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LynnMcLaren

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Reply with quote  #1 

Hi Marsha, ((( Smiles ))))

 

We have been talking on Astrids thread about ears that spasm to outer sounds like silverware, dishes , paper turning , voices and also to moderate sounds thou more like an eardrum pounding physical assault...

 

And I have read of others on the board who have gotten rid of theres.. One person it took two years .. Me I'd say a year....

 

And being a TRT provider with many patients over ten years and being so much into research... I was just wondering.. How come I got rid of mine and others have as well...

 

But some have improved or gotten rid of them by surgery..

 

Astrid had surgery and did not improve..  I know that there may not be any real diffentive answers for this question...  

 

But if any one would know how many get better.. how many don't .. whats the difference.... Just by seeing this disorder in ones patients over the years...

 

Is one caused maybe by haveing hyperacusis disorder the muscles being effected by sounds sounding too loud...... and goes away with regaining ones sound tolerance... treatment...... and one does... not..

 

But ones hyperacusis can get better anyway or whatever they have with this thing..  

 

Could there be different causes for the same like ear spasm's to outer sounds...

 

Any Data out there on this.. Any thoughts... On what you have seen with this condition in others...

 

It's just so confuseing to have and I'm sure others feel the same way as well  too...

 

So what's the data on this.. Give it your best shot.... Please....

 

Thank You So Much Marsha    


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LynnMcLaren

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Reply with quote  #2 

Hi Marsha, ((( Smiles )))

 

There is the immediate to outer sounds Stapedial Spasms and then there is the Tensor Spasms...

 

Not total sure the separation or difference between the two...

 

You have probably seen patients with theses symptoms over the years..

 

What are your statics with this in just what you have seen... The rate of recovery for one that is hyperacusis or ect... Or non recovery...

 

Like the question asked above.. Just bumping this up.. Thank You... 

 

I'll check the board when I can... my severe autistic child comes home on the weekends and she's a handfull and shes going thru a very active stage right now..

 

Oh by the way.. I know you are interested in Autism. There is a new film out about autism... Have you seen this...

 

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php   


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LynnMcLaren

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Reply with quote  #3 

Hi Marsha, ((Smiles )))

 

I know you are very busy but if you can try to answer the questions above the best you can and Eric also asked this.... Feedback on the middle ear muscular spasms.. I guess both Stapedial and Tensor with regard to TRT treatment....

 

Eric Posted... 

 

Hello Lynn, thank you for your thoughts regarding this issue. I understand that also you have had muscular spasms in the middle ear, and that your condition has improved. I am glad that this turned out well for you. How long did it take for you to improve? What do you think was the main reason for improving? You mentioned "voice therapy"? Could you kindly explain the contents of this therapy? As you I hope that Mrs Marsha Johnsen will give us some feedback regarding TRT treatment for this kind of problems. Thank you. Best regards, Eric.

 

 

-------------------------------------------------------------------------


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LynnMcLaren

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Reply with quote  #4 

Hi Marsha, ((( Smiles)))

 

I know your busy.. But just bumping this up.. I see you in a thread above... 


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Reply with quote  #5 

DearLynn:

 

Sorry I did not see your message....been slightly too busy I think with the doctoral program AND the clinic plus, of course, life!

 

This is a rather curious area, yes, that is right.  Sensations and feelings that are elicited BY sound coming into the ear are most often related to the middle ear space. 

 

To grab onto this, we need to review first that area:  we have the eardrum itself, which is attached to the outermost tiny bone of the chain of 3 bones, stuck rather tightly onto a thin flexible membrane....in this way, the sound that enters the ear is transmitted across that thin membrane, into the bony chain, and carries these vibrations to the inner ear.

 

That space is air filled, and the three bones have tiny joints, articulated joints, like mini shoulder or hip joints, and are suspended in that air filled space by two miniature ligaments which are attached to muscles that hide inside bony cavities....the tensor tympani and the stapedius muscles,  The function of those small muscles is actually thought to be a vestigal leftover kind of arrangment because when they are flexed, higher pitched sounds travel across the bones more easily, and I recall a lecture I attended once where a speaker proposed that cats and foxes, etc. hunting animals, can flex those muscles voluntarily, and thereby, hear tiny furry snacks running around in the bushes better! 

