by my H to do it more by adding to the time frame over time in a span of years and part of the time around them.. Mostly my quiet like daughter first..

 

Eventually we listed to soft classic rock music everyday instead of watching TV.. And pink noise... It was much more of a soothing atmosphere I believe..

 

But my quiet'er daughter mostly and first of all.. The one that has improved the most.. Got the most benefit as I could be around her more first.. 

 

But the supplements I think has helped my sound sensitive daughter in that department the most and my other daughter in other ways..

 

I have noticed some improvements from the supplements..

 

And my other daughter talks and reads real well..

 

She has really improved alot over time and has given up alot of her old ritulistic sameness lineing things up ,  bouncing and dancing toys , flipping and bouncing cards in rythmic motion odd behavior in play...

 

And acting deaf.. She has come along way.. But she still has things to overcome...  Limitations..

 

And my other one has really overcame her self abusive behavior like 100 percent from the worst.. Thats a big change..

 

but on this site...

 

Different sound sensitivitys about how sounds can sound..

 

http://www.autism.org/temple/visual.html

      


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LynnMcLaren

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Reply with quote  #45 

Hi Liam, (((( Smiles )))

 

From what you talked about above...

When I saw this.. I thought of you...

I never new there was a such a thing as this..

Untill you mentioned you have this above..

It hightens the senses..

 

Must be interesing if not hard to have..

Together with hyperacusis disorder..

You never said or maybe you have but I forget..

How does haveing this effect your hyperacusis..

 

Sensory wise.. The sense's...

And I wonder how many people with hyperacusis disorder.

Which effects the sensory system in a way..

Have this...

 

Synesthesia... Expirencing sensations.. 

 

http://en.wikipedia.org/wiki/Daniel_Tammet


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Reply with quote  #46 

Hi Lynn:

It doesn’t affect my Hyperacusis – it is just part and parcel of overall highly acute senses.    It was excessively difficult for me as a child  / growing up - for I had little comprehension of what others were ‘seeing’ and what was often demanded of me.  For my vision usually included far more of the surrounds and others thoughts – all in one picture – therefore the consequences were always staring me in the face, when others had absolutely no idea.   Mind you, this works up and down for me now, and usually only in person.

 

My son inherited the same ability - I didn’t discourage nor  encourage …. as I wanted him to feel comfortable, and not allow others to make him feel less, when in truth – he had more LOL.   However, one day he came home from school with a note from one furious teacher.  The teacher had dismissed him from school as our son had been taken severely to task in front of the entire form, for doing something the teacher didn’t approve of.  And our son, in all innocence to understand, asked why was this, when he knew the teacher was doing the same thing elsewhere.   We had to take him out of that classroom to work with a teacher that was not so closed minded and two faced ... to ensure that our son's mind also wouldn't close.   For it took me many years to allow myself, to feel comfortable with myself.

 

I think I once mentioned, that it was through a bank heist that my ability became public, for I had been present and therefore, was taken in for an interview …… however, the police at first refused to believe that I was not part of the heist as I knew too much – and after a good length of testy questionning - phewww !!! . ..  they finally had to accept me - as I was.    And the police loved it, and that is the reason why I went so high up in the UN.  I have noticed that in the  past 8-years, these abilities are now much more accepted thank goodness, as they are definitely gifts from which others can well benefit.  If only the public at large would use them more, for there are hundreds of us out there haha.  But truly Lynn, there are - we have just learnt to shut up, in order to survive.

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Reply with quote  #47 

Hi Liam, (((( Smiles ))))

 

 

Quote:

had been taken severely to task in front of the entire form, for doing something the teacher didn’t approve of. 

 

I had a teacher like that in elementry school..

I think the first grade... 

She was very punitive to me..

They transferred me out of her class eventually..

But it was because I stop'd speaking in class..

and would not tell her the answer..

Probably because she scared the c---p out of me..

 

She was scarry....

But when it comes to memory..

It's not getting any better for me..

 

Thats why I had kids..

Especially my one daughter..

She remembers everything I forget.... (((( Smiles ))))   


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Reply with quote  #48 

You are fortunate in that.

Usually, a family only remembers every boo boo one commits.

 

 

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LynnMcLaren

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Reply with quote  #49 
Hi Liam, (((( Smiles )))

And that too.. She remembers all boo boo's as well..
But I was just on pub med..
And like the pink disease children who had problems with their hearing.
Minamata Disease which is mercury related as well..
Has disturbances in their hearing..

And one is about....
Mercury suppression of potassium currents of outer hair cells..
The heavy metal mercury is an insidious environmental pollution
that causes toxic effects on the sensory system...
Also...

Inner ear changes in guinea pig after chronic mercury poisoning..

Also the neuro-audiological effects...
Haven't read that one yet and it's getting late so I'll read the rest
later...

But mercury not only causes brain neurological problems..
but auditory ones as well..
And in the gut I'm sure as well as it can travel all through different
parts of the body just throwing everything out of whack...

I mean the pink babies/children did get immune/ allergy problems
and disorders..

Haveing problems in their adulthood because of what they went through..

The toxic shock to the system... 

It can like go together.. It works on both brain/ears and immune..
But the thing for them..

Because it wasen't to like the 1950's I think it was..
Till they said it was the mercury after all and finally banned the product..
Starting from in the 1800's onward to what was said by thoses who looked into it..

Did the research....it wasen't that after all..

They looked into it and proved it they said......
Not everybody believed it but I bet alot did and children continued to get
sick...
Parents continued to use the product not knowing why they got sick.

How many decades was that...
It can bring tears to ones eyes just thinking about the harm that was done..

So they didn't get any treatment/help back then on trying to get the mercury out of their childrens bodies
to see if they could get some improvement from that..

Because they were told it wasen't that..

They had a false sense of security from that I guess so babies and children continued to be given the product all that time..

All thoses years..


Night Night Liam... ((( Smiles )))
I usually see you on late here for me but it's a different time zone for you.
Thats what so great about the wild wild web..

We can all intersect and still be able to see each others trails here..
Of what we leave behind in time zones...

Will finnish reading this later... 

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=pubmed   


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Reply with quote  #50 

Oh no.. (((( Smiles )))

that link didn't go right to that page..
I'll have to do a search again...
Night Night...

But first this from a site above...
Must be how the pink disease parents felt eventually..
It wasen't their fault.. They didn't know..
The parents suffered badly by it all..
Lots of child had to go to insitutions...  
I bet they were heartbroken over the whole thing..
And very angry ... the ones that eventually found out as well..
As the children not effected as badly that found out as well..
must be too...
How do you explain it to your children..
What you did even not intentionally..
Because you trusted the information at the time..
How do children who still have a brain left to think well..
Forgive their parents..
How do parents..
Live with the guilt..
What else is there but to find a way....
To do just that...

Quote:

How important would it have been to you to have had this information before you became an unwilling participant in the poisoning of your child? There is no doubt in our minds that you would have chosen a different path.  



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