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Ophelia

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Reply with quote  #1 
I went to an ear specialist, and they gave me an audiology test.  I asked the lady before I went in if she knew about my hearing.  She said "Yes, of course."  I had called ahead to tell them my ears are sensitive, because I still don't know officially what I have.
They put small foam earplugs in my ears and little beeping noises came through to test how high and low I could hear.  I told the lady this hurt, and she ignored me.  Then she had me say words, which were even louder.  I said "This is too loud in my ears" and she replied "We're almost done."  But I felt like she had scraped out my ears after I was done.
Then the doctor came to see me, and he turned on the flourescent lights and told me my hearing is normal.  I thought he was shouting but I'm told he was speaking normally. 
After all this he told me to keep track of my sodium. 

I have to go back for a cochlea test.  From what they told me, this will involve nodes in my ears that measures how my ears intake noise. 
I'm rather frightened to go back because the other test hurt so much, and I don't know if it will damage my hearing more.
I was just wondering whether anyone had any experience with cochlea testing?

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charlenef

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Reply with quote  #2 

 I  NEVER HAD COCHLEA TESTING DONE BUT I CAN RELATE TO WHAT HAPPENED DURING THE HEARING TEST I STOPPED GOING TO THE DR AND DECIDED TO FIGURE THINGS OUT ON MY OWN I DID SEE AN AUDIOLOGIST AFTER WHO WAS BETTER THAN THE DR  WITH THE THINGS HE TOLD ME I WAS JUST SO SICK OF THEM BELITTLING WHAT I WAS GOING THROUGH AND NOT BELIEVING ME WHEN I TOLD THEM THEY WERE HURTING MY EARS GOOD LUCK CHARLENE

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marv

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Reply with quote  #3 

Ophelia,

 

I  haven't responded until now because I was hoping someone who has had experience with the cochlea test you mentioned (I haven't) would respond.  But I would be wary of any hearing test until I found out more about it, especially since the audiologist and doctor you saw seem to not be especially caring or concerned about your limitations due to your sensitivity. In my experience, it's difficult to reach a middle ground between using due diligence in deciding what to do or not do concerning something that might affect one's ears and being paranoid about all sounds that could possibly be damaging. The main problem here, as I see it, is that you are faced with having to make a decision without enough facts.

 

Here's what I would do: Call the doctor and ask for the exact name of the test and what specifically the test will tell him and how he will use the information. Sometimes they do tests that are not really necessary just because it's available. On the other hand, if he suspects a particular problem or wants to rule out something that he thinks might be a  problem, it could be valuable. Then I would Google the name of the test and see if you can get more info about it ~ what it's for, how it's done, and how loud it is. 

 

If you don't like the doctor's or audiologist's attitude, I would definitely see another doctor. However, I realize that it might be difficult finding someone who is compassionate and/or knowledgeable about hyperacusis and the other sensitivity issues that you have. One thing that I've learned after dealing with hyperacusis for many years is that you are one who is best qualified to make decisions concerning your ears and you should never allow a doctor or someone else to make that decision for you. Yes, you should consider what a qualified and knowledgeable person tells you but, of course, it can be hard to know if that person really knows what he's talking about. This is true with anything in life but especially true with hypreacusis and other sound sensitivity issues.

 

If you decide to have the test and it gets so loud and uncomfortable during the test that you wish that you never started, remember that you can stop it anytime you want. You are still in control. Of course, you wouldn't want to bail out if you still think that the results are important and a little more discomfort are worth it. But remember that you  have that option. In fact, I  would discuss this possibility with the audiologist beforehand and get her agreement upfront before you have the test. Her reaction will tell you alot about if you even want to continue working with her.

 

I hope this helps. Good luck!

 

Marv

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Ophelia

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Posts: 25
Reply with quote  #4 
Thank you for responding with such positive advice, this has helped me immensely.
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marv

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Posts: 130
Reply with quote  #5 

You're very welcome, Ophelia. I would be very interested to know what you decide to do.

 

Marv

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Ophelia

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Posts: 25
Reply with quote  #6 
I will be getting the test.  I just got word that no sounds will actually be going in my ear.  They will just be mapping how the noise goes in using some sort of electric node thing (very scientific, I know.)
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marv

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Reply with quote  #7 

Pardon me for possibly being negative, but I'm a little dubious of how they're gonna get data on how the cochlea reacts to or processes sound without sending sound to it. But if you're satisfied with what they told you, then have at it and good luck! By the way, I'm curious as to what this test is gonna tell them about your problem (if they told you).

 

Marv

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Ophelia

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Posts: 25
Reply with quote  #8 
I have asked myself both of those questions, and have decided that if it can help, I will do it.  They are now trying to eliminate what could be wrong with me.
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marv

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Reply with quote  #9 

Good luck.

 

Marv   

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