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LynnMcLaren

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Reply with quote  #1 

 

First this Poem... (((( Smiles ))))

 

Hi, I'm New

By Suzanne Nelson

 

Hi,

  I'm new,

I'm just like you.

a part of your family,

a part of your clan.

I'm a member of our Secret Society.

     I now feel the pain, the frustration,

              the anger and the blues. 

 

Hey,

    I'm new,

but I feel old.

I can't play with my children like I used to do

              and that makes me very sad.

I can barely drive my car and that makes me very scared.

       I quit my job.....

       I've never been a quitter...

               does that seem right to you ?

 

Hi,

   I'm new,

and now I'm going to follow you.

I've been told the path is long and hard,

I can see the rocks and feel the weight upon my heart.

I'm looking for faces and hands to help guide me though.

I know you're all out there--- trying to blend in --

                            just like before.

 

       Will I find the way ?

        Will my body find peace

              and find a gentle release?

 

Hi,

   I'm new,

         So, like a child I keep asking--- why? But why ?  

 

 

 

Archives ..........

 

Classic Favorites Hyper ( a) Friends...

 

http://www.websitetoolbox.com/tool/post/danmalcore/vpost?id=1199009 

 

 

Classic Board Pals In Hyperacusis Land......

 

http://www.websitetoolbox.com/tool/post/danmalcore/vpost?id=1248222  

 

 

Classic Old Favorites Careing Friends.......

 

 

http://www.websitetoolbox.com/tool/post/danmalcore/vpost?id=1223674  

 

 

 

 

 

 

 


 


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LynnMcLaren

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Posts: 7,990
Reply with quote  #2 

 

If I can stop one heart from breaking,

I shall not live in vain;

If I can ease one life in aching,

Or cool one pain.

Or help one fainting robin

Unto his nest again,

I shall not live in vain

 

 Emily Dickerson ( 1830-1886)

 

" Happiness comes from the capacity to feel

deeply, to enjoy simply, to think freely, to risk life,

to be needed."

 

       Margaret Storm Jameson

 

" The grand essentials of happiness are;

          something to do,

          someone to love and

          someone to hope for. "

           

              Thomas Chalmers

 

" Kindness is the golden chain by which society is bound together "

                       

                        Johann Goethe

 

Quote

 

Do all the good

You can,

By all the means

You can

In all the ways

You can

In all the places

You can

To all the people

You can

As long as ever

You can

 

               John Wesley         


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LynnMcLaren

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Posts: 7,990
Reply with quote  #3 

 

----  horns of my dilemma---

        by Maria Jastrzebska

 

     " What Happened to YOU ? " Writing by Disabled Women

                The New Press , New York ; edited by Lois Keith

 

I seem to spend.... Half my time.... Wishing..... I had horns... 

On my head.... To look the part.... A rarity... Like the almost extinct..

Wild bison of eastern Poland,

 

So children could stop and point

Look mummy that lady's got horns !

 

Before beng hurried along... By some embarrased adult....

Horns or else flickering antennae.... Which bleeped......

Unmistakably alien..... Or extra-terrestrial.........

Hooves which sent showers..... Of sparks flying......

Whenever they touched the ground,

Devilish , wicked , supernatural ,

And a tail,

Oh yes a tail... Swishing and bushy... With fonds and tassel's..

In luminous green , I think...

 

So nobody could make the usual assumptions,

So I wouldn't have to explain.. How I'm different....

We'd get this fact established... Right away.... 

Because what hurts worse.... Than any pain...

Is the denial....

 

The trouble is... I spend just as much time...

Trying to explain..... With increasing impatience...

That in fact.... I don't have horns....

Or hooves ,

Not even a busy tail......

 

Trying not to frighten.... People away....

Reassuring relatives and friends.....

 

Some things I play down.... Others I censor right out..

Working overtime... To bridge a widening gap......

Searching for common ground.....

So as not to be labeled.... Into oblivion....

So I'm not written off.... Before I've even had a chance....

 

Here are my tears , I say....

Salty and wet like yours... Here are my hopes...

Which need tending... Like anything you want to grow...

And what hurts worse then any pain...

Is the denial...

 

Why is it people....

Ether think I'm just like them..

Or else...

Like nothing on this earth...

And no part of their lives ?

 

If I can live with this dilemma...

It doesn't seem to much...

To ask others....

To recognize....

How I'm different...

But very ordinary...

Ordinary and very different.... 


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LynnMcLaren

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Posts: 7,990
Reply with quote  #4 

Hi MK... I think it's you who asked about  anyone else expirence

a throat thing.. I was looking for something else but I found this

old post.. But there's a better one in detail But I would have to find

it and I'm not sure I brought to this board...

 

It could of been like a tightness too..

I can't remember the details in all I wrote.

 

I have set this up for something else...

But will put this here for now...

 

Author: Lynn McLaren
Date:   11-14-03 22:32


Thats what you could call it too. A rumbling inside my ears. I know I use the word thudding but it started out a loud thudding but know I guess does more sound like a rumbling inside my ears if I put my finger in my ear and listen. My tinnitus went from a small ring in one ear to chimes in both ears to machine like noises and back down to shrills. I had crickets for awhile but its more shriily now. Sometimes it stops completely or sometimes I can hardly hear it. Go figure. In earlier posts , I wrote of feeling like I have to clear my throat more of something but not hoarseness. I think I'm going to check out this LPR thing. Sounds interesting. 

 

 

-------------------------------------------------------------------------

 

Plus in a new'er post... ((( Smiles ))))

 

I do believe that combo treatments with the base

of sound therapy may help promote and give one a well needed

boast in ones improvements..

 

I believe in lots of cases.. Hyperacusis may be an injury,,

trauma to the nerves.. And in that case.. Any treatment that

speeds up recovery to the injured nerves themselves..

 

Weither thats nerve building foods or nerve building vitamins

or nerve building supplements can.. I believe help promote faster

healing.. Or better healing or more complete healing of the nerves..

 

It's easy to rule everything else out..

But in my opinion.. Not allways the best thing to do..

And pink noise therapy or TRT or sound therapy..

Does not work for everybody yet most.. 

 

And not everybody gets complete healing from it..

So I believe that it may be a good thing to look at other options..

And do further research on nerves and theses issues..

 

But point well taken about the excepted and well known

way to improve ones tolerance and improve ones hyperacusis to

hopefull.. Like cured.. 

 

As in the way there are still lots of unknown factors regarding

hyperacusis itself and why some people's ears break down and others

don't in the same set of like circumstances...

 

I come from a different perspective on this subject..

Yet the same one as most too...

 

I just.. For me.. I feel...

 

Learning is a treasure which will follow it's owner everyway..

----  Chinese Proverb...

 

Not everything that has been invented has been invented yet..

Thats just my perspective on life and what I see happening around 

me in the world...

 

Whats possible can be possible....



 



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Lynn
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LynnMcLaren

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Posts: 7,990
Reply with quote  #5 

 

Ten Rules Of Postive Beliefs... (((( Smiles ))))

 

Create more hopefullness in your life by knowing theses

ten rules of positive beliefs :

 

* Know--- we are not alone, we have the hyperacusis network of people.

 

* Know--- what we can do, not just what we cannot..

 

* Know----what seems impossible now may be possible in our future.

 

* Know----by surrounding ourselves with hopefull people, we can avoid

   the naysayers... 

