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alan1989

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Posts: 13
Reply with quote  #1 
hello all i have surfed the web for the last few months looking for people who have the same problems with sound as me, at first i hated having tinnitus(still do).. but what has become more and more apparent is that this pain/sun burned feeling in my ears is not normal of tinnitus.
nor is the draining effect it has on my live after going to uni i have to rest for the rest of the week and try to heal my ares in time for the next trip to university. 
i know now i have hyperacusis, going to the gym, listening to music, going out with friends have become a thing of the past..
i have my first TRT meeting on monday and was wondering has anyone tried it? does it help?

another problem i have is my father he fails to understand this and everyday puts music programs on every night, this wouldnt be too much of a problem but the house is getting re decorated and there is no where for me to go as my bed room is a building site ...what can i do ?
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Stormy

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Posts: 109
Reply with quote  #2 
Alan - for such a bad situation at home like yours, all you do is resort to rescue tactics such as hard core ear plugs or head phones.

Hang Tuff
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alan1989

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Posts: 13
Reply with quote  #3 
hello stormy, yes thats what im doing. i am trying not to use earplugs as makes my tinnitus go so loud, i just need some of my own space where i can relax.
have you tried TRT or Pink noise if so does it work?
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Stormy

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Posts: 109
Reply with quote  #4 
I am not in a position to try TRT yet.  But I understand that it works in many folks.   I sleep with pink noise at night, not sure if it helps or not.

Don't get too hung up on "not" using ear plugs.  When you need them, you need them.   Listen to  your body.
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alan1989

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Posts: 13
Reply with quote  #5 
yes i will try to remember that i need to give my ears the rest that they need.. i have decided to refrain from all late night activities i.e. going to a bar/pub and defiantly no nihgt clubs.. a few months ago i had gone out with ear plugs to a night club and i never felt too bad but then a month ago i did it again and it has set me back to square one so i took this as a warning sign.. if i can get to the point were i can go to a quite gym and work out or have a conversation with friends without my hurts aching i will be happy .. i just want to be able to run and jog without strong ear pain so i can do something conductive with my life instead of hanging around the house avoiding noises and saying know to every event.. how come you have not tried TRT if you dont mind my asking?  
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Stormy

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Posts: 109
Reply with quote  #6 
I can not afford the TRT right now.  I have no disposable income.


Be carefule at the gym, I remember when I used to go and leave my earplugs out; that's when some meathead would let a huge stack of weights just SLAM! in one of the machines.
And that would always set me back.
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deafleg2

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Posts: 55
Reply with quote  #7 
Alan,

Unfortunately at this time, TRT is the only way to go.
Although it will never address the initial nerve damage, it is basically a therapy that rebuilds your tolerance while your nerve or other inner ear condition heal on their own.

There are some other people that develop the mild form of hyperacusis which is phonobia. It is very easy to treat and TRT is excellent for that.

That being said, every with H experiences some form of dislike to sounds, so it will help all of us to some degree.

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beachgirl

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Posts: 8
Reply with quote  #8 

Alan, please do try TRT.. I developed mild hyperacusis and tinnitus a year ago, but 5 months in I tried TRT.  I improved a great deal in 6 months, my ldl levels are in the 90's.  what also helped me is I kept getting out there, I never stayed home.  I never used ear protection but my ldl levels were in the high 70's to start with, so I totally understand that people with much lower ldl must protect their ears.  Everyones situation is different.  I wish you luck and I think a positive attitude helps as well

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sucuqu

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Posts: 197
Reply with quote  #9 
TRT is not the only way to go
phonophobia is not a mild form of hyperacusis
hyperacusis is hyperacusis -- mild or severe

sorry deaf, i just disagree and have to put a different point of view out.

everyone's situation is different true.   if you have the opportunity to try trt and can afford it,  certainly give it a try.  

yes, I know what you mean not wanting to hang out at the house avoiding noise.  yeah, you need to get some normal sound exposure.

if you are mild?  just that may be all you need. or not, it is hard to say, i can not diagnose      but defn hear the warning signs.  sometimes we dont or ignore   i do this so much and i get mad at myself.  but there is some self talk involved in defeating the phonophobia that may develop or misophonia, in saying this sound can not hurt me ( normal sound of course, not a wood chipper!!)    but if something causes ear pain  -- avoid, take a break, etc and ask your trt person for advice.   sounds like you have a plan,  with the night clubs etc.      good luck.   Su
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alan1989

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Posts: 13
Reply with quote  #10 
my dad is annoying he just comes in highers the TV up and is eating bacon and eggs scratching his knife and folk on the plate.. i know its not his fault but why cant he understand my ears hurt and highering volumes up will not help me, i can feel my ears aching and hurting..
i live in the uk so i think the TRT is available for free ( i hope). either way i will find out tomorrow..
thank you all ofr answering and i think i will spend my day trying to make a action plan i feel like i just  need some room where i can be around sounds that are at a comfortable level 
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Stormy

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Posts: 109
Reply with quote  #11 

Alan - sounds like you need to spend some time at the library for a while.

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alan1989

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Posts: 13
Reply with quote  #12 
haha that would is quickly becoming a dream job i think
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