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rothwell

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Reply with quote  #1 

I am one who had to give up my career and any hope of holding down a full time job because of this condition. I was hit with both tinnitus and hyperacusis over 6 years ago. Over 2 years of TRT that in my case didn't provide any improvement. I had to stop working a little over 3 years back. I'm more withdrawn from socializing than most. I have found that it's the only way I can have control over exacerbating the pain and noise. And I don't have to feel bad about possibly spoiling someone else's fun. I'm one of those 5-10% I have read about, but have never met anyone else like this. Anyone else out there at this level? 

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kadida1

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Hi Rothwell,

Like you I am unable to work because of my tinnitus. I have to force myself to do anything,as it makes everything worse. Any type of activity (even walking from one roon to another) makes it louder. I had a back injury a few years back and had an operation. It did not help only made things worse. So I am not working due to the back. but if it wasn't the back it would definatly be the tinnitus. This tinnitus thing started 1 year after my back surgery. So I guess I was lucky that I was'nt working anyway. THIS IS THE WORSE THING IN THE WORLD TO TRY TO LIVE WITH. 

 

kadida1


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Teresea
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ggailley

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Reply with quote  #3 

hi i am very concerned about how you are feeling ...i have both tinnitus and hyperacusis and know how dreadful life can be and the impact on social life friendships etc...i have recently been to see jackie sheldrake in london privately..jan o6..and she has a number of people with hearing difficulties...i suggest you contact me for further details..dont give up although i realize the isolating effect and the emotional dispair...gailx


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gail jones
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bobm

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Reply with quote  #4 

i feel badly for anyone that has had to stop working.

in my situation i was only off work for 3 months  (Dr sent me back) but have been dragging myself to work since then ,many days have been unbearable.....,almost one year now . i have had little support but have managed to convince work of my problem and at least that is a start.but really how much can it help as most sounds are aggravating.

work is sending me to ANOTHER ent Dr in 2 weeks, i know what the result of that will be unfortunately,but have to go through the motions.i do feel fortunate that i can at least function at this level ( stressful though )as so many people are not this far in their recovery.it is such a struggle to cope even with just doing a modified day.without being at work. i hope we ALL recover enough to get back to some degree of normal activities.

 

stay well


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stay well bobm
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msasatani

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Reply with quote  #5 

Hello.  I, too, went back to work after short term disability.  It has been a month.  It is very hard.  Talking on the phone, communicating with coworkers...  Air conditioning above my cube is driving me crazy all week.  It is hard because I have to be able to do the best possible work like nothing wrong with me.  I hear some people in my next department just got fired by not doing a good job.  That makes me even more worried.  Most of my coworkers are sensitive and let me do my work, but I cannot really expect them to understand what I am going thru.  I do not even understand it for myself.  I tell them I have a hearing loss and hyperacusis, and they are still talking to me even louder.  I cannot even hear my own voice, and I get louder and louder, only hurting my ear more.  Only the people have 'this' understand.  I contacted Job Accommodation Network for suggestions for headphone, but they could only provide related websites.  I contacted SF Hearing Center for a support group and also for suggestions but they are not available till June.  I admire you, Bob, for working over a year (were you?).  I hope I can last that long.  Take care, everyone.  Mitsuyo

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bobm

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Reply with quote  #6 

msasatani,you have done a tremendous job staying at work ,with pressures of doing a good job and dealing with an illness,give yourself alot of credit.its not easy to do.it is just as hard mentally as physically,coping with pain , on a daily basis.it seems we are just in a survival mode to get by,hoping to get better one day.

 

as you are running into problems getting support,you are not alone.

there seems to be a lack of knowledge on our illness which makes it an uphill battle.this illness is a battle daily with just normal activities,when you throw in work it is 10x worse,we know how hard it is conveying to a medical Dr what we have.now we have to explain it to our boss and co-workers.....they are not there for us they are there for themselves.we then become a liability to them not being able to do our job to the fullest or need modifications to our job or environment.

 

i have found you either have to adapt with or without help.or just stay off until you can make enough improvement to go back to your job.

it is VERY difficult by no stretch of the imagination.

some will have to try and find some other work that is tolerable to their condition.not easy i know.

 

i  ended up getting h & t from work last march /05.( i have had T for 30 years and some h  ,didnt know what it was back then.it never became an issue)

of coarse workers comp will not acknowledge this, i was on my own since.

stayed off on sick time march ,April ,may and was told to return to work in June.i WAS not well and last summer seemed to be the worst of my life.

i felt the world was coming down upon me shoulders with no-one to turn to,this board helped ....words cannot express.....

 

i have done my best to cope and get better.at work and home

 

i do feel i will never go back to the job i was doing before.

but my health is more important in my life than work.

i will continue to struggle along until there is either a breaking point or i get better.what else can we do?

 

i wish you well,and have my complete support on your daily hurdles.

 

stay well


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stay well bobm
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