 

* Know----learning something new and shareing it with others improves

   our self- esteem.. 

 

* Know--- being positive with others will return positive behaviors to us..

 

* Know----worrying about the small stuff lessens our confidence..

 

* Know----what we have accomplished..

 

* Know--- if we are hopefull , we can't be hopeless..

 

* Know--- something good is happening for thoses of us with hyperacusis..

               

      If we are hopefull people , our hope will spread. Hope is contagious;

      we can leave people better then when we met them..... Likewise,

      by being around more hopefull people , we strengthen ourselves..

      It's a circle of hope.. Create circles of hope within your life sphere

      and you will see a tunnel with a light at the end--- and it is the

      light of hope.. Hyperacusis or tinnitus ect.. cannot consume us

      if we choose to follow more hopefull paths and to think and behave

      in more hopefull ways...

 

Written by Dr Gulick.. For another disorder.. But it works well for this

one too.. So I included the word.. Hyperacusis..Tinnitus...

 

What a hopefull well written theme on hope in ones illness...

(((( Smiles ))) 

  

    


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Lynn
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LynnMcLaren

Registered:
Posts: 7,990
Reply with quote  #6 

O.K... Classic Friends In Hyperacusis Land..  (((( Smiles )))

 

Life And Hope... Copeing with Illness by Larry Gulick, Ph.D

 

The Power Of Hope...

Searching for hope ?

Small steps to more hope...

Designing Hope..

Hope as a copeing mechanaism...

Where is hope ?

 

I will finnish this copeing with illness articule...

 

On the off topic board...

For anybody who doesn't know where that is located..

Friendly Chats....

 

Well let me lead you there.......................... (((( Smiles )))

 

http://www.websitetoolbox.com/tool/mb/danmalcore?forum=61612


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LynnMcLaren

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Posts: 7,990
Reply with quote  #7 

 

Double therapy quiets tinnitus?

Author:Kim Mattys

Date:   12-09-01 19:43

Hi everyone, I wanted to share something a friend shared with me. An article she read said that, combining an inner-ear lidocaine injection with an intravenous dose of the same drug, may shush the ear-ringing symptoms of tinnitus.

In a study of 68 patients at the Shea Ear Clinic in Memphis, the technique brought at least partial relief more than 70% of the time, - for both high-tone tinnitus (ringing, hissing, whistling, or ticking) and low-tone tinnitus (roaring, buzzing, popping, or swishing). "This treatment has been very successful for people whose tinnitus hasn't responded to anything else," thats what John J.Shea Jr.,MD, lead study author and chief otologic surgeon at the clinic. The benefits of the double-lidocaine therapy (which is now available) are usually permanent, but it can be repeated if necessary, he says.

I just thought I would share this with our group.

Kim Mattys

 

 

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 Re: Double therapy quiets tinnitus?

Author: martin germany

Date:   12-22-01 10:13

For more Information check out the homepage of the Shea Ear Clinic in Memphis:

http://www.sheacenterforears.com/Index.htm

 

 

 

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how to manage working and living

Author: K

Date:   12-19-01 23:54

i have had hyperacusis for five monthes now, and i really don't know how i am going to manage my life. i really can't live in a noisy place, or work in one. if i can keep the noise levels down i could manage. i don't think i will ever have a normal life again. that is, go to coffee shops, malls, parks etc. what do other people do? are there any groups in northern california that support each other? i am trying to find other people who could form a sort of "shell" of a community. that is, maybe buy houses or condos near each other, or trade information on quiet coffee houses...things like that. does anyone, or group get together to try to control their environment together? i would be grateful for any suggestions or answers. this condition is so scary to me it is really hard to know how to continue.

thank-you,

kathleen

 

 

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Re: how to manage working and living

Author: Tim Whitfield

Date:   12-20-01 10:29

I've had it for years... I can understand your situation all too well. I'm in Georgia however, but was curious.... how bad is your condition and how did it develop? Tim

 

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Re: how to manage working and living

Author: K

Date:   12-20-01 22:59

i took the antibiotic cipro. after about nine days i heard a slight ringing -called my doctor, was told it couldn't be the cipro. finished the cipro -five more days. after that i felt like i had been plunged into h--.

what happened to you? have you adjusted? are you better?

i am an artist, and a writer. i love to be around children, and i am very frightened that i will not be able to lead the life i have planned. i cannot forsee traveling to other countries...but that is the least of it. i am afraid to go to coffee houses. i am even afraid when it rains.

what do you think?

sincerely,

k

 

 

 

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Re: how to manage working and living

Author: Tony Rogers

Date:   12-21-01 10:21

I think I would consider suing the socks off that *#@ doctor! When you told him your ears were ringing, he should have had brains enough to connect "2+2" regarding the Cipro.

I smell a definite good shot at a lawsuit. Not being a lawyer, Kathleen, I couldn't guarantee anything, but if it were me, I'd shoot for the moon on this thing.

I've had ear flare-ups from antibiotics and it's come down to the only one I can take without problems is Tetracycline. When I was a kid, I was home in bed sick more than in school. I was given tons of those ear-killing old type mycins. I'll always feel that played a part in my getting T&H in my 40's. Retraining (TRT) is expensive, too much for me, but if you could, I would consider that option. It's helped a whole kit'n' caboodle of folks. It would be nice if there could be a quiet community. I wear Mack's ear plugs, muffs at home and nothing when I retire at night.

Keep us up on everything. We all care out here. Dan, he's the greatest! This is a wonderful service he has and I'm thankful for the web site. We'll be praying for you. Keep us up on it all. WE CARE!

 

 

 

 

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LynnMcLaren

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Posts: 7,990
Reply with quote  #8 

 

 Re: how to manage working and living

Author: Kathy Williams

Date:   12-21-01 11:28

Hey there, I came down with hyperacusis almost 2 months ago. Mine doesn't sound nearly as sever as yours. However, being a music education major that is suppose to be graduating this year, has not made it easy. I've learned to except that fact that this perfession may just not work out.

The thing that hurts that most is while watching your nice and nephews for a hour you can't stand it anymore and you can't wait to see them leave. Yet, they are great kids, just talkative. Trying to shop the day after thanksgiving was a no-no. I learned that really fast.

It sounds though that yours is worse than mine affecting even more of the normal parts of life. Just remember that your friends and people around you care and hopefully will react they way mine have. Instead of going to movies, we rent them, instead of getting together with large groups, we see people more often in smaller groups.

Depending on the type of person you are, don't be afraid. I know that sounds stupid. But try things and if you have to leave do so. My husband and I go shopping and he understands if I leave and wait in the car. However, other times shopping seems easy, depending on how my ears are that day. And you don't know until you try. Try a coffee shop you think might be quite and walk in and see. Tolerate what you can and then leave. I've been able to build my tolerance to pain alot in the last month. I'm bound and determine to try what I can, because I'll be upset with myself if I don't try.

Try what you think might be a possibilty, and go for it.

Also, for the last 2 weeks I have never been in silence. Every night I sleep with one of those little fountains from Walmart, and it's very quite splashing. This seems to have helped build the tolerance in my ears. I don't know if this would be too much for you, but it's worth a shot.

I'm also going to try the TRT training in January. Hopefully this will help. It has for most.

Sorry, my message was so long, but I've helped you at all. Just remember, don't be afraid, all we have to fear is fear itself. So, what if we must leave a place, at least we tried and we'll try the same thing again the next time.

