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June

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Greetings and thank you.  I am grateful to have found this website.  My family physician has recently given me a diagnosis of Hyperacusis but acknowledged a lack of knowledge.  I have seen a local ENT who said there was physically nothing wrong with my ears and suggested I need to relax.  This is a strange and painful condition that is impacting my personal and professional life.   Is there a medication that will assist?   I am starting to navigate this site and it looks amazing.


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saab1216

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Reply with quote  #2 
Dear June You've come to  a good place. First , I am very sorry to hear of your diagnosis. How do you think you developed hyperacusis? What suggestion did your clinician offer? If you indeed have hyperacusis ,you need to go to a qualified audiologist who practices under the jasterbroff method of sound therapy a.k.a. TRT.(tinnitus retraining therapy). This has been a proven success in treating,improving or even curing hyperacusis. There are no known medications that will directly treat this. Meds are used to benefit the sufferer from stress related issues. I personally wouldn't recommend drugs until you've tried or have begun sound therapy first!  On this site are a list of qualified audiologists that do provide the proper diagnosis/treatment of hyperacusis/tinnitus. It is paramount to have your hearing sensitivity checked as to find out how affected you really are. A simple test is to be performed to check for your Loudness discomfort levels (ldl test). A pure auditory tone played at different volumes will determine this. this test will better inform your clinician as to what degree of Hyperacusis you have. 
    I personally started out with severe hyperacusis a year a and a half ago but with sound enrichment by use of trt,I have improved greatly and can still hold my job as a state correctional officer. I qualified with handguns and shotguns ever since. Improving ones condition varies on this but if you remain diligent with the treatment(trt) you will see great results. Best to you! Paul
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cbBen

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Reply with quote  #3 
Now that he is toeing the party line, is it now time for the relevant parties to induct Paul into the circle of the enlightened?
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June

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Hi Paul.  Thank you very much for your helpful information and I am glad that you were able to obtain assistance and recovery.  About 6 months ago, my doctor provided the diagnosis of hyperacusis while acknowledging a lack of knowledge of the area.  I suspect multiple things have led to my problem.  I wonder if exposure to loud sounds over the years in my work environment as well as a possible TMJ issue contributed to my situation.  I also used to wear a Sony Walkman and listen to loud music while exercising.  I also had Labrynthitis about 10 years ago. 

 

The ENT that I saw made no recommendations.  The audiologist in his office did a regular hearing test that indicated some mild age related hearing loss in the upper frequencies.  The audiologist acknowledged a lack of expertise in the area of hyperacusis.  The only recommendation given was that I relax and  possibly talk to a dentist regarding getting a mouth guard.

 

When I had the simple hearing test, during the actual test, the sounds did not hurt too much and the audiologist was sensitive to my situation.  However, that evening my ears were in pain and the tinnitus was much louder.  The discomfort did not subside for many days.  I am concerned that if I went for the testing to determine my sound tolerance that I would significantly suffer afterward. 

 

Simple everyday sounds throughout every day are painful- for example, the sound of the turn signal in my car, dishes being taken out of dishwasher, the beep of microwave, being on the telephone is particularly painful and I will suffer for hours after being on the phone.  When I go to the grocery store, I try to avoid the sound of clanging grocery carts.  And loud sounds are very painful - i.e. fire alarms, loud voices, music.    The tinnitus is loud and always there.  I think I could handle the tinnitus but it is the hyperacusis that is most debilitating for me.  A couple of hours ago, I accidentally dropped the TV remote on the ceramic tiled floors and the pain was immediate, intense and burning in both ears.   Last month when at the dentist office, I just about hit the ceiling when the dental hygienist attempted to use an ultrasonic cleaning device and yet last year, it didn't bother me at all.
 
Are there dietary supplements or vitamins that assist? 
This site is the first place where I am finding information and realizing that my strange symptomatology is shared by others.  Thank you very much.
 
