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Risfoki

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Hello Everyone,

I got tinnitus in 2016 but the hyperacusis was not bad at all. In 2018 I got exposed to loud sound again and the hyperacusis got bad to point that I have to wear ear plugs at grocery stores. I wanted to use pink noise but I do not know how to go about this. There are so many pink noises available on Youtube with different high frequencies. Some have very high treble and some are more muffled. I don't know which one to use, but I know if I am starting with headphones not ear plugs! I will put it at the lowes volume possible like level 3, but I am afraid the pinknoise with high treble/ high frequencies will make my tinnitus worse. Does anyone know how to go about this? Where do I purchase my pink noise and how do I go about the treble? How many hours a day do I listen to pinknoise to start with. Is it normal for it to raise my tinnitus for the first few times? Please help. I want to do this alone because through doctors they are very expensive and I cannot afford to buy sound generators for $2000 dollars and are they that much more effective than me doing this on my own? Help thank you !


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WhatHappenedDenis

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Reply with quote  #2 
Sound machines cost around $100 and are great for H - Look up sound sleep Mini - That's the one I use and they do work Street low and then gradually raise the volt and leave it running continuously
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Risfoki

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Reply with quote  #3 
Thank you so much for your respond! I will check it out. How long have you been using it for? And do you really get to a point where you can go to places without earplugs?
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Rob

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Reply with quote  #4 
Risfoki -

Sound machines are one component of managing hyperacusis and you should use one when you sleep.  It is important to not sleep in silence. 

Regarding your good questions on pink noise, I would caution you about using any pink noise on YouTube.  A number of years ago, my colleagues and I made and donated a pink noise CD to the Hyperacusis Network for folks who could not afford the cost of expensive approaches.  I suggest you purchase the CD, set the volume to a low, comfortable level, slightly increase the volume the next month, and slightly increase the volume once more the month after that.  Continue to use the CD for 12-18 months.  During the first month, I suggest slowly working your way up to using the CD for eight hours.  During the first few weeks, if your tinnitus is exacerbated it may be because you have set the volume a bit too low.  In that case, raise the volume a bit.  Make sure to never set the volume to the point where you are unable to clearly hear external sound.   

To purchase the pink noise CD, click on "The Hyperacusis Network" link at the top of this page.  Then, select "What To Do" and select the "Pink Noise Products" option from the dropdown list. 

Rob
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WhatHappenedDenis

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Reply with quote  #5 
I started using the sound machine after I researched the benefits of pink noise - a few months after I got T and H. Pink noise works because of brain rewiring to sounds after damage (you can research that)
Started at volume 1 for a few hours a day and then very slowly raised the volume and left it on 24X7 next to my bed

Speed of recovery from H is very individualist but it does happen - there's no shame is wearing ear plugs in the beginning The brain makes it worse than it is ! Just tell yourself (as we all do)- It will get better (everyone does). But you must wear the plugs less often as time goes by or it will slow down /hinder recovery!

H does make T worse specially in the early weeks and they both need time to heal - T becomes more tolerable with time and H almost always goes away or becomes hardly noticeable

Do stay away from loud sounds - keep ear plugs with you for such situations 


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Risfoki

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Reply with quote  #6 


Quote:
Rob

Rob thank you so much for detailed response.

Few more questions regarding the CD
1. Can I play through the head phone (NOT Earplug!) at work the 8 hours that I am working?
2. If I already can listen to music through the head phone at 30 to 40% volume of my cell phone at what volume should I start to listen to pink noise?
3. I wear ear plugs at night for silence, should I stop wearing ear plugs while sleeping?
4. If I am exposed to a loud sound like 80 to 85db for a short period of time. Like a click or something dropping, will that set my hyperacusis back?

5. Does it also help to have that pink noise on while I am sleeping?

Thank you


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Steve2017

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Reply with quote  #7 

Risfoki...