 

In humans, though, those muscles are only rarely called into play, as they have another function, which is to briefly contract when a louder sound comes along, usually 80 dB and higher, which stiffens the chain of bones and cuts down a tiny bit on the ability of sound to cross those bones....this reflex action is very short in duration, though, and so  is not really very useful for sustained noises, only short sharp ones, say, a stone hitting another stone!

 

The innermost bone, the stapes, sits into a window in the bone, resting on another eardrum, really, loose in that window, and when resting on that thin flexible membrane, sends its little vibrations into the fluid filled inner ear.  The small bones also act as levers, adding power and energy to the incoming sound, because some of the sound energy is simply absorbed of course, and used up by the movement across solid objects as opposed to zipping through the space of air! 

 

That stapes sits there and wiggles up and down, in such complex patterns, it is hard to imagine.  A pure tone is a sine wave, a nice up and down single curve, but a Mozart Symphony?  A human Voice?  It is very impressive engineering, to say the least!

 

Ok. 

 

Now.....also in that middle ear space there is a tube leading downward and forward, with a normally shut open end lying just above the wiggle worm, at the back of your throat, on the BACK wall of your throat, up above (don't try to find it you will gag big-time).

 

The soft palate and pharrynx get involved in that area, too, as well as the joint of the jaw, and it is a regualr interstate of cranial nerves and branches that run right through that same middle ear space......

 

So what can go wrong?

 

Sometimes people get a simple tic reflex....last night for some reason, I have a jumpy muscle fiber in my leg....kept making litlte movements all on its own, no pain, just physical sensation....I have had finger twitches, eyelid twitches, and so on over my life, and they usually persist for a short while and then stop.  This can certainly happen in the middle ear, and it can happen with or without sound stimulation.

 

I have a provoked tic reflex in my left ear.  For some reason, if the ear is in a certain position, and the shower or a fan is on, the ear starts going phut phut phut phut......no pain but it feels to me like a moth is trapped in there and wants to go OUT.

 

This has an AUDITORY component and a PHYSICAL SENSATION Component.  Two parts.  IT is also completely benign.  When I roll over, it stops.

 

Sometimes the nerves in the area are damaged for some reason, and malfunction, and send signals to the soft tissue muscles or other flesh around there, and we get a kind of clonus----a type of spasm that is rapid and frequent and it can move those tiny bones and people report hearing click click click or some variation.  Often a very good observer can actually see the tissue at the back of the throat moving!  This is difficult to fix as a larger area is affected and it seems to me that drugs work better that address neural activity, to calm down those excitatory nerves and make them settle down.  Surgery is not an option as the whole area is often involved.

 

Other cases present due the physical injury:  which can be a blow to the head or a clap to the ear or even a loud sudden noise!  Injury can result in some very subtle changes to the structures of the middle ear: they can loosen the chain of bones, they can create a floppiness in the stapes as it sits in the oval window, it can stretch, tear or damage those ligaments, or cause some disarticulation of the joints.....stretch the ear drum or the ligament that surrounds it in the canal, etc. etc.

 

These are structural defects, and can results in a middle ear hearing distortion, just at some frequencies or sometimes, a wider range.  IN some cases, a single note or tone will set off a reaction, like the professional musician I saw who knew that certain chords were going to make his ear do funny irriitating things.....that was really hard for him.

 

These can be so subtle so as not cause much hearing loss, and most surgeons are not able to tell what needs to happen.  Some have gone in and tried to pack the stapes with bits of bone and tissue, hoping to stop the extra movement, of course, then, we often have hearing loss, and this results in the need for a hearing aid, and so on.... I would say it is a kind of Pandora's Box.

 

I hope you are beginning to see here that these really belong in the realm of the physical part of the body, the bones, muscles, ligaments, tissue, etc. and therefore are really not 'neural' in their reactions, like tinnitus is, which involves the central nervours system and so on.

 

In that sense, I have NOT found sound therapy or acoustic therapies to be appropriate.  I am happy to do a trial if someone insists, as I also understand what it feels like to have something nobody can fix! and how it is to want to try something!!!!

 

I think TRT is best to counsel these individuals and educate them about their condition, to try a 'masker' device, to take away the fear and so on.  Some do spontaneiously remit or heal, and others are stuck with it.

 

We really need more focus on it, it is not well studied, I do not think, like most of the ear things I deal with.......but each otologist might see 1-2 cases per year and cannot grasp onto it as a focus area, then....