 
 
 

 


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Debbie

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Reply with quote  #5 
Hi June,

As you can see, this board lacks 100% concensus on what exactly ails us from person to person and what helps.
Over 1.5 years on this board, I have observed that many of us experience variations of multiple problems.
For me, In addition to appropriately-timed, gradual sound exposures,
herbal anti-inflammatories (containing bromelaine, turmeric, etc) seem to help and so does natural GABA, a nervous system relaxer which also influences the firing of nerves in the auditory system.
The anti-inflammatories seem very helpful to my ear discomforts after over-exposures.
I can get you the brand names that I use if you are interested.

Debbie

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aQuieterBreeze

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Reply with quote  #6 
Ahhh enlightenment........
I don't think it has a lot to do with hyperacusis....or towing....
i don't think people are inducted either..it's a "place" some reach though.....
and i imagine that if an enlightened being has tinnitus, it likely does not bother them ...
Interesting thing to think about ...being enlightened.......
Hope you feel better soon Ben.
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June

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Reply with quote  #7 

Hi Debbie. Thank you for your response. Yes, could you please let me know the brand name of these products? Also do you have an opinion regarding taking Tylenol or Advil and which one has the side effect of more tinnitus? Have a good day.  June


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Debbie

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Reply with quote  #8 
Hi June,

I use Garden of Life brand herbal anti-inflammatories, 2products - Restore Muscle and Tissue Recovery and FYI (For Your Inflammation.)
I take them in tandem, as directed on the bottles.
When I have run out of FYI before I have just taken the Restore & doubled the dose.

Disclaimer and a word of common sense: Anything we take, including Advil, Tylenol, Asperin, a vitamin or other supplement or spice, food......and, of course) any pharmacutical can have adverse affects given an individual's chemistry.

So check the ingrediants of the substance and it's capsule, start at a low dose, one time, gradually get up to speed, and when getting off it, best to do the same in reverse so as to least confuse the body's chemistry.

With the spices in FYI, including oregano and others, my vascular tinnitus sounds have temporarily increased due to the probably supportive effects of the herbs on blood flow.
I have found that in my case this temporary effect is acceptable because, it seems, as the inflammation decreases over a couple days, the apparent constriction on the blood vessels that seems to be causing the audible flow is reduced.

If the increased tinnitus persisted more than a few days to a week while on the product, I would taper off the product.


A natural GABA product I have used during times when I must be around louder daily living exposures over some weeks or months (such as when I took 5 hours of lectures/day in a cinder block classroom with a feverishly shouting, aisle-pacing instructor) is I think Pharma GABA. I will check for sure if anyone wants to know.
Adding this dry powder within the capsule to water is a way to have faster results as the formula can be directly absorbed vs. digested.
Some natural GABA brands must be ordered by a med professional, others are avail at health food stores.
I have had good effects with the self-purchased brand I have used.
The GABA helps my ear nerves stay calmer to begin with in terms of the effects of sounds on them.

Pharmaceutical GABA, as in the form of Gabapentin (Neurontin) also helped when I was in acute pain early on.
There is a VAST difference between the feelings of being on Neurontin and natural GABA.
With Neurontin my fingers would feel rubber at first and in general, the drug felt like being a bit tipsy.
With natural GABA, the effects of sounds have still been buffered a bit but no major other effects that I noticed.
No rubbery finger sensations nor drunkenness feelings at all.

Debbie

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Debbie

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Reply with quote  #9 
P.S.
No idea on Advil vs. Tylenol. A pharmacist can help you with that, usually they are very willing to look up these types of information over the phone or at the counter.

I do know that asperin has been studied by some folks, poss. the University of Michigan (I think possibly for the military)
as an early intervention to mitigate the effects of acoustic trauma.
Taking it within a short time after a blast or other overdose of stimulation to the ear has been shown to have 'emergency benefits' which might halt an inflammatory process leading to hearing loss (or hyperacusis/tinnitus? My question.)

