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Curry

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Posts: 37
Reply with quote  #51 
@BCX, You're such a SAINT!! I don't know how you're keeping a positive mindset, but I like that! It just worries me that I might have this for the rest of my life *KNOCK ON WOOD* When I first read about Hyper, I read one of the solutions to calming or desensitizing the loudness was to wear a hearing aid. That was one of my worst fears. I've been learning to go past of what I'm worried about and think about positivity from here on out. I will do a full session of pink noise tomorrow, and see what will happen, but thanks man for the great tips and guidance!
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cactus

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Posts: 87
Reply with quote  #52 

Quote:
Originally Posted by JohnMarc
You're welcome. This board is a very good place for tools, strategies, support, help etc.. but one problem here is that only people who are still suffering tend to be posting.. those who have recovered and are back to normal life don't come here.. I don't know why I'm here myself right now lol.. but because of this, it can look very scary when you see people talking about having this for years and years, but those are just the more rare cases I believe


This is a really good point. When I first got H I was overwhelmed by all the terrible stories you read online. I was lucky to find a few positive ones and get in contact with people who had success with treatment. I only realized much later how warped my view on the condition was, because of this very selective information. In reality, most people can improve a lot with time and treatment, and the people who have not yet had much improvement are quite rare and usually there are other factors at play (other health conditions, lack of access to treatment, misunderstanding the condition etc.).

It took me over 18 months to get where I am today, but my hyperacusis is really 95% cured. When people get to that point, it is very tempting and also natural that they move on with their life and do not spend their time on internet forums anymore. 

 

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COYS

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Posts: 16
Reply with quote  #53 
Hi Cactus

Did you do any form of structured therapy ? I’ve been exposing myself to normal sounds and I haven’t been using ear plugs apart from in bars with music and when I went go karting.

I’m assuming I have a mild form of H. Did you also have ear spasms to noise? This seems to be my most obvious symptom.

Thanks
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Curry

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Posts: 37
Reply with quote  #54 
COYS, I'm exactly like you. I also have a mild form of Hyper
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COYS

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Posts: 16
Reply with quote  #55 
Did you do any sound therapy to speed thing up? I sleep using waterfall sounds as I have mild T too.
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Curry

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Posts: 37
Reply with quote  #56 
I've been listening to Pink Noise on some days. Got the tips from BCX.
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Curry

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Posts: 37
Reply with quote  #57 
Does T come with H?
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Curry

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Posts: 37
Reply with quote  #58 
So... This part of the forum, hasn't been active in a couple days, and I just wanted to bump it up to keep it active. Has anyone had any improvements from their H? I haven't used PINK NOISE for 2 weeks, because there are days where I can sympathize with the sounds, and there are some days where I can't. I will start to do PINK NOISE therapy again, but I keep seeing that this might not work anymore. That is what I am afraid of now. But I'll still hold strong and keep believing this'll still work!! 
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HST

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Posts: 15
Reply with quote  #59 
CURRY HI
THANKS FOR YOUR ANSWER //I HAVE H T FOR 5 YEARS 'SEVERGE COUSE OF ACUSTIC TRAUMA
WHAT U DO BETWEEN THOSHE HLF TIMES? U MUST HEAR MUSIC COUSE OF THE H T I NEED TO MASK.I ALSO HAVE HL -LITTLEY 2 EARS,TMJ KLIKS one side'wjen someone shour mor then  some sec i have StABBING  in the ear that is not at all like the other hyperacosis PAIN.CAN SOME ONE GET ME AREL ENT OR NERVE ENT TO TELL ME WHAT WADS DAMMAGE?
HOW U OR ANY ONE CAN TRUST THE TRT  OR SOUND TERAPY OF PINK NOIZE IF U DONT KNEW WEHERE IS THE DAMAGE OR DAMAGGES IN THE A SYSTEM?
 I TREUD IT ALSO AFTER 2 HOWER ADAY'AND AKSO 6 HOWER WHEN IWAS SKEEP -THIS INCLUDE THE ALL UP TO 16 H ADAY.
ALL THE OTHER TIME WAS MASKING BY MUSIC

COZO HATE ME 'FOR WHAT?
Why is not he willing to respond to my questions  here or for my mail? It's very suspicious of me ...asked him to write in public/what he wrote to me  is couse he can not emprove  ... if he really is hyperacusis ... with proof of proven hyperacosis ... and not hardcore advertising do not know what kind of injury is effective, is only effective for the injury of Timpani muscle? or Internal ear? or even nerve or brain damage?.can silveratone tell us this?
how can any one do operate without knew what going on with his hearing system?