I'll keep you in my prayers and try to have a a good holiday. Take care and make sure you keep writting on the board, all the people hear are so supportive, and I don't feel alone anymore.

Katy Williams

 

 

 

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 Re: how to manage working and living

Author: Hans Troost

Date:   12-21-01 16:36

Dear Kathleen,

I can't tell you what to do. Maybe my story helps you somehow.

Don't read this as a my sad sad story... Just see it as my circumstances, my facts in my life. Don't feel sorry for me...

I hope my writing will be a signpost...

As a musician I did 25 years schoolconcerts on primary schools, no explanation, but great shows with all kinds of music and instruments. One day a week. I love working with children. Great to do.

After 25 years I can say I am a very good pianotuner with specialisation in welltempered tunings etc. Two days a week.

Both activity's give enough income and don't feel as work, because I love it.

Last year I stopped playing violin and barokviolin in two ensembles. Next month I am sending allmost half of my piano clients a letter that I have to stop. Tuning plus long drives are too much for me now.

I hope to be able to finish this season with my last schoolconcerts. Also stopping in july, if I make it that far.

All of this because I can't endure sound enough, even with earplugs / noise cancellation, all is to noisy.

How do I do this without panic, depression and tears?

I see it as happening to me. As facts. I endeavour to be practical about it. I am looking at the situation and doing everything that helps coping, getting information, buying wooden plates for eating, looking for other jobs etc. etc.

What I don't do is thinking to much about it or rechewing my situation over and over or go on complaining. This would only cause emotions and the starting of the avalanche of negative down going spirals. With this I would have made a psychological problem of it. Then I would have two 'problems'. One for the ENT-doctor and one for a psychologist.

I can notice my tinnitus and hyperacusis. I hear the hiss and feel the pain in my ears, when they are overloaded. So... the hiss and the pain are objects, wich I can sens with my ears. 'I' sens them. If I stay more aware of 'I', the observer, than of my hiss and pain I am not identifying with it. That is how I make a distance between 'I' and what 'I' realise trough my senses. Living is then more bearable, because life in itself is good.

Not being depressed enables me more to see new opportunities, to enjoy life, for new relationships and contacts for work and friends.

I hope I am making sense. I am not refering on religion, 'new age' or whatever. I only try to stay with the 'good' inside. This helps me coping.

Just staying with the 'life' inside. Whatever you like to call it. You can't name it. It is most noticable at the surface in relatioships, for instance when somebody is dying. All things one could worry about have become unsignificant. All unnessecary thinking and emotions often fades away completely. The person is gone, no attachments, the being is left, not identified, but capable to enjoy, to be joy. Together with loved ones... at the coffee shop, at the mall, in the park (with earplugs), in the woods (without).

I hope I have been of some help. Every day am learning more how to live my life leaving the things behind I don't need and taking care of what has to be taken care of.

Take real care,

friendly greetings,

Hans

 

 

 

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 Re: how to manage working and living

Author: K

Date:   12-23-01 13:31

i wanted to thank everyone for writing in responce to my message. right now, because of the holidays, it is difficult to write too much -i will though later - but i wanted to say "thank-you, so so much," it made me cry for people to be so kind, so helpful, and so caring. my best to everyone.

again, thank-you!!!

k

 

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Re: how to manage working and living

Author: Tony Rogers

Date:   12-23-01 19:03

You're very welcome, Kathleen! You will find some of the sweetest folks on this ol' earth are 'Cusis folks! I know I have! We will all keep you in prayers and hope you have a very happy holiday. All of us are in your corner! God Bless,

Tony

 

 

 

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 Re: how to manage working and living

Author: Sunshine

Date:   12-23-01 20:27

K,

We often feel so alone with Hyperacusis. It is wonderful to be able to connect with others living with it. There are alot of people out there providing me with the inspiration to keep on keeping on! (Thanks, by the way.) May you experience the same.

Cheers,

Sunshine.

 

 

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Re: how to manage working and living

Author: Dale

Date:   12-29-01 19:25

Hi Kathleen

Just wanted to say you are not alone. Holiday time is difficult for me as well - all the people (I have to go to malls or stores early in the day so they are less crowded )- when the crowds start coming, I notice the noise in my head getting louder and get out as quick as I can

I have to work on staying positive too. I try to stay busy and exercise when I can. I have good days and not so good days and never know in advance exactly what the day will be like, but I do try to focus on what I CAN do and not what I CAN'T do.

Some people will never understand since they don't walk in our shoes, but stay in the present and concentrate on other things than your ears.

God Bless You and best of the new year to you. Good luck with your TRT too!

 

 

 

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Re: how to manage working and living

Author: Ferrari Dioniso

Date:   12-30-01 02:03

And the biggest problem, the solitude, I am a few years that I have Hyperacusis, and the most difficult thing having to explain to the people why I cannot enter church is difficult, to the cinema, to the bar etc., I have suffered the solitude very much even if I am very lucky and I have a family which has always helped me and above all he has always believed me also believed when I did not know that name had my illness and the doctors were telling me that I was mad and they were doing me psychiatric care. . I now thanks to the net and to Dan what what I will never stop thanking I write Email with people with Hyperacusis like me I and I do not feel as alone as before any more, I hope that also you find some friends in the net and even if they are far you will not feel alone any more.

Ciao and best wishes for the new year

Dionisio

 

 

 

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Re: how to manage working and living

Author: Deborah Tootle

Date:   01-04-02 11:37

Kathleen:

I just wanted to let you know that when I read your message regarding the cipro my heart jumped into my throat. I was diagnosed in 1998 but it began in 1996. For the 2 years between my hyperacusis/pain began and being diagnosed I was on anti-biotitcs almost the whole time. It initally felt to me like I had ear infections and despite the fact that my family physician could not see any infection he prescribed anti-biotics after anti-biotics..one of the ones I was on the most was Cipro. I still don't know exactly what caused my Hyperacusis but wonder now if Cipro wasn't a contributing factor. I hope and pray that things get better for you.

Deb Tootle

 

 

 

 

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Lynn
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LynnMcLaren

Registered:
Posts: 7,990
Reply with quote  #9 

 

Re: how to manage working and living

Author: kathleen 

Date:   01-18-02 22:05

dear deb,

i am sorry that you got so frighted after reading my message.

are you any better now, or has your condition remained the same?

i have been in touch with the food and drug administration because i wanted to know if they could tell me anything about cipro's side effects. two pharmacists called me back and they were very sympathetic with me. they told me that there are a great many drugs that cause tinnitus. they said that people don't realize how many drugs cause this side effect. hyperacusis, however seems to be harder to track down. the food and drug administration said that there is very little reporting from the public so their database doen't contain as much as it could.

i am hoping that this thing, as the woman on weakest link says, "just goes away."

i am wondering if you have stayed the same or if you have gotten better. i really don't know what is going to happen to me.

i have been studying to be a multimedia artist. i was going to go, if not directly into san francisco, close by and work. now i am afraid that i won't be able to cope with everyday life much less continue a career.

my concern is that the inner ear nerves have been affected...if that is so i am wondering if they can heal. do you know? i will continue to try to find out. it does seem to me that this might be a multi-facetted

problem because anxiety or depression seems like they may also play a part. i know that sometimes, at least, things SEEM to be worse when i am scared.

 

 

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 Re: how to manage working and living

Author: Steve Metz

Date:   01-26-02 14:12

i am wondering if you have stayed the same or if you have gotten better. i really don't know what is going to happen to me.