These vitamins were studied for sure by the U of M and a collaboration of international researchers:
A, E, C + Magnesium, I think 500 mg magnesium.
Mag was considered to be the 'activator' for the vitamins to have the ear trauma-mitigating effect. They were considered synergists; without one or the other, the easing effect to the auditory system did not happen.

I spoke directly on the phone to the Michigan researcher of the vitamin combination.

When I first got h & t, I did take the above, though started a bit after the recommended window of time to begin,
though perhaps taking it relatively early is one of the reasons I had several sudden and full recoveries, which others have not reported experiencing, during that time I was taking these supplements over the early weeks and months of my conditions.

I had also been taking an O2 absorption enhancing liquid supplement (Cell Food)
which I feel also potentially helped and had done some cranial therapy and acupuncture.


Debbie

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Jackie169

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Reply with quote  #10 
June
As you can see from this site your symptoms are identical to those like me. When I read your message it was just like I wrote it and I am sure many can say the same. I have no idea about the herbal medicine suggested but might be worth a try. I feel for you as hyperacusis & tinnitus is certainly life changing,
I would only say that you learn to adapt and cope with the lack of help that ENT specialist offer. Many say relax as if that is going to get you through this difficult time. Yes accepting the condition is the best advice I can give. Keep on this site as there are many people who offer advice and guidance. It stopped me going completely mad. I wish you strength to get through this. Oh and I hate supermarkets now ( all that beeping, fridge noise and general noise) but I make myself go but protect my ears.
Best wishes
JRA :-)
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June

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Reply with quote  #11 

Debbie, Paul, Jackie:  Thank you very much.  I am deeply appreciative of your helpful information and supportive words.  This website is amazing.  It feels like I am at the beginning of a journey and right now I am overwhelmed but hopeful.  Your kindness means so much.


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Johnloudb

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Reply with quote  #12 

Hi June, 

I highly recommend reading everything on Dr. Hazell's site ( http://www.tinnitus.org  ) as well. Over protecting your ears and using ear protection for extended periods of time, especially in quiet environments will only make your condition worse. 

Many people greatly improve their condition or even overcome it completely, like my dad did. Sound therapy is very helpful, and most everyone on this site does do some kind of sound therapy to make progress. It's essential to moving forward in my opinion. Ears need sound.

Sound enrichment is very helpful, but it has to be a sound you have no dislike for. This is also explained on doctor Hazell's website. 

Best of luck to you,

John

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aQuieterBreeze

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Reply with quote  #13 
A note about herbs,  and other supplements- and medications,
I am not in the medical field but from what i have read, some herbal remedies and/or products and supplements can have interactions with certain medications, and/or effects on certain conditions,
(in ways are very important to be aware of)
Though I am not sure  which ones do or not  My guess is many do.

And I think  for anyone trying out, or taking  herbal remedies, or other supplements, or any medication  - It's a good idea to be well informed of any interactions with other medications, or supplements. And also important to let one's doctor know about all the supplements (and meds)  one takes, as some can interact with medication or affect conditions in ways that are very important to be aware of.

Also  when it comes to vitamins and minerals or herbs, or any supplements, I think it is really important to read labels and know what is in whatever one  is taking.
Some people may combine products and get more of a specific  ingredient than they may realize, or than they would want to take.

Hi Debbie,

I do NOT know much about most medications and have never take GABA or Neurotin.
You have mentioned GABA many times.
Something i  find interesting and i am glad you phrase it the way you do ..
is what you say about it "buffering" the symptoms for you..

 you mention-
With natural GABA, the effects of sounds have still been buffered a bit

and also in another thread mentioned-
There was a buffering quality while taking the Gabapentin.

I think it is important for people to know there is another thread in which Some people mention that though they found some relief while taking some specific medications, the decreased tolerance to sound they notice returns full force, by the sound of it - if they stop the medication. Making sound/levels of sound that they found more tolerable with the medication - 
more difficult and too difficult to tolerate again.without it.

