This message board is available to anyone whose life has been adversely affected by sound (i.e. hyperacusis, tinnitus, recruitment, sound sensitivity, etc.)
The Hyperacusis Network Message Board
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Zemora

Registered: 05/26/10
Posts: 5
Reply with quote  #1 
I have a very rare but very terrible condition called Misophonia. To most people, this means 'The hatred of sound'. They can't stand simple everyday sounds such as people eating, breathing, biting their nails, coughing or sneezing,  lip smacking, or repetable sounds such as a pencil knocking continuously against a table. Some people also can't stand some types of music, some rap music that has the same beat over and over again in various sound frequencies.
Unfortunatly, not much research has been done on this condition. Its so rare and so few people have it that not many people have done tests on it, or found any type of medication that could help. There are some therapies that can help, one of the main and most effective therapies is audiotherapy. Here, you can become imune to the sounds that you loathe. Most people that don't have any help at all find other ways to deal with misophonia - they will put earplugs in their ears, listen to music on an i-pod, or even go out the room altogether. In some more serious cases, it will effect the persons life so that they avoid people and places, for fear of hearing the sounds. When they hear these sounds, it can make them furious, even violent, start to cry, or trigger intense anxiety and panic attacks. This isn't a mental problem, these people arne't crazy, but it has something to do with the nerve system, and that the mind is interpriting the sounds wrongly, so that even normal sounds that everybody makes can seem harmful to the subconcous mind. Strangly enough, when the people make these sounds themselves, it doens't bother them. Knowing that the sound bothered them when other people do it can also make them anxious, thinking that other people will find them disgusting and annoying when they make the sounds - although..this isn't normally the case.

In my case, i can't stand the sound of breathing the most. Eating, coughing, other body language things such as lipsmacking and biting the nails also get to me, but none as much as breathing and load breathing. Often, i don't sleep a night without waking up in fury to the sound of somebody else breathing. I can't sleep around friends houses or have anybody stay in my room. When i was a child and shared a room with my sister, i would get so angry with her (even though it wasn't her fault) that i would throw things at her, shout at her, sometimes even become violent, to the point where i'm begging her to stop load breathing, to just be quiet! I recognise now that you can't do this with people. They can't stop breathing, and breathing loadly isn't able to be controlled easily. For years i've gone thinking that it was an odd quirk, that nobody else had it nor understood it, even though it was driving my life round the bend. I couldn't sleep in the same bed with my boyfriend. Each night i'd wake up and moan at him, try to get him to wake up so that he could be talking abut something whilst i fell asleep and then i wouldn't have to hear him load breathing or snoring. I'd listen to music, or even go and sleep in the lounge most nights.
Enough of this, i decided to look it up on google 'annoyed by the sound of breathing' and found that somebody else had written an article saying the same things as me. Then i found a site explaining about misophonia, and looked it up on wikipedia. Watched a vidio on youtube by a user called
singularityrush - the video: Hating Sound (parts one and two) - You may want to look this up, its good! After seeing the video and the comments below, i saw that i wasn't alone in this.

That is when i decided to write this post. Please comment, i'd love to hear about your experiences and what you think about the condition, or what might help! Thank you so much.

Zemora x


saab1216

Registered: 04/15/10
Posts: 152
Reply with quote  #2 
I thought Hyperacusis was bad right up until Misophonia reared its ugly head. I cannot bear the sounds of anyones mouth! I hear saliva and annoying clicking of the tongue along with irritating sounding consonants. I get enraged inside when I have to have a conversation in a quiet room. I still have trouble with the shrill sound of birds and high squeaks. The television offers an extreme amplification of the sounds that I hate. The consonant "s: is so sharp as a needle penetrating my ear drums. I just hate mouth sounds completely. Eating is a definite sickening sound as well.  
Gizmookie

Avatar / Picture

Registered: 06/24/08
Posts: 342
Reply with quote  #3 
Hi Zemora.  I also have Misophonia.  I think you will find that it is much more common than you think.  I know of about 1200 of us so far in a Yahoo group ( http://health.groups.yahoo.com/group/Soundsensitivity/ ).  The thing is, this condition is so strange, that most people who have it, including myself, thought they were the only ones.  You suffer in silence most of your life until you realize you're not alone.  That is what I did.

You are not crazy.  I am not crazy.  I firmly believe there is something going on in our brains that is causing this but until research is done, I do what I can to help myself.  

My tips:

First, it's important to accept yourself for who you are regardless of this condition.  That was hard for me at first.  I kept thinking "why me" for far too long.  But, it could be SO much worse. 

Second, try and be positive.  With every negative thought, try and make a positive one.  You can't live a positive life, with a negative mind (as my mom says).   It's a difficult condition to deal with every day of your life, but being negative about it only makes it worse.