GOOD DAY


__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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HST

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Posts: 15
Reply with quote  #60 
Quote:
Originally Posted by cozo
Hi there there is hope please join my Facebook page.
HYPERCUSSIS SURGERY SUCCESS TALK. Lots of information on there from people suffering with this crappy condition

if u think this op is  VERY GOOD -prove it to us- here

The article I read indicates that it is no more efficient than 10 to 13 dB, so what is called efficient? Most of the hackers with an injury of 50 to 75 dB within my ears or more. I have an injury of every 7 octaves and their half ... TEST can not be performed at all. More than that, an additional rejuvenative article indicates that it is only effective for cases of almost deafness, since it will no longer affect the surgery causing a progressive hearing loss, or perhaps an increased tinnitus injury. Is this proof of whether he had hearing loss Before and after his operation before and after ... that he would show us ... please ... and not tests at the Institute of Silverstone, but from the first day he discovered at the institute that was close to his city, And I think the operation is so effective as it praises the same surgery .. It would be helpful to please publish more details here, thank you, and without cursing me, I do not curse him for example ... I wonder why he wrote me that hates me .... ???
Moreover, why is Silverstone unwilling to admit in any way that the operation is effective for nerve damage or major (cerebral) hyperacosis? ... and only for tamponic muscle syndrome (TTTS)?


__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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Curry

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Posts: 37
Reply with quote  #61 
HST, I can sort of understand what you're talking about, and other times I don't. But we don't really know where this comes from. The only way we know is what we have experienced before. For example: listening to constant loud music everyday. That could be one of the symptoms. As you've mentioned whether pink noise helps H, according to the list of results on Google, it mentions that this is one of the probably treatments for what we have. I feel bad for anyone that's had it for more than a couple years and longer. My tip is not to use earplugs. It may mask the noise for a temporary relief, but once you take it off, it becomes loud again. How I do it is, I like to stay away from any loud sounds. I don't use ear plugs, and I just deal with the sounds. I have a mild H, so it's decent for me now. But talk to other people, and see what they can do for you. Don't give up hope yet!!
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HST

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Posts: 15
Reply with quote  #62 

