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The Hyperacusis Network Message Board
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loizos

Registered: 02/27/07
Posts: 5
Reply with quote  #1 
Without any reason, I had what started as a bout of tinnitus in my left ear and in my head since the 1st Jan 2007 (happy new year to me!).  I am 31 years old, male and have never had any health problems before.

The sound was like a pulsing noise and was constant.  After 2 weeks, it became slightly better but the associated head noise remained.  I also started becoming increasingly dizzy and it felt like something in my head was moving which is actually a very hard symptom for me to accurately describe. I also had the feeling of very slight trembling in my hands and feet.

The ENT doctor found a mild hearing loss in my left ear but no other abnormalities and suggested it might be eustachian tube dysfunction (since I am a fairly frequent flyer) and I begin using a nasal spray to clear this up.  I don't know if this was responsible but my head noise remained (although was quieter at times) and the left ear noises began to soften.

A few weeks later, however, the tinnitus changed to a constant flutter in my left ear and I began having more dizzy spells and noticing increased trembling in different parts of my body.  I cannot say for sure if I am shaking or not.  When I wake up in the morning I feel that I have not slept (even with 8-10 hours sleep).  The dizzyness is there when I wake up but the fluttering noise is not there immediately so I can actually get a few minutes of near-silence in the morning (with just some complicated head noises).  After a few minutes perhaps, the fluttering (or rumbling at times) starts in my left ear and continues until I fall asleep at night.

I've noticed some more odd things - if I hold my mobile phone to my left ear and have it quite loud, my right ear also begins to rumble with each loud noise.  I get the odd twitch just above my right ear which may or may not even be relevant.  My ears feel somewhat uncomfortable but not painful.  The dizzyness is not significant enough that I may fall over or lose my balance but it seems like my nervous system is playing some sort of tricks on me.

I have had an MRI of the head and this has thankfully come back clear so I have been told this is nothing but a nuisance.  ENT are keen to send me for tinnitus retraining but I don't even have a diagnosis!  I am concerned that even though this may not be anything serious, it is very distracting.  I have done nothing to bring this on!  Any ideas?

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lib

Registered: 04/27/05
Posts: 272
Reply with quote  #2 

i have had these symptoms. if fact almost everyone of them.

i have myoclonus, in the ear, e tube and the muscles above my ear on the side of my head. the reaction in the opposite ear you get from the cell phone is a spasm, its the stapedial reflex. please do a search on this board, you will find a ton of info.

lib

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loizos

Registered: 02/27/07
Posts: 5
Reply with quote  #3 
Thanks for replying.  How were you diagnosed and is this a permanent condition?  Are you taking anything to improve the symptoms?  Thanks again.
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lib

Registered: 04/27/05
Posts: 272
Reply with quote  #4 

it took a few top notch drs to diagnose me. they are not sure if it will go away, i guess they say it can but i feel it is permanent. i had the tendons severed to relieve some of the symptoms, this made a huge difference.

lib

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Dekay

Registered: 02/13/07
Posts: 65
Reply with quote  #5 

Your syptoms have a display of hyperacusis, but what I also had took note of that you mentioned "dizzy spells" one of the leading syptoms of Meniere's disease pt's. Hyperacusis is only a syptom, that so happens to be a possible cause from Meniere's disease. The leading syptom of Meniere's disease are;

 

  • Periodic episodes of rotary vertigo (the abnormal sensation of movement) or dizziness.
  • Fluctuating, progressive, unilateral (in one ear) or bilateral (in both ears) hearing loss, often in the lower frequency ranges.
  • Unilateral or bilateral tinnitus (the perception of noises, often ringing, roaring, or whooshing), sometimes variable.
  • A sensation of fullness or pressure in one or both ears.

    Not sure if this helps in any way, but perhaps speaking to your ENT/Audiologist about it should be considered.

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    lib

    Registered: 04/27/05
    Posts: 272
    Reply with quote  #6 

    these symptoms are myoclonus symtoms. i have it, and have had it since 03. mineres was rulled out right away. my surgery relieved a ton of it and that confirmed the diagnoses of myoclonus.

    lib

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    loizos

    Registered: 02/27/07
    Posts: 5
    Reply with quote  #7 
    Thanks for your replies.  Can I ask if your symptoms became progressively worse over time?  I seem to wake up in the morning with terrible symptoms that seem to calm down when I get out of bed.  Then mild dizziness and trembling remains most of the day until by night when it comes on stronger.  When I eventually go to sleep, it feels like my head is tightening inside.  My sleep is very deep and restless.  Has exercise and relaxation techniques helped any of you with these symptoms?

    Thanks
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    lib

    Registered: 04/27/05
    Posts: 272
    Reply with quote  #8 

    i think relaxing does help along with excersise, but i rarely do that.

    my symptoms did progressivly get worse. i had the surgery and they then got better. it is a very unpredictable disorder, a variety of symptoms. i think a neurotoligist could help you.

    lib

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    loizos

    Registered: 02/27/07
    Posts: 5
    Reply with quote  #9 
    I am finding it very difficult to find the words for my symptoms.  I suppose it is like something is constantly nudging me and I am suffering the effects of being nudged ever so slightly without actually moving.  The tinnitus rumble is permanently there.  Could all these effects also be attributed to hearing loss?  When people talk of balance problems, how are they affected when they are lying down?  I don't have a spinning sensation or dizzyness as such - it is just like being nudged as I described.  It is very confusing to compare to anything I've experienced before.
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    Maree

    Registered: 01/08/07
    Posts: 260
    Reply with quote  #10 
    Frequent flying was a problem for me too, I got sick following a flight where I had a background sinus infection which grew into a major sinus headache following the flight.  We believe the combination of this with a very noisey hotel room caused my Hyperacusis (resulted in an Accoustic Shock Injury).

    I can relate to the shaking, my hands shake really badly when my Hyperacusis is at it's worst.  My case is a little different though as I have no internal sounds.  Just extreme pain and amplification of all sounds.

    I am reluctant to fly again, however my audiologist says that if the pain in my ear reduces to a level where I can wear earplugs that there are pressure equalizing earplugs available that reduce the risks associated with flying.
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    loizos

    Registered: 02/27/07
    Posts: 5
    Reply with quote  #11 
    Thanks for everyone's feedback on this. I just took my first flight since having these symptoms. Taking the flight is the first time I felt normal all year - at least I'm not the only one shaking and I couldn't hear the tinnitus rumble.

    I got back to the hotel room and all seemed OK initially, and then the tinnitus rumble started a few minutes thereafter and then the shaking.  I also am suffering from extreme tiredness and exhaustion even though I've had plenty of sleep lately.  My eyes seem to dance whenever I close them.

    I have also found that putting an ear plug in my left ear (which seems to be causing the problems) reduces some of the rumbling.  I'm also finding that my ear is reacting strangely to some external sounds and it starts bubbling - literally like boiling water.  Does anybody else share these symptoms?  And more thoughts or advice would be appreciated.  Thanks to everyone.
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