 

I hope this helps.  After ten years, I an rather bluntly honest with people about whether I think TRT will help or not.  No sense wasting time and money if the data shows that a physiological problem does not really benefit from listening to a broad band signal for 18 months........

 

Ok.

 

Thank you for calling this up, I will try to check in more often.

 

Marsha Johnson, MS

 

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LynnMcLaren

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Reply with quote  #6 

Hi Marsha, (( Smiles )))

 

I understand what you posted..

 

Sorry I did not see your message....been slightly too busy I think with the doctoral program AND the clinic plus, of course, life!

----------------------------------------------------------------------

 

You are a very busy person indeed.. But a very educated one as well.

 

I'm sure you have seen it all !

 

I'm going to read this a few times and think on it...

 

I had bad ear spasms to outer sounds like the immediate stapedial kind but the tensor kind as well.

 

They may both play off of each other depending how bad the symptoms are or the nerve thats injured by a loud sound trauma which I think thats what happened in my case..  

 

But I overcame that symptom about a years time.. One person wrote two... 

I was reading Sandys old post and she did as well overtime.

 

For me..

 

It seemed to go along with my hyperacusis getting worse or an acoustic injury..

 

As when my hyperacusis loudness disorder part got lots better.. So did theses spasms..

 

Like it was a nerve problem of sorts.. Nerve trauma... Yet I do have this left over lets call it... booming thumping thing that is internal sound induced..

 

Maybe part of that nerve that didn't all heal.. Like the crackling ..

 

Who knows ??

 

But more research does need to be done on this for thoses that suffer with this thing... 

 

So I guess. For me.. A sound therapy did help with the spasms overtime...

 

So why does it help some and not others.. Or can it just heal up over time for some if it's a nerve trauma or a noise trauma situation..

 

Thank You Marsha for being there you are truely such a nice helpfull person..

 

If I did TRT.. I probably would have choose you for your human touch ..

 

That helps with hyperacusis and ear disorders in general.. 

 

 

Thank You 


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Lynn
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Twiztid

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Reply with quote  #7 
Marsha,

Are you saying there is nothing for us with myclonous or Ear Spasms?

I am contemplating getting some muscles cut..  same operation that Libby and others have had.

Your post has given me second thoughts...

Do you see ANY benefit in cutting tensor tympani or stapedial muscles to relieve ear thumping??

Thank you.

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Reply with quote  #8 

Not at all.  A spasming middle ear muscles is different than soft palate myoclonus.  The first one can be surgically severed, the second cannot.

 

SOmetimes BOTOX injections appear to help in both conditions if you can find a Pain Clinic operated by MDs, this is often an option.

 

Also sometimes injections of corticosteroids appear to help.

 

Surgery is an option and should be discussed with a competent neuro otologist in my opinion, not the more common ENT, bless their hearts.

 

Endoscopy may allow the surgeon to observe the problem prior to taking the step of surgery.

 

Some have good results, others do not.

 

I do not think anyone has a good handle on the percentages as these surgeries are unusual and not in some data base or research file.

 

Marsha

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LynnMcLaren

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Reply with quote  #9 

Hi Marsha, ((( Smiles )))

 

I just wanted to say what caught my eye was what you posted in this sentence...

 

------------------------------------------------------------------------

 

I have a provoked tic reflex in my left ear.  For some reason, if the ear is in a certain position, and the shower or a fan is on, the ear starts going phut phut phut phut......no pain but it feels to me like a moth is trapped in there and wants to go OUT.

 

This has an AUDITORY component and a PHYSICAL SENSATION Component.  Two parts.  IT is also completely benign.  When I roll over, it stops.

 

 

-------------------------------------------------------------------------

 

 

You talked about when a fan was on... your ears started going phut phut phut.

 

No pain...... After I took that Cefaclor for 3 days because my ears felt like I had the worse ear infection..

 

I had tinnitus at the time.. My ears starting running thudding audible 24/7 for weeks like the fan was running in my ears even when there was no fan running anymore...

 

Thou it was running like the fan going around constant.... Thud Thud Thud Thud.

 

It was more like thudding.. Thud Thud Thud it sounded like and turned into a rumbling mostly inside my left ear..

 

So this had an auditory component and a physical sensation component..

Two parts..

 

I heard it out loud and I think I felt it running maybe vibrateing at the time.

 

It was so long ago in 02 before I noticed my H as H.. I could handle a double running window fan on hi back then..

