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EsteenM

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Reply with quote  #1 

Hi all,
Is hyperacusis common for women? It is strange, but all the women in my family are suffering from either tinnitus or hyperacusis. I'm wondering whether this would be a hereditary problem. But none of the men in my family have this problem. My elder sister who is suffering from tinnitus is using temporary HA's and she is also getting physiotherapy as per the advice of her doctor in Toronto. Would such therapies help to treat hyperacusis? I'm suffering from hyperacusis and planning to get an effective treatment for this. While researching about this condition and its treatments, I came to know that sound therapies are good options. Does anyone here try this treatment? Kindly share your experience. 

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Jemma12

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Reply with quote  #2 
Does anyone know of a network or a site for a chat group or a community or a form for teens with chronic pain or hyperacusis
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Alibongo

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Reply with quote  #3 
Hi I would love to know if there's anyone who can help us. I'm the mum of a 15 yr old daughter. She went to the ENT department in January because she has ear wax. The ENT Dr suggested she have microsuction to remove the ear wax. And was not told of any possible complications from this procedure. So she had this done in both her ears and found it to be an extremely painful procedure. Upon leaving the room to go and have a hearing test done my daughter kept telling me mum something is really wrong with the way my ears feel and all the sounds are too loud.
She had the hearing test done which was perfectly normal. We returned into the ENT Drs room and my daughter expressed how she was feeling. The dr then decided to prescribe some antibiotic ear drops.
We left the hospital to what has become a complete nightmare. My daughter ended up with several ear infections in both her ears which were difficult to get on top off with antibiotics. She has extreme hypersensitivity to sound, which I now know is hyperacusis. She has stabbing pains just below her ear and in her jaw, she has suffered with severe bouts of nausea, dizziness and ear pain, which has made her so unwell she's missed a lot of school.
We finally returned to our next appointment with ENT only to be told it's not an ear problem and they can't find anything wrong.
I am literally at my whitts end. This all started immediately following the microsuction but they insist her symptoms could not be anything to do with that procedure.
Please if there's anyone who can help or advise us I would be so greatful.
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DanMalcore

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Dan
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Reply with quote  #4 
You are within driving distance to one of the best clinicians in the world that will help your daughter.  Here is the information:

Jacqui Sheldrake
Tinnitus and Hyperacusis Centre
32 Devonshire Place
London W1G 6JL
United Kingdom
44 207 487 2701 tel
44 207 486 2218 fax
j.sheldrake@ucl.ac.uk
tamia@audiology.fsnet.co.uk
http://www.tinnitus.org

Dan

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Alibongo

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Reply with quote  #5 
Sadly I'm not in a position to afford private medical treatment. But thank you.
I'm particularly interested if people who know of problems with hyperacusis being triggered off by microsuction.
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DanMalcore

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Dan
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Reply with quote  #6 
Over the last 26 years running this network, yes, on rare occasion hyperacusis has resulted from this procedure.

Dan

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Alibongo

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Reply with quote  #7 
Thank you. Would you happen to know of a medical document or something anywhere that also states this?
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Alibongo

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Reply with quote  #8 
Hello again , hope you don't mind me asking you another question. It's just I'm quite new to this stuff!! After what happened in January (the microsuction) we returned some 4 months later to tell the consultant what had happened since he performed the procedure on her. Instead of him being concerned and wanting to do more tests etc he became angry raising his voice and telling her not to come into his clinic pointing the finger!! He said it would be best if we were seen by a different dr, my daughter left in tears, and no better than when she came in.
We waited for another appointment in desperation because my daughter was so unwell in the end several months on I phoned the Drs secretary to find out what was going on, only to learn he hadn't even made another appointment because he wasn't sure if we wanted one!!
It was at this point I made a complaint to the hospital.
Naturally the dr and his colleagues all keep protesting that my daughters symptoms have nothing to do with the procedure, but we can only tell our story as it is, and we know the symptoms started immediately following that procedure..
If I owned my own house or had any valuable assets I would sell them to pay to take my daughter to the clinic you mentioned but I'm a divorced disabled lady just trying to do the best I can for my child..
If you have any thoughts at all about anything that could help us I would be so grateful. And if you know of any other evidence that shows a link between microsuction and hyperacusis that would be so helpful because we know we are telling the truth about this.
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Dianeb

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Reply with quote  #9 
I am scheduled for the surgery by Dr. Herbert Silverstein in Sarasota, Fl.  I  Have bad tinnitus as well as bad hyperacusis.  I was wondering if anybody has had this procedure for hypercusis that has had tinnitus.  Did it effect the tinnitus?  Make it worse or better or same?
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