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elizo

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Reply with quote  #1 
Hi,

I just wanted to share this with you. This is the first time I've ever heard of someone who managed to get rid of both hyperacusis and tinnitus completely. I didn't believe such a thing was possible until now.

https://www.irishtimes.com/news/health/my-life-was-a-war-against-noise-1.517024

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elizo

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Reply with quote  #2 
Related to the link above, I add these:

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rodmccain

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Reply with quote  #3 
My Tinnitus is due to a severe noise injury, from an enclosed MRI with 30 decibel Hearing protection.  I have multiple T signals, that keep changing in sound and volume.  I also have H which for me means AMPLIFIED hearing perception of ALL environment sound, including peoples voices !  It has been six years !  Am a pretty much housebound. I did have pain the first year, but this no longer seems  to be an issue. 

Would you recommend this for my T, and to actually return my hearing perception to  more normal, and tolerable level?

Thank you,
Kathy McCain 
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TallDude

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Reply with quote  #4 
The person in this story might have had an acoustic trauma which may have damaged his stapedius muscles. This can cause objective T and H. Because he is a young person this might have cured naturally stimulated by this Chi Kung helping to relax.

@Kathy: what sort of pain did you experience and when did it occur? Your T is variable in sound and volume, can you explain?


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elizo

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Reply with quote  #5 
@rodmaccain:

Hi Katty,

I'm sorry that you have to go through this ordeal.

I know how you feel. I've been having hyperacusis for seven years and I was also homebound for three years with very severe hyperacusis.

I can't answer to your question better than Michael Graeme does in the link I put above, so I recommend you read it all and then make a decision.

I also recommend that you gradually expose your ears to every day sounds by controlling time of exposure with the help of hearing protection. It doesn't matter how long you can tolerate a specific sound in the first place. Maybe the first day you can hear a specific sound for just 1 second. But if you've been careful to not overexposure, the following day you'll likely be able to hear the same sound for 3 seconds. And so on. In my experience, this works better than any broadband noise sound therapy.

You have also to be very careful with fear of sounds, because it can throw away all the effort. Don't understimate this.


@TallDude:
According to what Kevin Barry, the person in this story, relates, he seems to have had subjective T.

"24/7 loud ringing and hissing noises coming from inside my head"

He doesn't mention any objective sound commonly related to stapedius dysfunction.

From his story it also emerges that he attended loud events frequently before T and H appeared, so the acoustic trauma wouldn't have been caused by a single extremely loud sound. This likely damaged his hair cells progressively until a very loud environment for too long caused his T and H.
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TallDude

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Reply with quote  #6 
I have subjective T for 14 years, it doesn't go away, and it is stable. I know what it is... Initially caused by an acoustic trauma, but my mild H also started there, but i didn't actualy realise it. Now I have developed HISSING INSIDE MY HEAD 9 months ago and severe H that goes up and down. This was caused after several times exposure to loud noises, like visiting restaurants and concerts and playing music (WITH earbuds). I had terrible earpain for days AFTER exposure, but initially no hissing. This went on for months and eventually this hissing developed in both ears.

In this 9 months I had my hissing almost vanished in a single second for 1 hour and coming back in 1 second after exposure to sound. In this 9 months i had weeks when i couldn't stand ANY noise and weeks when i could stand up to 100 db impact noises easely.

I can manipulate this hissing noise, it changes in volume and pitch. I don't have the typical fluttering, just hissing with little variations and sometimes little clicks like cricket sounds. If i can manipulate this hissing with my jaw then this must be something 'mechanical' like stressed muscles.
Why does Dr. Silverstein pack the stapes with tissue?

T and H is not necessarely ONLY caused by damaged IHC or OHC.

I believe that there are MANY out there that believe that they have and have been diagnosed SUBJECTIVE T but actually have OBJECTIVE T. There are many ENT's out there that don't know £$3@.

The stapedius muscle it's function is to protect the inner ear. Why do i cringe when a thin plastic bottle makes just little crackling noises? Because they peak at 90dB/95dB and that's when your stapedius muscle is working.

I also believe having a problem with the stapedius muscles and thus H might damage your inner ear further when exposing you to loud or even moderate sounds for longer periods.