 

But yours stoped when you rolled over.. Mine didn't stop for along time..

 

It just keep thudding 24/7 for weeks untill it went down in volume till I didn't hear it anymore out loud..

 

So it was a provocked tic reflex. Yet I have never had one before in my whole life with any sound or fan before that event..

 

No sounds ever in my ears... 

 

I wonder why not ??????

 

Is it common.. Or was mine not common and maybe something else going on ?????

 

How come your ears do that ???

 

Do you know why ???    

 

 


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LynnMcLaren

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Reply with quote  #10 

Hi Marsha, (((( Smiles ))))

 

I remember when you wrote this post and tinnitus .....was my first.......  noticable problem and it got so terribly worse with my hyperacusis disorder..

 

Even before my noticeable as hyperacusis hyperacusis disorder..

 

But I overcame the worst of tinnitus and my tinnitus spiked up and reacted badly to outer sounds so much so it was part of my hyperacusis in the way it was like hyperacusis in the way it would react to outter sounds....

 

My hyperacusis has improved alot.. My tinnitus has improved alot and is like more normalized to sometimes like gone... but I do get flairs once in awhile as well but.. Nothing like before...  This is liveable..  And sometimes I wonder where did all thoses different sounds go..

 

At my worst of.. 

 

I had chimes.. I had high pitched steaming shrills , machine like noise , hissing, sensory electric sounds that matched certain sounds comeing out of lights and static and...  I just wonder.. Where did it go ?????

 

I don't think I'm just tuneing it out now.. I still have tinnitus but..

 

Where did the sounds go... can tinnitus sounds just go away sometime but where do they go and why do they go.. And why were they there in the first place..

 

I mean what device in the ears or the brains cause's all that noise that can go from the worst of.. get better.. improve... overtime..

 

Why is it so hard for people with reactive tinnitus to improve as that is what you wrote at one time....

 

I was just wondering and if you can try to answer this when you have the time..

 

I would be interested to know.. And also about the thumping or fluttering in your ear you talked about above.. What caused that for you.. I don't think everybody has that. I never ever had that before T or H...

 

I've been meaning to get back to this.. Take your time as I'm not posting as much here as before.. But just takeing it slow...

 

But this is what you wrote at one time about reactive tinnitus.. Why do they have such a low success rate and why for others with this same problem...

 

They can overcome it in time and can improve with T and or H.. What makes the difference..

 

Is there an answer for that ???? Or do we know .. any ideas on this...

 

 

 

 

Quote:

Author: Marsha Johnson , M.S.
Date:   03-03-04 20:15

Reactive tinnitus often pushes people into the Category IV of TRT which is indeed the most difficult one and when complicated by hyperacusis and hearing problems, then these folks are often the ones that make up the 15 percent of subjects who do not improve.

Sometimes a combination of cognitive therapy, serious counseling, and medication helps, too.......along with using TRT.

I agree with you about symptoms vs disease but to the people who suffer from T and H, it doesn't make a bit of difference.

MJ 


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Reply with quote  #11 

Consider Bee Stings:  we all react differently!  My skin swells up, slowly spreads out in a big ring, itches unbearably for up to two weeks, turns scaly and is a significant source of distress. Even the slightest touch sets off the whole skin and nerves in that area, for many days, and I hate it!

 

My husband gets a sting, it hurts for a while, then simply does....nothing! 

 

What is the deal?  I am more reactive, the tissues alet the immune system, bring in fluid, helpful molecules, unhelpful swelling, and I suffer.

 

Who can predict which of us will react to sound stimuli?  Some of us can experience a kind of hyperacusis or tinnitus that settles down, calms down, persists, but does not continually escalate or react, others have the 'worse' kind.  It is impossible to predict at this point, whose hyperacusis will feel like raw skin with salt poured on versus mild, recoverable, quieter kinds......

 

I guess you could say, luck of the draw (I still do not have even ONE grey hair at my age!).

 

Marsha Johnson

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LynnMcLaren

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Reply with quote  #12 

Hi Marsha,  (((( Smiles ))))

 

It sounds like... what your saying is... we all react differently in the way and time frame... our body heals.

 

And if it does heal and how it does...... And some people can go thru the worst of and still get better with harder odds ... even thou it may be..

 

Kind of like remission in the way some people just go in remission not that there is any total answer for that mystery... because not all things can be answered... but in the way we are all unique and the way our bodies deal with it...