I see you are working with a lot of electronics. I used to program computers in the 1980s and spent a lot of time doing this for years/decades. I bought a radiation tester 4 years ago after problems of my own. It went off the scale when cell phone was on charge, and also people should avoid using a cell phone that's glowing white on answering to ear or on charge, better with black screen, much safer as people are looking at screens so much these days, less bad incoming energy the better. I have to keep ALL screens lower brightness and sensible to look at nowadays otherwise it aggravates my T. Once you lower brightness eyes do get used to it like reading a book is more gentle to eyes and brain.

Hope this helps in some way.

Steve.


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Rob

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Reply with quote  #8 
Risfoki -

You absolutely can play pink noise through headphones while at work.  You don't actually "listen" to the pink noise.  In a very short time, you won't even be aware of it most of the time. 

I suggest working with pink noise at about 8 to 10 dB above your ability to hear it.  Determining that will be a problem, however, so you might try the following.  Set the volume to a level where you can clearly hear external sound in your immediate environment.  (If the pink noise interferes with your ability to hear, it is too loud.)  Then, decrease the volume slightly.  Then, decrease the volume slightly once more.  Start at that volume for one month.  Over the month, work your way up to working with pink noise for eight hours per day.  If you can listen for eight continuous hours, that is preferable to breaking it up into a few two or three hour sessions.  After you have worked with pink noise for eight hours for one entire month, slightly raise the volume and use it for one month.  In the next month, slightly raise the volume one more time.  Continue to use pink noise at that volume for another 9-15 months.  If at any time the volume of the pink noise causes you to not clearly hear external sound in your immediate environment, slightly lower the pink noise.  I would not use the pink noise CD while you are sleeping.       

You should never wear ear plugs or any form of hearing protection while sleeping.  It is important to keep a sound machine or some neutral sound in the room while you are sleeping.  The auditory system continues to work when we sleep, so don't sleep in complete silence.  Set the volume of the sound machine very soft so that it is relaxing to you and doesn't interfere with sleep.  I purchased my sound machine from Sharper Image a number of years ago.  There are a number of good sound machines on the market.  I suggest auditioning a sound machine before purchasing it. 

I hope this helps. 

Rob

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Risfoki

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Reply with quote  #9 
Steve,

I actually got my tinnitus from producing music loud in my studio. I got it in 2016! But yes all the things you have mentioned in your reply specially the screen brightness of the computer does effect my tinnitus. I did not know about the cell phone so thank you so much for the input. Every little information helps to beat this monster. This definitely helped me.

Thank you Steve


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Risfoki

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Reply with quote  #10 
Rob,

I don't know how to thank you! I have been looking for someone with your amount of knowledge regarding this. I will definitely follow your advice.

Also one last thing. I listen to music through head phone but at like 30 to 40% loudness, some songs when some of their keyboards or sounds are high they exacerbated my tinnitus. Should I avoid those type of songs. So anything that has very bright sounds, like bright hi hats, keyboards or bells even on low volume exacerbate my tinnitus! Is that a bad practice to listen to them? And most importantly, would that harm my hearing and cause permanent damage to my hearing and make my tinnitus stay exacerbated/high? Usually the next day after good night sleep the exacerbated T goes down again. So I just wanted to be informative about this so I am not scared all the time.

Thank you Rob
Ramtin


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Steve2017

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Reply with quote  #11 


Risfoki

Thank you for your nice reply.

Here are a few words about me to anyone who might be reading...

When my H was at its worst 4 years ago there was no going near leaf blowers, I didn't even like the drone of car tyres, my wife had to place spoons and plates in the draw/cupboard, and I even turned the fridge off for an hour or two in the evenings, so I had it quite bad and wife was not happy with the whole situation... Now at 65 years of age I'm high 90% cured with God's help with guidance, 'prayer is powerful'... I found out in my case it was my brain, not ears that were the problem so away went the ear plugs, just a clean tissue in my pocket to tear off in emergencies. I realised I could subject my brain/ears to different sounds within reason at first, and with my mind in positive mode I could say to myself take a listen brain, nice.... Also more sounds I can tolerate masked the Tin.

This is about me, it might not be the same for everyone, as I see different issues are involved with others on this forum.