I believe that most people who contract hyper acusis do improve after a few months. I improved 90% after 4 months or so almost a full recovery. However, it got worse again as i used headphones like an idiot for playing computer games, it made it worse again. Now its somewhere in between. Believe me, we have all been there, we have all been very, very scared, I still am most of the time and have the hardest time coping, but it helps to talk to other people with hyperacusis. Understanding that there is nothing wrong with your hearing, its just that your brain interprets the signals they receive incorrectly and perceives them as too loud, is, in my opinion, crucial to recovery. You will not go deaf, you will not lose hearing, in fact we have the ears of a fox and hear "better" than anyone on the planet! Your best bet is to have low-level sound going on at all time (i keep my computer running) and contact the hyperacusis center in Maryland. Dr. Fredericks has helped me alot and she is a very nice lady.

Look into TRT which is wearign a hearing piece that filters low levels of white noise and retrains your ears. Her patients have an 80% success rate of improving/recovering. THE LESS YOU THINK ABOUT IT THE BETTER IT IS! Good Luck and dont give up.

-steve

 

 

 

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Re: how to manage working and living

Author: kathleen 

Date:   01-28-02 02:29

dear steve,

i read your letter a couple of days ago, i tried to write to you but i was feeling depressed. i stalled because i wanted to write a letter that would lend you some support -so i thought i'd wait a day and then i would feel better, and write a nicer responce -however i haven't felt better.

the ironic thing is several days ago (before you wrote to me)i talked to a doctor who gave me alot of support and i felt very optimistic...happy even -i accepted that it would take about two years to retrain my brain and then i could return to a normal or MORE normal life. since that time however, my family has needed me very badly and i can't be there for them -that has made me very depressed, and i have to say, angry.

i have been studing game design, and multimedia, for the last three and a-half years. now, it is hard (especally the last few days) to get on my computer. my computer is really a server. it is a very loud computer because it is built for 3-d rendering. i can change that, but i need to buy a quieter hard drive and money is tight.

to answer your question -- yes, i am better. when this first happened i would have rated it on a 1 to 800 scale. i felt close to 800. i would wake up at various intervals throughtout the night. i was in so much fear that i thought i just could't hang on. i couldn't talk to any of my friends, and i didn't want to worry my family so i didn't really tell them how terrible things were (i thought it would go away...every doctor i went to said it would go away.

one of the things that has bothered me the most is that i have felt that since i am unmarried i could now NEVER meet anyone who could tolorate living with me. also, i saw my career that i had given so much up for...gone.

back to your question -i would now rate my problem on a 1 to 150 scale now -so that is a big improvement...but, of course, still things are still bad. i do not wake up in the middle of the night anymore, but i am very depressed when i wake up in the morning. as the day goes on it gets better until the night-time, then i have anxiety again.

i do think this will go away -but i've been told by doctors that it will take up to two years to really retrain my brain, if, IF, i stick to the trt therapy faithfully.

actually,, i too, had almost gotten rid of the tinninus, and hyperacusis - over a two month process- when it first happened.

i know this sounds strange, but showers helped me. i would take around seven showers a day, more if needed. everytime i would hear loud sounds (internal) i would immediatly go into the shower. i think it tricked my brain into thinking that the sound was coming from outside of it, and when i turned the shower off my brain acted as if it thought the noise was now gone. i was despretely tired from this, but i kept trying to break my brain form hearing noises. when i got out of the shower i would cup my ears and try to hear if the sound were gone... sometimes they were! after about two months i started taking tylenol pm to sleep through the night.

i avoided stress completely! one time i parked my car at a store where i wasn't going to shop. i got out, since it was only a few minutes, i knew i would run right back. but this tinnitus is like a stress barameter, and i knew, even from this minute event that i felt stress. i went back to my car, reparked and avoided the stress. this is how serious i was to avoid stress. if i got into a conversation with someone and i could hear the tinnitus, i would excuse myself, telling the person, "i'm sorry, i just can't do this," and i would leave.

also, i would walk several times (very small amounts) a day if i could tolerate the outside noise - if i couldn't, i went right back into my apartment. i ate two fresh vegtables a day(dark green)plus dark orange root vegtables, fruit, blackberries etc, lots of organic orange juice, and some kind of very fresh, high quality protien including nuts. i also took vitamins.

i started to get better! i kept an internal count of the activities i could tolorate for longer periods of time.

i really think i was almost over it, then i kept a doctors appointment. i knew that the noise level in the room was too loud for me, but i thought i could get through it, and like a "good girl," i stayed. when i returned from the doctors appointment all the problems came back. then other things happened that i haven't been able to control. my mother is fatally ill, and other stresses have happened. i haven't gone back to my strick regime again (sorry for my spelling).

i really don't know what else to say. sorry this has been so long and sorry i can't do a rewrite and correct my writing -the computer noise is hard to take for long periods. thank-you for asking how i am, that was very kind of you. oh yes, it's been seven months.

i send my deepest, hardest wishes that you get better.

kathleen

 

 

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Re: how to manage working and living

Author: Steve Metz

Date:   01-28-02 14:51

Kathleen,

thank you for your concern, it makes me feel much better. It also saddens me to know that you are having a hard time, and I wish you well.

When I wrote my post, I was pretty depressed, but Im feeling much better, I bet alot of us are up and down as it seems like most of us have good and bad days.

That is really cool that you are an artist and have been studying game design. I find that very interesting, but it is not my strong suit, but one day I would like to be able to use the graphics programs I have to render some cool backgrounds.

I find that the happier I am, the less my ears bother me, so I am concentrating on enjoying what I have to work with, but it is difficult.

One of my greatest fears is not being able to have a relationship as well, but I believe that down the road my ears will heal, and I think believing this is very important. Staying positive will likely increase your chances of getting better and it will also make your life more enjoyable (as well as for those around you).

I have had 7 knee surgeries; 6 knee surgeries on my left knee, and 1 on my right knee. My right knee was perfect, but it gave completely from supporting my bad knee for so long. for about 6 years I could not bend my knee more than 5 degrees, and the same thing eventually happened to my right. I could barely get up stairs and in and out of cars etc. And I could not even sit in a chair without incredible pain. Every knee surgery I had the doctors told me I would heal and it just made them worse. I finally gave up and stopped caring, that I even stopped thinking about the pain constantly. This past summer (its been 1 year and 2 years since my last surgeries) both of my knees dramatically improved. I can bend my knees fully now, they are alittle sore, but no longer cracked on the inside. I still have to take it easy, but I can tell they are healing, and they feel much, much better.

I guees the point is even when things look so bleak theyre is still hope. I thought my knees would NEVER heal. I had 7 state of the art operations with no effect, 6 years of therapy, no painkillers ever worked, but when I finally let it all go, they started to get better, its really unbelievable.