 

I do think I'm lucky in a way... but it took so long to get there and I also pat myself on the back for being determined and not giveing up no matter what..

 

For me it's not bees it fleas. If there is one flea to be found anywhere..

 

I inform everybody there is an invasion and I say look.. And it's just so strange that nobody else but me... gets bitten... it's like..

 

Wow.. I guess there is... you look like your under attack... thou nobody else is bothered by them... and my carpet is well vacuumed... and I don't have pets.. But if just one sneaks in the house somehow. I'm the only one that knows it right away..

 

I don't know why that is.. I just can't figure it out.. It just makes no sense why me..

 

But as you say... it's impossible to predict it just happens... And it hit me real hard and mine continually escalated and got much worse first the T then the H...

 

Then ... after a bad row of it.. All thoses sounds of T just.. Went away... from where ever they came.. And my severe hyperacusis went with it in time...

 

Now my tinnitus is manageable and my hyperacusis is like gone thou my ears are not the same ears they were before T and H..

 

The outer sound ear spasms went away. The one thing that didn't go away and stands out... so I notice it more is... the thundering booming thing but so far that hasen't effect my T or H..

 

And the crackling of course... 

 

I'm at this platou.. And I feel very lucky to be better  " at this point" after all  I went thru indeed.. I just wonder where it all went and if it could ever come back... like it went ...yet...

 

I've been waiting it out and it doesn't seem like anything has changed from the way it is now...

 

But not even one gray hair. Wow... You can have one of mine if you need any...

 

As gray hairs will just sneak in if you live long enough.. I know this girl who had gray hairs in her 20's and my grandmother didn't have any and hardly... till she was elderly.... but my grandpa went white headed when he was alot younger and me...

 

I just pluck them from time to time if I see one.... I lean toward my grandmother.... but she was very lucky in that department.. 

 

But I .. Was very lucky with my T in the long run. And in the long run.. My hyperacusis as well.. But nobody in my family has either H or T..

 

I just blew them all away when I came down with it..              

 

 

 

 

 

 


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Lynn
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LynnMcLaren

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Reply with quote  #13 

Yes.. What Marsha wrote... (((( Smiles )))

 

I think that I had some sort of nerve injury that caused my constent to outer sound ear spasms... Like a physical injury or the nerve was very irratated by my severe hyperacusis and how loud everything was precieved by my ears..

 

And whats left over is some sort of physical injury that maybe I had some nerve damage or losening of the bones in my middle ear or in the E.Tube area the muscles.. the whole chain that make my ears rumble or thunder boom with a yawn a burp a strain...

 

And thats why the spasming ear thing went way overtime and the other one didn't resolve itself.. But I keep thinking that maybe it's the E-tubes that are involved in some way...

 

 

Marsha Posted... 

 

 

Quote:

This has an AUDITORY component and a PHYSICAL SENSATION Component.  Two parts.  IT is also completely benign.  When I roll over, it stops.

 

Sometimes the nerves in the area are damaged for some reason, and malfunction, and send signals to the soft tissue muscles or other flesh around there, and we get a kind of clonus----a type of spasm that is rapid and frequent and it can move those tiny bones and people report hearing click click click or some variation.  Often a very good observer can actually see the tissue at the back of the throat moving!  This is difficult to fix as a larger area is affected and it seems to me that drugs work better that address neural activity, to calm down those excitatory nerves and make them settle down.  Surgery is not an option as the whole area is often involved.

 

Other cases present due the physical injury:  which can be a blow to the head or a clap to the ear or even a loud sudden noise!  Injury can result in some very subtle changes to the structures of the middle ear: they can loosen the chain of bones, they can create a floppiness in the stapes as it sits in the oval window, it can stretch, tear or damage those ligaments, or cause some disarticulation of the joints.....stretch the ear drum or the ligament that surrounds it in the canal, etc. etc.


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LynnMcLaren

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Reply with quote  #14 

I Agree With Jane, ((( Smiles )))

Marsha has been so helpfull over the years and givein us so much 

information on all sorts of subjects over the years...

 

Makes me wish I had the time back then to do the best of Marsha posts

thread as well.. As she has had so much helpfull information and thoughts

to offer others on this network...

 

And what she wrote above on this subject was helpfull as well...

 

But if there is any other information out there... In any way..