With T - I have 2 weapons at my disposal. 1, be sensible with screen time, brightness and amount of use daily. There is an app called 'well brightness'.... 2, take time to rest during the day, deep breaths in meditative mode and positive, focus on nice things, then I say to myself - ok get on with it, find jobs to do for a while, focus the mind, keep busy, non screen jobs at first, then screen jobs but keeping it sensible time wise on my computer - then personally I don't see improvement for about 1 hour then I do and get lower T for several hours, and I rest better at night.

I hope this might help someone.

Steve.


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Risfoki

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Reply with quote  #12 

Steve

I appreciate you and anyone else that takes their time and shares their experiences and what helped to improve their situation. We all are different and that is why we need each other's support to be able to go through this. Any little information can be useful. Again, I appreciate you taking your time and telling me about this. It gives me hope. I am working on the brain part to accept the sounds I hear and not be afraid of them. Thank you

 


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Steve2017

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Reply with quote  #13 
Yes they are just sounds, so no fear - its important within your tolerance level of course, so in some cases avoid, but 'fear and hate' are the lowest energy 'vibrations' which help control our bodies and the 'self heal process' - 'love and light' are the highest energy 'vibrations' so its important to - be kind to yourself - in our difficult situations. We all work off 100% energy positive/negative so getting it right is a good start to recovery. You are still young yet my friend, any ear damage can heal with care, and work on your brain control over sounds.
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Rob

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Reply with quote  #14 
Ramtin -

Your tinnitus is temporarily louder after you listen to music with high-frequency sound and returns to its baseline volume the next day.  This is a very typical response for people with tinnitus -- and I wouldn't worry about it or change your behavior.  Listening to music, any music, at the quiet-to-moderate volume you do is good for you.  It is also helpful for managing hyperacusis.  The auditory system thrives on sound.  The way you listen to music will not worsen your hearing, cause damage, or permanently affect your tinnitus. 

Rob  
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Risfoki

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Reply with quote  #15 

Thank you Rob so much!

I also wanted to know this! I am taking Flurazepam 15mg every night for sleeping. Do you think that can cause any Hyperacusis or Tinnitus. I was taking before I got my tinnitus. I got my tinnitus one day after a loud music session. I wanted to see if you knew anything about benzos and tinnitus? thank you  and Merry Christmas!


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Calamity

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Reply with quote  #16 
Risfoki,

Many drugs are ototoxic. Drugs can cause tinnitus, as I have personally experienced. Check the following website to see if your prescriptions are listed.
http://www.alldeaf.com/threads/drugs-that-can-cause-hearing-loss-and-tinnitus.43583/



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Rob

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Reply with quote  #17 
Risfoki -

Neither hyperacusis nor tinnitus are side effects of flurazepam.   

https://www.rxlist.com/dalmane-drug.htm#medguide

Rob
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Steve2017

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Reply with quote  #18 

Risfoki,

A few years ago when my H was bad I was taking all sorts of tablets, then a while after I dug out the mountain bike from the shed that hadn't been ridden for years - even fell off it once but got back on as we're told - down a few busy streets to the park through the college grounds, past allotments and back, once or twice a week at first, everyone has a possible similar run available health allowing, just trying to give options. Suddenly the tablets didn't seem necessary anymore, then down to zero. Work has to take a back seat though while you focus on recovering.

Steve.


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monkeyman

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Reply with quote  #19 
Hi everyone! I'm new to this board -- I found it while Googling how to treat Hyperacusis (which I have).

I'm very excited to try pink noise therapy. But I have a question. If I have pink noise on (at low volume) and I switch on the TV (at medium volume) so I can no longer hear the pink noise, is the pink noise still having its beneficial effect?

