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Stormy

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Reply with quote  #1 
While my H is in a "controlled" status, I still have my issues.

Since I have a lot of high freq hearing loss, I find watching TV a challenge, especially with someone else in the room.

I have to almost max out the volumne just hear conversations on the tube - but then dramatic music kicks in or those #$%^ commercials and my eardrums explode!

I am constantly running the volume up and down, up and down.  It drives everyone, including me, absolutely nuts!

How do ya'll deal with it ?
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Snow_World

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Reply with quote  #2 
Not too long ago I used to run the volume up and down and have some trouble enjoying the experience.  DVD's were the worst because the music was always really loud but the dialogue was very quiet, and that was a problem even before my hyperacusis.  Is that a common problem with DVD players? 

My sensitivity is worse now, so I watch with subtitles and no volume and use that time to listen to my sound machine.  Sometimes I like watching movies I saw before my H because I can remember what it sounded like.  Memories in general help keep me going, give me something to work toward.
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deafleg

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Reply with quote  #3 
I watch movies off my computer. I have the TV connected to my comp. Win amp has a built in equalizer, so I fine tune it to my ear.

Stormy, what do you think the reason is to why you haven't fully recovered from all these years?


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Stormy

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Reply with quote  #4 
Snow World - yeah, thank God for subtitles!  Love em.  My kids (adults) hate them and poke fun.

Deafleg - I like the idea of your computer hook up.  However, my stuff is embarassingly ancient.

As far as why no 100% recovery ?  My guess is I have done irrepairable damage with the guns.    And I am unable to afford any professional accoustic therapy which in itself I believe would be a challenge due to my damage/trauma.
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MPyre

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Reply with quote  #5 
I rarely watch tv, actually. When I do, I have the same problems. Though most of what I watch is on the computer, and it's in another language with english subtitles. So I just don't have the volume too loud. I don't really need to hear everything clearly like I would with something that's in english.
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caliguy124

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Reply with quote  #6 
Aearo Ultra 9000 Earmuffs

Google that name and buy those earmuffs if you have a hard time watching TV without protection.  They're expensive and not a lot of stores sell them but trust me when I say they're worth the investment.  Other earmuffs drown out the voice while the Aearo 9000's were made to let the voice in.  Of course the voice isn't as loud or sharp while you wear them but to some of us, that's a good thing.  The only other earmuffs that I've come across that help with TV watching are the Howard Leight C1 earmuffs...but they aren't nearly as effective and aren't very comfortable.  The Aearo 9000's give the right amount of protection but the key is that they don't overprotect like the others. 

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Stormy

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Reply with quote  #7 

Thanks Caliguy !

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Snow_World

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Reply with quote  #8 
I second that "Thank you"!
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caliguy124

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Reply with quote  #9 
Glad to help, Stormy and Snow.

Reading your posts brings back memories from a little while ago.  You don't realize how much TV shows and movies play music until it starts to irritate you lol.  Having to toggle with the volume control the entire time took the enjoyment out of it for me as well.  I'm a big TV watcher so for me, those earmuffs were golden.  They should help the both of you.

I think that they would also be helpful those who are around young children...who of course have a tendency to scream.  The Aearo's are a lot like musician ear plugs...they protect you while also letting some sound in.

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sucuqu

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Reply with quote  #10 
i can only really watch tv with a family member.  i need CC with and sometimes without volume.   the tv is more an irritant to r. tinnitus.

could never watch a show on computer.  computer also irritates the tinn.  so can only stay on so long.

and i do not watch a lot of tv.  
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Febrele

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Reply with quote  #11 
Quote:
DVD's were the worst because the music was always really loud but the dialogue was very quiet, and that was a problem even before my hyperacusis.  Is that a common problem with DVD players? 

This is soooooooo annoying. We can't hear a damn thing they say then BOOM loud explosion.

stupid movies... lol
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Panda

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Reply with quote  #12 
For me, mostly commercials with loud noises.  I don't like Direct TV commercial that has two robots fighting, sounds of loud metals hitting, and the guy that watching them pauses and unpauses and keeps walking from room to room.  I press mute when that commercial starts.
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Snow_World

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Reply with quote  #13 
Quote:
Originally Posted by Panda
For me, mostly commercials with loud noises.  I don't like Direct TV commercial that has two robots fighting, sounds of loud metals hitting, and the guy that watching them pauses and unpauses and keeps walking from room to room.