Of why this symptom can go away.. even though it may take alot of

time for some.. But not for others... In the hyperacusis department..

 

It would be interesting to know what makes the difference...

And how many with hyperacusis has got better with the spasming

ears thing as well...  

 


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Lynn
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Reply with quote  #15 
My right ear spasms when audio comes into the other ear. It's annoying to talk on the phone. My right ear throbs with every word I hear. I'm starting to notice it with more sounds. It gets painful after a while like my ear drum is being beaten. I know I have scar tissue on that drum, not sure if it's from a childhood infection or from when this acoustic trauma happened 5 months ago. I turned an amp on for a while and when I play I hear a rattle in my left ear. I also get it from listening on the phone. Maybe thats somehow causing my right ear to spasm.
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lib

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Reply with quote  #16 

i had that horribly......its the stapedial reflex, noise going in one ear can trigger spasms in the oppisite ear. i can tell you i found it very disturbing as mine was severe.

now i am on the phone again just like old times!

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Mk

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Reply with quote  #17 

Hyperacoustic,

I also had the same thing, especially on the phone.  I don't know what was worse, listening in my bad ear, or listening in the other and having it reverb in my bad ear! 

I would also get it sometimes listening to someone speak in a classroom setting, or listening to a video that was turned up loud enough for the whole room to hear, but not all the voices triggered it, just some.

I am hoping that my surgery last week took care of it.  Wouldn't that be wonderful!

Mk

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LynnMcLaren

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Reply with quote  #18 

Hi Hyperacoustic, (((( Smiles ))))

 

I think mine started because of an acoustic trauma myself...

I had it in both ears.. They both spasmed from sounds....

Even at my worst from turning a door knob quietly...

From like non sound.. Like from very very very soft sounds.. 

 

Also voices was a big offender as well other sounds around me..

My ears throbbed as well too and I felt lots of pain..

My eardrums felt like there were being literally beaten up..

 

At many times it was like someone was physically actually punching

my eardrums with sounds..

I actually felt the punch's happening..

 

I described that way back when in time and you can find that old post

somewhere on this board..

 

But my spasm's were constant and happened like that many many.

times a day.

From the felt spasming clamping kind to the punching

bag kind..

 

I think that difference was depending on the loudness of the sound which

could be expirenced as the punching hard kind even with the lower Db's

of a voice in talking..

 

I did an expirement at one time with a voice and reported that the sound

going in one ear played like static in the other ear..

 

It sounded like the static effect in a bad speaker playing..

somehow in my ear.. But it even stranger  then that..

Something that has to be expirenced it's hard to put in words..

 

But for me.. I really believe it was acoustically caused..

In 02 with my tinnitus.. I had symptoms in my ears but I don't

remember that one.. I had loud noise events in testing as well..

 

MRI acoustic reflex test irragation ect...

 

But It had to have happened somewhere between the loud amped

organ playing church funeral for my mommy in law.. 

 

Sitting through that caused me extreme ear pain when he sang loudly

and played and it was a very long service.. At least it was for me..

 

But the playing of the organ through out the service..

was how that service in that church went..

 

And the noise trauma's in March of that year..

Somewhere between that it came..

 

I can't remember the exact timing as it was long ago and I wasen't

even on the hyperacusis board at the time..

 

And I was worried about other things my ears where going through..

at the time to really think much about it..

 

But also.. It could have came on slowly and with a lite touch at first..

Like the feeling when it went away in spasming ..

So I could have had it before I felt it strongly anyway..

 

But it had be from/ triggered by thoses noise events Dec-March..

But I had it in both ears really bad with soft non hardle audible sounds

at one time.. And for me..

 

It took a year to go away and it hasen't came back like my hperacusis symptoms so far..

 

But I think there is a possibity.. Maybe depending on the cause ..

That when one lowers or gets hyperacusis undercontrol..

Like this can happen with tinnitus with hyperacusis as well.

The tinnitus can get better...

 

Maybe it will calm down or go away with time..

I just hope so... For you..

 

I still have the booming thing but I think that might have been 

antibiotic induced.. Maybe a different cause.....

 

The cause may be the clue to why it may go away or not..

I really don't know..

All I know is what happened for me and others

with H who has had this symptom..

 

So for me.. I'm glad I went the route I went..

And not had surgery.. In my case because based on my symptoms..

 

Thats what I could have done..

So looking at both sides in view..