So I am concentrating on just letting my frustrations go (i know its very, very hard and I still get extremely depressed often)and not worrying about my ears. I will just let the TRT do its job, exercise caution, and let things fall in place.

good luck and dont give up,

steve

 

 

 

 

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Re: how to manage working and living

Author: kathleen 

Date:   01-28-02 20:50

yes, steve...

i do think most of us, go up and, go down emotionally. why wouldn't we get depressed sometimes? i agree, too, your state of mind seems to be an amazingly crucial part of your health.

thank-you for feeling sad for me. who knows, maybe things will work out for all of us eventually.

certainly having sympathy, and support from other people seems to make the world a less scary place to be.

i am so sorry about your knee surgeries. i have been in physical therapy, and have seen that knees are one of the most painful parts of peoples bodies to exercize after surgery. also, you are very young to experience so much pain.

your knees have gone through a great deal of improvement...i think that is great fortune. it is such a blessing (and, i don't mean that in a religious way.) and, i believe you when you say that you attribute your healing, in part, to your attitude. many doctors that i have talked to seem to think the same.

a doctor that i talked to at the food and drug administration told me to (off the record) try yoga. meditation is difficult, but i think it is important. for me, it is a way to break the worrying i do.

i will take your advice; let the TRT (up to two years, i am told) do its job, exercise caution, and let things fall in place...and i won't give up.

take good care, and good luck,

kathleen

 

 

 

 

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Re: how to manage working and living

Author: Hans Troost

Date:   01-29-02 02:37

Dear Kathleen,

I came across this message and recognized quit some things. I hope you allow me to be open in reacting to your message.

This also to look behind hyperacusis... and to look at 'how to manage working and living'.

In short the answer to me is:

Seeing 'life' as it is and not as you think it is.

Experience 'life' inside and act in living your life outside as circumstances present things and ask from you to act accordingly. And not how you wish and want things to be.

Interpreting situations instead of really being confronted and dealing with it will cause tension and stress.

Thinking, leading up to wishing and wanting will keep you going in circles between the same thoughts and emotions over and over.

It takes courage to break out of this tight circle of our charisched personality and be free. This is what all humans really want: to break free of there own prison of thought and emotion.

Step one: is to stop blaming situations and other people for the bad things that happen.

Example: Since I was a toddler I had fights with my dad. At the age of 30 I stopped putting energy in our relationship. I gave up wanting his attention and approval, also I stopped blaming him for my depressions.

It felt awefull, as if I declared him as dead.

Last year I turned out to be one of the few that could communicate with him when he was dying. This because I had no ill feelings against him anymore.

It was good helping him as he tried to help me when I was young and did his best for me.

Thinking that nobody will be there for you is precisely the way to keep people away.

Stopping all unpractical psychological thinking enables you to see what is in front of you. There might be somebody waiting there allready... not seen because of blinding black thoughts.

It may take time to let go and live easily.

Love and surrendering wanting will do the job.

But stay allert and not become slave of new thoughts of your own or from wanting of other persons.

It is like walking on an edge.

It works for me...

It might take away the stress causing hyperacusis, since most of it seems to be interpretation of sounds around us...

Greetings,

Hans

 

 

 

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 Re: how to manage working and living

Author: kathleen 

Date:   01-29-02 16:39

hans,

thank-you for writing to me. actually, this gives me an opportunity to say that i'm sorry that i didn't write back to everyone who wrote to me when i posted my first message. i really didn't understand how this communication system worked, i wrote my first message in sheer desperation.

even thought i am in technology, i have never, outside of email, used this kind of system. i feel really badly that i didn't write back to everyone. i really just didn't know how to. i am finally understanding the back and forth of it.

as for your message, yes, i think you are right. part of the worst of this situation was that i had expectations of my life going a certain way. i didn't leave room for 'life' to act apon me, i expected to act apon IT. i didn't realize that something could come along and drastically change what i thought my future would be.

i am not used to seeing what is before me. i am used to imagining what i want, then trying to get it -which hasn't worked out too well.

at certain points, i have actually thought that good might come out of this. i couldn't have bought a better mechnisim to tell me when i am stressed out!

i think it is wise of you to recognize the subtlety of understanding what is really before you. there is alot!

your inner desires, and your preconceived ideas probably can blind you to what is reality. this world is complex and often things are probably not what they may seem to be. we probably DO miss many good things noticing them when they come our way.

i will try and open myself up to what i don't expect, and i will try to see what is really before me...i certainly didn't expect THIS to to be before me! maybe life has nice surprises too.

i am glad, hans, that you had time with your father in which you could feel good. i feel that this is probably what your father wanted too.

thank-you for writing to me, hans, and take the best of care.

kathleen

 

 

 

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 Re: how to manage working and living

Author:hans Troost

Date:   02-05-02 12:32

did the doctor's visit make your ears worse?

i went yesterday and we did sound tolerance tests. then we stopped the sound generators. there had been no improvement at all in the 45 days. today, my tinnitus is screaming. am i just feeling traumatized again? usually if i can stay out of my office and be in the country, i am fine; but, my home is downtown and i have to work. now i sound like eeyore )

 

 

 

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Re: how to manage working and living

Author: kathleen 

Date:   02-06-02 18:10

dear lyn,

it has been my experience that both feeling traumatized, AND actually feeling worse can occur. sorry to say...it is hard to tell. even a combination, i am almost sure, can occur.

pbs has been running a series on the brain, and stress can be such an important factor in your brain!

how loud were the sounds you were exposed to? i am unfamiliar with sound tolerance tests.

if you want, tell me more about exactally what happened to you. how loud were the sounds you were exposed to? how were you feeling at the time -instintivly? did the sounds give you anxiety at the time? do you know the decibels you were exposed to? did it test pitches?

these are all factors to watch. at ucla they were going to give me a really loud test (sorry, forget what it was called) and i RAN out of there. i WOULD NOT take that test for anything in the world!! i have already had setbacks because of doctors good intentions! NO THANK YOU!

by the way, i was right too. no other doctor has even suggested the same test -although i will say i think the test was to rule out a tumor, and DID have an important function. however i had heard that that test could have made me worse. i don't want that. -the audiologist there didn't even want to give it to me. they said it was like hearing dogs barking for a half and hour.

i have heard, and it has been my experience, to avoid being exposed to anything more than you can comfortably tolorate. i should clairify that statement because, i think, with Tinnitus Retraining Therapy that you may be exposed to more sound- but in very tiny increments.

so sorry you are scared. don't think you are complaining needlessly. complaining has a very important component -it gets the help you really need.

sending my concern, and good wishes,

kathleen

 

 

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Re: how to manage working and living

Author: lyn marvell

Date:   02-07-02 10:45

oh no, the noises were not loud at all and the moment they became uncomfortable, i hit a button and they shut off. the audiologist is fine. i just think any messing with my ears makes me weird. and the doctor keeps saying i am responsible for the treatment not working. he says i have too much anger and the blasting company that blew up my ears. i do want to hold them accountable, but i am not angry the way he thinks i am.

oh well. we are going to work on dizzy spells and getting me a quiet computer.

 

 

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 Re: how to manage working and living

Author: kathleen 

Date:   02-07-02 12:08

lyn,

sorry, but THAT makes ME mad that the audiologist would tell you that your anger is responcible for the treatment not working! that is not a professional response, i'm sorry!

it is perfectly legitimate for you to feel anger. in fact, if you DIDN'T feel anger you might be WORSE! feelings that are internalized can possibly come out in physical ways! you have probably saved yourself worse problems by reacting in a HEALTHY way!

lyn, what happened at the blasting company? are you still working there? is the audiologist connected with the company in any way?

my sincerest wishes for your well being,

kathleen

 

 

 

 

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Re: how to manage working and living

Author: kathleen 

Date:   02-07-02 12:15

lyn,

i read your other post -i'm stunned! i would still like you to answer my other questions, and also tell us other details, like why you go home and work. obviously you need to, is that right?

kathleen

 

 

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hyperacusis and TMJ

Author: Susan Kurz

Date:   12-31-01 18:31

My ENT doctor originally thought I had TMJ and that was the cause of the hyperacusis. I have been wearing a mouthguard/splint for several years for 24 hrs a day. I don't really believe it has helped the hyperacusis that much; the TRT therapy has been extremely helpful, though. Now I would like to wean myself away from wearing the mouthguard, but my jaw is now in a different position than before and my teeth have moved and it will require dental work to correct all this! Has anyone else experienced this problem, and what have you done about it?

