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4leafclover

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Posts: 41
Reply with quote  #1 

OK...this is really bad

Even my own blinking is stimulating me in an uncomfortable way, or breathing thru my nose

earplugs dont even help b/c i hear my heart and my breathing

will cutting the auditory nerve that goes from the ear to the brain stop all sound from going to my brain? b/c if TRT doesnt work i need a backup b/c i dont want to go crazy

do any doctors do this?

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kat73

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Reply with quote  #2 

Hi!

 

Im from Sweden, and sometimes i dont get all that u all writing here on the board.

 

I also hear my heart pounding in my ears and head...and feeling it too.

 

I did this sometimes even before i got my T and H. This can be a sign of "Vascular tinnitus" or "stress....I almost only hear it after a stressful day and when i finally lays my head on the pillow and there it is pulsating...

 

It has been more common for me last couple of weeks.

 

What do u mean by "cutting the nerve"?.

 

 

//Kat.

 

 


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I´m 32 y old turning 33 this summer.Mother of twins, Nikki-Lee & Norton they´re 4,5 y old.
I suffer from severe tinnitus and hyperacusis since July 2002 after an rockconcert.
In october 2005 i got an otitis in both ears & more trouble came after this. I get no answers from the ENT doctors so i had too search the web for my own diagnose.
I believe that i also have the Tensor tympani Syndrome, myoclonus & Eustachian Tube Dysf.
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4leafclover

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Reply with quote  #3 

the auditory nerve...

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LynnMcLaren

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Reply with quote  #4 

Hi 4 leafclover, ((( Smiles ))))

 

Forget about cutting the auditory nerve.. Find another solution.. That can make things worse for you and not solve your problems..

 

You can't shut all sounds out.. It will never work.. How do I know this.. I tried to do it myself..It will only make things worse for you in the long run....

 

It didn't work for me either so I had to think up a different way of helping myself..

 

If you are worried about hearing your heart and breathing.. Your going in the wrong direction and you need to make a u turn ....  Now.. Before you make yourself worse...

 

I know.. Been there done that.....

 

 


 


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Take Care

Lynn
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4leafclover

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Reply with quote  #5 

ok...what do i do

and why cant i get it cut

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kat73

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Reply with quote  #6 

Hi!

 

If i understand correctly u rather want to be deaf on the bad ear than hear T and have H.

 

At my first visit at the ENT: dr for soon 4 years ago, i begged him -"Please make me deaf i cant stand this torturing tinnitus..."

 

BUT its not working like that, if u cut the "hearing" down the tinnitus will stay put....and then its the only thing u can hear.

 

There will be absolutley none sound that can mask your T anyway...

 

//Kat.


__________________
I´m 32 y old turning 33 this summer.Mother of twins, Nikki-Lee & Norton they´re 4,5 y old.
I suffer from severe tinnitus and hyperacusis since July 2002 after an rockconcert.
In october 2005 i got an otitis in both ears & more trouble came after this. I get no answers from the ENT doctors so i had too search the web for my own diagnose.
I believe that i also have the Tensor tympani Syndrome, myoclonus & Eustachian Tube Dysf.
0
LynnMcLaren

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Posts: 7,991
Reply with quote  #7 

Kat's right ... ((( Smiles )))

 

That is not a solution to your dilemma right now.. You have to go the other way with this.. Reverse the process.

 

You are so sensitive right now you hear internal sounds and that bothers your ears... I thought my solution would be shutting out sounds as well.

 

But.. I was really surprised and panicked when it didn't work for me..I could hear right thru doubled up mack silicon plugs and muffs.. It was terrible for me and I was so upset about the unfairness of it all..

 

The next step would have been deafness because... it just wasen't working like it should .. like I believed it should.. I believed wrong.. I didn't understand hyperacusis back then and it was a blessing in disguise..

 

It was the turning point of my life.. I had no choice. It was deafness or desensatization. I choose the later. It was a hard row to plow back then..

 

Best thing that could have happened to me because living with the prospect of shutting out sounds for the rest of my life wasen't actually a good deal either...

 

But it didn't seem like a blessing back then at all.. I was totally in shock over it back then.. It didn't make sense to me .. 

 

It was a turning point in my life.. I had nowhere else to go.. but up and forward with the program... 

 

I mean what can a person do when all else fails... Right ????

 

Do something else.. Or.. Try something else that may work better in the long run.....  

 

Who's to say you don't have better days ahead of you..

 

You may end up looking back at your dilemma now as I do.. as the best thing that could have happened to me to force me to do what I needed to do to get well...

 

Though you may not feel that way right now.. I could understand what kind of a dilemma you may  feel you are in right now...

 

It gave me a big push into rethinking my plan's back then myself...

 

Been there done that.. Glad thats behind me now....


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Take Care

Lynn
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Leah

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Posts: 789
Reply with quote  #8 
Believe me I ask to have my audiotory nerve cut, doctor's just shake their head because their's no medical benefit, as the above or second posting mentioned I guess and for them that's the reason........but tell ordinary people that and they'd be aghast if doctor's would do such a thing because that's medical malpractice!

I just finished watching "What the Bleep Do We Know" and most people who think ordinary everyday stuff on the news is right, is like people saying the world is still flat! 

I'd still love to have my auditory nerve cut, I seriously would!

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Every diagnosis is a misdiagnosis!
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4leafclover

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Posts: 41
Reply with quote  #9 

Oddly, I dont have bad tinnitus, honestly i think living with the tinnitus is better than living in constant pain and isolation

its hard, not bieng able to talk to those i love for long periods of time b/c the letter "S" hurts me so bad. Earplugs dont really help.

 

The isolation and fear I feel when I'm alone is even worse than the pain of hearing my family's voices...

 

I need to know this can be fixed...with time....it can get better...

 

Deafness is better than a whole life like this b/c I dont want to be alone...and in pain...plus the background noises wont bother me anymore...

 

But I know God is putting me through this for a reason, and He has given me hope...

People do recover from these things...I just need to learn how to be patient I guess...

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4leafclover

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Posts: 41
Reply with quote  #10 

no but im going to soon

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