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bartony

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Reply with quote  #1 

Push has come to shove re: my neurological problems.  I am going to have to be seen at Scott & White, a specialty clinic/hospital located in Central Texas.

Everything is worsening.  The facial  spasms and stapedial spasms.  I spoke with the lady by phone at S&W this a.m. after my 2nd morning of being wakened by ear thumps and being unable to go back to sleep due to those.

After telling her all my problems, she said it could take a main Dr. overseeing several others (ear, neuro, etc.) to get all this figured out and dealt with.
I spoke with my Dr. office and they will be working on the referral.

I cry, I weep to know I don't have my Barb now, to be with me in all of this.  She was by my side in the past in everything I went through, and me with her.

All the twitches and ear problems could be from one central cause or not.  That will be for the doctors at S&W to work on.  The two neuromuscular specialists are tops in their field according to the lady and she has been with them at seminars.  They will be cuts above the one I saw at Dallas last fall.

Push has come to shove, and I am officially fed up and finally doing what should've been done years ago.

It will do no good, but please, no lectures about this all being in my head.  I know!  That is exactly where our neurological system is headquartered, in our brain. 

Thank you for your thoughts and prayers for me in the coming weeks.



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Tony


John 3:16-17
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aQuieterBreeze

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Reply with quote  #2 
Tony,

It may be helpful and important - to let the doctors you are seeing know that you have been using hearing protection a lot.
From what you have posted, using hearing protection in the manner you do, appears to be  something you have done every day or nearly every day except while sleeping,  - for years. How long you have been doing that, I don't know. But that information may be helpful to your doctors.

It's not a lecture, and please do not take it to mean anything other than what I said- that the info may be helpful to your doctors.


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bartony

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Reply with quote  #3 
Hello, QB-

No lecture detected!  You are so right, and I am going to be up front with who all I see.  I know how important it is for them to know all that is going on.  I am already dreading bedtime, though I'm exhausted, just not wanting that ear to thump me awake again.  Maybe tonight, I will sleep til a.m.  Prayed about that already. 

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Tony


John 3:16-17
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saab1216

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Reply with quote  #4 

Best to you Tony,I am sure Gods will is in this as Barb stands beside! After all said and done,we will expect to hear great news soon enough! God heard my prayers and continues to heal and so will you be healed too!

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bartony

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Reply with quote  #5 
Thanks so much, Paul.  I'm with you about God's will.  I'm happy you are getting healed, and I know God will see me through this as well.

God bless,

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Tony


John 3:16-17
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June

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Reply with quote  #6 
We sincerely care  - - and you are in our thoughts and prayers,  Tony. 
June

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You are on the right path.
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DrJ

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Reply with quote  #7 
I am sure a little angel will go along with you, Tony, sit on your shoulder and give you courage!

Dr J

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Marsha Johnson
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bartony

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Reply with quote  #8 
Hi folks-

Thank God, I slept last night with no myoclonic storms! 

I do appreciate it so much, June and Marsha.  All of this neurological "short circuit" stuff just isn't restricted to the ears, I am learning.  I don't know if the tensor thumps and facial jumps are from one cause or separate causes. 

I see the Dr. p.a. today to discuss all of this.

Thanks again so much.

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Tony


John 3:16-17
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