Third, talk to family and friends about this and show them websites, etc... to help them understand how it is for you.  People who don't have this automatically write you off as "crazy".  But, it's REAL.  This helped me with my husband.  I didn't show him this information to make him change his ways.... people make noise when they eat, breathe, etc... It's a fact of life.  But, I wanted to make him understand why I got so upset about it.

Fourth, (this is a hard one) try not to dwell on it very much.  Of course when you hear a sound you dislike your automatic reaction is to focus on it and then dwell on it for hours after.  Sometimes you dwell on it and anticipate it beforehand.  Sometimes anti-anxiety meds can help with the anxiety aspect of this.  However, another tool you can use is called Cognitive Behavioral Therapy (CBT).  It teaches you to analyze the situation (such as you in your bedroom with a noisy breather) and pick apart your thoughts during that situation.  It teaches you how to re-think the situation, put things into perspective, and calm yourself down.   I have been working with this for a over a year now and it does help me in some situations.  I hated popcorn munchers and avoided the theater at all costs.   But now, I go a lot and love the movies again. 
CBT does not take the problem away but it does help you deal with the reaction a bit better.   It takes hard work, a lot of patience and time.

Bottom line... Misophonia sucks.  But, you can learn to live again by realizing you will survive the situation that makes you so uncomfortable.  Hope this helps. 

Darlene


 
Zemora

Registered: 05/26/10
Posts: 5
Reply with quote  #4 
Thank you
Yeah Saab, i was reading your post the other day about your wife having it.. sorry about that Its really terrible..
I keep thinking actually, surely somebody would start to do more tests on it if they'd read something like this.
Zemora

Registered: 05/26/10
Posts: 5
Reply with quote  #5 
Thank you
Yeah Saab, i was reading your post the other day about your wife having it.. sorry about that Its really terrible..
I keep thinking actually, surely somebody would start to do more tests on it if they'd read something like this.
Zemora

Registered: 05/26/10
Posts: 5
Reply with quote  #6 
Thank you I keep thinking that they'd surely do more tests if they saw a site like this... Oh yeah Saab i saw your post the other day saying how your wife also has it .. sorry about that, its terrible.. x
saab1216

Registered: 04/15/10
Posts: 152
Reply with quote  #7 
Zemora,Wife doesnt get a stabbing pain like I do when i listen to digital t.v. or when people sniff sharply. Eating and lip smacking cannot be ignored with me either. I am confused about my condition because it seems as if my sensitivities to high frequencies has tripled since my real bout with hyperacusis last year. I cant stand some birds as well. They can be irrtating and a little painful. I dont expect answers from anyone as Ive been told that my case is a mystery.
aQuieterBreeze

Registered: 02/03/08
Posts: 2,083
Reply with quote  #8 
Hi Paul,

I keep wondering if you are gradually working your way into being able to tolerate higher pitched music and vocals.
From what I have read and seen posted, I beleive  that music covers a much wider frequency range than that of the wearable sound generators......
DrJ

Registered: 10/28/08
Posts: 222
Reply with quote  #9 

It is entirely possible to suffer from specific sound sensitivity AND hyperacusis.  Have you been evaluated for Hydrops?  Dr. J


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Marsha Johnson
Zemora

Registered: 05/26/10
Posts: 5
Reply with quote  #10 

I've been to doctors about this and they don't understand it. When i try to tell people that i know what it is, they often don't believe me because i diagnosed it myslef. What should i do?

saab1216

Registered: 04/15/10
Posts: 152
Reply with quote  #11 
Dr.J What is "hydrops?". I started out much worse last year when everything was too loud and hurt. It was bass and especially treble. Now its hearing things that are so shrill and soft at the same time. My ears now focus on lips,breathing and saliva the most.If you are referring to Meniers disease,I really dont think I have that. I dont have any episodes of dizziness at all. I have excellent hearing.
DrJ

Registered: 10/28/08
Posts: 222
Reply with quote  #12 
Hydrops is a problem where the fluid held within the inner ear (hearing and balance organs) builds up without reason and creates extra pressure in the system.  This can cause fluctuating tinnitus, muffling, stuffiness, pressure,  imbalance, and so on.

A test called an Electrocochleography or ECoG is a good test to look for hydrops.  An otologist or audiologist could admnister this test.

Dr. J

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Marsha Johnson
saab1216

Registered: 04/15/10
Posts: 152
Reply with quote  #13 
Dr.Marsha , I am improving with time and constantly challenging my ears to sound. I pretty much have beaten Hyperacusis but I am very sensitive to saliva and lip smacking sounds. The hatred of certain consonants is beginning to really diminish as well. My best bet is that I will beat this whole thing hands down soon enough. I give God the glory for keeping my determined spirit. Hyperacusis  is beatable and you can live a normal life afterwards. It took me almost a year and a half to beat it for good.
DrJ

Registered: 10/28/08
Posts: 222
Reply with quote  #14 

With the divine on your side, who can win against you?  I like your spirit and intentions and send you good wishes for a full recovery!  Very nice.  Dr. M


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Marsha Johnson
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