Thanks for any feedback.

Susan

 

 

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Re: hyperacusis and TMJ

Author: Debrorah Tootle

Date:   01-04-02 11:22

Susan: I have suffered from Hyperacusis and extreme chronic pain in my ears since 1996. I am not working now as a result. A facial pain specialist has advised me that I have TMJ and need the extrmeley costly (approx. $1,000) splints which I cannot afford at the time. My family physician told me that he wasn't convinced that was the problem and since I have no income have (reluctantly) decided that this is not an option for me at this time. My doctor has since advised me that the only thing that will help me is a good psychiatrist!!! I guess I am not much help with your problem but your notice caught my eye. I also found (on the internet) a condition called temporal tendinitis which describes some of my pain symptoms. Has the specialist helping you with your TMJ ever mentioned this? I certainly have Hyperacusis but still search for an answer for my extreme pain. I hope all goes well for you and hope you find the help that you need for your situation.

Deb Tootle

 

 

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Re: hyperacusis and TMJ

Author: Susan Kurz

Date:   01-15-02 15:06

hi Debbie,

thank you for replying! I have not heard of the tendinitis you mention. I am sorry you are having such awful time--this is a bizarre and very painful condition. I am very thankful for Dan, who founded this network, as otherwise I would know nothing about it or how to cope. Keep reading the info on this site and it will help you find ways to improve; it is not hopeless.

Susan

 

 

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 Re: hyperacusis and TMJ

Author: Kristin

Date:   01-15-02 20:07

Hi Susan and Deb,

I was diagnosed with TMJ because two dentists and two ENT doctors believed I had TMJ at the time ( about 4 yrs ago.) I did exercises with my jaw (I remeber this very well: biting a special piece of rubber between my front teeth, counting to five, relax from biting the plastic rubber thing,then repeating this several times twice a day, with a heating pad under my jaw), and according to the dentist, he said that the jaw would pop and the ear pain would go away. =( I did these exercises for months with no results. I also wore a soft mouth-gard at night (so my teeth wouldn't grind in my sleep) that didn't do anything. I don't do these things anymore.

Just recently, the right side of my jaw pops when I eat. It doesn't hurt, except the popping sound hurts my ears because of hyperacusis, but my jaw doesn't hurt from the popping. I guess it's good that it pops now, that must have been what the doc wanted it to do. My theory is the jaw is finally relaxing a little because the TRT is working to calm my ears down.

I probably didn't help much, but I wanted to share.

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Re: hyperacusis and TMJ

Author: Hans Troost

Date:   01-16-02 15:42

Dear Susan,

Today I got the message that the combination of TMJ (my loose jaw joint), stress on my nek muscles due to work and the decibels load of violin and pianotuning are probably the mayor items causing my tinnitus and hyperacusis.

I do not intent to have anything with my jaw. I do my best to live with it.

Dealing with all of this according to the lastest insights I found on this website and others helped me a lot. See my other messages.

Relaxing muscles, having fysiotherapy and chiropracticle treatment is doing well for me. To get me out of this stress circle.

I can work again... and enjoy...

take care

Hans

 

 

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Re: hyperacusis and TMJ

Author: Howard

Date:   02-07-02 21:29

Hi. I have had TMJ for about 8 years now. I goes away and returns every so often. I have had two specialist run tests and confirm this is a result of a dislocated jaw. With the TMJ noises are pounding walls of stress.

Is that a good description?

After much searching I have good results with

the following treatments. All together or some variations.

1. shiatso therapy. A good registered one. You need to go twice a week. Some plans cover it or part of it.

2. at least a 1000 mg a day of Glucosamine and Chondroitin with lots of water. Studies confirm it helps regenerate ligiment in the jaw.

3. for pain and swelling Ibuprofen every four hours.

4. Tiger Balm ointment the strong stuff rubbed into the muscle around the joint.

5. Also clear your sinus cavities a lot. The joint disfunction causes the cavities to fill up causing pressure on the joint. Hold your nose and one finger in a ear blow slowly and you should hear poping. Not to hard you can pop a ear drum.

5. eat soft food, sleep upright and relax as much as possible. Robaxal can help relax the

muscle.

6. don't listen to dentist or other practitioners of western medicine. They have no clue what is going on. Help yourself, seek non evasive treatments that give relief.

7. hot wet cloth on the joint sooths the nerve muscle.

this should bring it under control or total relief in 1 to 3 months. It takes time.

any comments. I hope I can help someone at least a little. I have been diagnosed at the extreme end of TMJ symptoms.

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New to This Site - Need Help Understanding

Author: Cindy Goss

Date:   12-28-01 07:26

I feel like I am going crazy. Have looked up several times for hearing disorders, etc. but today was the first time I hit on something that might be the right thing. Loud noises are not the ones that bother me. Rather the typing on a keyboard by my son (okay when I do it), cracking of nuckles, chewing of ice, popping of gum (everything done by others) and the dreaded hearing people munch on popcorn at movies makes me want to poke my eardrums out. I sit in my room and turn TV up really high to drown out the noise of the keyboard. One thing that really hit me was the description of "fullness feeling in the ears". Have many times asked doctor for meds for sinus infections or earaches which I thought for sure were starting only to find my ears were clear. Does this sound like this condition? It seems to be getting worse with time which really scares me. HELP!!

 

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Re: New to This Site - Need Help Understanding

Author: Sunshine

Date:   12-28-01 21:07

Hi Cindy,

Before commencing TRT (Tinnitus Retraining Therapy), I was warned by an audiologist that TRT might 'bring stuff up' for me. Part of TRT is continuous counselling by a psychologist who specialises in hearing disorders. I have since realised that I possess audio phobias about other people's behaviour that may or may not be related to my hyperacusis. (I haven't worked through them yet, one thing at a time!) This psychologist has said that these types of phobias can be easily treated using cognitive techniques.

I can not comment on whether or not you have hyperacusis, as I am not really qualfied to do so. But because you don't appear to be affected by the volume or amplitude of sound, I believe that my audio phobia experiences may be of help to you.

Best wishes, I hope you find peace with your ears soon.

Cheers,

Sunshine.

 

 

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Re: New to This Site - Need Help Understanding

Author: Hans Troost

Date:   12-29-01 01:28

Dear Cindy,

I probably devellopped a strong dislike of pianosound, wich is not practical being a pianotuner myself.

What helped me a lot is reading the supplement of this hyperacusis network and similar texts in the papers of dr Jastreboff and dr. Hazell on http://www.tinnitus.org.

Following advice from these papers, like: not trying to block out sound to much with earplugs etc. and using sound enrichment things are now much better.

I hope being of service and that reading papers from Jastreboff and Hazell works for you and gives you insight in your situation.

greetings,

Hans

 

 

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A quiet vacuum cleaner

Author: Lois

Date:   12-01-01 14:59

Does anyone know of a quiet vacuum cleaner? If so please respond.

