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Jetcmc

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Posts: 9
Reply with quote  #1 
Hi guys,
It's such a relief to find this forum.
I'm 23 and have had both tinnitus and hyperacusis for nearly 4 long sleepless weeks.
Mine developed the evening before my dads funeral a few weeks ago. I had already been grieving the loss of my grandfather 2 weeks previous to that so all in all it's been a pretty horrific 2 months.
I thought my life was over as I'd heard about T and the effects it has but never did I think I would one day be faced with it permanently.

I am a semi successful vocalist/guitarist/songwriter of 8 years buy only followed caution with ear protection between the ages of 18 and 22.
I was in the middle of writing a solo acoustic album when it struck and have since found it impossible to play.
I recently got used to the T tone/pitch I was hearing which enabled me to overcome my insomnia which allowed me to at least try and live with it.

Unfortunately, I have problems with electrical appliances that seem to emit a high pitched frequency. These tones are piercing and give instant pain and discomfort making it impossible to be around them.
Analog TV's (old tv's) are the biggest problem along with some desklamps and computers.
A week ago I was at a friends and his analog tv was on.
I wanted to remain with my friends in the same room as the thought of leaving or sitting alone wasn't what I wanted, so, I persisted to put my ear plugs in and sit in the room with the tv.
The tv set subsequently completely changed the pitch/tone and added a hiss whilst also making my hyperacusis even more unbearable.
I now wear ear plugs even whilst at home as the pain is intense.
No one seems to understand but I'm a strong minded person and wouldn't wish any more pain on my family who are still feeling the loss of my father and grandfather.

I feel for each an everyone of you.
I can no longer help my stress by playing guitar or keeping active as I suffer from extreme fatigue/dizziness and occasional light headed vertigo.

It would be great to one day meet a fellow sufferer as truly, they are the only people who will share the same understanding.

Thank you for listening,
Jet Luckhurst , 23.
UK
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Panda

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Posts: 38
Reply with quote  #2 
I am sorry for your loss.  It was the hardest for me at first when the symptoms started, I did not know what they were, until I had seen several doctors and searched the net and found this forum. There are several different things that can trigger T/H.  Well, I got it from dental related.

I am not a musician, but I have seen a lot of musicians have developed these symptoms.  

Here is one (click the link): 
Joel Styzens: Relax Your Ears Interview (Music, Tinnitus, Hyperacusis, Neuromonics, TRT)

It kinda give me inspiration. He also explained how he has overcome his symptoms and be able to enjoy playing music again.  


Don't lose hope!
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Stormy

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Posts: 109
Reply with quote  #3 
Jet - sorry to hear about your grandfather.  And now your H and T,  you do have a lot to deal with. 

It aint easy, I've been dealing with it for over 20 years.  You just have to take it a day at a time.  Now that there is help out there, find it. 

I am new to this board, there are a great bunch of folks here with great information.  Pull up a log and sit next to fire.

God Bless

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Febrele

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Posts: 79
Reply with quote  #4 
Hi there,

Sorry for your loss. I'm a musician too, so I understand.
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Jetcmc

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Posts: 9
Reply with quote  #5 
Thanks for the replies everyone.
I've been exposing myself, daily to sounds I consider 'painful' or 'discomforting' in an attempt to build a gradual tolerance to everyday sounds.
My hyperacusis is dreadfully painful and very severe but if I use the mindset that I won't do any lasting damage 'exposing' my ears to everyday noises then I seem to have the strength to do it.
I've been imagining that I am hearing everything for the first time. Much like I've been reborn and it's all new to me.
Over the course of an entire day, I get very much used to sounds I usually hear as painful, like a door closing or the running water.
It's more a mind game for me. If I'm not focusing on how much pain its going to be then I'm not thinking about it, and so I close it out of my mind.
My ears seem to ring more as it gets closer to bed time but by the morning they are back to my normal volume of tinnitus. Kinda like groundhog day as I then do it all the next day.
I'm just experimenting with different situations, because, much like everyone, I want to get better.
Don't get me wrong though, I still use my ear plugs when the situation arises as I'm not completely stupid.
It's the higher pitches that I'm trying to build and immunity to and failing, like tin foil, plastic bags, cars braking, shouting, cutlery and other such noises. But I think it's possible to retrain at this early stage. I'm 5 weeks in and definitely feeling improvements. Am I going to deal with this for years? Hell no!
Stay positive and send me an email if anyone fancies a chat.
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deafleg2

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Posts: 55
Reply with quote  #6 
Hope you get better,

Thats all i can say at this point.

