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DanMalcore

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Dan
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Reply with quote  #1 

A young couple moves into a new neighborhood The next morning while they are eating breakfast, the young woman sees her neighbor hanging the wash outside. "That laundry is not very clean", she said. "She doesn't know how to wash correctly.  Perhaps she needs better laundry soap."

 

Her husband looked on, but remained silent.  Every time her neighbor would hang her wash to dry, the young woman would make the same comments.

 

About one month later, the woman was surprised to see how clean the wash was on the line and said to her husband:  "Look, she has learned how to wash correctly.  I wonder who taught her this."

 

The husband said, "I got up early this morning and cleaned our windows."

 

And so it is with life. What we see when watching others depends on the purity of the window through which we look.


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Poppy

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Reply with quote  #2 

Ah yes, it is all perceived sight, isn't it?  Noone can tell by looking at me, that I have hyperacusis, and hydrocephalus w/shunt.  In fact, I look rather normal...that is until, I need a shunt revision, and half of my head is shaved.  Then the questions come: what happened to you?  I did'nt know you were sick!  How long have you been sick?  Trouble is, with hyperacusis, there are no overt signs, to show that you have such an affliction.  Trying to make people understand, has been the hardest part of this condition...nice to be in a place where people DO understand.

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cbBen

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Reply with quote  #3 
The invisibility of the condition is indeed a major problem.  That is why God and Peltor invented muffs.  Even if they are just in your hands and not on your ears, they are a reminder to others not to scream and shout.
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LynnMcLaren

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Reply with quote  #4 
Yes, (((( Smiles ))))

And so it is with life. What we see when watching others depends on the purity of the window through which we look.
 
And...
After all, even an observer with hyperacusis is viewing through their own personal expirence.
 
Well Said Maria. The hyperacusis expirence can be different from one to the other different challenges involved.

Plus, screaming and shouting is hard on H. On the ears in general it could be hard too. 

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gwatters

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Reply with quote  #5 
Hello everyone. I was diagnosed 2 weeks ago with Hyperacusis. I have been reading everything I can get my hands on to try to find something that will help with the burning pain and hypersensivity that is occuring in my left ear. I am becoming desperate to find a solution. The ENT informed me he could place wax on my eardrum to help with the symptoms. I hesitated because at that visit I had never heard of Hyperacusis and did not want to do anything permanent without researching it first. I am a Pediatric Dentist and started experiencing sensitivity to the high speed drill about two months ago. I have seen 3 ENT's in the past month and a half and it was the last one (he has training beyond normal residency program) that gave me the diagnosis. In the past two weeks the burning sensation and hypersensitivity to everyday sounds has escalated tremendously. Until two weeks ago Advil helped with the pain and allowed me to sleep at night. Last night the Advil did not touch the pain and I tossed and turned all night and had 3 episodes of ringing in my ear that went away. The ringing was loud enough to wake me up each time it occurred. I did not work today and I am not working tomorrow to give my ear a break. I have been using foam E.A.R. earplugs, Mack's earplugs, Bose noise cancelling headphones all at the same time when I work and it is still getting worse. This week at work was the worst week since I initially started having sensitivity. I have three children and our family relies on my working but I am afraid to go back Monday morning. I am so worried that if I continue this line of work the hyperacusis will get worse each day. I have looked into getting quieter drills such as electric drills and I have used demos a rep is letting me borrow. However, they are still So loud. I have gotten to the point that everyday noise is unbearable and I want to wear my earplugs or headphones everywhere. I am trying not to wear them as much as I can to prevent my ear from becoming more sensitive to noise. Has anyone heard of the type of treatment the ENT recommended or had this procedure done (wax placed directly on the eardrum)? Can someone please give me the name and phone number of an ENT that knows a lot about hyperacusis and treatment/therapy. I am willing to go anywhere to seek help if the doctor is very knowledgeable. Would you please give me advice about work. Should I give my ears a few weeks break or do you think being around the drills will continue to quickly make this condition worsen? I would appreciate any advice you could possibly give. Thank you for your help! Gayle
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Rob

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Reply with quote  #6 

Hi Gail.  Welcome to the board.  