I probably exhausted / damaged my stapedius muscles because they typical work at repetitive sounds like playing drums and bass starting at 14 years old and back then without protection.









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Steve2017

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Reply with quote  #7 

Hi Kathy,

When my H was at its worst a few years ago I was turning fans and fridges off, I even moved into the back bedroom for 4 months to get away from the road noise in the front room so 'I' know what its like. My T still has days when 1 to 3 different hissing/humming sounds depending on stress levels for the day.

My thoughts to you is its been 6 years, so with H is it still your ears or brain as was the case for me, my brain... Instead of subjecting your system to various stressful sounds, what about setting yourself a small trial, say 3 sounds repeat over and over every half or hour eg spoon in a cup close a clicking draw turn fan on then off, every hour for a day or two and monitor your response, it might help you decide if its ears or brain, I'm grasping at straws here but you never know you might get used to those 3 sounds if repeated.

Steve.


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rodmccain

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Reply with quote  #8 
Hi Talldude,

This happened 6 1/2 yrs ago.  After an enclosed MRI with contrast. I had 30 decibel protection.

I had a burning pain in my left, ear in front of ear, left jaw, and down the left side of neck.  This was almost a year, with additional stinging in both ears when exposed to sound, including peoples voices, which seemed way too loud, as all environmental noise.

I still hear environmental noise amplified or heightened, people as well, but voices have improved somewhat.  I have chronic T with multiple signals that change in sound and volume. Hissing, electricity, buzzzing, steady ringing, intermittent ringing, and a morse code sound beat, that sometimes sounds more like ringing.  This "code"has been for approximately 3 1/3 months.  The only way I can keep the T at a more reasonable level, is not to expose myself to public/environmental noise.  I can not listen to music except on very low volume.  I tried not protecting my ears when going out, for 2 1/2 years , to "get used to sound," per the "experts."  The generators exasperated the conditions. So when I go out I have been wearing Peltor ear muffs.  I have seen an improvement from the first 2 yrs, but certainly not enough to lead a normal life.  I am certain I do not have phonophobia. I would have moved on by now, it that were the case.  I have been through quite a bit, including open heart valve replacement surgery 11 yrs ago. I am  a fighter and can always move forward.  Not with this. 

I was officially diagnosed, but told that "time" may heal this. Evidently that is not the case with me.  

Thank you,
Kathy McCain
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EDogg

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Reply with quote  #9 
Hi Kathy,

My deepest sympathies. You are a warrior through all of this. I share your frustration.

My hyperacusis with ear pain and tinnitus was supposed to ease up with sound therapy. It’s been 18 months of trying everything there is to try without any significant improvement. It’s not a matter of fear, as you said, it’s a matter of physical limitation. It’s not photophobia or misophonia, it’s otalgia (ear pain) that stops my every attempt cold. It is dreadful and relentless and can last for week(s). I barely made it through work today during a nasty setback. Im not ashamed to say the pain brought me to my knees in tears tonight. I don’t care if everyday sounds aren’t “damaging”, as they say. Sometimes they hurt like hell and that’s good enough reason for me to take note and go easy. I think in my case clearly there is something else going on. I just need to figure it out for myself because no one seems to be able to connect all the dots and I’ve done my due diligence. That may be the case for those of us who don’t respond to the traditional TRT / sound desensitization as the sole approach. Maybe these other approaches, like Chi Kung are helpful for this? I personally don’t care why or how at this point if it helps.

EDogg
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rodmccain

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Reply with quote  #10 
Thank you EDogg, you are as well!  Wishing for the best outcome for you!

Thank you all for the responses too!

Take care,
Kathy McCain
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Aplomado

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Reply with quote  #11 
Well, who is going to do Chi Kung and let us know if it works?
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elizo

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Reply with quote  #12 
I already started practicing Chi Kung. I'll let you know how it is going, but it takes several months to see results.
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elizo

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Reply with quote  #13 
It turns out that the newspaper article was a shortened and updated version of what Kevin Barry posted in a Shaolin Chi Kung forum. You'll get more detail about his story there: 

http://wongkiewkit.com/forum/showthread.php?t=9808
https://community.actiononhearingloss.org.uk/tinnitus/f/forum/26453/shaolin-chi-kung-and-tinnitus-hyperacusis


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