Thank you,

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Re: A quiet vacuum cleaner

Author: Dan Malcore

Date:   12-02-01 21:18

According the most recent consumer reports, the Eureka Ultra Smart Vac 4870 for $211.00 is one of the most quiet and does an excellent job of cleaning carpet. The only negative is it's repair record. Consider the Samsung Quiet Storm VAC-9048R canister vacuum cleaner for $249.95. It is more quiet than the quietest rated upright. Hope this helps you.

 

 

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 Re: A quiet vacuum cleaner

Author: Gail Smith

Date:   12-10-01 18:13

I have used the Sanyo Performax, 11.5 amps, for four years. I still need to wear shooters ear protection but at least I can do it myself without any after affects.

 

 

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Refrigerators

Author: May

Date:   12-07-01 09:30

My family recently purchased a new energy-efficient refrigerator. While it is somewhat quieter than our previous one, it is still somewhat noisy and the compressor produces an annoying high-pitched whiny noise. On asking around, it seems that many people are unhappy with how loud or annoying their refrigerators are - and none of these people have hyperacusis.

I've combed the internet and exhausted local resources on the subject and the consensus seems to be that all recent refrigerators are fairly noisy, even the "quiet" models.

Does anybody out there have a solution to this dilemma? Are there any truly quiet fridges?

 

 

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 Re: Refrigerators

Author: Dan Malcore

Date:   12-07-01 15:24

The only totally quiet refrigerator that is made, to the best of my knowledge is a propane refrigerator. They have no noise, no fan and work very well. If you want an idea what they look like, visit this website:

http://www.energyoutfitters.com/danby.htm

They are more expensive than a regular refrigerator and typically the biggest propane refrigerator would be equivalent to a medium size regular refrigerator.

You can also contact your local utility company, they may have one to show you or call a local propane company.

Hope this helps.

Dan

 

 

 

 

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TV

Author:Sam

Date:   12-13-01 12:13

I am very sensitive to the high-pitched sound the TV mankes when on. Can anyone tell me if flat screen tvs emit this sound, etc.. or other new technologiest that might be better??

-Sam

 

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 Re: TV

Author: Ferrari Dionisio

Date:   01-03-02 00:00

The sound to 15 KHz which at times are produced by the television sets depends on the constructive technology of the television sets to Catodico tube, and it is a circuit called EAT, that he serves to raise the net tension from 15000 to 50000 v at second of the dimensions of the screen, to Retroproiezione or liquid crystals it is not used, But this (transformer) circuit it must not at all utter any sound, if your television set utters sound to 15000 Hz breakdown is to consider, and a good technician of television sets will be perfectly able to remove it, Or you can buy another television set model without that fault, always a television set to much less expensive Catodico pipe than a monitor to the plasma or liquid crystals.

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Re: TV

Author: May

Date:   01-22-02 18:07

I have the same problem with television sets - and CRT computer monitors for that matter. I haven't found any traditional TV's that don't emit the high -approx 15kHz- frequency, as they are all cathode-ray tubes (CRT). Some are louder than others though and some people can shop around and make do with one that is not so loud. "Flat Screen" TV's are CRT's too, it is only the front screen that is flat.

Alternative video monitors are a bit more pricey than standard TV's but here is a list from my own research.

1. Projection TV (often found in sports bars). The image is projected through an LCD panel onto the screen, so there is no scanning sound.

Downside is the large size and price.

2. LCD or "flat panel" monitors/TV's - Sharp and Samsung manufacture liquid crystal displays specifically to be used as TV sets. They come with remote control, speakers and standard TV inputs.

Downside - prices start at about $600 USD. Pixellation and 'trails' can occur if the video signal is weak.

3. This option is a bit convoluted.

Watching TV on an LCD computer monitor. One can feed the video signal through an "up-converter" or "video scaler" which allows you to convert a standard video signal for your computer monitor.

an internet search for "video scaler" or "video scaling" or "line doubler" will yield some info.

Downside - you still need something to use as a tuner (like a VCR) and must route the audio separately to a sound system.

4. I've been told that the blue and white flat panel monitors that Apple sold with their G3 computers had an input for NTSC video. These are no longer being produced. I have not seen them myself. Downside - same as no. 3. above.

5. For the independently wealthy... Philips sells a very sleek looking and incredibly expensive large "Flat TV". This is the largest one I have found for consumer use. It is not an LCD but rather a Plasma display. I think the individual pixels are filled with some kind of gas. I've never seen one in person, I only assume these screens are quiet as well.

6. Data projectors. These are overhead projectors. Some have built-in TV tuners, others do not. They are very expensive-thousands of dollars. Most have audio capability. They are aimed more at the corporate market, but might be useful for home-theatre purposes.

Hope this is not all too convoluted

Cheers,

May

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dB levels for tuner / musician

Author:Hans Troost

Date:   12-19-01 23:23

Dear readers,

I would appreciate it if I could have some reply's on the following data.

Early next year I have an appointment at the audiological centre of the Academic Hospital in Leiden (AZL). Here settles the core of the Dutch national campaign for earprotection. I will present these measurements among others: sounds of my workshop, driving car, kitchen and listening levels of music (bearable at home and unbearable at audio demonstration).

I am looking at the possibility of the relation between my hyperacusis / tinnitus and my work as musician / pianotuner.

I borowed an official meter. Measurements are without 'weight' (A or C) to keep results objective. Meter on heavy microphone stand on foam suspension. Meter next to ear of tuner / musician. There are three kinds of measurements:

Equivalent - objective level / 'Soundload'- load in time, evident for tuners & musicians (?) / Maximum - peaks

Tests: Measurements of 10, 45 of 60 minutes gave same results. Allmost no differences in dB level between 'tuning' and technical work like 'intonation' and very noisy 'key depts controle'. Measurements here for 60 min. during tuning session.

* Graf copie, small fortepiano from Vienna by Paul Poletti, Utrecht, 1.60 m, 5500 kg stringtension

Equivalent - 74 dB / Soundload - 103 dB / Maximum - 91 dB

* Erard grand piano, 1846, 2.12 m, ± 12500 kg stringtension

Equivalent - 77 dB / Soundload - 113 dB / Maximum - 97 dB

* Rönisch piano, 1918, ± 15000 kg stringtension

Equivalent - 86 dB / Soundload - 109 dB / Maximum - 98 dB

* violin, meter 2 cm from left ear...

Equivalent - 97 dB / Soundload - 114 dB / Maximum - 107 dB

I suspect that a Steinway Grand D will have higher dB levels. Some remarks...Increase of dB is logaritmical. Level 70 dB to 80 dB is a much smaller increase than from 80 dB to 90 dB. Soft and hard touche makes less difference than I thought, maybe 5 dB (around 85 - 90 dB level). With wooden mute plate over strings (Graf en Erard) it seems a lot softer, but dB levels are the same...! It looks like higher frequenty's than 3520 Hz (top 'a') have much impact, but don't add to general level. Measurements in overtone area (4 and 16 Khz bands) showed the following:

* a-3 to a-4, dB levels at 8 KHz band, Rönisch piano (± 45 - 50 - 40 is surrounding level)

Equivalent - 60 dB / Soundload - 70 dB / Maximum - 70 dB

* a-2 to a-3, dB level at 16 Khz band, Rönisch piano: ( 40 - 50 -40 is surrounding level)

Equivalent - 45 dB / Soundload - 55 dB / Maximum - 60 dB

Hope to have been at service for tuners and musicians...

