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hyperacusisresearch

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Posts: 9
Reply with quote  #1 
Just found out about one of the most significant Hyperacusis survey's to be sponsored by a major U.S. University.  Please participate so more accurate knowledge will be learned to define the symptoms and frequency of Hyperacusis issues.
http://survey.uiowa.edu/wsb.dll/127/iowahyperacusis.htm
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aQuieterBreeze

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Posts: 2,083
Reply with quote  #2 
If they wish for someone to complete all the questions in their survey-
as it states on the page for the survey -
I think they should put them all on one page, or allow for a preview of all the questions - so someone could decide weather they wish to answer them or not.
There is only one question showing, and the rest of the page is blank.....
yet it says -
"IT IS IMPORTANT TO US THAT YOU COMPLETE EVERY QUESTION!"

Also in my opinion,  they should state very clearly  what the rights of the people who wish to participate in the survey are, and how the results will  be used. It should be printed on a web page that one can easily view, without having to call or give an e-mail address - in order to find out the answer, in my view anyway.

Someone recently posted on this board, asking some questions - and requesting  participation - for a class project they were doing.
In that case the audiology student was very  upfront with the questions asked, and  about how the info would be used, and why it was requested. That person got some very good feedback, and I think that is a better way to go about requesting information.
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saab1216

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Posts: 152
Reply with quote  #3 
I took the survey but would like to inform people that some questions will be repeated more than once. Pay attention to your answers. I can say that My hyperacusis is almost gone in most cases and would not really impact this survey as it should. My hope is all will take this for a possible benefit for the sufferers still to come as well as we on this site. Thanks Paul
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aQuieterBreeze

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Reply with quote  #4 
Hi Paul,
In your view is there a really good  reason they do not show all the questions on one page or give a preview of them, before one starts into the survey?
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hyperacusisresearch

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Posts: 9
Reply with quote  #5 
I was not involved in this survey design or plan but you can contact the team at The University of Iowa, Iowa City, IA 52242, (319) 335-6564, or e-mail irb@uiowa.edu for questions.  Typically survey design is done in such a way that critical questions may be asked twice or with slightly different words to gain better confidence in the answers (this is what the stat's folks want). It's possible that the different pages are so that you have to rethink any similar questions as opposed to looking at your prior answers.  Coming from a university I'm sure anonymity is very important. 
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DrJ

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Posts: 222
Reply with quote  #6 
The person who designed this survey needs to take a few more courses on designing surveys.  No offense intended but generally you ask FIRST if the person has the symptom before you ask a dozen questions about that symptom.  : )

Just those little details that make a difference.

MJ

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Marsha Johnson
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Marilyn

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Posts: 194
Reply with quote  #7 
I quit the survey mid-way.  (Well, I assume mid-way, but don't know for sure since I didn't complete it.)

I filled in all the squares and the page kept reloading and saying I needed to fill in every square to continue.  It was possibly a software error.

The survey was frustrating because the questions were too ambiguous.  I don't think they'll get an accurate representation of hyperacusis.  Too bad.  I'm all for any study!


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~ Better days are ahead! ~
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Rob

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Posts: 4,049
Reply with quote  #8 
I liked the survey.  I don't think it was perfect, I'm sure it could be improved, and it wasn't necessarily complete.  But I understood what they were driving at.

Rob
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LizH

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Posts: 429
Reply with quote  #9 
I got through most of it second time around, but was disappointed that I couldn't complete the appendix about drug therapies, alternate or otherwise.  The questions were so specific eg how many mg did you take, that I couldn't answer.  That was because I have long since thrown away the packaging and containers of the things that didn't help and I don't have a super memory for those sorts of details.  I actually tried emailing about this via the only email adress given which was that of the review board, but I got a reply telling me that they had nothing to do with the survey and it seemed that they weren't prepared to help me out by searching for the correct adress.

Also the tinnitus section seemed to assume that you had a hearing loss which isn't the case for me and there was no satisfactory way to point this out.  Some of the questions there were ALMOST identical to those in the H section, except that, unlike in the H section, they omitted certain vital options which made trying to answer correctly very difficult.

It wasn't perfect by a long shot, but perhaps it is a start.
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LizH

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Posts: 429
Reply with quote  #10 
Hi all,

I got a pleasant surprise this morning - a reply from the Uiowa Review Board regarding my problem with the survey.  Someone very helpful called Molly told me that the person in charge of this survey is a Dr Richard Tyler and that he can be contacted at rich-tyler@uiowa.edu

So there you go - all questions and comments can be directed to him.
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