And I wonder how immediate an effect that is? Is it noticeable if one misses one dose?
And I also wonder, would it be noticeable if someone, who was on such a medication - was in someplace loud,
(such as at an event they would not be able to tolerate otherwise) and the dose they had taken started to wear off?
I don't know, but i think those are some things people who do take the medication you mention, and perhaps other medication as well,  should consider.

Also I think it is important for someone with these challenges, and hyperacusis in particular - to work on desensitizing to sound in ways that are right and appropriate for one on an individual basis -
even if one finds a medication or supplement of some sort helps in some ways for them.
But those are just my thoughts, and I am not in the medical field.

P.S. Someone posted something on the baord not too long back -
saying in the past he was able to treat his symptoms with a certain medication.
But when they flared up again, that medication did not work and he seemed at a total loss as to how to deal with it.  That is one of the reasons I think using appropriate methods of desensitization to sound is so important, even if someone finds some mediaction to be helpful in some ways. And in my view - I think that using appropriate sound therapy, or using sound in appropriate ways -  may at least in many cases offer a much better long term solution, for someone with these challenges.
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aQuieterBreeze

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Reply with quote  #14 
Hi Jackie,

Some stores are quieter than others, and there are  times of day one can go that may be quieter as well-
instead of going during peak shopping times, or on  days they are likely to be busiest.
And some checkout lanes may be quieter, than others -
I remember avoiding the ones with the coolers next to them ...
and changing lanes at times if necessary
When it comes to these challenges  there are many things we can do that are helpful,
doing things in a  quieter or more tolerable manner, and allowing in sound that we are able to tolerate,
as we work in appropriate ways to be able to tolerate more in the way of sound - can be one of those.

you mentioned-
Oh and I hate supermarkets now ( all that beeping, fridge noise and general noise)

Awhile back someone discovered that sometimes the checkout beeps can,  at least sometimes, be turned down....
In his thread -
Supermarket checkout BEEP volume CAN be adjusted!
Rich mentioned-

I scanned my first item and almost jumped through the roof because the beep was at a maximum volume level.  I asked one of the workers there if there was any way to turn down the sound level on the scanner - she said there WAS!  I can't vouch for every scanner out there, but there are buttons that you would probably not notice on the front of the machine, below the display, which are user accessible and can control the volume.  A few pushes on the button and the volume was down to a more comfortable level on the machine I was using.  Furthermore, if you go to the standard checkout line, ask the cashier to lower the volume, as those machines have similar controls that the cashier can operate.
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saab1216

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Reply with quote  #15 
Now that he is toeing the party line, is it now time for the relevant parties to induct Paul into the circle of the enlightened?


I am not sure of this statement...I was trying to use good judgement and information that I had learned from this site (jasterbroff)       Paul
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June

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Reply with quote  #16 
Thank you, again to all who have responded.  I have read and re-read everything you have said very carefully.  You are all providing information and hope during this traumatic time.  I am still in somewhat of the shock and denial phase and I guess have been hoping for a quick fix or that it would just go away, which it has not. 

The nearest TRT professional to me is a few hours away and this presents a challenge, along with working full time and family life etc.  I was thinking that it might be helpful for me to purchase the pink noise CD frmo this website.  I am afraid to use ear phones.  Is it okay to just put it in the stereo?  Also, I am considering asking my family physician to give me a medication to relax?  Has anyone else done this and are there any suggestions of meds  that do not increase the tinnitus?  Anxiety and sleeping difficulties are current issues.

It was interesting to read about the supermarket post.  I am going to ask if they can turn down the volume of the beeps.  I am amazed that there are people who share the same problems because I don't know anyone who has this problem.  I am sharing this site with my family to help them to understand.   I remain bewildered that an ENT that I waited  so eagerly to see was unable to provide any treatment recommendations other than telling me to go home and relax.

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