 

I was very touched to read your post.  Please know there is a way forward for you.  When my symptoms first developed, I also had terrible pain (in my left ear, like you) and extreme sensitivity to sound in both ears.  Like you, I was also scared about what going to work would hold for me, whether it would further exacerbate my symptoms, and what options I had.  

 

Hyperacusis is a treatable challenge and there are steps you can take to help you increase your tolerance of sound and alleviate the burning pain you are experiencing.  The first thing to do, as you know, is to find a clinician who is knowledgeable with respect to hyperacusis.  Placing wax on your eardrum is not a good idea, but there are other steps you can take that will be of considerable help to you.  From what I understand, the incidence of tinnitus (i.e., the ringing sound you experienced) and sound sensitivity are important issues for people in your field due, no doubt, to the daily exposure to loud, high-pitched sound.  

 

If your latest ENT did not administer it to you in order to help diagnose you, there is a very good test known as a Loudness Discomfort Level (LDL) test that can give a clinician a good indication of the presence and extent of your decreased sound tolerance.  

 

In Mississippi, you could contact this audiologist at the University of Mississippi Medical Center.  

 

Charles Bishop, Au.D.

Otolaryngology and Communicative Sciences

2500 North State Street

Jackson, MS 39216

610-984-5160

601-815-6986 fax

http://www.umcent.com 

 

What is the NRR rating of the earplugs you are using?  

 

If you are in a position where you can take some time off from work, at least until you talk to someone who can examine and begin to treat you, for what it’s worth I think that would be wise.  If not, it is a very good idea to continue wearing hearing protection at work.

 

Hang in there, Gayle.  There are steps you can take to deal with this and clinicians who can help to guide you. 

 

Rob 

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gothceltgirl

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Reply with quote  #7 
I know it's many years later and this thread is old, but that is fantastic. I'm going to share this with my BFF. So awesome & funny [smile]
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Mary4950

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Reply with quote  #8 
speaking of 'laundry'

Two things, one positive - the other I can't seem to see as positive.  I'll start with the negative one - -

When I was in 3rd grade, our family moved off a wonderful farm out in the country, into a small two bedroom house next to the house my mother grew up in.  I had three older brothers, and I'm the only daughter - and I slept on living room couch for about half a year.  Didn't see it as a problem at the time, thought it was a treat to get to watch tv at night rather than be sent 'to bed'.

The following summer a small addition was built onto the back of the house, my bedroom - but also THE LAUNDRY ROOM!  Yeah, they put the washer/dryer right in my bedroom - only about four feet from the foot of my bed, and no doors or anything in front of washer/dryer.  My mother was in a very bad mood during that period - her own childhood wasn't so great and living next to her childhood home I'm sure brought up pain. 

There I'd be, on a weekend or summer morning, sleeping in like kids get to do - but about 6:30am, bam! splash!  She'd loudly bang open the washer lid and start filling the tub at 6:30am! I'd suddenly awaken yet again to this loud disturbance on a morning I should have been able to sleep in, and I'd gripe and grumble and she'd reply 'Well get off your lazy fat ass!'  Being the only daughter, I was expected to help her with the many household tasks that my brothers were never expected to do, being male.   This went on for years.   That wasn't the worst of it - about two years after moving in, my dad started a paving/asphalting business, and right in our back yard there were huge piles of dirt/gravel and such, and 5-6 mornings a week, again starting around 6:30am, the huge dump trucks and loaders and pavers and such would start making their awful noise and no way could I sleep through that.  All summer long, and weekends during school unless it was winter.  Oh, and I haven't mentioned yet, to go out of my bedroom meant I had to walk through either my parents bedroom (an issue if it was winter time or a Sunday and they were still in bed) or through the one bathroom (as issue if dad or brother was on toilet or getting in/out of shower).

The good laundry story - I got hired to be 'head of laundry' for a summer at a large retreat center.  That didn't sound fun, so I renamed my title 'CEO of LinT (Linen Technology Center) and CEO stood for Crazy Egomaniac Overseer.  It turned out to be one of the funnest summers of my life.  Thankfully my bedroom wasn't anywhere near LinT.

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