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brownie

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Posts: 10
Reply with quote  #1 
is there a way we can click on a like button or something for all those who have or have had H so we can get a rough total as i didnt realize how many suffer with this until i got it an did my own research to find out what i really had.if we get an idead of how many of us there are then maybe someone will FINALLY LISTEN TO US AND HELP!!!!! What do you all think?
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dave2

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Posts: 82
Reply with quote  #2 
Just a few statistics on numbers of internet group members as of today, 11 January 2019. These numbers are always changing, usually increasing. The smaller groups tend to be more recently created.

5,520   Chat-Hyperacusis (based on members list, approximately 30 members per page and 184 pages)
3,938   Hyperacusis & Tinnitus Support (Facebook group)
2,285   Hyperacusis Support & Research (Facebook group)
727      Tinnitus & Hyperacusis Support (Facebook group)
183      Hyperacusis & Tinnitus TRT Talk (Facebook group)
45        Hyperacusis Hope! (Facebook group)
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brownie

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Posts: 10
Reply with quote  #3 
Thanks so much for the info Dave. Im sure there is thousands more out there too!!
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dave2

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Posts: 82
Reply with quote  #4 

The research paper at this link which is from 2015 includes a section on prevalence of hyperacusis:

Hyperacusis in Adulthood

There are few studies on the prevalence of hyperacusis. Andersson et al. (2002) assessed prevalence in the general population of Sweden using questionnaires, with responses collected via the post and the Internet. Their definition was unusual intolerance to ordinary environmental sounds, and they found a prevalence of 8.6%. Fabijanska, Rogowski, Bartnik, and Skarzynski (1999), using a postal questionnaire, reported that 15.2% had hyperacusis among 10,349 respondents in Poland, but the specific wording of the question was not reported. Of course, without a clear accepted definition of hyperacusis, or definitions of hyperacusis subgroups, variability across studies will be large.

Hyperacusis in Childhood

Hyperacusis also occurs in children and is frequently associated with tinnitus and noise exposure (Coelho, 2006). Moderately intense sound from the television, games, and telephone can cause some children to cover their ears with their hands. The symptoms can be so severe that activities —such as car rides, vacuum cleaning, and lawn mowing— are avoided (Einfeld, Tonge, & Florio, 1997; Martin, Verman, & Miles, 1984). Coelho et al. (2007) assessed hyperacusis in a randomly selected group of 506 children from Brazil (5–12 years of age), and they reported a 3.2% prevalence by questionnaire (annoyance hyperacusis) and a 1.2% prevalence by lowered ULL (loudness hyperacusis).

http://successforkidswithhearingloss.com/wp-content/uploads/2015/01/Hyperacusis-Part-1.pdf

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Aplomado

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Posts: 602
Reply with quote  #5 
I'm doubtful about hyperacusis rates of 8% or anything similar.  I sincerely doubt even 1% of the population has significant hyperacusis.  I suspect the rate is much lower than this.
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