Hahaha, I hate that commercial too, but even on mute!  Just the sudden and unexpected violence.  After the guy starts watching it on TV, it becomes real right in his house!!
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Panda

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Reply with quote  #14 
Lol, I guess we are not going to watch the movie Real Steel or its commercials. 
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Snow_World

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Reply with quote  #15 
Hah, I actually like the Real Steel commercial because it seems to flow smoothly and it's not really surprising, but haven't been to a movie theatre since Iron Man II...way too loud these days.
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Panda

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Reply with quote  #16 
Snow World,

The last movie that I watched without earplugs was Terminator Salvation, that when my symptoms just started.  I almost ran out of the theater.  

About several months ago, my doctor recommended me to start going out, so I did with my 2 friends, the NPR 33 dB earplugs, lol.  I watched a few movies mostly comedy.   I did watch The Hangover Part 2!  My complain was the club scene, loud music and then Alan shot a machine gun by mistake. Also, another complain later follow the club scene, but this time not related to loud noise, lol!

For action movies, I prefer to wait until they come out on DVDs, so I can watch them on TV in more control environment with low volume/mute option.
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sucuqu

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Reply with quote  #17 

I forgot to say I use the Mute button alot

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Stormy

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Reply with quote  #18 
Yes Mute button and I DVR 99% of my veiwings so I can skip those commercials. 

If I just can't wait to veiw a favorite show like Survivor, I wait at least 20 minutes into the show.  That way you can scan all of the commercials without having to watch any at all.
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Febrele

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Reply with quote  #19 

Its incredible how loud movie theaters are. Soon hyperacusis and tinnitus number of cases will EXPLODE. We are destroying our kids ears.

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gardennut

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Reply with quote  #20 
Stormy, you said you have a lot of high frequency hearing loss. does this mean the loud high sounds like sirens don't bother you any more?
 I have the opposite with low register hearing loss, and wow is it driving me crazy trying to explain to people that I can't hear them when they mumble or speak low but also can't stand loud noise. No wonder they are confused, as I am too.
 I recently attended a gathering of ten people in a smallish room and couldn't hear their voices as they spoke softly.  This so bizarre.... after all these years of avoiding loud noise.  Can one get hearing aids to be inserted only when needed in such a situation?
Someone mentioned something that helps them hear the TV voices ????
I'm so confused with all the gadgets .
Donna

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Stormy

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Reply with quote  #21 
Oh no, sirens will send me over the edge!

And yes, mumbling and low talkers just drive me nuts!

In fact, I dropped one of the best specialists in town for a non ear problem because he is a mumbler and to make it worse, he mumbles fast.

And of course parties or groups of people and background noise are the worst.
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deafleg

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Reply with quote  #22 
i am actually ok watching TV at moderate volumes.

But I do get random setback all the time, for other stupid things, like a random dog barking irght next to me. or something heavy dropping on the gound,

Tv is the least of my worries.

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Stormy

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Reply with quote  #23 
I agree totally, always when I have my gaurd down.

An outburst from a female - high pitched.

Or someone claps

Book gets dropped

Dropped silverware on dish -- the worst!

The burglar alarm gets activated - siren!


In our kitchen, tile floor, scooting the chairs ....torture!

The list goes on....
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deafleg

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Reply with quote  #24 
Stormy

Out burst from a female..... hahahaa

You just made my day .
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Stormy

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Reply with quote  #25 
In all due respect for our lovely ladies, I meant nothing negative at all.

I was referring to high pitched cackling or squeeling when something humorous comes up.
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deafleg2

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Reply with quote  #26 
I know mate.

Female voices does a number on me. It's ironic....thats all. Kids...

Gues i iwll never get married or have kids...

Hyperacusis a blessing???