With friendly greetings,

Hans

 

 

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Re: dB levels for tuner / musician

Author: Bob Mooradian

Date:   01-10-02 18:41

Hans

Thank you for your response on my bulletin board. Your comments about going to the dentist are encouraging. I am thankful for this bulletin board for these opportunites to share in helpful ways. Sometimes I feel like we are kids in relation to sound. It sems like the world is a scarry place of sounds that we have to adjust and prepare ourselves for surprizes. But unlike kids who have someone to help and protect them we seem oftentimes alone. People don't often understand. However with reminders I have found people can be very considerate. We are fortunate for the hyperacusis network and persons like Jack Vernon. Thank you again

 

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gun shy

Author: Susan

Date:   11-23-01 17:30

I have always been sensitive to loud noises. I am not sure if I have hyperacusis.Crowd noise at events bothers me, as well as fireworks, loud TVs, airplanes, jackhammers, engines, etc. A year ago,I started shotgunning, the noise of which I have managed to get used to. I would like to take up riflery, but so far, the noise of the rifle is just way too much for me. Any suggestions?

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Re: gun shy

Author:Kim Mattys

Date:   11-24-01 19:12

Dear Susan,

I am not sure, but it sure sounds like Hyperacusis to me. I hear you when you mention that you would like to take riflery, but so far, the noise of the rifle is just too much for you. If I could make a suggestion it would be to follow your dream, so you do not have regrets, but invest in a pair of those really good ear-plugs that musicians wear, they sell them in music stores. If that does not keep the sound of the rifle from causing you pain, then its not worth it, especially if it causes Tinnitus, (ringing in your ears).

Kim Mattys

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Re: gun shy

Author: Dan Malcore

Date:   11-25-01 14:35

Get some really good ear muffs like Thunder 29's from Lab Safety

1-800-356-0783. They are relatively inexpensive (around $22 and very comfortable).

 

 

 

 

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Reply with quote  #13 

Re: gun shy

Author: John Hevey

Date:   11-27-01 15:19

Hi Susan,

Your sensitivity sounds much like mine. I have hyperacusis and tinnitus and used to love to shoot skeet, trap and rifles. The last time I tried to shoot my 22 rifle with earplugs, the hearing in my left ear cut out and it started ringing after only a couple of shots, so I stopped. Be careful with shooting and your ears. I believe that many of the earplugs/phones are not rated for "instantaneous" noise, but rather for continuous noise. There are some that apparantly allow regular hearing but shut down when an instantaneous noise gets high. I'm definitely not an expert on this, though, and would recommend getting some feedback from a doctor (ENT). I'd never recommend shooting without hearing protection, however, even if your ears are normal !

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Re: gun shy

Author: Dan Malcore

Date:   12-25-01 18:35

If you are sound sensitive, you should only wander on the rifle range with earplugs AND ear muffs on. I would suggest the Thunder 29 earmuffs. I agree with following your dream, but follow this advice or your dream might end prematurely. One other thing: if ear plugs are rated at 30 decibels and ear muffs are rated at 30 decibels, you will not get 60 decibels of ear protection because some sound is conducted through your skeletal structure. Good luck.

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Re: gun shy

Author: martin germany

Date:   12-21-01 14:26

Hi Susan,

if you like the sportive aspect of shotgunning and don´t need the aspect of self-defense I suggest to try it with a lever chest or elbow-shooting.

It´s great fun !!! and it´s good for your mind-concentration as well as it is to relax...

martin_germany

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 Re: gun shy

Author: Tony Rogers

Date:   12-26-01 09:53

Guns?! Shooting?! AAAAIIIIEEEEE!! Surely you jest!!

I'm QUIETLY

 

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Just happened upon this site

Author: Cindy Goss

Date:   12-28-01 07:20

I feel like I am going crazy. Have looked up several times for hearing disorders, etc. but today was the first time I hit on something that might be the right thing. Loud noises are not the ones that bother me. Rather the typing on a keyboard by my son (okay when I do it), cracking of nuckles, chewing of ice, popping of gum (everything done by others) and the dreaded hearing people munch on popcorn at movies makes me want to poke my eardrums out. I sit in my room and turn TV up really high to drown out the noise of the keyboard. One thing that really hit me was the description of "fullness feeling in the ears". Have many times asked doctor for meds for sinus infections or earaches which I thought for sure were starting only to find my ears were clear. Does this sound like this condition? It seems to be getting worse with time which really scares me. HELP!!

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 Re: Just happened upon this site

Author: Deborah Tootle

Date:   01-04-02 11:48

Cindy:

Wow....it sure sounds to me like you are hyperacusic. The noises you describe as being unbearable are some of the few in my list of definate "avoid at all cost" noises. Does the sound of paper (being turned, crumpled etc...) bother you? I know how you must feel..finding this site and being able to relate. It is a relief to know that you are not alone. I am new to this site myself and already have a sense of support that I have not experienced in the 6 years since my condition began. I hope you can find an ENT specialist that understands this debilitating condition. There is help, and with a web-site as informative and interactive like this, we can all begin to heal together.

Deb Tootle

 

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Reply with quote  #14 

This Is not Classic but I will put this here.. ((( Smiles )))

 

2/17/07

 

Hi Maree, ((( Smiles )))

Thats what I did.. To be able to work at all with what I used..

I had to use a portable non stereo player.. Turn off the DBBS..

 

And I kept it on the carpeted floor in the spare room I stayed in to

be away from others.. Inaudible to others..

 

As nobody else could hear it playing but me at one time..

My husband even put his ear right up to it too..

Thats the way I had to start off and in time I guess I did what

you could call move it closer as I eventually place it on tables and then

counter top in the surrounding areas of what ever room I was in like

the kitchen , family room ect....

 

Over time.. It was a gradual building up for me.. And I never did put the

sound in my ears but moved on instead to other forms of sound therapies

around  "in the home "..

 

I think that this can be a good way to go for thoses expecially..

ones who are really badly hyperacustic at the time and need to start somewhere..

Anywhere... Ones that may not be able to venture out..

 

What you wrote... At a distance playing in the room.. It can work

overtime...

 

Just doing something with the goal of building up your ears overtime to do more.

 

For alot of people...... Sound therapy seems to work in helping improveing their tolerances overtime if followed through with..

 

I had alot to overcome as in my T was Bad.. My H was Bad.. And then of

course I had the ear spasming problems too.. So with all I had back then..

It seems to have worked out well for me.. Except what I do have left over

which is nothing compared to all that...

 

Good Luck To You...  ((( Smiles ))))

 

Maree wrote...

 

Quote:
She stressed to start with sound sources that were at a distance from me and gradually move them closer, up to a point where I could wear a headset hanging around my neck. But that I must NOT put anything on or in my ears.

 


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LynnMcLaren

Registered:
Posts: 7,990
Reply with quote  #15 

2/17/07

 

Hi Maree, (((( Smiles ))))

 

I think so too...

Sometimes people need it playing at a very low level to work with any

sounds at all.. Then you could build up that way to doing it in a longer timeframe... then trying to do that with louder spurts..

 

Maree wrote...  

 

Quote:
Better to have sound present for longer periods at lower volume levels than the reverse.


 


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