The possiblity allways exists...

 

And if it doesn't go away in time..

The other option is allways there for you.... ((( Smiles ))) 

 

And I hope it goes well for you Mk..

I really do... 

 

       

 

 


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LynnMcLaren

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Reply with quote  #19 

This is on the thread the pink noise tape no longer exists..

 

And this was wrote to me by the Rob on the board who was on..

in 03 but has been gone from the board since 04 I guess..

 

Can't remember the exact date he left but he got better himself

and he wrote this because I told him about the punching bag ear thing..

So.. I just continued on this path and I do think that I and others

that had theses kind of symptoms and did improve overtime...

 

Maybe theres a reason for that... Based on hyperacusis..

Not sure... But people have overcome this symptom...

 

Lynn  

 

 

 

Author: Rob
Date:   10-24-03 00:29

Laurene,

The stapedius muscle contracts prior to and just after speaking. This restricts the stapedius bone, which dampens sound. Here's some links for you on this.
http://www.muw.edu/~mbyrne/ch8.htm
http://www.bcm.tmc.edu/oto/otologyprimer/Physiology.html
http://www.up-to-date.com/saitwebsite/porges.html


Lynn,

I know the feeling only too well; like having your ears punched by a fist of sound! I firmly believe your middle ear muscles are causing the pain. They are tense, so when they are extended through normal work this is like over-extending for them, and this stresses the nerves. The solution is similar to an athlete who's torn a ham string, you need to gently exercise and stretch these muscles again, through sound therapy - listening to soft, white noise several hours each day, then gradually increasing the volume over time. Also, no athlete enters a race without first warming up. Because your ear muscles are stiff and tight, normal sounds are too much for them. But the white noise warms them up through continuous, gentle stretching exercises, so that when the louder, normal sounds enter the ears, the muscles are already limbered up, so to speak, and the extra stretching caused by the louder sounds isn't so stressful on these muscles. I hope this makes sense to you.

Rob

 

 

--------------------------------------------------------------------------


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Hyperacoustic

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Reply with quote  #20 
My right ear spasms when my left ear hears sound. I would love to know why this possible would happen. If I put a plug in my right ear and listen to the faucet with my left ear my right ear throbs. Why does it react with no stimulus? Why is the reaction a throb? What will make it stop? Has it ever stopped for anyone without cutting tendons? That's obviously not a natural solution so one that I don't consider...yet.
Five months may seem like a short time, but the throbbing has only increased since I began to notice it 2 months ago. It's been a very long five months for me.
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Reply with quote  #21 

again....stapedial reflex.....look it up...thats the cause of that symptom.....you can learn to live with it, try antiseizure drugs, cut the tendons.....

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Reply with quote  #22 
This hasn't stopped for anyone on it's own?
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Reply with quote  #23 

Hi Hyperacoustic, ((( Smiles )))

 

You asked the question.. And it has.. For some people it has.. 

 

There are people like me that have had Tensor Spasms or Stapedial

spasms and based on what I read in the hyperacusis newsletter that

described the difference ion both awhile back..

 

And I placed the description I read in the hyperacusis newsletter..

on theses two syndromes on the board somewhere..   

I had both kinds and for me and it took a year....

For that symptom to get better..

It did go away and has not came back so far..

 

Neither has my hyperacusis syndrome...

Laurene's name above is not me and she had certain problems..

And Sandy I read in an old post on the old message board that I'm

sure I placed somewhere on this board..

Had them too...

 

And others.

 

But I can't say for sure over time that it will go away for you..

I truely don't know the difference why it can get better over time for

some but not for others..

 

From what I've read I thought maybe because they had a noise trauma

and full blown hyperacusis disorder.. 

 

I just thought maybe from what I've read that might make the difference...

 

I just don't know except what has happened to me and what I have read in stories from others over the years..

 

There is a possibilty like with hyperacusis treatment or just healing and time it could get better..

Like the old post I posted above..

 

I just feel for me.. Like Astrid..

Maybe our cause was a different cause and maybe because of that..

 

Surgery would have made me worse or would not have helped me..

Because of bad hyperacusis.. I really don't for sure the difference..

 

As there is not a big file of statistic in research on this..

especially for thoses who have had bad hyperacusis or done TRT

or pink noise and in the difference of how many improve overtime

or don't...

 

And why that is if there's a pattern besides luck..