What do you mean when you write - we do not know what it comes from? As to what you claimed?
It happened suddenly without knowing that it could have happened to me. 
I was hit by very loud noise - I was completely healthy from every medical aspect - physical and mental. Of the nose and throat - without any cause that will cause hyperacusis or tinnitus or h l. I did not talk to you at all about the issue of  Ear plugs or protective headphones or any other form of protection- I do not understand why it was raised by you, but if raised then this is the situation for me:  GOOD EARPLUGS OF 26 DB PROTECT-they can cause temporary noise reductionFOR 1 H, and there are cases that will not help only with headphones and shielding both together, there is no other outlet for nOZE BY ENT in the world! The pain can become stronger depending on the frequency and intensity depending on the frequency of the injury to the victim. The pain will increase greatly and within a few MILIseconds it may experience a situation that is not Will be able to cope with the noise and then he may shout,throw things, curse, attack and more. Your honor was in this state of threat? And only because of a noise he could not cope with. Anyone who claims otherwise does not understand what IT  a medium or severe hyperacosis is.ARE U ONE OF THEM? MUFFS OR PLUGS ARE GOOD TO PROTECT 'BUT can never be effective in treating injury!  WE CAN NOT WORK WITH THOSE FOR LONG TIME!!!WE CAN NOT HANDKE OUR DAY WUTH THEM'BECOSE OF THIS WE HAVE THE MUSIC. But there are situations where it is needed, and I did not mean at all to entertain, because those who have hyperACUSIS do not even want to think About how he would not manage to cope with the powers that within a matter of MILIseconds THE sounds THAT  painful- make  H PERSON angry with the intensity of the pain that would result from instant stimulation to this noise. I asked what you were doing after two hours of pink noise?  TELL ME  ANSWER
And I do IT  -THE MUSIC, even though I have to be disconnected from the world. There is no other way TO DILL WITH THIS.
there is no treatment. False promises have full of alternative field, If you have a real proposal for dealing with disabilitiesTHAT TJERE ARE HARDER THEN A DEFFNESS, for example, getting on a bus, shopping at a grocery store or supermarket, traffic on the street AND ALOT OF THINGS'OVER 2000 STATES U CAN NOT DILL WITH THEM,OVER 60  WUTH MY MUSIC AT HEADPHONES- entering the banks to the post office and other places, even in the library, it is hard for me to communicate with the writer who does not care about the injury 'I CANT HEAR PEPOLE BECOUSE OF THE  MASKING ONLY IF THE SCREAMS!!!. IN THE LIBRARY -EVEN THERE-THE PEPLE THERE Makes noise from sounds on the table or from the people around me, so please explain it in an expanded way, I swear I am not depressed - it is a situation that I have had to reach and that I have no strength to deal with the intensity of the pain to the most terrible. I have to train, play, screen in the street music, that's what I can do to keep my condition worse and not because I will not do musical therapy or pink noise, but only because of painful sounds that are not at all loud or noises that last longer than a second. I do everything including avoiding salt from coffee and alcohol. I thought of Taurine on the morning or Q10 with vitamin C. What do you think about the matter? Do you have any idea if they are effective? I have no problem with B12. Antileptic or anti-anxiety medications such as Clonix or Xanax increase or cause tinnitus (See the American Tanton Association !!!), there is no document on this. There is no medical treatment for tinnitus Not to Hipparcosis, until one of them named Kozo got up and claimed that the operation had saved his life to prove it to us. We do not buy falsehood. I have already mentioned everyone who is being treated by the dear Dr. Silverstone, who is admirable - they are not young, More at high frequencies and not as adults the chance of being hit is zero !! In these frequencies unless they were present for 15 or more hours close to noise, such as the case of the older woman who was injured by MRI imaging, because she was not protected from the high frequencies of MRI, not all pain would cause hearing loss, but over time it would happen - or because of pain Or because of the weakening of the damaged limb - if it is a neural injury - there will be a decrease in nerve hearing ... There is nothing to do if the injury is a snail - there will be a sensory loss of hearing ... An untreated organ - injured, there is nothing to do. Even a path to finding a way to rehabilitate you is not a non-occupational medical, not social, not a couple. I'm lonely because of my injury, not because of anything else. I have to be alone in order to avoid noise. But up to 40 dB unzipped My ears - I will not be in pain - by music from a mask with earphones partially filtering all the frequencies. Part is better and less smooth. Even work we do not have !!! And do not try to help us.


__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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Curry

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Posts: 37
Reply with quote  #63 
HST. First off, I would like to apologize for anything that I said that may have offended you. At the time, when I read your post, I had assumed that you were wearing ear plugs. But you aren't, so that is my fault. Secondly, you asked me what I do with 2 hours of therapy with pink noise. I haven't gone a full 2 hours of therapy. The most I've gone through is 1 hour. After that, I just go back to doing the daily things I do. I don't wear any ear plugs or headsets when I go out. I don't cover anything in my ear. I just listen to it raw as I go out. Also, I can't tell whether if I'm still at the mild stage or the severe stage because I'm scared to see a doctor that will tell me the worst of news. I still go to school, so when I'm with my classmates, I tend to not notice I even have H. It's believed that having a distraction for you to do, you won't notice on H, because you're not focused on it all the time. It's great to hear that you're not depressed. It's a common thing to be alone because of H, but find someone who will be there to support you. Until then, keep doing the things you do, and it's a possibility something could change! Also, I don't know if you are religious, but I've heard praying is a healing process and also meditating. These are things that I can think of to help the process of what we're going through
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