Thanks,
Drew
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Risfoki

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Reply with quote  #20 
Quote:
Originally Posted by Rob
Risfoki -

Neither hyperacusis nor tinnitus are side effects of flurazepam.   

https://www.rxlist.com/dalmane-drug.htm#medguide

Rob


Rob had one more question for you. So I told you I got my tinnitus in 2016 but it did not follow with the a strong hyperacusis as I have right now. I used to be able to go to bars with EAR PLUGS MACK'S or even some clubs handle the sound and was not effecting me at all. Last night I went to a lounge bar where they had a Dj and I was aware of it so I didnt play stupid to go in the middle of the dance floor, it was in an open area so I stepped far away from speakers but my db reader on my phone was reading 85 to 90 sometimes. When I came home my ears were ringing but this morning they were quite but it started again ringing but mildly and I feel my ears are more sensitive to sounds. When I hear sounds now my ringing comes back right away. Did I fall back again in the progress of my hyperacusis? I thought if I wear my ear plugs I am safe. I mean I was on an airplane 3 weeks ago with ear plugs and it was like 90db loud for 4 hours and did not effect me like this!! Do you think the high frequencies of music like the hi hats and the claps even with ear plugs that muffles it for 25db I still hurt my ears and made my hyperacusis worse? Or is it me just freaking out? Or will this go away and I will get back to where I was with my hypracusis? Bottom line does that mean till I heal my hyperacusis I cannot go to any clubs or bars even with heavy duty ear plugs like MACK's? Thank you

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Dianeb

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Reply with quote  #21 
All this information is very helpful.  I have tinnitus very bad, also hyperacusis very bad.  I tried the TRT for 3 yrs.  Dr. Nagler said it wasn't profitable to continue since they haven't helped in that length of time.  The only improvement I experienced was about 7 or 8 months after starting the TRT my H almost disapeared for about 3 or 4 wks, then came back with a vengeance and it has been getting worse ever since. I can't even talk now much above a whisper.  I sleep with the pink noise app I downloaded on my phone.  I am scheduled for the Silverstein procedure in Feb., now I'm having second thoughts.  I am almost desperate.  I don't see how the pink noise would help me now that you guys are talking about since it didn't help me for 3 yrs. 
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Risfoki

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Reply with quote  #22 
Dianeb
After your first H therapy you said you had a windows of 3 to 4 weeks that you H was completely gone! How did it come back? What happened? Were you exposed to a extremely loud sound again? Did you feel too comfortable and went too party or club or somewhere too loud? There must be a cause that made it do that what was it?

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Dianeb

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Reply with quote  #23 
I don't know what caused it.  We had a yard sale that Sat., but the noise was not bad.  Loud noises are not what caused this.  I think it was emotional trauma connected with the tinnitus and bad family problems that caused it originally.
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WhatHappenedDenis

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Reply with quote  #24 
I agree that this is caused by emotional trauma since I was told so by a renowned Accupuncturist
Rid off the cause and it will get better- mine has
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Aplomado

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Reply with quote  #25 

Quote:
Originally Posted by Dianeb
All this information is very helpful.  I have tinnitus very bad, also hyperacusis very bad.  I tried the TRT for 3 yrs.  Dr. Nagler said it wasn't profitable to continue since they haven't helped in that length of time.  The only improvement I experienced was about 7 or 8 months after starting the TRT my H almost disapeared for about 3 or 4 wks, then came back with a vengeance and it has been getting worse ever since. I can't even talk now much above a whisper.  I sleep with the pink noise app I downloaded on my phone.  I am scheduled for the Silverstein procedure in Feb., now I'm having second thoughts.  I am almost desperate.  I don't see how the pink noise would help me now that you guys are talking about since it didn't help me for 3 yrs. 


TRT pretty much cured me in six months.  I was about 98% hyperacusis free for a couple of months before a relapse.  I have been doing sound therapy and relapsing for the past several years.  At this point, wearing the generators doesn't do a lot to my sound tolerance (though I find them very soothing).  The only thing that seems to help me is listening to pink noise daily at very slowly increasing decible levels.  I up it one decible at a time when I feel comfortable.  That actually works, until a car alarm or something else gives me a relapse.

You may want to consider using pink noise at slowly increasing levels.  Not that I am the world's best patient to emulate.

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Steve2017

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Reply with quote  #26 
If it was me I'd be postponing any procedures for a while and looking very carefully at my high stress levels, and use meditation to calm things... Don't fear the T or think of it or give it any respect, it thrives on fear and any 'thoughts' of fear -  keep busy with small jobs instead to keep the mind busy, think love and light and smile, this helps increase positive energy vibrations and better well being, (we are made of energy totally) - then you will very possibly see things improving daily.
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