This board is really very helpful for people to vent, find a treatment, and meet good friends

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alan1989

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Posts: 13
Reply with quote  #7 
jet i feel your pain, im 21 from england and have this condition my life has stopped in the last 6 months music once a great joy has become something i must avoid.   this condition is destorying my whole life i have lost 2 stone in the last 6months, the amount of birthdays i have missed is upsetting and it is multiplied by the fact i cant really tell any of them (they know but dont know how bad this is).. know one knows how bad this is.  every night the last thing i think about is why did i have to play music with my mp3 for years on years and i regret so much i just wish i could go back and educate my self about ear conditions  
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Stormy

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Posts: 109
Reply with quote  #8 

Alan, I'm sorry for your pain and change in life as well.  I hope that you can find positive treatment.

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Febrele

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Posts: 79
Reply with quote  #9 
Jetmc

I think you have the right attitude. I'm doing the same thing. 6 months now, not perfect, but I'm able to cope with it. I'm better, but I don't know if I will still get better. Oh well...

I'm like you, my ears gets more accustomed to sound over the course of the day...
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Jetcmc

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Posts: 9
Reply with quote  #10 
Quote:
Originally Posted by Febrele
Jetmc I think you have the right attitude. I'm doing the same thing. 6 months now, not perfect, but I'm able to cope with it. I'm better, but I don't know if I will still get better. Oh well... I'm like you, my ears gets more accustomed to sound over the course of the day...


Thanks Febrele.
It does help to have a positive mentality however difficult it is at times.
I have some great ear plugs that block out the high frequencies so I can relax a little more in certain environments.
It differs between my hyperacusis and T each day as to how bad each one will be. Over the last week I have been woken up in the middle of the night with a Tinnitus Spike, this is highly distressing when you have already familiarised yourself with the current tinnitus tone/hiss/buzz etc, that you are already hearing. It can be really depressing then having to readjust your sub conscious to understand this new sound.
I find myself almost trying to avoid sounds each day by wearing ear plugs but I think that really will only make it worse as the next time you hear a noise without them it will sound naturally heightened as you are not use to it. Much like the feeling of walking into a lit area if you were in the dark for days, it would be uncomfortable because you hadn't given yourself the chance to be around this situation.
We will all get there.
Against all the odds, I'm starting to track guitars next week for my solo acoustic album that has been long in the works. I'm not prepared for this condition to stop me doing what I love. With the right ear protection it should be manageable.
Take care,
Jet.
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Jetcmc

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Posts: 9
Reply with quote  #11 
Quote:
Originally Posted by alan1989
jet i feel your pain, im 21 from england and have this condition my life has stopped in the last 6 months music once a great joy has become something i must avoid.   this condition is destorying my whole life i have lost 2 stone in the last 6months, the amount of birthdays i have missed is upsetting and it is multiplied by the fact i cant really tell any of them (they know but dont know how bad this is).. know one knows how bad this is.  every night the last thing i think about is why did i have to play music with my mp3 for years on years and i regret so much i just wish i could go back and educate my self about ear conditions  


Hey buddy.
Very sorry this happened to you aswell.
It is indeed life changing.
Have you gone through the TRT with the NHS?
Mine will start soon but my mindset was that it needed to start with me first.
I had MRI's and hearing tests done and nothing was found to be abnormal which just adds to the frustration and feeling of loneliness because they seem to just write you off.
I've been there. I haven't spoken to anyone else in the UK yet with this condition so its nice to hear from yourself.
How do you cope on a daily basis?
Do you have the patience to work? Or are you signed off, like myself whilst I find treatment and a path to some level of recovery.
Do you wear ear plugs or just shut it all out and spend time at home?
Let me know if you fancy a chat mate.
Jet
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onigirilover

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Reply with quote  #12 
Hey!

Everyone that's come before me has already warmly welcomed you onto the forum, but I'll say welcome one more time! I can imagine you're so glad to have found this site for support and information. I was/am as well! My name is Renee, 23 years old, like you, and have been dealing with hyperacusis for about two years now. At first I thought I was crazy when it developed, didn't know what to think and just tried to go on with life as normally as possibly. My hyperacusis steadily got worse in the course of 2010 I developed tinnitus in April 2010, relatively low decibel level, so it's tolerable and it doesn't deprive me of sleep anymore. Hyperacusis was the perpetrator that uprooted my life the most, affecting everything I do daily. sounds that that bother me the most are high frequency sounds as well, sharp voices, children yelling, you name it! After multiple visits to the doctor's office I was officially diagnosed with hyperacusis in January this year. I've decided to take a break from university  to work on my ear problems and I've been doing home-based therapy for a couple of months now and I've found I'm slowly improving my tolerance to everyday sounds. It's going to take me a while yet, but like you I'm trying to be as positive as possible and think of the future in a bright light. I don't believe I;m going to be stuck where I'm at now forever either, not when I have the will and the determination to get better That's a bit of an introduction from my side, sorry it was a tad bit long Glad to meet you! Feel free to talk to me

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