Other things that cause pain:

car brakes,
chirping birds
alarms
phone ringing
cell phone ringing
bells
keys
silverware in the kitchen or anything in the kitchen



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deafleg2

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Reply with quote  #27 
Dunno what happened to my account? Seems it was deleted
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dylan

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Reply with quote  #28 
We are glad to see you deafleg2. Please continue using your new username.
Dylan 
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deafleg2

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Reply with quote  #29 
Ok just let me know, if you guys want me to tone it down.
 If I am being a bit too crazy.

 I am a few years away from being an M.D, so I do have some clinical knowledge to help people get through their day and feel I can help more than a normal ENT/ physician who has never come across H.

But this forum has helped me get through the tough initial stages of H.

Cheers



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Jesse

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Reply with quote  #30 

Wouldn't be possible without a remote with volume control.

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Stormy

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Reply with quote  #31 
Deafleg - weird about your account. Computers can be darn frustrating.

So - a few years from being an MD, that is going to be tough doing the ER thing.  That's why I gave it up.  Could not even imagine working ER, my internships there where enough to drive me up the wall with all of the screaming and pandamonium.

Best of Luck
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deafleg2

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Reply with quote  #32 
Stormy

Yea, I was on my last year in clinicals and I would have had my M.D. Had about 8 months to go. Was going to do my residency at Mount Sinai hospital in Miami . I did the USMLE exams and did amazing on STEP 1 and 2.

But I really could not continue with the vestibular issues, brain issues and the H.

Within the first few weeks of pathology clinicals, my professors slowly noticed I had completely changed. I was avoiding patients who were children. took breaks every 20 minutes. Wore ear plugs and was walking against the walls of the hospital. I failed all my exams that week and after as they were oral exams, I could not speak with out hurting my ears at that time. The teaching doctors were very understanding and tried to help me because they knew I would turn out an exceptional doctor. I was always told I was amazing at diagnosing patients from symptoms and advising treatment. I had not made a single mis diagnosis in the 3 years.

So it was easy to figure out I have H due to acoustic nerve damage and inflammation in the inner ear pathway compressing the facial and vestibular nerve. Along with fluid accumulation in the eustachian tube.

But there is no medical cure. I am trying to find it. If one is lucky, the body usually heals on its own, if the pre-determined condition causing the condition subdues.

Back to my M.D status:

I wanted to specialize in ADR(disc replacement surgery) and move to Europe and practice there due to avoid the FDA regulations on the amazing new disc technology that have been introduced to the market over there.

I have friends who practice in Germany and Spain. My specialty is the spine so If anyone here has any spinal issues, I can help you instantly. Just send me your MRI's. I will diagnose you and find your problem then refer you to the best ADR surgeons in the world.
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Stormy

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Reply with quote  #33 
Man that is so sad.  I sure hope you can get back on track soon.  Believe me, I totally understand what you went through, with not only H, but the vestibular issues as well. 

You won't believe this but have 3 level disc herniation; S1-L2.  I will not let them fuse.  I am waiting for approval of multi-level replacement.

As you can tell, I am a total train wreck.  Like many athletes in their early years, I thought I was bullet proof.  My patient file looks like a PDR .
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deafleg2

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Reply with quote  #34 
Stormy,

Are your discs degenerated at all?, through L2-S1.

If you have a herniation at 3 levels, I suspect a different problem. Maybe you can give me for information regarding your diagnostic tests and symptoms,
whether your tears in the outer fibrous ring are postero-lateral or not?

Whether you suffer from sciatic symptoms or muscle spams in the para lumbar muscles?

An EMG is a good indicator of abnormal neural activity due to a herniated disc.

A discectomy( reducing the disc size), and removing the herniation almost always results in a re occurrence of the herniation due to the post operative collapse and weakened disc.

If your herniation's are serious, you have to find which level is causing you the most significant pain.

I recommend a disc replacement if all other treatment fails and your are experiencing no improvement after 5 years with the condition.

Have a look on youtube of the (Spinal Kinetics M6-L) artificial disc. It something to be in awe of.