And it may be they really don't know for sure besides not

haveing done alot of studies on this disorder..

 

I really can't say.. You can try like Lib wrote you above first..

Certain medications and see how it goes...

I have read there are others it has helped..

 

You just have to try things and see what does work overtime..

All I'm saying is there are options...

 

I wish Marsha had more to say on the subject of how many people..

she has seen and treated with hyperacusis disorder over the years..

or lets say tinnitus disorder who had theses kinds of symptoms..

and who improved..

with that with TRT treatment and or just healing over time..

 

But I don't think thoses statistic's on that exists..

Thats all I could tell you...

All I know..

Sorry...   

 

 


Quote:
This hasn't stopped for anyone on it's own ? 


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Reply with quote  #24 

And allso the possibility of my booming thing...

Like Marsha wrote in a big post she wrote above...

Could be because of a loud noise injury maybe a nerve/muscle..

to my ears along with my hyperacusis..

Or just those severe daily ear spasm's I had maybe pulled

or caused changes in the structure of my middle ear..

 

The booming being a loosen chain of bones..

That gets set off mostly by internal sounds..

Like a post Marsha wrote on Bum Bum Bum internal sound before..

That post is somewhere on the board... 

 

Marsha wrote....  

 

Quote:

Other cases present due the physical injury:  which can be a blow to the head or a clap to the ear or even a loud sudden noise!  Injury can result in some very subtle changes to the structures of the middle ear: they can loosen the chain of bones, they can create a floppiness in the stapes as it sits in the oval window, it can stretch, tear or damage those ligaments, or cause some disarticulation of the joints.....stretch the ear drum or the ligament that surrounds it in the canal, etc. etc.


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Reply with quote  #25 

What types of Stapedial Myoclonus do I suffer from?
 
Stimulus-sensitive myoclonus is triggered by a variety of external events, including noise, movement, and light. Surprise may increase the sensitivity of the patient.

 

Sleep myoclonus occurs during the initial phases of sleep, especially at the moment of dropping off to sleep. Some forms appear to be stimulus-sensitive. Some persons with sleep myoclonus are rarely troubled by, or need treatment for, the condition. However, myoclonus may be a symptom in more complex and disturbing sleep disorders...

 

 

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Reply with quote  #26 

Here is one of my old post's I found on it...

 

I found my newsletters.. There is one on TTTS And one on Stapedial Myoclonus.

 

Idiopathic Stapedial Muscle...

 

The both seems to react to outer sounds I don't see the yawning and the burping thing thou..

 

Idiophatic Stapedial muscle spasms creates a rough, crackling , rumbling noise in the ear.

 

External noises, such as music tones , water faucets , and voices , are know to accent the spasms.

 

Physical examination reveals a normal tympanic membrane with rythmic contractions synchronous with noise..

 

Stimulus - sensitive myoclonus is trigger by a variety of external events, includeing noise , movement , and light.

 

Surprise may increase the sensitivity of the patient..

 

O.K.. That one is external..

 

And it also talks about sleep myoclonus...

 

Lets see about TTTS...

 

It says when hyperacusis develops , everyday sounds appear unnaturally prominent and increasingly louder..

 

Following exposure to some or many of theses sounds , a temporary increase in tinnitus ( If Present ) and / or hyperacusis may be noticed , and an esculating sensations in the ear may develop, such as ear pain, a fluttering sensation or an intermittent fullness..

 

This reaction can generalize to more and more sounds.

 

As a result,  people may come to believe that their ears are no longer able to physically tolerate theses sounds and /or that theses sounds are causeing damage to their ears or hearing and they should be avoided.

 

O.K.. It talks about the anxiety leading to... misophonia phonophobia.. Hyper vigilance... Frequent monitering of ear symptoms...

 

Lets see.. It says in many people with hyperacusis , an increased activity develops in the tensor tympani muscle in the middle ear as part of the startle response to some sounds.....   

 

O.K.. it seems like they both react to outer sounds...

 

It talks about people with significant hyperacusis generally don't tolerate any loud sounds, many moderate sounds , particlarly if sudden and unexpected , and some soft sounds.

 

And I'll skip too..

 

Lets see.. Following exposure to intolerable sounds, this contraction of the tensor tympani muscle tightens the eardrum , which can lead to the symptoms of ear pain/ a fluttering sensation / a sensation of fullness in the ear ( in the absence of any middle or inner ear pathology ).

 


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