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Sandra

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Reply with quote  #1 

Yup. Someone said to me: let,s go into that beautiful church ( a few days before Easter). We went in and a beautiful chamber orchestra was playing celestial music during a mass. I panicked but decided to stay because the music was sooo uplifting. And I did for 5 minutes with NO adverse effects after. Granted I was 50 yards away, but I was still petrified. Wow, that really opened some possibilities for me. I had not heard live music in at least 5 years. Now, I might be able to attend some concerts for a while from way in the back. Better than nothing!! Hope this has helped someone. (This was all possible because I,ve improved about 25% over the last year.)

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LynnMcLaren

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Reply with quote  #2 

Hi Sandra, ((( WOW ))))

 

Thats Great !

 

It just feels so good just to be able to try to attempt doing something like that and being able to handle any of it.. at all... 25 percent.. Thats an improvements and all improvement's are great !

 

Thats the point were all good things start from.. and I'm so happy for you.

 

You must feel real good about your expirence.. With hyperacusis.. It's just so hard to do.

 

To put ourselves into sound with our ears. But I remember the feeling of freedom comeing with every little step I took into sound with each victory I made..

 

And it felt so good.... I'm so happy for you..  


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Lynn
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Reply with quote  #3 

Sandra: 

 

That is absolutely fantastic news !!   Am so pleased to know this for you.  For a lot of us it takes - time.  I can imagine you were petrified – sounds perfectly reasonable to me. 

 

Be VERY careful with live concerts (power of the sound) – and make sure you have very good plugs that you put in right before everything starts.  Waiting until you ‘feel’ too much, is far too late Sandra.  A pain in the tailfeathers these things are – (I wear personally moulded silicon) but if you do this – you’ll have an excellent chance to be able to attend another concert perhaps in another month, and so on. 

 

It took me a while before I would wear those darned things in public.  However, once I did, it was then that I started to get better at a much faster rate.  My H & T certainly have not left me – have to always watch it – but the trick was to allow myself the grievance of having to wear the ear ‘braces’ when I needed to.  I figured that if my son’s doctor demands he uses them for his knee when he is overdoing things – then I should have no qualms accepting the same guidance from my specialist for my ear ‘braces’. 

 

This is a HUGE step you have taken.  Good for you !!!!!!

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LynnMcLaren

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Reply with quote  #4 

Hi Liam, (((( Smiles )))))

 

That is so true. Beware of loud concerts ( Power of The Sound).

 

I'm so glad Sandra has had an improvement and she feels better about herself because she could do this.. Thats wonderfull.. 

 

Yet some things are really too loud for anyones ears.. Especially someone with hyperacusis disorder. Even thou I made it thru Chuck E Cheese..

 

I didn't realize how loud it was in there with all thoses arcades and T.V. moniters and yelling and noise..

 

I was reading a website that an arcade can be 110 decibles..  I don't know how loud it was in there but I've never seen so many arcades and kids in one room....

 

I was lucky that time and who knows if I suffered any hearing loss or hair cell loss from that place.. I shouldn't have risked it going there without plugs yet..

 

Now I know how strong my ears are.. Yet.. I've read stories from others on the board who was doing real good and their ears lasted at a few loud events and then wham ! Out of the blue....

 

Hyperacusis was reactivated and I still have tinnitus so.. I think I should not be going to any places that loud again.. I still want to be able to go out for years to come...

 

Just to be able to go to most places should be fine enough for me. Why risk it all...  Right ??

 

I just have to keep in mind how hard bad hyperacusis and bad tinnitus really was.. And how much of my life it took from me. And why I don't want to go thru it all over again..

 

And how lucky I am now.. To be doing lots better... I need to keep that in perspective..

 

 


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Lynn
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Sandra

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Reply with quote  #5 

Thank you all. It just so happenned I had a major setback just after posting my first message. But I recovered far more quickly than usual. What a relief! Recovering more quickly from setbacks is another indication of general improvement. Still, one must always be careful, and only take small risks, I beleive. At that concert , I was 50 yards away, the music was NOT amplified (natural), and I only listened for 5 minutes. Next time: 15 minutes!

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Reply with quote  #6 

You had the guts to try ....

The courage to look at what happened ….

And you chose to take a positive view, about what to do next. 

 

I am so proud of you Sandra.   Good girl !!!  

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LynnMcLaren

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Reply with quote  #7 

Hi Sandra,  ((( BIG SMILES )))

 

You wrote...

 

It just so happenned I had a major setback just after posting my first message. But I recovered far more quickly than usual. What a relief! Recovering more quickly from setbacks is another indication of general improvement. Still, one must always be careful, and only take small risks, I beleive. At that concert , I was 50 yards away, the music was NOT amplified (natural), and I only listened for 5 minutes. Next time: 15 minutes!

 

------------------------------------------------------------------------

 

Your right.. Recovering more quickly from setbacks is another indication of general improvement. Stablizing some.. One step at a time.... one day at a time...

 

It all starts from that point...  Music is beautifull isn't it.. It's made to be enjoyed.. I hope someday for you. It will..again...

 

All things are possible.


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Lynn
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Sandra

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Reply with quote  #8 

Thank you all

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