As it is new, it takes the FDA 7 years to approve any product. This is why the U.S is always behind with any medical advancements with the spine. They need to do trails and a bunch of other things.


Hope this helps.






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Stormy

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Reply with quote  #35 
From what I remember, I have some minor degeneration and very small tears/leakage.  I don't remember exactly where they are.

Fortunately no Sciatica or leg pain/symptoms.

My only enemy is mainly sitting and standing for periods longer than 15- 20 minutes.  And when sitting, I must have lots of cushion.  A straight wooden or metal chair is a killer.  I must lie down for an hour or two during the day.  Other than that I must keep moving like a shark .  So as you can see, I must mix it up.   
Thus it's kind of hard to have a conventional job and tell your employer that you must take a two hour break to go lie down.

My back Doctor keeps telling that the trials are looking good and it will be a few more years for multilevel surgery.

Thanks for that info!
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sucuqu

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Reply with quote  #36 
posts 21, 23, 26    yes, all those sounds   and yes, female voices can get too high pitched, some laugh so high, i cringe;  there are some female singers that i can no longer listen to--    yes, the sudden loud sounds,    oh man, a loud motorcycle, i hear in the distance,    

each year i teach my students to close my door quietly.  those who have had me before-- know.    a third grader who i have known since she was in K,   will never forget,  she and another first grader at the time,  were with me  when another K student slammed a door so hard it hit my left ear like a bomb.   i could barely talk and these two dear first graders got me through it.   they said,  "that scared me too," " it hurt my ears too"     and we had a quiet lesson.  later that year the girl told another student: "close the door quietly,  and went on to tell how slamming "hurtted Mrs.____'s ears"   i almost cried when she said that.   



Deaf,  sorry to hear about your medical issues H esp  slowing down the process of Md.   but i am sure you will get there,  you have a lot of determination


Stormy,  also sorry to hear you have to deal with back issues as well as H,
i am glad you have ways to manage it but a conventional job, no i guess not, 
my back issues are not as severe as yours,   i have gone through spells  but thankfully it is on and off.     the best to everyone, Su
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deafleg2

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Reply with quote  #37 
Well we all be fine, eventually...

I truly believe that.

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Stormy

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Reply with quote  #38 
You know, just closing a door while turning the knob is my issue.  That way, you do not hear that loud POP/CRACK of the latch.
I been telling my family for years to please turn the knob as you close the bathroom door.  They just don't get it.
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sucuqu

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Reply with quote  #39 
ha ha , oh  Stormy you sound like me  telling my husband how to close the bathroom door.  not only that but we have a shower door and there was only one way to close it.     and on and on with  "close the door"  when he is cooking or whatever.  it is no wonder i am "she who must be obeyed"  

yes,  Jesse,  defn remote with volume is in my hand.

forgot too Caliguy about the first time i watched tv with H, I was overwhelmed with the amount of music in the back ground and that is why i needed cc and mute.

i was so disappointed today.  thought there was a chance for direct tv but we have too many trees here and they could not get a signal.   i am in the house we bought almost a year ago, and just have antenna.    i tape some things on the vcr, yes, vcr at the other house . and watch it here.    some day maybe a dvr. but the way our cable charges--     we got to get that other house sold.

su
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Febrele

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Reply with quote  #40 

Quote:
Originally Posted by Stormy
You know, just closing a door while turning the knob is my issue.  That way, you do not hear that loud POP/CRACK of the latch.
I been telling my family for years to please turn the knob as you close the bathroom door.  They just don't get it.

Man, just put a little bit of soft tissue in the inside of the latch, it will kill the sound a lot... Be imaginative! Don't wait too much on others...
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onigirilover

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Reply with quote  #41 
While I do have problems watching television, I can usually watch it at moderate levels without huge discomfort to my ears. The only difficult things are music in series or commercials, and everyone here seems to agree on that I also have a problem with the random laughing that takes place in American sitcoms, that drives me nuts, as more often than not it aggravates my ears BUT, I will say my hyperacusis hasn't gotten worse to the point where I had to wear earplugs or a pair of muffs to watch television...So, I cannot even imagine how difficult it must be for some of you, so much respect!
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