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egarber

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Posts: 12
Reply with quote  #1 
Is there anyone who has Meniere's and Hyperacusis?  That is my diagnosis.  I would like to compare with someone to see what their treatment is.  I am allergic to Sulfa.  The doctors keep putting me on a diuretics that have a sulfa component and I keep getting reactions.  Do I really need a diuretic?  Can I exist without taking one?  I am on a low sodium diet, which means I can't eat much.  Not even Mayonnaise or Lemon or Pepper.  I have to learn to cook all over again.  The Hyperacusis seems to be better than it was.  I have a message into the doctors to see what other treatment they have for the Hyperacusis part.  They showed me equipment that looked like an IPOD with ear phones.  I am guessing that was nuemonics or something like that.  Is that good for Hyperacusis with Meniere's?  It is very expensive.  Any information would be great.  Is the TNT a good therapy for Meniere's related Hyperacusis?

Elayne
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Marilyn

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Posts: 194
Reply with quote  #2 
Hi Elayne,
Thanks to my eye sensitivity, I've had to ration my computer time today.  So, I chose your thread to post on, lol.

I have a friend who has Meniere's Disease and also has recruitment, which I suppose could be classified as a type of hyperacusis.  My friend is elderly, in her 80's and also has dystonia from being hit in the face by a wooden plank.  I haven't asked her if she takes a diuretic.  She probably isn't one to compare a standard Menieres diagnosis since she has a myriad of other health problems.

Have you googled the side effects of the medication you're taking?

I wish I was more help to you, but just wanted to say hi.


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Marilyn

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Posts: 194
Reply with quote  #3 
I just did some research in order to better understand what you're going through with Meniere's.  My goodness, there's a lot of reading out there.  I found a good website that I'll look into more at a later time.  It's http://www.menieresinfo.com/start.html 

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egarber

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Posts: 12
Reply with quote  #4 
Hi Marilyn,

Thanks for your reply.  I hope things are getting better and that you are feeling much better.  My thoughts and prayers are for your recovery.  I will look up the website you suggested.

Elayne
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aQuieterBreeze

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Posts: 2,083
Reply with quote  #5 
HI Elaine,

You mentioned-
I am on a low sodium diet, which means I can't eat much.  Not even Mayonnaise or Lemon or Pepper.

Is there a reason you can not have lemon and pepper?
Are they high in sodium?
Also is there a specific kind of pepper you have been advised to avoid?
(such as red or black?)

I'm not in the medical field and don't know alot about Meniere's or medication,
but from what i have read  b- complex vitamins can have a diuretic effect...
though it may be fairly mild but i am not sure.
And  I would not know if it is a specific b vitamin-
or just the b-complex in general?
But  that may be something to inquire with your doctor about -
I also don't know if it would be strong enough, if it does act as a diuretic, for what you are looking for ...
but it may be worth asking about.
(weather they would contain any sulfa compounds or not I don't know either)

Also, it's a good idea to let your doctor know about all medication,
and any vitamins, herbs,  supplements etc that you do take - (if any)
as I've heard some can interact  with each other and/or  with medical conditions
in ways that are very important to be aware of.
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egarber

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Posts: 12
Reply with quote  #6 
Hi,  Quiet Breeze, thanks for the reply,

I did give my doctor a list of vitamins and they include B vitamins that I have been taking since I came down with this.  Doctor # 4 suggested the B's. ( I am on doctor #6 and so far so good)  The foods I have to avoid are on a list that the doctor gave me.  It includes all seasoning and even pepper and yes, lemon etc.  I want to get well enough to be able to go to work again.  This has been the most frightening thing I have ever experienced in my life.

Hi Marilyn,

I hope you all have a good day today!!!

Elayne
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Debbie

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Posts: 1,512
Reply with quote  #7 

I would suggest, amongst other potential approaches, searching into acupuncture.
An excellent acupuncturist (if you did ever choose to see one, best to settle on a therapist who comes recommended and/or who you talked with first to get a sense of their depth of experience and insight)
will assess, and address, your body systems comprehensively.

Whether or not the Menniers might be affected, there may be other supports acupuncture would offer for your body, mind and spirit that might be helpful overall.

My experience with acupuncture is that I had daily, sometimes multiple daily, episodes of tachycardia (a disruptive and annoying heart condition) through adolescence and young adulthood.
Dr's diagnosed this with a holster monitor and said that while in my case the condition was not life-threatening, that only meds which they did not recommend due to serious side effects would control it.
A series of 10 acupuncture sessions eliminated it, and it has never returned.

A friend of mine recently fully overcame 'frozen shoulder,' for which she had done many painful and physical therapy sessions, in 1 acupuncture session.
She does a maintainance session very occasionally when the shoulder symptoms act up again.

Acupuncture is also known to help with calming and clearing the mind, and easing stresses.
I have certainly experienced this effect, and found it to be also lasting, especially after a series of sessions.

I have not gone to regular acupuncture sessions for my hyperacusis/tinnitus, but am looking forwards to doing this again because I think it will help things either specifically or overall.

Best wishes in easing your symptoms in ways which work for you.

Debbie


ps a link to a review of some research articles:
http://ecam.oxfordjournals.org/cgi/content/full/nep047

pps Due to the lack of financial incentives to major organizations in our healthcare system, such as to drug companies, which are the primary funders of medical research, and to the methods commonly relied upon in clinical research, there are dearths of double-blind "peer reviewed" research on acupuncture, and especially research which could fairly assess this method.
As with most if not all holistic health approaches, acupuncture methods are tailored to each individual, with differing "roots" of similar-seeming symptoms determined from person to person.
I have noticed that artificial, uniform protocols are often used in clinical studies of holistic treatments, acupuncture included.
Due to these reasons,
I believe that we must look to many resources on the outcomes of "holistic" health approaches (and the outcomes of any health approaches for that matter,) such as a wide sampling of anecdotal data and the results of smaller studies instead of relying on the "gold standard" double-blind, peer-reviewed studies for this information.


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LynnMcLaren

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Posts: 7,990
Reply with quote  #8 
Hi Elayne, (((( Smiles ))))

I was reading that MSM and DMSO
These two remarkable, related substances can ease
the pain and inflammation associated with many diseases.
On this link...

http://www.thenutritionreporter.com/MSM_and_DMSO.html

I am also allergic to Sulfa based on takeing it long ago for a bladder infection.
But I have been takeing Glucosamine/ Chondroitin/MSM and it seems to effect me differently then the meds did.
Sulfur drugs can promote autoimmune disease and some drugs can cause autoimmune disease..
As well as toxins ect..
I've been really researching lately into natural ways to help with ones conditions as medications at times can cause problems..
If one can do so and I've been reading the book:
Foundations For Healing by Richard L. Becker, D.O
Holistic plans For Your Return to Vitality includes the healing diet and other books like this..
I agree with Debbie certain things can work together to help bring us back into a healthier state of being.. ((((( Smiles )))) 

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Take Care

Lynn
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emily

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Posts: 28
Reply with quote  #9 
 Hi Elayne, I have Tinnitus , Hyperacusis and Endolymphatic Hydrops (Menieres.)  I was recommended Neuromonics by the audiologist but that targets the Tinnitus and cost $6000!!!! Ive heard of sound therapy cds $500-$1000 but dont know of anyone who has used this treatment. Thank you for sharing your information.
Lets keep smiling and work towards finding all the information we can and hopefully we will come out on top of this awful condition.
I wish you the very best, kindest regards, Emily. 
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